Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 Sounds like someone who needs a full evaluation and health check up and then someone to give the drugs when due. If his tolerance is really high then it takes a lot more...and probably needs to be brought down and then drugs managed with someones help. There's a ceiling and a doc can't give more. If he's detoxed...he won't go thru any bad withdrawals..but he'll hurt unless there's something he can use that won't build tolerance for now. I dunno...he'd sure need a medical work up. I realize no one can make him. I keep my tolerance low cause I simply can't afford not to. I know it's tuff. Addiction is a bitch. I grew up with alcoholics and users if they could get thier hands on it...I know that drill. Thank heavens I counceled when young enough to make my life work better later...took some time for the codependency to chill out to real life....but it can be done. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- Carolyn Bardell wrote: > Hi: > > Don't get me wrong, I understand what you are > saying. I come personally from a family of drinkers > as well as drug abusers that steal from not only > each other but other family and friends just so they > can get their kicks of weed, cocaine, heroin. I've > seem some pop pills as if they are candy and then > some and be shocked that they are still alived. > > The whole family is very concerned for my father > in law, and what I mean for the whole family I mean > my husbands, family as my parents are gone and there > is no one else on my side(there is but not as far as > I am concerned and I will leave it at that). I know > that that my father in law, Bruce is going through > so major pain. Heck, my own father whose disease > literally ate him inside out, went through some pain > as well, and Bruces pain is nothing like what my > father went through, but what Bruce is going through > is more than I can physically at this point image. > > The drug itself can become addicting. Do we think > that he is addicted, definetly? I'm not saying that > we don't care nor want to understand what he is > going through because if that is the case I as his > daugther in law would not be on this forum let alone > up at this time of hour when I have to go to work in > four hours. I know that there is not a cure, but I > know in my heart of all hearts that taking the > Vicodin is not right for him. I personally am not > asking him to stop taking it as ie and my Jeffy > are doing, but rather asking him to cut down because > I am fearing another drug overdose. Ever take candy > from a baby? Don't dare even suggest detox to the > man let alone take away his pills its bad. And > right now he has two pills as we speak left. He > cant get another refill until the 18th of the month. > Each month he keeps running out and tops that he is > to take is 3 a day. I asked him honestly because I > am his favorite and he knows how upset that I am but > at the same > time I try to be understanding and tell him I > trying to find you other options, I want you to be > able to deal with the pain, I want you to see me > have your grandbaby and have somewhat a life than to > sit in a recliner not able to get out of it because > the pain is too much. You know what he said, he > rather have his legs taken off just so that the pain > in his feet does not spread, because he can't take > it anymore. That he can't sleep at night either. > He gets 30 minutes in he takes a pill and he is out > for an hour, he takes another pill, sleeps for about > 30 minutes and on and hour to where he is taking > about 5 pills if not more. And when he does not > have his pills he is nasty to everyone, he knows > better than to be nasty to me. It has happen to me > once and it was not a good site later of which he > broke down and cried because he knew that he hurt my > feelings and then some. The doctor said that he has > to get up and walk around, each 5 small meals a day, > go to classes and I > can't even help me on those two because I don't > know where to start or go, and he tells me that he > can't because its too much and pops another pill. > And after he takes all of these pills, his skin > turns gray, and he is sweating profusely, and when > you try to talk to him he doesn't really respond. > You know that he is alive because his chest is > beating and I feel a pulse. I know that he needs > the viocidin or something like it for the pain I > just don't want him to take so much that he > overdoses again. I am fine to a point of his taking > it with whatever he needs if it means that it will > give him a hour back of his life to be a human > person again, to want to make every effort of going > out to the store that is 3 minutes away. > > You may think that I am asking for a miracle or > too much, or may think that I am selfish. I hope > that is not the case. Im deeply concerned because I > already lost two parents back to back at their young > age of 53, I am not ready to lose him yet without a > fight. I couldn't help my parents, but I believe in > faith, and my heart that with a doctor that is not > pumping him full of medications that he may or may > not need that he is getting everything out there > that could possibly give him another day of life > then to be at an comtose level because he is eating > literally vicodin as if it is candy. Im not > doubting the pain that he is in, but at the same > time I am in fact doubting that on a mental level > that he feels that he has to take it because he has > no choice and that he does have to a point an > addition of the vicodin since he has been taking it > for some long. > > Carol > > " Lotacatz>^.^ wrote: > Hi: > > Glad you're here. This is a nice place to be. > > I just wanted to say do not to let the word > " addicting " become a criteria on what meds he uses. > Some people get it mixed up with tolerance. > Sometimes > that can be controlled. Depends on how the doc wants > to handle it. I manage to keep mine low. > > At best maybe 2% of painers on so called " addicting " > pain meds may have to make use of a treatment > program > for it but it is by no means automatic to become > addicted. Addiction is phyco/social/ and has nothing > to do with the tolerance which follows addiction > like > a dumb dog. > > http://www.painlaw.org/opioids.html > > Just didn't want you to use that as a criteria to > his > treatment. Confusion about addiction has prevented > people from getting proper pain relief due to > misunderstanding by some doctors who really aren't > very good at diagnosing addiction and families who > don't understand it. Some doctors throw the word > around to discourage people from having them write > an > opiate prescription as they don't want to flag the > DEA > for any reason or risk someone that is not kosher > about his/her pain. > > Taking opiates for pain is a whole different > criteria > for us as the addict uses it for a high. Painers > hardly feel " high " ...crap...we just wanna get the > pain > within the range of being able to tolerate it and > function best we can. > > I have to use opiates as it closes the " gateway " to > a > specific myofacial spasm and prevents it's occurance > as well as stops it from doing what it does. > > I have fibromyalgia, myofacial pain syndrome, > debilitating osteo arthritis that effected my arms > and > spine badly and ate thru L3 and L4 and crashed on > the > nerves causing burning/pain/shooting pains down the > from of my left leg..on top and sciatica on the > right > from an old back injury. The joint damage is > progressive. > > I try to make myself useful by working with internet > victims and sending goodies to soldiers and running > an > online t shirt shop. Keeps me busy and my mind as > active as possible for someone with some heavy duty > " Fibro Fog " . Trust me...addicts aren't into that. > > Is he seeing a pain specialist? Sometimes that > helps. > I use my own family doc as he is good at > understanding > fibro and pain. The real pain doc is for the birds. > You never know who'll work out best. > > Former substance abuse coucelor/psych nurse rnc. > *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* > On the internet, no knows you're a cat. > > ~StrykerMom~ > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > --- carolyn wrote: > > > Hi!. I just joined this forum on the behalf of my > > father-in-law > > Bruce whom is 63 years young and has Diabetes > > Neuropathy. Please > > feel free to call me Carol. > > > > My purpose of joining this forum is that I have > > already lost > > personally my mother and father, therefore my > > husbands father whom > > was already special to me, is even now more > special. > > He has had > > this disease for a about a year or two. I am the > > first daugther for > > him and his favorite. > > > > He is in a lot of pain, and the mediciations that > === message truncated === Lotacats >^.^< Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/2715248 ________________________________________________________________________________\ ____Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 In a message dated 6/4/2007 4:20:35 P.M. Eastern Daylight Time, redhatladydiva@... writes: Neurontin and Lamictal are not for depression they are both seizure med's and sometimes these med's work and sometimes they don't i have had neuropathy for 8 that's and none of them worked for me as they haven't worked for others but some get great relief from them... I am hoping carol doesn't tell this mans Dr he is a addict he will never get pain relief again and he doesn't sound like a addict to me he sounds like someone suffering just because U take pain med's it doesn't make U a addict or even addicted...someone who takes a few extra some days and then must do without others isn't a addict it is someone trying to get some days of relief....maybe he should be seeing a neurologist ...they had me on 8 vicadin a day when they moved me to narcotics and i was still in pain and i often still am....nerve pain travels and it is a ugly pain ... God bless and keep you Rose Owner/Moderator Hugs for Pain (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 Hi Carol Welcome to the group. I also suffer from Neuropathy. Mine is called SAN - Sensory Autonomic Neuropathy. It affects both my feet and right leg. It hurts to stand or walk for too long. But because I also suffer from blood clots, I get up at least once an hour and walk around for 2 - 3 minutes. It's hard to treat nerve pain. I know that cymbalta is good for the nerve pain of the neruropathy and also for the depression. Some others to consider for nerve pain are: Neurontin, Lamictal (can be taken together, but not with cymbalta unless in low doses) and lyrica (should not take neurontin if on lyrica). Maybe what his Dr. could do is up his dosage of cymbalta. I see from later posts that he is also on Vicadin. That does not help the pain of neuropathy. It helps pain pain, but not nerve pain which neuropathy is. You could ask the Dr. why he is on it? From what I've read in your posts, he doesn't have anything that would benefit from his taking vicadin. You might also want to suggest, because of his diabetic neuropathy, that he might want to wear compression/circulation socks. They help keep his blood flowing and therefore helps with the throbbing pain. Also, he should have his legs elevated at all times when he is sitting. That helps with his circulation. I've been suffering with neuropathy for over 2 years now. I try to limit how long I'm on my feet, how long I sit with my feet down and I wear the compression socks. They do help during the day. Up until the end of April I had been taking Neurontin and Lamictal. Both were for the neuropathy and depression. They helped somewhat with the nerve pain, but didn't make it go away completely. It just alowed me to function at a somewhat normal pace. Since then, I haven't taken them because my health insurance ran out and I am really feeling the effects. At the time I was on them, I didn't realize how they were helping, but now that I'm off of them I can really tell. Hugs Diane-Minnesota > > Hi!. I just joined this forum on the behalf of my father-in-law > Bruce whom is 63 years young and has Diabetes Neuropathy. Please > feel free to call me Carol. > > My purpose of joining this forum is that I have already lost > personally my mother and father, therefore my husbands father whom > was already special to me, is even now more special. He has had > this disease for a about a year or two. I am the first daugther for > him and his favorite. > > He is in a lot of pain, and the mediciations that this doctor has > him on is unbelieveable(and I thought my dad was on a lot of > medicines). There are just days that the pain is too much and what > he is taking which is addicting is not helping. > I've done my homework, I know that it is not 100% cureable, but I am > also a firm believer that he is not the only one in the world that > is going through this and I am bond and determine to find a > treatment to where he can get some type of relieve so that he has > the strength to be on this feet to actually do some walking that is > suppose to help instead of crying in agony pain because it hurts to > walk just to the bathroom at times. > > And I am also hoping to learn from those that have had the > experience, the knowledge the stories and can relate because my > father in law feels that he is alone in this world with this > disease. Each night I'll be printing and reading to him(he likes > that...its our special time together) about what I have learned and > research. I see that small glimmer of light in his eyes (because I > know that this disease also can cause depression) that I am going to > fight along with him on this, and it will prove to him that he is > not alone and that maybe there are suggestions and stories of how > one lives with it on a day to day basis. > > Sorry for the long post > carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 of course it does neuropathy will eventually travel to hands arms organs ... so cutting anything off would only be done by a butcher not a Dr .. and 3 or 4 vicadin's a day will not make u zone out .. also u don't get addicted to cereal .. the man is a diabetic that is the main cause of neuropathy ... I'm not sure where he was shot but that can cause nerve damage as well ...if u are listening I am telling u neuropathy feels like standing in a camp fire and you cant get out can that make a cop pretty pissed off I'm guessing yes it is with anger they learn to handle the pain they see in there job and he is handling this pain the same way .. the Dr isn't getting excited because he knows even with the sons pills that is a very low dose of vicadin...the man needs a pain clinic where they work with both physical and emotion pain ... you aren't qualified to diagnose this man and neither am I but I walk in his pain every day.. and trust me my relief comes from much stronger med's then he is on and even then it just takes the edge off ... diabetes and neuropathy will eventually take his life fight for more relief for him and maybe he wont abuse Rose ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Bruce is completely out of pills. Two months in a row. I haven't been online because he decided that throwing my laptop I guess would make him feel better. He's said some very colorful wording those of which I will spare everyone from reading/hearing. When he is out of pills he gets nasty, very nasty and threatening to the point that I was going to call the cops.....one small problem he used to be a cop and its not tv folks but it happens to where the buddies come to have their little chat with him and those that are trying to understanding, trying to help him are the ones that caused his outbrusts. He's been on the pills for 9 years and not all of those years has he been this bad with the pills. He has gone to detox back about four years ago because he got to the point that he is now. Abusive physically and verbally and he is out of control. He knows that there are indivduals that are out there that have had more pain then him and have to lose limbs. He also knows that he has to do something in regards to exercise and diet. When we cook, my mother in law and I we serve him small portions and make foods through various diabetic cookbooks and eat what we cook so that he does not feel left out. He in turn after not only 10 minutes of eating I have caught him in several occasions where he is feeding himself with not one bowl of cereal but several bowls of cereal. He doesn't eat right. He is up all night, sleeps all day, gets up at dinner, eats, sleeps for several hours and in between when he is not sleeping he is taking his pills. We don't dare try to take the pills from him and to manage them. Past and recent experiences someone ends up getting hurt whether physically or mentally. The anger that he has when he can't have his pills now and the strength that he all of a sudden has when he doesn't seem to have strength from anything else is truly shocking because to look at him in pain, in the amount that he is in, you would not think that this man could do some of what he does. My brother in law and I do not see eye to eye. He gave up his script of viocdin that he had for a back injury just so that Bruce would stop being violent and hurt one of us in the house. To a point it has put him back where he was before he ran out of the pills but at the same time this man whom gets over 100 pills a month now has an additional 40+ pills. He stated that he rather live in the pain of his back then to his my father in law suffer. It's not that I want him to suffer, I don't I am seriously concerned for not only his health and safety but for those that are around him. His sugar is 220 and I have only seen it go down to the lowest of 160 since they have come here. He knows that he is suppose to walk to help with the sugar, but by the time that as he says he is feeling good and looks gray in my eyes its already midnight and instead of going for a walk even down 6 houses to the corner he eats cereal instead and goes back to bed. I've offered to walk, to swim, with him anything that he might be interested in just so that it doesn't seem as exercise but is. He didn't know that the pain could spread until I told him about this one article that I read and then the mention of it here on the site. My brother in law is taking him to see....and excuse my spelling because it isnt good on this word an pedtricist(foot doctor). If it is ok I would like to be able to send the website to see if anyone else has heard of it or possibly gone to it. My brother in law is excited and he says that they will be able to cure Bruce and from there he will not want to take the pills anymore. I tried to explain to him that there really is not a cure but things that may be able to be done to help ease the pain. Once my brother in law gave him his vicodin and talked to him today about this place,it was as if talking to a kid that is waiting to go to Walt Disney World. I hope that they have the answers that he is looking for. In the mean time, to answer your question before, what does he do for the other 15 days that he doesn't have pills, he gets them from family members whom feel helpless and rather that he not act in the way that he does when he doesn't have any pills. He also has some as he says connections but I don't know if I am to believe that because I think that is just the meds talking not him talking. I do know that he will go to the hospital several times until he gets his pills just so they give him something at the hospital to relieve the pain. carol starlyin@... wrote: if he is taking so many pills he is out in 15 days what does he do for the other 15 days .. until U know nerve pain U cant possibly tell someone to deal with it he is using to many to kill the pain because 3 vicadin's wont touch it he is addicted to not feeling the pain not the med's... a addict couldn't go all those days without med's..those symptoms U describe sound more like his sugar then vicadin..there are much better pain med's then that that he could use two a day of and if U think he is abusing get in control of his med's ..it is hard to NOT take another when U R in pain... and remembering U mentioning it there are people on this list who have had there legs removed over nerve pain and it does travel almost always also and then U have phantom pains that are there wether your legs are or not .. there are pain med's to relieve his pain he just needs a Dr to handle it please remember the suicide rate for people in chronic pain is 800 percent above normal and most of them are because there pain isn't treated properly Love to you all God bless and keep you Rose Owner/Moderator Hugs for Pain _ http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_ (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) _ http://hometown.aol.com/starlyin/HUGS.html_ (http://hometown.aol.com/starlyin/HUGS.html) ************************************** See what's free at http://www.aol.com. 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Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 After Bruces outburst and the throwing of things amoung other things I called his doctor and asked if we could as a family sign him in. I am surprised that during all of these years that a doctor can continue to give that prescription it is a shock to me. When I told the doctor to a point what was going on because I fear that if he cuts bruce off that he will be sucidial as he has already threatened to remove his feet (when he is out of the pills) he said that we couldn't sign him in, that he would have to want to go. Now I guess I understand that show Intervention that is sometimes on tv. I know that he is in pain, and there are some things that he could possibly do to maybe help ease it so that he was not so dependented on the vicodin. I only hope that this monday that he does in fact go to this doctor that my brother in law found to see what they have to say. I would love to see him cut down on the pills a day if being off of them is never a possibility. I want him to try to want to make himself think and do make himself better than what he is currently. I want to have a conversation with him and not have him zone out on me two second later, and I want him to be able to want to want this if that makes sense. carol " Lotacatz>^.^ wrote: Sounds like someone who needs a full evaluation and health check up and then someone to give the drugs when due. If his tolerance is really high then it takes a lot more...and probably needs to be brought down and then drugs managed with someones help. There's a ceiling and a doc can't give more. If he's detoxed...he won't go thru any bad withdrawals..but he'll hurt unless there's something he can use that won't build tolerance for now. I dunno...he'd sure need a medical work up. I realize no one can make him. I keep my tolerance low cause I simply can't afford not to. I know it's tuff. Addiction is a bitch. I grew up with alcoholics and users if they could get thier hands on it...I know that drill. Thank heavens I counceled when young enough to make my life work better later...took some time for the codependency to chill out to real life....but it can be done. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- Carolyn Bardell wrote: > Hi: > > Don't get me wrong, I understand what you are > saying. I come personally from a family of drinkers > as well as drug abusers that steal from not only > each other but other family and friends just so they > can get their kicks of weed, cocaine, heroin. I've > seem some pop pills as if they are candy and then > some and be shocked that they are still alived. > > The whole family is very concerned for my father > in law, and what I mean for the whole family I mean > my husbands, family as my parents are gone and there > is no one else on my side(there is but not as far as > I am concerned and I will leave it at that). I know > that that my father in law, Bruce is going through > so major pain. Heck, my own father whose disease > literally ate him inside out, went through some pain > as well, and Bruces pain is nothing like what my > father went through, but what Bruce is going through > is more than I can physically at this point image. > > The drug itself can become addicting. Do we think > that he is addicted, definetly? I'm not saying that > we don't care nor want to understand what he is > going through because if that is the case I as his > daugther in law would not be on this forum let alone > up at this time of hour when I have to go to work in > four hours. I know that there is not a cure, but I > know in my heart of all hearts that taking the > Vicodin is not right for him. I personally am not > asking him to stop taking it as ie and my Jeffy > are doing, but rather asking him to cut down because > I am fearing another drug overdose. Ever take candy > from a baby? Don't dare even suggest detox to the > man let alone take away his pills its bad. And > right now he has two pills as we speak left. He > cant get another refill until the 18th of the month. > Each month he keeps running out and tops that he is > to take is 3 a day. I asked him honestly because I > am his favorite and he knows how upset that I am but > at the same > time I try to be understanding and tell him I > trying to find you other options, I want you to be > able to deal with the pain, I want you to see me > have your grandbaby and have somewhat a life than to > sit in a recliner not able to get out of it because > the pain is too much. You know what he said, he > rather have his legs taken off just so that the pain > in his feet does not spread, because he can't take > it anymore. That he can't sleep at night either. > He gets 30 minutes in he takes a pill and he is out > for an hour, he takes another pill, sleeps for about > 30 minutes and on and hour to where he is taking > about 5 pills if not more. And when he does not > have his pills he is nasty to everyone, he knows > better than to be nasty to me. It has happen to me > once and it was not a good site later of which he > broke down and cried because he knew that he hurt my > feelings and then some. The doctor said that he has > to get up and walk around, each 5 small meals a day, > go to classes and I > can't even help me on those two because I don't > know where to start or go, and he tells me that he > can't because its too much and pops another pill. > And after he takes all of these pills, his skin > turns gray, and he is sweating profusely, and when > you try to talk to him he doesn't really respond. > You know that he is alive because his chest is > beating and I feel a pulse. I know that he needs > the viocidin or something like it for the pain I > just don't want him to take so much that he > overdoses again. I am fine to a point of his taking > it with whatever he needs if it means that it will > give him a hour back of his life to be a human > person again, to want to make every effort of going > out to the store that is 3 minutes away. > > You may think that I am asking for a miracle or > too much, or may think that I am selfish. I hope > that is not the case. Im deeply concerned because I > already lost two parents back to back at their young > age of 53, I am not ready to lose him yet without a > fight. I couldn't help my parents, but I believe in > faith, and my heart that with a doctor that is not > pumping him full of medications that he may or may > not need that he is getting everything out there > that could possibly give him another day of life > then to be at an comtose level because he is eating > literally vicodin as if it is candy. Im not > doubting the pain that he is in, but at the same > time I am in fact doubting that on a mental level > that he feels that he has to take it because he has > no choice and that he does have to a point an > addition of the vicodin since he has been taking it > for some long. > > Carol > > " Lotacatz>^.^ wrote: > Hi: > > Glad you're here. This is a nice place to be. > > I just wanted to say do not to let the word > " addicting " become a criteria on what meds he uses. > Some people get it mixed up with tolerance. > Sometimes > that can be controlled. Depends on how the doc wants > to handle it. I manage to keep mine low. > > At best maybe 2% of painers on so called " addicting " > pain meds may have to make use of a treatment > program > for it but it is by no means automatic to become > addicted. Addiction is phyco/social/ and has nothing > to do with the tolerance which follows addiction > like > a dumb dog. > > http://www.painlaw.org/opioids.html > > Just didn't want you to use that as a criteria to > his > treatment. Confusion about addiction has prevented > people from getting proper pain relief due to > misunderstanding by some doctors who really aren't > very good at diagnosing addiction and families who > don't understand it. Some doctors throw the word > around to discourage people from having them write > an > opiate prescription as they don't want to flag the > DEA > for any reason or risk someone that is not kosher > about his/her pain. > > Taking opiates for pain is a whole different > criteria > for us as the addict uses it for a high. Painers > hardly feel " high " ...crap...we just wanna get the > pain > within the range of being able to tolerate it and > function best we can. > > I have to use opiates as it closes the " gateway " to > a > specific myofacial spasm and prevents it's occurance > as well as stops it from doing what it does. > > I have fibromyalgia, myofacial pain syndrome, > debilitating osteo arthritis that effected my arms > and > spine badly and ate thru L3 and L4 and crashed on > the > nerves causing burning/pain/shooting pains down the > from of my left leg..on top and sciatica on the > right > from an old back injury. The joint damage is > progressive. > > I try to make myself useful by working with internet > victims and sending goodies to soldiers and running > an > online t shirt shop. Keeps me busy and my mind as > active as possible for someone with some heavy duty > " Fibro Fog " . Trust me...addicts aren't into that. > > Is he seeing a pain specialist? Sometimes that > helps. > I use my own family doc as he is good at > understanding > fibro and pain. The real pain doc is for the birds. > You never know who'll work out best. > > Former substance abuse coucelor/psych nurse rnc. > *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* > On the internet, no knows you're a cat. > > ~StrykerMom~ > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > --- carolyn wrote: > > > Hi!. I just joined this forum on the behalf of my > > father-in-law > > Bruce whom is 63 years young and has Diabetes > > Neuropathy. Please > > feel free to call me Carol. > > > > My purpose of joining this forum is that I have > > already lost > > personally my mother and father, therefore my > > husbands father whom > > was already special to me, is even now more > special. > > He has had > > this disease for a about a year or two. I am the > > first daugther for > > him and his favorite. > > > > He is in a lot of pain, and the mediciations that > === message truncated === Lotacats >^.^< Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/2715248 __________________________________________________________Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Diane, Thank you for your reply. Since today is a good day for him I am going to mention your email to him (not the part about the vicodin at this time unfortunately) because he still blows up if any of us mention it or as he claims he knows we are thinking about it. Can I ask you a question if you wouldn't mind answering it,if you choose not to I understand. He says that the reason that he got this disease is because he ate out off of the time as a cop working swing shifts would you agree with this statement that this is the only reason that he got it because I am in a disagreement. I think that it is a combination of after he got shot years ago the lack of exercise followed by yes at times the fast food, but that over eating could be a part of it to. With my father in law he can't be without his cereal just like he can't be without the vicodin. I had similiar thoughts about the Cymbalta about if he is in that much pain shouldn't this family physician maybe upped this instead of leaving it at 60mg. Where can the socks that you mention in your post does it have to be prescription or a medical store? Carol redhatladydiva wrote: Hi Carol Welcome to the group. I also suffer from Neuropathy. Mine is called SAN - Sensory Autonomic Neuropathy. It affects both my feet and right leg. It hurts to stand or walk for too long. But because I also suffer from blood clots, I get up at least once an hour and walk around for 2 - 3 minutes. It's hard to treat nerve pain. I know that cymbalta is good for the nerve pain of the neruropathy and also for the depression. Some others to consider for nerve pain are: Neurontin, Lamictal (can be taken together, but not with cymbalta unless in low doses) and lyrica (should not take neurontin if on lyrica). Maybe what his Dr. could do is up his dosage of cymbalta. I see from later posts that he is also on Vicadin. That does not help the pain of neuropathy. It helps pain pain, but not nerve pain which neuropathy is. You could ask the Dr. why he is on it? From what I've read in your posts, he doesn't have anything that would benefit from his taking vicadin. You might also want to suggest, because of his diabetic neuropathy, that he might want to wear compression/circulation socks. They help keep his blood flowing and therefore helps with the throbbing pain. Also, he should have his legs elevated at all times when he is sitting. That helps with his circulation. I've been suffering with neuropathy for over 2 years now. I try to limit how long I'm on my feet, how long I sit with my feet down and I wear the compression socks. They do help during the day. Up until the end of April I had been taking Neurontin and Lamictal. Both were for the neuropathy and depression. They helped somewhat with the nerve pain, but didn't make it go away completely. It just alowed me to function at a somewhat normal pace. Since then, I haven't taken them because my health insurance ran out and I am really feeling the effects. At the time I was on them, I didn't realize how they were helping, but now that I'm off of them I can really tell. Hugs Diane-Minnesota > > Hi!. I just joined this forum on the behalf of my father-in-law > Bruce whom is 63 years young and has Diabetes Neuropathy. Please > feel free to call me Carol. > > My purpose of joining this forum is that I have already lost > personally my mother and father, therefore my husbands father whom > was already special to me, is even now more special. He has had > this disease for a about a year or two. I am the first daugther for > him and his favorite. > > He is in a lot of pain, and the mediciations that this doctor has > him on is unbelieveable(and I thought my dad was on a lot of > medicines). There are just days that the pain is too much and what > he is taking which is addicting is not helping. > I've done my homework, I know that it is not 100% cureable, but I am > also a firm believer that he is not the only one in the world that > is going through this and I am bond and determine to find a > treatment to where he can get some type of relieve so that he has > the strength to be on this feet to actually do some walking that is > suppose to help instead of crying in agony pain because it hurts to > walk just to the bathroom at times. > > And I am also hoping to learn from those that have had the > experience, the knowledge the stories and can relate because my > father in law feels that he is alone in this world with this > disease. Each night I'll be printing and reading to him(he likes > that...its our special time together) about what I have learned and > research. I see that small glimmer of light in his eyes (because I > know that this disease also can cause depression) that I am going to > fight along with him on this, and it will prove to him that he is > not alone and that maybe there are suggestions and stories of how > one lives with it on a day to day basis. > > Sorry for the long post > carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Rose, When the pain travels and this is a scary question for me, but does it travel past the feet and legs? Carol starlyin@... wrote: In a message dated 6/4/2007 4:20:35 P.M. Eastern Daylight Time, redhatladydiva@... writes: Neurontin and Lamictal are not for depression they are both seizure med's and sometimes these med's work and sometimes they don't i have had neuropathy for 8 that's and none of them worked for me as they haven't worked for others but some get great relief from them... I am hoping carol doesn't tell this mans Dr he is a addict he will never get pain relief again and he doesn't sound like a addict to me he sounds like someone suffering just because U take pain med's it doesn't make U a addict or even addicted...someone who takes a few extra some days and then must do without others isn't a addict it is someone trying to get some days of relief....maybe he should be seeing a neurologist ...they had me on 8 vicadin a day when they moved me to narcotics and i was still in pain and i often still am....nerve pain travels and it is a ugly pain ... God bless and keep you Rose Owner/Moderator Hugs for Pain (http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 You'd be surprised...spooky. Getting another consultant wouldn't hurt. Somehow get both mental and physical a complete check over. *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* On the internet, no knows you're a cat. ~StrykerMom~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ --- Carolyn Bardell wrote: > After Bruces outburst and the throwing of things > amoung other things I called his doctor and asked if > we could as a family sign him in. I am surprised > that during all of these years that a doctor can > continue to give that prescription it is a shock to > me. When I told the doctor to a point what was > going on because I fear that if he cuts bruce off > that he will be sucidial as he has already > threatened to remove his feet (when he is out of the > pills) he said that we couldn't sign him in, that he > would have to want to go. Now I guess I understand > that show Intervention that is sometimes on tv. > > I know that he is in pain, and there are some > things that he could possibly do to maybe help ease > it so that he was not so dependented on the vicodin. > I only hope that this monday that he does in fact > go to this doctor that my brother in law found to > see what they have to say. I would love to see him > cut down on the pills a day if being off of them is > never a possibility. I want him to try to want to > make himself think and do make himself better than > what he is currently. I want to have a conversation > with him and not have him zone out on me two second > later, and I want him to be able to want to want > this if that makes sense. > > carol > > " Lotacatz>^.^ wrote: > > Sounds like someone who needs a full evaluation and > health check up and then someone to give the drugs > when due. If his tolerance is really high then it > takes a lot more...and probably needs to be brought > down and then drugs managed with someones help. > There's a ceiling and a doc can't give more. If he's > detoxed...he won't go thru any bad withdrawals..but > he'll hurt unless there's something he can use that > won't build tolerance for now. I dunno...he'd sure > need a medical work up. I realize no one can make > him. > I keep my tolerance low cause I simply can't afford > not to. I know it's tuff. Addiction is a bitch. > > I grew up with alcoholics and users if they could > get > thier hands on it...I know that drill. Thank heavens > I counceled when young enough to make my life work > better later...took some time for the codependency > to > chill out to real life....but it can be done. > > *¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬* > On the internet, no knows you're a cat. > > ~StrykerMom~ > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > --- Carolyn Bardell > wrote: > > > Hi: > > > > Don't get me wrong, I understand what you are > > saying. I come personally from a family of > drinkers > > as well as drug abusers that steal from not only > > each other but other family and friends just so > they > > can get their kicks of weed, cocaine, heroin. I've > > seem some pop pills as if they are candy and then > > some and be shocked that they are still alived. > > > > The whole family is very concerned for my father > > in law, and what I mean for the whole family I > mean > > my husbands, family as my parents are gone and > there > > is no one else on my side(there is but not as far > as > > I am concerned and I will leave it at that). I > know > > that that my father in law, Bruce is going through > > so major pain. Heck, my own father whose disease > > literally ate him inside out, went through some > pain > > as well, and Bruces pain is nothing like what my > > father went through, but what Bruce is going > through > > is more than I can physically at this point image. > > > > The drug itself can become addicting. Do we think > > that he is addicted, definetly? I'm not saying > that > > we don't care nor want to understand what he is > > going through because if that is the case I as his > > daugther in law would not be on this forum let > alone > > up at this time of hour when I have to go to work > in > > four hours. I know that there is not a cure, but I > > know in my heart of all hearts that taking the > > Vicodin is not right for him. I personally am not > > asking him to stop taking it as ie and my > Jeffy > > are doing, but rather asking him to cut down > because > > I am fearing another drug overdose. Ever take > candy > > from a baby? Don't dare even suggest detox to the > > man let alone take away his pills its bad. And > > right now he has two pills as we speak left. He > > cant get another refill until the 18th of the > month. > > Each month he keeps running out and tops that he > is > > to take is 3 a day. I asked him honestly because I > > am his favorite and he knows how upset that I am > but > > at the same > > time I try to be understanding and tell him I > > trying to find you other options, I want you to be > > able to deal with the pain, I want you to see me > > have your grandbaby and have somewhat a life than > to > > sit in a recliner not able to get out of it > because > > the pain is too much. You know what he said, he > > rather have his legs taken off just so that the > pain > > in his feet does not spread, because he can't take > > it anymore. That he can't sleep at night either. > > He gets 30 minutes in he takes a pill and he is > out > > for an hour, he takes another pill, sleeps for > about > > 30 minutes and on and hour to where he is taking > > about 5 pills if not more. And when he does not > > have his pills he is nasty to everyone, he knows > > better than to be nasty to me. It has happen to me > > once and it was not a good site later of which he > > broke down and cried because he knew that he hurt > my > > feelings and then some. The doctor said that he > has > > to get up and walk around, each 5 small meals a > day, > > go to classes and I > > can't even help me on those two because I don't > > know where to start or go, and he tells me that he > > can't because its too much and pops another pill. > > And after he takes all of these pills, his skin > > turns gray, and he is sweating profusely, and when > > you try to talk to him he doesn't really respond. > > You know that he is alive because his chest is > > beating and I feel a pulse. I know that he needs > > the viocidin or something like it for the pain I > > just don't want him to take so much that he > > overdoses again. I am fine to a point of his > taking > > it with whatever he needs if it means that it will > > give him a hour back of his life to be a human > > person again, to want to make every effort of > going > > out to the store that is 3 minutes away. > > > > You may think that I am asking for a miracle or > > too much, or may think that I am selfish. I hope > > that is not the case. Im deeply concerned because > I > > already lost two parents back to back at their > young > > age of 53, I am not ready to lose him yet without > a > > fight. I couldn't help my parents, but I believe > in > > faith, and my heart that with a doctor that is not > > pumping him full of medications that he may or may > > not need that he is getting everything out there > > that could possibly give him another day of life > > then to be at an comtose level because he is > eating > > literally vicodin as if it is candy. Im not > > doubting the pain that he is in, but at the same > > time I am in fact doubting that on a mental level > > that he feels that he has to take it because he > has > > no choice and that he does have to a point an > > addition of the vicodin since he has been taking > it > > for some long. > > > > Carol > > > > " Lotacatz>^.^ wrote: > > Hi: > > > > Glad you're here. This is a nice place to be. > > > > I just wanted to say do not to let the word > === message truncated === Lotacats >^.^< Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/2715248 ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Yahoo! Travel. http://travel.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 In a message dated 6/8/2007 3:16:04 P.M. Eastern Daylight Time, boutimebobby@... writes: Ouch! Someone Chucks my beloved laptop across the room is gonna need pain help for sure... haha they would no longer ever feel pain again if they hurt my pc... some of us have priorities Ü Rose ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 > > Welcome to everyone who is new. I agree with whoever said that no one here will tell you to quit whining. We all deal with constant pain to some degree or other and understand as best we can what you are going through. Liz, it sounds like you have had it extra rough. I am sending a prayer your way. > > I am going through my own personal hell now with my psychiatrist. (Which I guess psychic pain counts as pain???) They have finally found a combination of medications which works for my bipolar disorder and I have been completely stable for several months. Well I was running out of my ambien so I called the pharmacy for a refill. It didn't come in and didn't come in and I finally got ahold of the MD's assistant and she says my chart says we're going to discontinue the ambien and then the klonopin!!!! WHAT?????? I read her the riot act. I have an appointment next Thursday and he agreed to call in enough pills to get me through to that day but that we'll " discuss " it at our visit. Which means he'll decide whether he thinks I should be on it or not. I can't believe it! I keep telling him I feel fine and he decides to tinker around with my life. What is up with these damned doctors? Why do they have to act like they're so superior to us because of that degree? Aren't we the ones experiencing the pain? I should think we're all experts on our given ailments. Why won't they listen to us? This guy is going to get an earful next Thursday and then I'm going to find a new doctor. I had heard he was really good, but it must be relative because he really sucks in my opinion. > > Anyway, really just wanted to welcome you all. I'm sending some pain free moments your way. > > Chelle > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hi Chelle I agree with you. If a combination of drugs are helping you keep on an even keel with the bi-polar, why take you off of them?. When I first got sick, the pain management Dr. at the Mayo Clinic wanted to take me off of my meds - that I had been on for over 5 years - and put me on Cymbalta. I told her that I was leary about trying something new and when I found out what some of the side effects were I told her that I didn't want to change. I told her that my current meds were working fine and have been for over 5 years. It took us 5 years to find the right combination and I didn't want to mess with it. You need to stress upon your Dr. that this combination of meds is working and that you don't want to mess with them right now. If in the future they start to not work, then you will be open to try something else. Hugs Diane-Minnesota > > Welcome to everyone who is new. I agree with whoever said that no one here will tell you to quit whining. We all deal with constant pain to some degree or other and understand as best we can what you are going through. Liz, it sounds like you have had it extra rough. I am sending a prayer your way. > > I am going through my own personal hell now with my psychiatrist. (Which I guess psychic pain counts as pain???) They have finally found a combination of medications which works for my bipolar disorder and I have been completely stable for several months. Well I was running out of my ambien so I called the pharmacy for a refill. It didn't come in and didn't come in and I finally got ahold of the MD's assistant and she says my chart says we're going to discontinue the ambien and then the klonopin!!!! WHAT?????? I read her the riot act. I have an appointment next Thursday and he agreed to call in enough pills to get me through to that day but that we'll " discuss " it at our visit. Which means he'll decide whether he thinks I should be on it or not. I can't believe it! I keep telling him I feel fine and he decides to tinker around with my life. What is up with these damned doctors? Why do they have to act like they're so superior to us because of that degree? Aren't we the ones experiencing the pain? I should think we're all experts on our given ailments. Why won't they listen to us? This guy is going to get an earful next Thursday and then I'm going to find a new doctor. I had heard he was really good, but it must be relative because he really sucks in my opinion. > > Anyway, really just wanted to welcome you all. I'm sending some pain free moments your way. > > Chelle > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 We all can sympathize with you on a daily basis. Knowing that there are other areas of the body which hurt, that are not RSD related (maybe the pain from fibromyalgia), all of us RSD sufferers reach for those pain meds (because " pain meds " should help ALL pains, but they don't), and wonder, " Do I really need a narcotic this time? " New discovery that is working wonders for all other types of pain, even some RSD sufferers, even neuropathy! DR. FRANK'S JOINT & MUSCLE PAIN RELIEF is fantastic for those other painful areas! Check it out by doing a Google Health Products search under his name. (And, if Hugs-N-PainYahoogroups removes this information, just contact me by email at Angel90s@... .) Sherry O:) ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 hi stephanie ~ isnt the school amazing? thanks for introducing yourself. all the best as you bring the work (through yourself as the living example espcially) to the people in your life who are open to it. catherine Subject: Intro To: Loving-what-is Received: Monday, August 31, 2009, 12:00 PM I just returned from the School for the Work this week. Talk about intense. Just wanted to introduce myself. I am a life coach, writer and teacher and I am bringing this work to my community of sexual abuse survivors. I'm glas this group exists. It's good to be reminded by others of the work and be supported in it. Thank you. Lovingly, __________________________________________________________________ The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free! at http://downloads.yahoo.com/ca/internetexplorer/ Quote Link to comment Share on other sites More sharing options...
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