Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Hi Everyone-- I'm new to this list, and new to RA (I was diagnosed last April, but it still feels pretty new to me). I read some of your postings about rheumatologists not listening to their patients, and I've been having some difficulties with my rheumatologist as well. While I trust his expertise, and I know he has my best interests at heart, I also find him to be quite condescending and impatient with me. So, I've been considering looking around for a second opinion, but I live in an area where there aren't many choices, and I don't want to cut off my relationship with him. Could anyone suggest some tactful/diplomatic ways to deal with this? Thanks! Re: Suggesting meds to doctors? I had to stop taking MTX and then Arava because of very severe stomatitis that made it almost imossible to eat. M Re: [ ] Suggesting meds to doctors? Failure for me with MTX and Arava (I had to fail at two others before being allowed a biologic.) was having a too-low white blood cell count. If your liver enzymes were too high, that could be a failure. If it just wasn't effective at controlling your pain and inflammation, that could be a failure. I'm sure that others will have some more ideas. Sue On Wednesday, January 26, 2005, at 10:32 PM, snowdrift52003 wrote: > > My doctor is not an ego maniac who would cringe at patient input. I > suppose I could just say, " What are your thoughts about my trying a > biologic medicine? " My insurance co. requires me to " fail " on MTX > first. What constitutes failure? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Hi Everyone-- I'm new to this list, and new to RA (I was diagnosed last April, but it still feels pretty new to me). I read some of your postings about rheumatologists not listening to their patients, and I've been having some difficulties with my rheumatologist as well. While I trust his expertise, and I know he has my best interests at heart, I also find him to be quite condescending and impatient with me. So, I've been considering looking around for a second opinion, but I live in an area where there aren't many choices, and I don't want to cut off my relationship with him. Could anyone suggest some tactful/diplomatic ways to deal with this? Thanks! Re: Suggesting meds to doctors? I had to stop taking MTX and then Arava because of very severe stomatitis that made it almost imossible to eat. M Re: [ ] Suggesting meds to doctors? Failure for me with MTX and Arava (I had to fail at two others before being allowed a biologic.) was having a too-low white blood cell count. If your liver enzymes were too high, that could be a failure. If it just wasn't effective at controlling your pain and inflammation, that could be a failure. I'm sure that others will have some more ideas. Sue On Wednesday, January 26, 2005, at 10:32 PM, snowdrift52003 wrote: > > My doctor is not an ego maniac who would cringe at patient input. I > suppose I could just say, " What are your thoughts about my trying a > biologic medicine? " My insurance co. requires me to " fail " on MTX > first. What constitutes failure? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Welcome ! Sorry about your dx, but glad you found our group. You will find so much information about RA, and great support too. When I came to this group, I didn't know much about it. But, now I know more about it, and that other's share what I have to deal with, so I'm not alone. We go through pain, depression, and just know that were always here for you. I'm sorry that your not very happy with your rheumy. I would just keep looking, and try to find one that you like, it's so important. Some doctors sometimes overlook patient's feelings, and they shouldn't do that. They should walk in our shoes, they wouldn't like it, that's for sure. You just do the best that you can do, Tawny --- In , " " <msimmons@p...> wrote: > > Hi Everyone-- > > I'm new to this list, and new to RA (I was diagnosed last April, but it still feels pretty new to me). I read some of your postings about rheumatologists not listening to their patients, and I've been having some difficulties with my rheumatologist as well. While I trust his expertise, and I know he has my best interests at heart, I also find him to be quite condescending and impatient with me. So, I've been considering looking around for a second opinion, but I live in an area where there aren't many choices, and I don't want to cut off my relationship with him. Could anyone suggest some tactful/diplomatic ways to deal with this? Thanks! > > > > > Re: Suggesting meds to doctors? > > > I had to stop taking MTX and then Arava because of very severe stomatitis that made it almost imossible to eat. > > M > Re: [ ] Suggesting meds to doctors? > > > Failure for me with MTX and Arava (I had to fail at two others before > being allowed a biologic.) was having a too-low white blood cell count. > If your liver enzymes were too high, that could be a failure. If it > just wasn't effective at controlling your pain and inflammation, that > could be a failure. I'm sure that others will have some more ideas. > > Sue > > On Wednesday, January 26, 2005, at 10:32 PM, snowdrift52003 wrote: > > > > My doctor is not an ego maniac who would cringe at patient input. I > > suppose I could just say, " What are your thoughts about my trying a > > biologic medicine? " My insurance co. requires me to " fail " on MTX > > first. What constitutes failure? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Welcome ! Sorry about your dx, but glad you found our group. You will find so much information about RA, and great support too. When I came to this group, I didn't know much about it. But, now I know more about it, and that other's share what I have to deal with, so I'm not alone. We go through pain, depression, and just know that were always here for you. I'm sorry that your not very happy with your rheumy. I would just keep looking, and try to find one that you like, it's so important. Some doctors sometimes overlook patient's feelings, and they shouldn't do that. They should walk in our shoes, they wouldn't like it, that's for sure. You just do the best that you can do, Tawny > > > > My doctor is not an ego maniac who would cringe at patient input. I > > suppose I could just say, " What are your thoughts about my trying a > > biologic medicine? " My insurance co. requires me to " fail " on MTX > > first. What constitutes failure? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 In her book, The Miracle of Magnesium, Carolyn Dean, MD, talks about the high value of a Mg test developed in a New York City hospital/med center. I wonder if these two tests are the same or different. Another good Mg site is _www.mgwater.com_ (http://www.mgwater.com) Date: Wed, 05 Oct 2005 05:50:34 -0000 From: " fiplem " <fiplem@...> Subject: Re: Jostled by internal & external sound The intracellular test is different than an RBC mag test in that they sample from tissues collected from the inside of your cheek rather than doing a blood draw. There's much more info on the site that I mentioned in my previous post. It's my understanding that the intracellular test gives a much more complete picture as to what is really happening as regards the body's mineral status. By the way, here's a very good and VERY LONG page that has a lot of info regarding both magnesium and taurine. The author has collected a lot of research that's worth reading I think. Don't let the title fool you. It's not just about depression: http://www.coldcure.com/html/dep.html The page's author sells Mag Taurate on the site, but I have no financial interest in the company. MarkM mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
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