Re: question

[Guest guest]

Chiara:

Sounds like you would benefit greatly from biofeedback, the primary

purpose of which is to retrain those muscles to relax. Have you looked

into physical therapy at all? I use the skills I learned in PT every

time I have intercourse. Without those newly learned skills of pelvic

relaxation, intercourse would be impossible for me.

Stacey

[Guest guest]

Dawn,

Apply a very thin layer, use an amount about the size of a pea.

-Kitty

I have a question. My doctor called in a prescription for Xylocaine due to

>the severe pain I'm having in the vulva area. The directions say use

4x/day,

>however, they don't say how much. Has anyone else use this or have any

idea

>how it should be applied.

>

>Thanks,

>Dawn

>

[Guest guest]

Pam,

I asked that very same question not too long ago.

Rick has two daughters, both are showing " minor " chiari-type symptoms.

I am so afraid that the numerous doctor trips and endless search for

information has been making me " see " things in them that aren't really

what I think. (Did that make sense?)

I was told that Graham in Oz and his daughter both have Chiari, as a

reference.

Good luck in finding answers!

Wendi--New Mexico

<00dc01bec884$bce7d1e0$b4c32fd-@pam> wrote:

original article:/group/chiari/?start=20054

> Hey all, this is just a question, I know I have heard chiari members

here have family members with it oo, mostly mother /child,

sister/sister. but out of curosity, how many fathers have it and their

children have it? have they figured out enough yet to know if it is

passed more ont the mothers side than the fathers?

> reason I am asking, I have it, my daughter has it, ok,... my husbands

older (late 70) cousin has it with a syrinx, her child died at 4 weeks

with hydrosafalus(?) and spinal bifida, now his uncle just found out he

has chiari and syrinx, and he has a twin brother that has had more

trouble than him, pain inthe arms dropping things, " heart "

troubles(cant seem to get him to get a mri)

> so, we have it on both sides, more on his, but I am sure my sister

has it, I am babling,

> PamH

>

>

------------------------------------------------------------------------

eGroups.com home: /group/chiari

- Simplifying group communications

[Guest guest]

shron6-@... wrote:

The question of genetics is yet to be answered, so based on that -- no,

she is not wrong. If she is qualified to dx Chiari, and sees it on

your films, I would believe her over a lack of a family history. Your

father's neurologist needs to brush up on his studies, looks like! (Now -- trying to convince him of that is quite another story! *G*)

Go with the person most qualified and with the most info. My

condolences, but I would like to be the first(?) to welcome you to the

bunch! I don't recall seeing your addy on the list before now (but I

wouldn't go by my recollections these days! *G?*) -- this is a terrific

bunch of people. I know you'll find plenty of help and inspiration

here, as I have! I'm still pretty new, but if you need an ear to bend

or a shoulder to cry on, I'm here!

Blessings,

Sharon in Nashville aka "Beep"

sharon-palmer@... / ICQ #3840221

Recently dx'd with ACM, possible SM

original article:/group/chiari/?start=22912

> My fathers nerurologist claims I cannot have Chiari since I have no

family > history. Now, I have sent films to Dr. Heffez who called and says I > definately have Chiari I. Is she wrong?

[Guest guest]

Hi Sally,

According to Dr. Koop "Fenestration is the surgical creation of an opening in an organ or bone". Since I am not familiar with the text of your conversation with this woman I am not sure how it is being applied to the 4th ventricle, but at least now you know the definition. lol.

Take care

Hugs,LucyUndecompresed 9-10 mm herniation, Dx. April/99

Re: Question

Hi guys.... Pardon my ignorance, but I am stumped on this terminology. A woman that I have been writing to asked about a : fenestration of the 4th ventricleI don't have a clue. Anyone????? Thanks Sally

WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups

[Guest guest]

Good question

I myself do just fine with a cocktail, but it is 95% cranberry 5% apple I

think, as far as getting a pure one like you said it is expensive, and the

best price I found here in Tucson is in a frozen concentrate.

I have thought of getting fresh cranberries in bulk and a juicer and making

my own, in the long run it would be more economical. But I have not done it

yet.

Take care

m.

[Guest guest]

In a message dated 5/11/01 9:01:41 AM Eastern Daylight Time,

woodduckflds@... writes:

<< I am having a bad day already. I may have to go back on meds : >>

Hi ,

How long have you been off meds? One bad day should not make a difference.

I'm keeping a positive attitude that you will not have to go back on meds.

Eunice

[Guest guest]

I am having a bad two days actually. Yesterday I hovered at 150 all day.

Today I woke

up at 143. Jumped to 163 with only my water and vitamins. Drank a keto shake

(2-3 carbs) and an hour later I am at 203. I am hungry and frustrated

because I feel like I can't do any better diet wise. I hardly eat any carbs.

Heck- I hardly eat.

I was on Glucophage 500 mg 2 x a day but when my numbers got low my dr let

me go off it. That was 4/22/01. Almost 3 weeks ago. It gave me bad diahrea

and kept me housebound. I really don't want to back on it.

Thanks Eunice- I am quite depressed-

<<Hi ,

How long have you been off meds? One bad day should not make a difference.

I'm keeping a positive attitude that you will not have to go back on meds.

Eunice >>

[Guest guest]

, I can't tell you if the rash is from the medication, but

just in case, you need to report it to your doctor. They have to

report new side affects to, gosh, I don't know where it is, but they

are supposed to report it. This is how they get their info to inform

the rest of us the risk of something. I don't know if the XR caused

it, but I just learned the other stuff from my mom. See, if enough

people report the problem and they see it as a problem they will warn

others about the possibility of this side effect.

Debbie in Utah

> Has anyone that has or is taking Glucophage XR ever had a rash

develop? I have a rash on my neck, and arms and starting on my face

and stomach. The

> Glucophage is the only change and that has been in the last 2

months. I am going to the dr. this morning, the itching is driving

me crazy.

> Friends,

>

> Type 2

> Co-Moderator

> diabetes@y...

> Co-Moderator

> AllergyandAsthmaKids@y...

>

>

>

[Guest guest]

Dear ,

Don't know the full story as I've just come into this

group, but have you tried walking? It seems to help

keep the blood sugar down very successfully for some.

Keep smiling,

Thinking of you,

Warm regards,

Marilyn.

--- wrote:

> I am having a bad two days actually. Yesterday I

> hovered at 150 all day.

> Today I woke

> up at 143. Jumped to 163 with only my water and

> vitamins. Drank a keto shake

> (2-3 carbs) and an hour later I am at 203. I am

> hungry and frustrated

> because I feel like I can't do any better diet wise.

> I hardly eat any carbs.

> Heck- I hardly eat.

>

> I was on Glucophage 500 mg 2 x a day but when my

> numbers got low my dr let

> me go off it. That was 4/22/01. Almost 3 weeks ago.

> It gave me bad diahrea

> and kept me housebound. I really don't want to back

> on it.

> Thanks Eunice- I am quite depressed-

>

> <<Hi ,

>

> How long have you been off meds? One bad day should

> not make a difference.

> I'm keeping a positive attitude that you will not

> have to go back on meds.

> Eunice >>

>

>

> [Non-text portions of this message have been

> removed]

>

>

> To leave this list please go to

> diabetes-unsubscribe

> Hope you come back soon!

>

>

[Guest guest]

He said that a rash was one of the side effects, but it would have been on

the trunk of my body and not my face and arms only. He thinks either I got

into something in the yard, or someone touched me that had been into

something and it irritated me. He gave me a steroid shot and some cream to

help dry it up with the warning that my sugar may elevate.

Thanks everyone for your replies.

Friends,

Re: Question

> , I can't tell you if the rash is from the medication, but

> just in case, you need to report it to your doctor. They have to

> report new side affects to, gosh, I don't know where it is, but they

> are supposed to report it. This is how they get their info to inform

> the rest of us the risk of something. I don't know if the XR caused

> it, but I just learned the other stuff from my mom. See, if enough

> people report the problem and they see it as a problem they will warn

> others about the possibility of this side effect.

>

>

> Debbie in Utah

>

>

>

> > Has anyone that has or is taking Glucophage XR ever had a rash

> develop? I have a rash on my neck, and arms and starting on my face

> and stomach. The

> > Glucophage is the only change and that has been in the last 2

> months. I am going to the dr. this morning, the itching is driving

> me crazy.

> > Friends,

> >

> > Type 2

> > Co-Moderator

> > diabetes@y...

> > Co-Moderator

> > AllergyandAsthmaKids@y...

> >

> >

> >

[Guest guest]

I am sorry you are having a hard time, Hugs.

Friends,

Re: Question

> I am having a bad two days actually. Yesterday I hovered at 150 all day.

> Today I woke

> up at 143. Jumped to 163 with only my water and vitamins. Drank a keto

shake

> (2-3 carbs) and an hour later I am at 203. I am hungry and frustrated

> because I feel like I can't do any better diet wise. I hardly eat any

carbs.

> Heck- I hardly eat.

>

> I was on Glucophage 500 mg 2 x a day but when my numbers got low my dr let

> me go off it. That was 4/22/01. Almost 3 weeks ago. It gave me bad diahrea

> and kept me housebound. I really don't want to back on it.

> Thanks Eunice- I am quite depressed-

>

> <<Hi ,

>

> How long have you been off meds? One bad day should not make a

difference.

> I'm keeping a positive attitude that you will not have to go back on meds.

> Eunice >>

>

>

>

[Guest guest]

Debbie

Good to hear from you again. Hey I have changed meds. If you still can't get

the med. xr from your insurance I have lots left over. If you know what I

mean.

Jeff A

Blue Chip Group, Inc.

www.bluechipgroup.net

jeff@...

----- Original Message -----

---

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[Guest guest]

In a message dated 9/2/01 9:49:59 PM Eastern Daylight Time,

katiebearalicat2@... writes:

> What I was talking about was the fact that some Doctors still think it's ok

> for a diabetic to have high bs's, when in fact it shouldn't be that way at

>

Hi Ali,

I guess my message was abrupt and I do apologize. I just lost a dear friend

to cancer this morning. I probably should not even be reading messages, much

less replying to them. Please forgive me.

I know my doctor has told me that she wants my BG's to be less than 160 two

hrs after a meal. I like my doctor very much and I have confidence in her,

but I know I'm trying to keep my numbers well below 160. One reason for this

is I do not want to go back on medication. If I slip once in a while and

have a high number, I don't worry about it. I know what I have to do to get

those numbers back down.

Eunice

[Guest guest]

Thank, I finally remembered the name of her heart disease. It is Cardio

Myopathy. It is fatal. I appreciate the answers. She told me how much she

was leaking but I can't remember, I do remember she said the dr. said it

wasn't good.

Re: Question

> --- My husband has this. I dont recall all the technical stuff

> except just know its not supposed to be there. Perhaps your friend

> doesn't have that much of a leakage. It has to be monitored.

> Protein in the urine can cause the kidneys to break down.

> My husband has a lot and they have prescribed an ace inhibitor which

> is one of the high blood pressure meds and also another drug, I think

> its Zestrol not sure. He's in bed so can't ask now. He has a 24 hr

> urine sample and a blood sample done each month. He is limited on

> the amount of protein he can have and also on the amount of green

> veggies he can have. His diet is really tough. Potassium has to be

> watched as well. That's because of the huge amount of water pills he

> is on.

> How protein gets in the urine I don't recall. Normally it goes

> through the blood stream. He has kidney damage and we are facing some

> tough stuff ahead.

> Madge

>

>

> In diabetes@y..., " " <sjones319@n...> wrote:

> > I have a friend that has a heart disease. She also is diabetic.

> She says the dr. told her that her kidneys are leaking protein. Can

> someone explain that a little to me?

> >

> >

> >

[Guest guest]

Thank you Madge.

Re: Question

> ---My husband doesn't have the heart disease you mention. He has

> diabetes which has caused the kidney/protein problem.

> Will keep your friend in prayer.

> madge

>

[Guest guest]

Hi P.J.,

I can only speak for myself here. I find hot baths for myself are

wonderful. It helps to loosen muscles in spasm. I usually add some

Epsom salts. Just remember to drink extra water if you use Epsom salts

as it will rob your body of some water. Or so I have heard. But extra

water wouldn't hurt anyway. Gotta keep hydrated and flush out any crap

from your system. Where did you hear that hot baths were bad... I'd be

very interested in finding out if I'm doing something wrong or not.

gentle hugs,

Norah

Norah Bleazard - Burlington, Ontario Canada

www.bleazard.net ~ www.janorlites.com

E-MAIL=

norah.fibroyahoo@...

CHAT=

MSN = black_dak_98@...

Yahoo = drazaelbn

AIM = black98dak

ICQ = 105346330

Fibromites_Fighting_Weight:

http://groups.yahoo.com/group/Fibromites_Fighting_Weight

http://fibromites.ath.cx

poodiejoe wrote:

>Hello! I keep reading that hot baths are bad for FM symptoms. Has anyone

>found this to be true?

>Thanks, P.J.

>

>

[Guest guest]

Ive never heard that, when Im in a really bad flare, the

only relief I get seems to be a hot bath with epsom salts.

Not that it lasts but it sure does relax my tension while

dealign with the fibro pain. Where are you reading that hot

baths are bad for it ? Ive never ever read that anywhere

--- poodiejoe wrote:

---------------------------------

Hello! I keep reading that hot baths are bad for FM

symptoms. Has anyone

found this to be true?

Thanks, P.J.

1. While it is wonderful to share our experiences with

everyone on the list as to what treatments do and don't

work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds

as well as to certain health conditions or just dangerous

in general.

2. If you are in a difficult situation (doesn't matter what

it is) pls don't be afraid to ask for help. It is the

first step to trying to make that situation better.

Have a nice day everyone.

[Guest guest]

Considering all that you have been through lately, I say this sounds

just like stress and preoccupation. MS may have some to do with the

cognitive processing but you sure have been through some stress with

your family. Don't be too hard on yourself. Take a breather and

some time to destress.

Mindy

>

>

>

> Either I am getting incredibly stupid as the days go on or

incredibly forgetful. In the past three weeks, I have lost my

wallet, lost my jacket, lost my brush and comb, misplaced the car

payment money, opened a gallon of milk when I already had one

opened, misread the expiration date on a jar of mayonnaise and threw

it away, and called my dad to see what time he was coming down to

remember that we had already talked about that in the morning, among

other miscellaneous things. I am getting just a tad bit terrified

that I am starting down the road of a new exacerbation. I have been

doing really well and I chalked up the foggy mind syndrome to lack

of sleep, lack of food LOL, and a touch of stress but I am still a

little nervous about it. I don't know whether or not to call the

doctor or give it time. I missed three appointments recently but

they weren't for anything important and I have one today, with the

nephrologist, that I plan to miss too. So the question is, does this

sound like

> it could be the start of a relapse?

>

>

>

>

> ---------------------------------

> Yahoo! FareChase - Search multiple travel sites in one click.

>

[Guest guest]

I think that all who looked at your photos enjoyed them, Bill, love,

n

question

Uh oh - I guess I know now why the doctor is leaning towards MS. Your description is exactly mine. Car sickness, vertigo, leg weakness, horrific pain in lower legs my first 12 or 13 years. And I've never understood why I couldn't walk or stand as long as other people - I didn't look any different that I could tell. But walking or standing for anything over a few minutes at a time - all of my life - has caused fatigue and pain. I can remember being in a 10 mile walk-a-thon when I was 15 and thought I was going to die after 1 mile but kept at it because I didn't want my friends to see any weakness. The knee problems have always been diagnosed at a unilateral weakness in the joints and corrected by surgery - just had the last one on the day before Thanksgiving. But all of my life I've had muscle weakness and yet have always been athletic. Sometimes I did fine with physical demands but more often dealt with side effects such as fatigue and muscle pain/cramping even though I have always eaten right and have used proper supplements for 25+ years. I've never had an attack like you describe though.

Let me ask this - how do vision problems start? My Mom has had hypothyroidism (along with Graves disease and vision related trouble) most of her adult life but that still doesn't show up for me in tests and yet I seem to be having some blurring/focusing trouble. It doesn't happen much but can only be corrected by blinking repeatedly.

Sharon Marsden wrote:

Well, , I was diagnosed in 1998 but I can trace problems back to childhood. When I was 9 I had aching joints and my knees would literally go out of joint or I would suddenly fall down when my legs "gave out" on me. When I was 12 I couldn't walk very far at times and my legs would scream in pain and would become very weak. I'm talking about 300 yards or so. That weakness has continued off and on the rest of my life. I've had fatigue off and on too. When I was 17 I had a severe case of "car sickness" but it lasted for 4 days. I couldn't stand upright from the vertigo and had to literally crawl to the bathroom. Over the years my problems were mostly weakness in my legs and pain in my calves. Then finally the big attack On Labor Day 1997 I woke up with total numbness from my lower ribs to to the tips of my toes on the left side, loss of bladder, slurred speech, complete loss of sensation awareness between hot and cold, and foot drag. That started me on my journey towards MS diagnosis.

What symptoms do you have? So your doctor told you he suspects MS? Most doctors won't say that--they dance around the subject.

Sharon

Yahoo! PersonalsSkip the bars and set-ups and start using Yahoo! Personals for free

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[Guest guest]

Hi ,

When I was diagnosed with MS in 95, I had a lot of vision problems, Optic Neuritis. Looking back before 95, I had eye problems but when I went to see my eye doctor nothing was noted. I went in to get contacts and a week later my vision changed so I thought he gave me the wrong ones, he then re did my vision and gave me a different prescribed contact lenses. Well, then those didn't work for me and I couldn't see out of them. Now, I know that it wasn't the contacts...... This was 10 years prior to my diagnose. Welcome to the group.

Darlene

Kickin Cane Covers

www.canecovers.org

-- [Norton AntiSpam] question

Hi Bill, Thanks for your insight. I have had trouble with the heat for the last several years, but honestly I think it is related more to having gone through menopause (sorry for being so open) but that is no longer an issue and I don't seem to be having as much trouble. My Dad however started having a cluster type of migraine in his 40's due to being out in the heat and to this day he cannot take heat even though the migraines are no longer an issue for him. I'm pretty sure it is from his mother that I have inherited RA and OA. Doesn't matter - I loved that woman dearly!

Your pictures are great - looks like you and your family love doing things together.

Hi heat is a real big enemy to MS I have had double vision now since this past August and I know it was from my being out too long on a few too warm day's we had here in Indiana. I have had 2 steroid treatments and my eye's are a lot better but not back to normal. The heat may have caused you trouble running. Next summer I will limit myself being in the sun too long.

We also took a trip to Florida in April of 2003 and I stayed in the sun too long watching the walt disney parade they have everyday and the sun was so hard on me I couldn't get out of a wheelchair for about 6 weeks. I was glad it went away.

here is a photo of me with my family.

http://moviepics.blogspot.com/

Bill

Yahoo! PersonalsSkip the bars and set-ups and start using Yahoo! Personals for free

[Guest guest]

Same here, Darlene. For years I would go to the eye doc and get a script for glasses. Then I would complain that my vision changed because the glasses didn't work. I could wear them for a few days and then they were too strong. I was treated with skepticism by all, including the eye doctor. Ophthalmologists are SUPPOSED to know what MS does to eyes but they don't. I've been told by two different ophthalmologists in the past 2 years that vision doesn't change unless you have diabetes. I don't have diabetes. I asked my neurologist about that and he said "YES vision changes with MS." So what do you do? My vision at a distance is fuzzy and the eye docs for the past two years keep saying that I'm seeing 20-20. I've never had 20-20 eyes before. I do use glasses for reading. I buy the reading glasses at Wal Mart or drug stores and they work fine for me.

SharonKickin Canes wrote: Hi , When I was diagnosed with MS in 95, I had a lot of vision problems, Optic Neuritis. Looking back before 95, I had eye problems but when I went to see my eye doctor nothing was noted. I went in to get contacts and a week later my vision changed so I thought he gave me the wrong ones, he then re did my vision and gave me a

different prescribed contact lenses. Well, then those didn't work for me and I couldn't see out of them. Now, I know that it wasn't the contacts...... This was 10 years prior to my diagnose. Welcome to the group. Darlene Kickin Cane Covers www.canecovers.org -- [Norton AntiSpam] question Hi Bill, Thanks for your insight. I have had trouble with the heat for the last several years, but honestly I think it is related more to having gone through menopause (sorry for being so open) but that is no longer an issue and I don't seem to be having as much trouble. My Dad however started having a cluster type of migraine in his 40's due to being out in the heat and to this day he cannot take heat

even though the migraines are no longer an issue for him. I'm pretty sure it is from his mother that I have inherited RA and OA. Doesn't matter - I loved that woman dearly! Your pictures are great - looks like you and your family love doing things together. Hi heat is a real big enemy to MS I have had double vision now since this past August and I know it was from my being out too long on a few too warm day's we had here in Indiana. I have had 2 steroid treatments and my eye's are a lot better but not back to normal. The heat may have caused you trouble running. Next summer I will limit myself being in the sun too long. We also took a trip to Florida in April of 2003 and I stayed in the sun too long watching the walt disney parade they have everyday and the sun was so hard on me I couldn't get out of a wheelchair for about 6 weeks. I was glad it went away. here is a photo of me with my family. http://moviepics.blogspot.com/ Bill Yahoo! PersonalsSkip the bars and set-ups and start using Yahoo! Personals for free

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Yahoo! Shopping Find Great Deals on Gifts at Yahoo! Shopping

[Guest guest]

My husband too is just going through all the diagnosis, second and third opinions. We actually decided to talk to the doctors at MD Cancer Center in Houston, Texas. This will be opinion #3. All the pathology slides and results have been sent there via FedEx. They are very easy to work with and very accommodating. We do not live in Texas, we live in Florida. We felt that this was the best place to get another diagnosis. After that we will make the decision as to what final avenue we will take. I do not like any of this one bit, but I know that we are not the first to go through this and will not be the last. If other people were able to deal with it I can too. I will bite the bullet and just get through it. We talked to everyone we could about this disease and the more you talk the more you find that your neighbor has it, your dentist and your

pastor. What we would not do is settle on our local urologist, we figured there were more experienced doctors out there and we went in search of them. If flying to another city is what it takes then that is what we will do. It also works better for us if my husband goes to the appointments alone, I never go. It is too much of a big deal if I tag along. He'll tell me what the doctor said, I do not need to be there. I would cry, not a good thing. Billie Knight wrote: My husband had a second opinion today, this Dr. at least took more ex-rays to verify that it has spread to the bones, instead of saying no radiation because he had a "highly suspicious" bone scan. My question was, What if its

in the lymph nodes also? The reply was If its in the bones its already in the lymph nodes because it spreads there first, then to the bones. Has anyone heard of this?? He is on hormone therapy, because its attached, so no surgery, and first Dr. said it was in the bones so that meant no radiation. Gleason scores were 6s and one 7, PSA 28, 9out of 12 biopsy samples 60 to 100% positive. This really really worries me because basically he has no symptoms of prostate cancer but it has spread to the bones( if indeed it has) This makes me think this could be very aggressive, and I'm a far shot from a medical Dr. Any one have any thoughts along this avenue?? This is sooo stressful. I know we are not walking this road alone, but its sure full of obstacles. Dianne K. New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice.

[Guest guest]

I just happened to go to my rad onca today "first visit 1.5 hrs" he explained everything. Usually if the cancer gets out of the prostate it heads for the seminle viscules, or the close bones first. As he explained the lymph system is the last place you would want to find it because you never know where its going next and dosent show up very good on scans and you cant rad your entire body. Thats where im at. He is considering rad to the entire pelvic area 7 to 12 weeks 5 times a week, high dose to get all the organs and lymph nodes hoping it hasent left the local nodes. He said the odds are 1 out of 10 success rate. He also said I would be very tired, sick and could have some complations later with the bowels. I have an MRI tomorrow of my upper spine because of bone pain there. Ive been on HT for 14 months and its failing. Most research ive found indicate the cancer spreads local like my doc says. My decision is going to be made with my

wife and kids after the MRI. Rad is a common thing for bone mets, so i dont understand your doc's reason of no rad? Billie Knight wrote: My husband had a second opinion today, this Dr. at least took more ex-rays to verify that it has spread to the bones, instead of saying no radiation because he had a "highly suspicious" bone scan. My question was, What if its in the lymph nodes also? The reply was If its in the bones its already in the lymph nodes because it spreads there first, then to the bones. Has anyone heard of this?? He is on hormone therapy, because its attached, so no surgery, and first Dr. said it was in the bones so that meant no radiation. Gleason scores were 6s and one 7, PSA 28, 9out of 12 biopsy samples 60 to 100%

positive. This really really worries me because basically he has no symptoms of prostate cancer but it has spread to the bones( if indeed it has) This makes me think this could be very aggressive, and I'm a far shot from a medical Dr. Any one have any thoughts along this avenue?? This is sooo stressful. I know we are not walking this road alone, but its sure full of obstacles. Dianne K. New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

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Dianne, similar situation here. PSA 2.1, DRE felt tumor, Biopsy

pathology showed Gleason 7. Did the MRI, X-Rays and bone scan. Bone

scan showed a suspicios spot on my pelvic. Very small and neither my

Rad Dr. or Uro Dr. thought it was cancerous. Finally opted for a bone

biopsy and the pathology report showed it as cancer. My point is

depending on the location of the 'spot' you could possibly opt for a

bone scan.

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