Re: Talk to doc and Tues. appt

[Guest guest]

,

It is good to vent and get off your chest. You don't want to keep all of it

in and make things worse.

I hope it is a reaction to the antibiotics. Sounds like you have dealt with

this before. So it makes sense that it is a reaction to the drugs and not UC.

If it was UC, I don't think the Immodium would have helped. I tried that when

I was first dx with UC and it didn't even phase it. I think I had it for 6

months before they finally did a colonoscopy. As always, I will keep you and

everyone else in my prayers.

Speaking of getting off of drugs. I am trying to come off steriods. I have

been on them for about 3 years now. Up and down from 5mg to 30 over the 3

year period. I have been on 5mg for over a month with only going up to 10mg

for a day or two. The goal is to get to 5mg every other day and then off. If

it doesn't work, then the Dr. wants to put me on Imuran or 6MP. I go for one

regular Dr. appt. today for a physical and my Gastro in May. I will keep

praying that I can get off these drugs and get my body somewhat back to

normal.

Take care and we'll keep praying,

Larry

------------------------------------------------------------------------

[Guest guest]

Hi ,

Ed was on Augmentin after his ERCP/Stent removal last Fall. He had diarrhea

from that too and had to get off it. It's a reasonably new drug I think and

strong...

Don't worry about the " whining " . As I've said before I feel that those of us

dealing with this disease have good reason. Healthy people with no one to worry

about but themselves don't!

Ed has also had high blood pressure (in the hospital). It worried me,but,they

told us it's common for people with PSC. It's probably good to keep an eye on

it.

Well, have fun in the sun this weekend! I'm also heading towards the ocean. I'm

taking my mom out for her birthday tommorow and we're going to a restaurant by

the ocean!

Take care,

Gracie

wrote:

Original Article: /list//?start=1459

> Hi, all,

> After having just terrible diahrrea, I finally called my doc. I got

> worried that it might be Ulcerative Colitis, which I've fortunately

> never had to deal with.

>

> Well, my doc said that it was probably from the antibiotics (Augmentin)

> that I take daily. It's time for me to go off of them for a three-day

> rest, so I am keeping my fingers crossed that it's only a symptom from

> the antibiotics. It was really miserable. Have any of you experienced

> this wonderful side effect from the antibiotics? Immodium was the only

> thing that stopped it.

>

> Dr. Lee said I needed to eat yogurt to help out, so I'm off to the

> health food store to get organic live culture yogurt tomorrow.

>

> Finally, I have to meet with a new gastrointerologist Tuesday, and I

> just have to whine a little about it. I don't have to see him often,

> but Dr. Lee wanted me to have a backup GI doc in case I had to go to the

> ER for another bleeding episode. I HATE going through my entire history

> with someone new, not knowing if I can work with him, and whether he can

> work with NEMC...YUK..YUK...YUK.

>

> One last whine, and then I am through...just had to get the complaining

> off my chest....I started to have strong heart palpitations yesterday.

> My doc said it is probably due to a paradoxical reaction to the blood

> pressure medicine...that as the beta blocker tries to lower the blood

> pressure, my body attempts to compensate for it. Now, I have to take my

> pulse and blood pressure daily and keep a journal for her...one more

> chore to add to the list of many.

>

> I know that, in comparison to others' situations, mine is trivial, but

> it sure does help to have a place to vent these frustrations.

>

> OK...I'm done...This weekend I am going to the ocean and enjoy the salt

> air...maybe even eat some lobster.

>

> Thanks for listening.

>

>

>

------------------------------------------------------------------------

[Guest guest]

Larry,

I am trying to get off steroids as well. What side effects are you having

as your dosage is being reduced? I am down to 10 mgs now and hope to start

decreasing to 5mg. next week.

Janet

Re: Talk to doc and Tues. appt

> ,

>

> It is good to vent and get off your chest. You don't want to keep all of

it

> in and make things worse.

>

> I hope it is a reaction to the antibiotics. Sounds like you have dealt

with

> this before. So it makes sense that it is a reaction to the drugs and not

UC.

> If it was UC, I don't think the Immodium would have helped. I tried that

when

> I was first dx with UC and it didn't even phase it. I think I had it for 6

> months before they finally did a colonoscopy. As always, I will keep you

and

> everyone else in my prayers.

>

> Speaking of getting off of drugs. I am trying to come off steriods. I have

> been on them for about 3 years now. Up and down from 5mg to 30 over the 3

> year period. I have been on 5mg for over a month with only going up to

10mg

> for a day or two. The goal is to get to 5mg every other day and then off.

If

> it doesn't work, then the Dr. wants to put me on Imuran or 6MP. I go for

one

> regular Dr. appt. today for a physical and my Gastro in May. I will keep

> praying that I can get off these drugs and get my body somewhat back to

> normal.

>

> Take care and we'll keep praying,

>

> Larry

>

>

>

>

> ------------------------------------------------------------------------

> eGroups Spotlight:

> " innovative-teaching " - keeping teachers up to date with Internet

resources.

> http://clickhere.eGroups.com/click/18

>

>

>

[Guest guest]

Janet,

Gald to hear that you're getting off them too. I have been trying for 5

months now to get to 5mg every other day. I hope it works this time.

I haven't really noticed too many side effects with the drop in dosage.

Although I have read that you start to experience hair loss. I can't tell if

that is effected because I have been losing that part for a long time now.

Usually when you are on the prednisone for a long period you tend to gain

more hair so the stuff you are losing is the excess. If you're hair does

start to thin it will soon grow back.

If you had joint pains before you may start to feel those again. The steriods

tend to mask any of those problems. Before I started, my knuckles in my hands

would hurt. That went away after I started the steriods. I now take calcium

with D two times a day. I also take glucosamine and chondroitrin for joint

repair. Steriods will also mess up the bones over a long period of time so I

am trying to prevent that from happening.

If you have been on the steriods for longer than 3 years you should probably

get a bone density scan. I had one 5 months ago and everything was fine.

I hope this helps.

Larry

------------------------------------------------------------------------

[Guest guest]

Thanks for the prayers, Larry. I came off of steroids after 11 years (and after

having gained a whopping 90 lbs). I finally had to see an endocrinologist to

get

off, but it really feels great to finally be rid of the difficulties they can

cause. Good luck with it. Watch for 1)nausea; 2)lack of energy; 3) very dry,

scaly skin; and 4) joint aches. These were symptoms I experienced that said I

was coming off too fast, and they had to adjust the dosage so that there wasn't

a

drastic reduction of the steroids. I'll keep my fingers crossed that you'll

have

an easy time of it.

OneAVIDman@... wrote:

> ,

>

> It is good to vent and get off your chest. You don't want to keep all of it

> in and make things worse.

>

> I hope it is a reaction to the antibiotics. Sounds like you have dealt with

> this before. So it makes sense that it is a reaction to the drugs and not UC.

> If it was UC, I don't think the Immodium would have helped. I tried that when

> I was first dx with UC and it didn't even phase it. I think I had it for 6

> months before they finally did a colonoscopy. As always, I will keep you and

> everyone else in my prayers.

>

> Speaking of getting off of drugs. I am trying to come off steriods. I have

> been on them for about 3 years now. Up and down from 5mg to 30 over the 3

> year period. I have been on 5mg for over a month with only going up to 10mg

> for a day or two. The goal is to get to 5mg every other day and then off. If

> it doesn't work, then the Dr. wants to put me on Imuran or 6MP. I go for one

> regular Dr. appt. today for a physical and my Gastro in May. I will keep

> praying that I can get off these drugs and get my body somewhat back to

> normal.

>

> Take care and we'll keep praying,

>

> Larry

>

> ------------------------------------------------------------------------

> eGroups Spotlight:

> " innovative-teaching " - keeping teachers up to date with Internet resources.

> http://clickhere.eGroups.com/click/18

>

>

[Guest guest]

,

Thanks for the info on the steriods. I haven't had the joint aches yet but I

am sure they will come. I do have the dry skin and I am itching a little

also. Thanks God I don't have any nausea, YET. I will keep track of how

things progress.

Thanks again, Larry

------------------------------------------------------------------------

[Guest guest]

That's interesting, Phil has hand and finger joint pain. He was told by his old

doctors that it was arthritis. (Course that's always what they say when

they don't know what it is. I didn't put it with the PSC before.

Peg A

OneAVIDman@... wrote:

> Janet,

>

> Gald to hear that you're getting off them too. I have been trying for 5

> months now to get to 5mg every other day. I hope it works this time.

>

> I haven't really noticed too many side effects with the drop in dosage.

> Although I have read that you start to experience hair loss. I can't tell if

> that is effected because I have been losing that part for a long time now.

> Usually when you are on the prednisone for a long period you tend to gain

> more hair so the stuff you are losing is the excess. If you're hair does

> start to thin it will soon grow back.

>

> If you had joint pains before you may start to feel those again. The steriods

> tend to mask any of those problems. Before I started, my knuckles in my hands

> would hurt. That went away after I started the steriods. I now take calcium

> with D two times a day. I also take glucosamine and chondroitrin for joint

> repair. Steriods will also mess up the bones over a long period of time so I

> am trying to prevent that from happening.

> If you have been on the steriods for longer than 3 years you should probably

> get a bone density scan. I had one 5 months ago and everything was fine.

>

> I hope this helps.

>

> Larry

>

> ------------------------------------------------------------------------

> eGroups eLerts!

> Exclusive discounts on travel

> Join Now! http://clickhere./click/24

>

>

[Guest guest]

It probably is arthritis. The prednisone, being an anti inflammatory

medicine, relieves the symptoms.

has arthritis that is sometimes pretty bad. I think that UC and

arthritis and maybe aslo PSC are basically all disorders of the immune

system, where the body reacts to itself.

I realize this is not a very scientific description! I think a lot of

patients with UC also have arthritis.

Roy T.

Re: Talk to doc and Tues. appt

>That's interesting, Phil has hand and finger joint pain. He was told by

his old

>doctors that it was arthritis. (Course that's always what they say when

>they don't know what it is. I didn't put it with the PSC before.

>Peg A

>

>OneAVIDman@... wrote:

>

>> Janet,

>>

>> Gald to hear that you're getting off them too. I have been trying for 5

>> months now to get to 5mg every other day. I hope it works this time.

>>

>> I haven't really noticed too many side effects with the drop in dosage.

>> Although I have read that you start to experience hair loss. I can't tell

if

>> that is effected because I have been losing that part for a long time

now.

>> Usually when you are on the prednisone for a long period you tend to gain

>> more hair so the stuff you are losing is the excess. If you're hair does

>> start to thin it will soon grow back.

>>

>> If you had joint pains before you may start to feel those again. The

steriods

>> tend to mask any of those problems. Before I started, my knuckles in my

hands

>> would hurt. That went away after I started the steriods. I now take

calcium

>> with D two times a day. I also take glucosamine and chondroitrin for

joint

>> repair. Steriods will also mess up the bones over a long period of time

so I

>> am trying to prevent that from happening.

>> If you have been on the steriods for longer than 3 years you should

probably

>> get a bone density scan. I had one 5 months ago and everything was fine.

>>

>> I hope this helps.

>>

>> Larry

>>

>> ------------------------------------------------------------------------

>> eGroups eLerts!

>> Exclusive discounts on travel

>> Join Now! http://clickhere./click/24

>>

>>