Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Dear ia Lifting: DO NOT lift anything in the first 8 weeks. Your back is still recovering from a major insult and needs time to heal itself. Feet: it depends what you mean by symptomatic. If you are having more tingling, pins and needles (all the familiar stuff to TCSers!) then that is probably the nerves starting to work again, in random ways. Those symptoms will reduce gradually. Shoes: nope, I have given up on ever being able to wear decent shoes. Flat sandals are my best bet, as any pressure on my feet is unbearable and their shape means I can't fit into anything nice. Driving: again, what do you mean? I wasn't allowed to drive for 3 weeks, but other people I know were banned for at least 8 weeks. Take it slowly and make sure you can react to emergency stops etc before getting back behind the wheel. Also, you will find that you will get VERY tired quickly, so bear that in mind when you drive any long way OK, hope that helps. Speak to you soon Regards Nina Bristol, UK -- > HI everyone > My surgeon told me not to lift my 32 lb toddler, of course that is > impossible unless I had a permanent helper 24/7. It is sound advice b/c > my legs hurt when I do lift him and for most things I try not to lift him > but anyone who has had a 2 year old knows what it's like. This makes > grocery shopping and other activities very difficult. I'm curious, does > anyone know if you are banned from lifting long term after detethering > surgery? My second question is, does anyone have any thoughts, symptoms > to share as far as driving and your feet and whether feet seem to be the > most symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hi Your not usually restricted from lifting after your back is fully healed. I also was detethered when I had two young children. You have to look out for yourself right now...you won't be any good to them if you permanetly injure yourself. I found creative ways to get around lifting them. When we went grocery shopping, I would wheel the cart up to the van and they would climb in and out with a little help of course. Don't ever lift them up to you, sit on the couch where they can climb into your lap. My feet were hyper sensitive b/f the surgery. Not so bad now...I found that I could tolerate deep pressure (once I got my socks and shoes on...and had a few mins. to adjust, I could tolerate it) but I couldn't tolerate any one touching my feet lightly at all!!!! Hope this helps...let me know if you have more questions! Re: feet/lifting Dear ia Lifting: DO NOT lift anything in the first 8 weeks. Your back is still recovering from a major insult and needs time to heal itself. Feet: it depends what you mean by symptomatic. If you are having more tingling, pins and needles (all the familiar stuff to TCSers!) then that is probably the nerves starting to work again, in random ways. Those symptoms will reduce gradually. Shoes: nope, I have given up on ever being able to wear decent shoes. Flat sandals are my best bet, as any pressure on my feet is unbearable and their shape means I can't fit into anything nice. Driving: again, what do you mean? I wasn't allowed to drive for 3 weeks, but other people I know were banned for at least 8 weeks. Take it slowly and make sure you can react to emergency stops etc before getting back behind the wheel. Also, you will find that you will get VERY tired quickly, so bear that in mind when you drive any long way OK, hope that helps. Speak to you soon Regards Nina Bristol, UK -- > HI everyone > My surgeon told me not to lift my 32 lb toddler, of course that is > impossible unless I had a permanent helper 24/7. It is sound advice b/c > my legs hurt when I do lift him and for most things I try not to lift him > but anyone who has had a 2 year old knows what it's like. This makes > grocery shopping and other activities very difficult. I'm curious, does > anyone know if you are banned from lifting long term after detethering > surgery? My second question is, does anyone have any thoughts, symptoms > to share as far as driving and your feet and whether feet seem to be the > most symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 I've heard wonderful thing about Birkenstocks, the clogs. I can't wear clogs at all because my feet are not shaped right for shoes without a back (they just flop off of my feet). Don't lift. They tell you that for a good reason. For awhile, you have to worry about a fluid leak, but until you're fully healed, you can really hurt your chances for being pain free. I lifted something a few months after my surgery, felt a popping/pulling in my back, and I've had pain in my legs ever since (8 years). I have a two year old. Why is it when they're a year old, and little, they want to walk by themselves, but then they get to be old enough to walk by themselves easily, they want to be carried again? I can't carry Dylan very far anyway, so he walks a lot behind me, whining that he wants me to hold him. But I do have to carry him sometimes. I would suggest you have your child get up on a chair and grab him from there instead of dead-lifting from the floor. I know there isn't any way a mom can get out of that, even if you had a 24/7 helper, because that's what moms do. So just try to make it easier on your back by not lifting as much as just grabbing. I drove after both surgeries within a week. I wasn't supposed to, but my dog ran away about 8 days post op with the last surgery, and there was no way I could ignore the cries of my little boys who wanted to know where the dog was. So I jumped in the car and looked for him. Just take care of yourself as much as you can. I know how hard it is to do that, but try. --- A Gosp wrote: > HI everyone > My surgeon told me not to lift my 32 lb toddler, of > course that is impossible unless I had a permanent > helper 24/7. It is sound advice b/c my legs hurt > when I do lift him and for most things I try not to > lift him but anyone who has had a 2 year old knows > what it's like. This makes grocery shopping and > other activities very difficult. > I'm curious, does anyone know if you are banned from > lifting long term after detethering surgery? > My second question is, does anyone have any > thoughts, symptoms to share as far as driving and > your feet and whether feet seem to be the most > symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Greetings, I am in no way an expert on the topic, but as a former (relatively) high level athlete subsequently diagnosed with TCS I have done a lot of research on the physical fitness side of this question. Current thought regarding lifting is that the WORST thing you can do is to avoid lifting. The key to regaining or retaining functionality is to learn how to lift correctly and then strengthen the muscles involved, which in many of our cases were unnaturally weakened thru the years of pain and other symptoms. My understanding is that after surgical damage has healed - usually within 2 weeks - it is essential to try and regain full movement and use of the back. Pain during movement is not exclusively a sign of something " wrong " which means to stop doing it. It is often the sign of adhesions being loosened and unused muscles being tasked. If you have no prior experience with exercise it is imperative to contact a therapist and arrange to be shown exercises that will strengthen the back, the stomach and the legs (particularly the quadriceps). Be careful, but be determined! Good luck, --- A Gosp wrote: > HI everyone > My surgeon told me not to lift my 32 lb toddler, of > course that is impossible unless I had a permanent > helper 24/7. It is sound advice b/c my legs hurt > when I do lift him and for most things I try not to > lift him but anyone who has had a 2 year old knows > what it's like. This makes grocery shopping and > other activities very difficult. > I'm curious, does anyone know if you are banned from > lifting long term after detethering surgery? > My second question is, does anyone have any > thoughts, symptoms to share as far as driving and > your feet and whether feet seem to be the most > symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Dear I am currently updating my website about TC and would like to use your words about post-op activities - would that be OK. Regards Nina <http://www.btinternet.com/~tetheredcordresources/> --On 26 January 2006 00:37 -0800 Sportolari wrote: > Greetings, > I am in no way an expert on the topic, but as a former > (relatively) high level athlete subsequently diagnosed > with TCS I have done a lot of research on the physical > fitness side of this question. Current thought > regarding lifting is that the WORST thing you can do > is to avoid lifting. The key to regaining or retaining > functionality is to learn how to lift correctly and > then strengthen the muscles involved, which in many of > our cases were unnaturally weakened thru the years of > pain and other symptoms. My understanding is that > after surgical damage has healed - usually within 2 > weeks - it is essential to try and regain full > movement and use of the back. Pain during movement is > not exclusively a sign of something " wrong " which > means to stop doing it. It is often the sign of > adhesions being loosened and unused muscles being > tasked. If you have no prior experience with exercise > it is imperative to contact a therapist and arrange to > be shown exercises that will strengthen the back, the > stomach and the legs (particularly the quadriceps). Be > careful, but be determined! Good luck, > > --- A Gosp wrote: > >> HI everyone >> My surgeon told me not to lift my 32 lb toddler, of >> course that is impossible unless I had a permanent >> helper 24/7. It is sound advice b/c my legs hurt >> when I do lift him and for most things I try not to >> lift him but anyone who has had a 2 year old knows >> what it's like. This makes grocery shopping and >> other activities very difficult. >> I'm curious, does anyone know if you are banned from >> lifting long term after detethering surgery? >> My second question is, does anyone have any >> thoughts, symptoms to share as far as driving and >> your feet and whether feet seem to be the most >> symptomatic area? TSC and shoes? Any good ideas? >> >> THANKS! >> >> [Non-text portions of this message have been >> removed] >> >> > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi, I'd agree with that .My sons detether was in April 05 and after 12 weeks he was told he could do all sport etc.He had some minor discomfort at the beggining but now theres no stopping him. Sportolari wrote: Greetings, I am in no way an expert on the topic, but as a former (relatively) high level athlete subsequently diagnosed with TCS I have done a lot of research on the physical fitness side of this question. Current thought regarding lifting is that the WORST thing you can do is to avoid lifting. The key to regaining or retaining functionality is to learn how to lift correctly and then strengthen the muscles involved, which in many of our cases were unnaturally weakened thru the years of pain and other symptoms. My understanding is that after surgical damage has healed - usually within 2 weeks - it is essential to try and regain full movement and use of the back. Pain during movement is not exclusively a sign of something " wrong " which means to stop doing it. It is often the sign of adhesions being loosened and unused muscles being tasked. If you have no prior experience with exercise it is imperative to contact a therapist and arrange to be shown exercises that will strengthen the back, the stomach and the legs (particularly the quadriceps). Be careful, but be determined! Good luck, --- A Gosp wrote: > HI everyone > My surgeon told me not to lift my 32 lb toddler, of > course that is impossible unless I had a permanent > helper 24/7. It is sound advice b/c my legs hurt > when I do lift him and for most things I try not to > lift him but anyone who has had a 2 year old knows > what it's like. This makes grocery shopping and > other activities very difficult. > I'm curious, does anyone know if you are banned from > lifting long term after detethering surgery? > My second question is, does anyone have any > thoughts, symptoms to share as far as driving and > your feet and whether feet seem to be the most > symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi, I work out(weight training) with a trainer twice a week. We are even doing squats and dead lifts, light weights of course. My lower back has never felt better. You just have to know your body and your limits. Don't overdo it. . Alison wrote: Hi, I'd agree with that .My sons detether was in April 05 and after 12 weeks he was told he could do all sport etc.He had some minor discomfort at the beggining but now theres no stopping him. Sportolari wrote: Greetings, I am in no way an expert on the topic, but as a former (relatively) high level athlete subsequently diagnosed with TCS I have done a lot of research on the physical fitness side of this question. Current thought regarding lifting is that the WORST thing you can do is to avoid lifting. The key to regaining or retaining functionality is to learn how to lift correctly and then strengthen the muscles involved, which in many of our cases were unnaturally weakened thru the years of pain and other symptoms. My understanding is that after surgical damage has healed - usually within 2 weeks - it is essential to try and regain full movement and use of the back. Pain during movement is not exclusively a sign of something " wrong " which means to stop doing it. It is often the sign of adhesions being loosened and unused muscles being tasked. If you have no prior experience with exercise it is imperative to contact a therapist and arrange to be shown exercises that will strengthen the back, the stomach and the legs (particularly the quadriceps). Be careful, but be determined! Good luck, --- A Gosp wrote: > HI everyone > My surgeon told me not to lift my 32 lb toddler, of > course that is impossible unless I had a permanent > helper 24/7. It is sound advice b/c my legs hurt > when I do lift him and for most things I try not to > lift him but anyone who has had a 2 year old knows > what it's like. This makes grocery shopping and > other activities very difficult. > I'm curious, does anyone know if you are banned from > lifting long term after detethering surgery? > My second question is, does anyone have any > thoughts, symptoms to share as far as driving and > your feet and whether feet seem to be the most > symptomatic area? TSC and shoes? Any good ideas? > > THANKS! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Nina, gladly. Again: I am not in any way a trained therapist or medical person. It is essential to get professional guidance when planning/resuming physical therapy! Rgds, --- " AB Bunton, Electrical & Electronic Engineering " wrote: > Dear > > I am currently updating my website about TC and > would like to use your > words about post-op activities - would that be OK. > > Regards > > Nina > <http://www.btinternet.com/~tetheredcordresources/> > > > --On 26 January 2006 00:37 -0800 Sportolari > wrote: > > > Greetings, > > I am in no way an expert on the topic, but as a > former > > (relatively) high level athlete subsequently > diagnosed > > with TCS I have done a lot of research on the > physical > > fitness side of this question. Current thought > > regarding lifting is that the WORST thing you can > do > > is to avoid lifting. The key to regaining or > retaining > > functionality is to learn how to lift correctly > and > > then strengthen the muscles involved, which in > many of > > our cases were unnaturally weakened thru the years > of > > pain and other symptoms. My understanding is that > > after surgical damage has healed - usually within > 2 > > weeks - it is essential to try and regain full > > movement and use of the back. Pain during movement > is > > not exclusively a sign of something " wrong " which > > means to stop doing it. It is often the sign of > > adhesions being loosened and unused muscles being > > tasked. If you have no prior experience with > exercise > > it is imperative to contact a therapist and > arrange to > > be shown exercises that will strengthen the back, > the > > stomach and the legs (particularly the > quadriceps). Be > > careful, but be determined! Good luck, > > > > --- A Gosp wrote: > > > >> HI everyone > >> My surgeon told me not to lift my 32 lb toddler, > of > >> course that is impossible unless I had a > permanent > >> helper 24/7. It is sound advice b/c my legs hurt > >> when I do lift him and for most things I try not > to > >> lift him but anyone who has had a 2 year old > knows > >> what it's like. This makes grocery shopping and > >> other activities very difficult. > >> I'm curious, does anyone know if you are banned > from > >> lifting long term after detethering surgery? > >> My second question is, does anyone have any > >> thoughts, symptoms to share as far as driving and > >> your feet and whether feet seem to be the most > >> symptomatic area? TSC and shoes? Any good ideas? > >> > >> THANKS! > >> > >> [Non-text portions of this message have been > >> removed] > >> > >> > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi everyone THANKS FOR ALL YOUR HELP AND responses! I've learned a lot from the collections of experiences here! Your input is very encouraging! I have a very good physical therapist (the 2nd one, 1st one almost killed me). I haven't gotten to see her yet since the surgery but will go. I'm planning to join a gym too. Even before I knew I had tsc and was having so much probems the PT was very helpful in identifying my weak areas and giving me the right exercises for them. I eventually used that information push for a diagnosis. I continued to deteriorate at the time b/c of tsc progression but I've managed to keep some of the back/abd strength that has been very helpful to recover from surgery and turn in bed in the hospital. My right leg is still weaker than the left but I haven't been falling on it or dragging it which is nice. I'm planning to get back to lifting ankle weights and doing abs, etc. When I first started with PT #2 I couldn't lift my own leg with no weight more than a few times, I got to the point of lifting 4 lbs and doing 40-50 repetitions so I was pretty excited. I hope now with the re-wiring it will help to strengthen areas that I couldn't strengthen before b/c lack of wiring. I have no significant back pain, all the pain is in my right leg that still gets that deep nerve pain and then my feet. As far as 's experience as a high altitude athlete, did you go back to your prior activities? I think I'm " done with " high impact risky things like skiing, horseback riding, rollercoasters for now but I'd be curious if anyone has any experience returning to such activities. Have a good day! ia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi I made it a point to ask my nsg about rollercoasters b/c we were taking the kids to Disney 2 mos after my surgery. He said not a problem at all! I did go on all of them and didn't have any issues! The worst part was the fatigue from walking and standing so much. I too don't feel comfortable about returning to my rollerblades. Feels like its too risky if I fall backwards (I've only fallen once when I first started - on my elbow) but with my luck my next fall will be right on my butt! Re: feet/lifting Hi everyone THANKS FOR ALL YOUR HELP AND responses! I've learned a lot from the collections of experiences here! Your input is very encouraging! I have a very good physical therapist (the 2nd one, 1st one almost killed me). I haven't gotten to see her yet since the surgery but will go. I'm planning to join a gym too. Even before I knew I had tsc and was having so much probems the PT was very helpful in identifying my weak areas and giving me the right exercises for them. I eventually used that information push for a diagnosis. I continued to deteriorate at the time b/c of tsc progression but I've managed to keep some of the back/abd strength that has been very helpful to recover from surgery and turn in bed in the hospital. My right leg is still weaker than the left but I haven't been falling on it or dragging it which is nice. I'm planning to get back to lifting ankle weights and doing abs, etc. When I first started with PT #2 I couldn't lift my own leg with no weight more than a few times, I got to the point of lifting 4 lbs and doing 40-50 repetitions so I was pretty excited. I hope now with the re-wiring it will help to strengthen areas that I couldn't strengthen before b/c lack of wiring. I have no significant back pain, all the pain is in my right leg that still gets that deep nerve pain and then my feet. As far as 's experience as a high altitude athlete, did you go back to your prior activities? I think I'm " done with " high impact risky things like skiing, horseback riding, rollercoasters for now but I'd be curious if anyone has any experience returning to such activities. Have a good day! ia Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Hi ia, I am far past my real days as an active athlete (I turn 50 in a couple of months) but I can tell you that 2 years after de-tethering I am doing regular weight lifting with heavy weights - I can leg press more now than I could when I was at my peak performance 30 years ago. I could never build my lower body enough when I was young - now I know it was due to the undiagnosed TCS. Since the operation I have made excellent progress using a modern weight training system called power of ten. If you are interested look at the website (poweroften.com). The principle is to do ultra-slow movements which results in less chance of injury to joints/muscles. I feel great after the workout sessions but must admit that the tingling in my right foot increases for a few hours. I discussed this symptom with my NS who advised me to continue and monitor this carefully. I guess in conclusion I would say that " careful " should be a key word for anyone doing weight training whether TCS patient or not. Rgds, --- A Gosp wrote: > Hi everyone > THANKS FOR ALL YOUR HELP AND responses! I've learned > a lot from the > collections of experiences here! > Your input is very encouraging! > I have a very good physical therapist (the 2nd one, > 1st one almost killed > me). I haven't gotten to see her yet since the > surgery but will go. I'm > planning to join a gym too. Even before I knew I had > tsc and was having so > much probems the PT was very helpful in identifying > my weak areas and giving > me the right exercises for them. I eventually used > that information push for > a diagnosis. I continued to deteriorate at the time > b/c of tsc progression > but I've managed to keep some of the back/abd > strength that has been very > helpful to recover from surgery and turn in bed in > the hospital. My right > leg is still weaker than the left but I haven't been > falling on it or > dragging it which is nice. I'm planning to get back > to lifting ankle weights > and doing abs, etc. When I first started with PT #2 > I couldn't lift my own > leg with no weight more than a few times, I got to > the point of lifting 4 > lbs and doing 40-50 repetitions so I was pretty > excited. I hope now with the > re-wiring it will help to strengthen areas that I > couldn't strengthen before > b/c lack of wiring. I have no significant back pain, > all the pain is in my > right leg that still gets that deep nerve pain and > then my feet. > As far as 's experience as a high altitude > athlete, did you go back to > your prior activities? > I think I'm " done with " high impact risky things > like skiing, horseback > riding, rollercoasters for now but I'd be curious if > anyone has any > experience returning to such activities. > > Have a good day! > ia > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Dear ia, I am now nearly 15 years past my detethering of tethered spinal cord and still cannot lift anything like a toddler. When my own children were small, (they're grown-up now) I had to teach them to climb up into the highchair, cot or supermarket trolley where I needed the youngest to be. He did not walk until he was 17 months old but accepted the climbing with the result that we had to buy him a bed quite early as he learnt to launch himself off the top bar of his cot! They both also learnt to accept that I could not have their weight on my lap and they had to have cuddles standing next to the chair I was sitting in. Children do accept these things and other mothers wondered at how my two children never ran off as theirs did whilst waiting. I had to accept that I could not lift them, as, whenever tried to, I would land flat on top of them. It must all depend on your individual anatomy and problems. The doctors are now telling me that my spinal cord is damaged, by life, from having been tethered right to the skin at the sacrum level for the first 34 years of my life. Hope this may help. Best wishes, , Lincoln, UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Thnk you!! Will try!! A > >Reply-To: tetheredspinalcord >To: tetheredspinalcord >Subject: Re: feet/lifting >Date: Thu, 26 Jan 2006 23:39:32 -0800 (PST) > >Hi ia, >I am far past my real days as an active athlete (I >turn 50 in a couple of months) but I can tell you that >2 years after de-tethering I am doing regular weight >lifting with heavy weights - I can leg press more now >than I could when I was at my peak performance 30 >years ago. I could never build my lower body enough >when I was young - now I know it was due to the >undiagnosed TCS. Since the operation I have made >excellent progress using a modern weight training >system called power of ten. If you are interested look >at the website (poweroften.com). The principle is to >do ultra-slow movements which results in less chance >of injury to joints/muscles. I feel great after the >workout sessions but must admit that the tingling in >my right foot increases for a few hours. I discussed >this symptom with my NS who advised me to continue and >monitor this carefully. I guess in conclusion I would >say that " careful " should be a key word for anyone >doing weight training whether TCS patient or not. >Rgds, > >--- A Gosp wrote: > > > Hi everyone > > THANKS FOR ALL YOUR HELP AND responses! I've learned > > a lot from the > > collections of experiences here! > > Your input is very encouraging! > > I have a very good physical therapist (the 2nd one, > > 1st one almost killed > > me). I haven't gotten to see her yet since the > > surgery but will go. I'm > > planning to join a gym too. Even before I knew I had > > tsc and was having so > > much probems the PT was very helpful in identifying > > my weak areas and giving > > me the right exercises for them. I eventually used > > that information push for > > a diagnosis. I continued to deteriorate at the time > > b/c of tsc progression > > but I've managed to keep some of the back/abd > > strength that has been very > > helpful to recover from surgery and turn in bed in > > the hospital. My right > > leg is still weaker than the left but I haven't been > > falling on it or > > dragging it which is nice. I'm planning to get back > > to lifting ankle weights > > and doing abs, etc. When I first started with PT #2 > > I couldn't lift my own > > leg with no weight more than a few times, I got to > > the point of lifting 4 > > lbs and doing 40-50 repetitions so I was pretty > > excited. I hope now with the > > re-wiring it will help to strengthen areas that I > > couldn't strengthen before > > b/c lack of wiring. I have no significant back pain, > > all the pain is in my > > right leg that still gets that deep nerve pain and > > then my feet. > > As far as 's experience as a high altitude > > athlete, did you go back to > > your prior activities? > > I think I'm " done with " high impact risky things > > like skiing, horseback > > riding, rollercoasters for now but I'd be curious if > > anyone has any > > experience returning to such activities. > > > > Have a good day! > > ia > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hei Norway calling.... I have the same problem as you have.. lifting things... i can't go shopping on my own any more.. i could for almost a year after surgery.. but the last three years i have had theese problems.. and sorry to tell it is getting worse. I am still driving my car... but now i have to make it easyer by changing the seat.. Luckily my children has got older and they are very easy to ask for help... and they know why.. and they are used to it now. Sorry if my english is bad,,, but this is not my first language.. Beate > HI everyone > My surgeon told me not to lift my 32 lb toddler, of course that is > impossible unless I had a permanent helper 24/7. It is sound advice b/c my > legs hurt when I do lift him and for most things I try not to lift him but > anyone who has had a 2 year old knows what it's like. This makes grocery > shopping and other activities very difficult. > I'm curious, does anyone know if you are banned from lifting long term > after detethering surgery? > My second question is, does anyone have any thoughts, symptoms to share as > far as driving and your feet and whether feet seem to be the most > symptomatic area? TSC and shoes? Any good ideas? > > THANKS! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 From what I've heard, generally the restrictions are not long term. Me Nebraska, USA mymocha@... > I'm curious, does anyone know if you are banned from lifting long term > after detethering surgery? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 After both of my releases, it has only been short term. You gradually increase according to your nsg...but mine was less than ten pounds for the first month, up to 20 the 2nd month, up to 30 the 3rd...then to tolerance. Re: feet/lifting From what I've heard, generally the restrictions are not long term. Me Nebraska, USA mymocha@... > I'm curious, does anyone know if you are banned from lifting long term > after detethering surgery? Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 I know Rollercoasters and such things are cautioned against when you have Chiari (ACM). However, I haven't heard of such with Tethered Cord alone. I would use my discretion, though, especially if you are Symptomatic. Me Nebraska, USA mymocha@... > I made it a point to ask my nsg about rollercoasters b/c we were taking > the kids to Disney 2 mos after my surgery. He said not a problem at all! > I did go on all of them and didn't have any issues! The worst part was > the fatigue from walking and standing so much. I too don't feel > comfortable about returning to my rollerblades. Feels like its too risky > if I fall backwards (I've only fallen once when I first started - on my > elbow) but with my luck my next fall will be right on my butt! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.