Re: Intro

[Guest guest]

Hi Valary (I like your name BTW)!

I'm a prob. MSer at the moment. And I know what you mean when you say you

don't know jack. I'm learning more about MS from this group. They are

wonderful people.

I also learn when my symptoms come! For example, someone mentioned that

B-Complex can help. I ignored that post because I get really hyper from B.

Then I had my first spasms the other night. At 3 am I finally took some

B-complex and slept like a baby, I was so tired: LOL.

I think you will like it here!

Drew

----

" When you're curious, you find lots of interesting things to do. And one

thing it takes to accomplish something is courage. "

Walt Disney

> intro

>

> My name is Valary, I am 27,live in Louisville, KY, & I was diagnosed,

> through a spinal tap, 4 wks. ago come Mon. I found the group by

> doing a search for MS on group. If there's anything else you wanna

> know, just ask, I might tell. As far as MS goes, I really don't know

> jack.

>

>

>

>

[Guest guest]

Hello Valary

My wife's sister is also but spelled differently.

When I was told I had MS in Aug of 99 I also had no idea what it was. I had heard the word but that is about all. Here is info about my MS.

Welcome to the group and I hope you make a few friends.

It seems like it should be impossible for me to have both Diabetes and Multiple Sclerosis. Diabetes is a disease that usually runs in a family and I don't know of any one in my family that has it. My grandparents recently passed away and all three were in there 90's and were healthy most of there lives. My Grandmother Tyson died this past May 2001. MS and Diabetes are diseases that treat each person differently.

This August was in ways an anniversary for me. In August of 1999 I was diagnosed with my Multiple Sclerosis. It was a total surprise to me. I was in pretty good condition other than my type 1 diabetes since April 1993. In July of 1999 I was having some troubles with my left leg being on the weak side. I hade gone to see my Neurologist about my condition. I was told I had Neuropathy in my legs being caused by my diabetes. My regular family doctor had me go through a series of different tests because I had told her I thought maybe something other than my diabetes was happening. As I was getting worse I had another visit with my Neurologist and I told him a few troubles I was having one being that I was having trouble with my short term memory. He decided to have me do an MRI test to see what was going on. It turned out I had grey matter on my brain. I had no idea what that meant. I was told it could be a number of medical conditions. (my doctors photo) My Neurologist speculated possibly MS but said a spinal tap would be needed to be sure of what it was. I was concerned about what he would find but I was also worried about how that needle in my spine would feel. My Neurologist did a great job and caused no pain. By the time I had my spinal tap which was early August I was already using a walker or wheelchair because a lack of Balance. My Neurologist found that I had Multiple Sclerosis. I was hoping that it was a treatable disease like Limes Disease which is caused by a tick. By Mid August I had to take short term disability from my work because of having to miss so many days. It then turned into long term disability and then I am now on Social Security. All I can say is thank God for disability insurance because it has really saved my family financially.

I spent the good part of my short term disability hoping for remission which can happen and does to many with MS. Guess what after 2 years I am still waiting and hoping. I would have to say after taking my shot for my MS and two more for my Diabetes I believe I know how a porcupine must feel.I would have to say my first year with my MS was the roughest it is so hard to change the way you are so use to doing things in life. I am 39 and am not ready for an early retirement which makes being disabled so hard. I miss being able to walk around the block or just fun doing things like fishing, hiking and yes even mowing the yard, especially outside work. I have two sons 11 and 4 and I miss being able to play ball or take them to the park to run around. I have a great wife her name is Judy and she is not only my wife but also my best friend. She has done a terrific job helping me get through this, she is even taking on new learning skills like Plumbing, Carpentry, Electrical work, Painter, but mainly there to help out with everything. She is great with the boys and does a great job with all chores all wives take care of. I know I would be at a complete lost with out her. My two sons are also very good to help out. My 11 year old has had to grow up sooner than I wanted him to he has learned to do things I did around the home. He is great at mowing, he also help with my 4 year old when he needs help and does well to give his mother a hand also.

do feel lucky that I am still able to walk using my walker or wheelchair. I was able to get hand controls put on my truck and so I am still capable of driving when needed.

Welcome to MSersLife Discussion GroupDisclaimer : MSersLife web page is linked into different Multiple Sclerosis sources for information about MS and do not claim responsibly for the information on the different MS web pages. MSersLife can give information as to what it is like to live with MS on a daily basis.

http://home.insightbb.com/~msdiabetes/index.htm

intro

My name is Valary, I am 27,live in Louisville, KY, & I was diagnosed, through a spinal tap, 4 wks. ago come Mon. I found the group by doing a search for MS on group. If there's anything else you wanna know, just ask, I might tell. As far as MS goes, I really don't know jack.

[Guest guest]

I'm youger! I was born in 1973! not funny cos today is too close my next birthday: March, the 1st!

babies....lol....I was out of college when you were born.....hehe

Beverlyhttp://www.parsonwhitestudios.com/-

[Guest guest]

Hi ,

Interesting question that you ask. I was in an auto accident when I was 21. Thrown out of the car, knocked out and woke up with a concussion. No other injuries but the ms symptoms started shortly thereafter. That was in 1962.

Regards,

Tom

[Guest guest]

Tom you are telling your age I was born in 1962 ha ha.

Bill

Re: Intro

Hi ,

Interesting question that you ask. I was in an auto accident when I was 21. Thrown out of the car, knocked out and woke up with a concussion. No other injuries but the ms symptoms started shortly thereafter. That was in 1962.

Regards,

Tom

[Guest guest]

I'm youger! I was born in 1973! not funny cos today is too close my next birthday: March, the 1st!

HUGS, Andreia

Re: Intro

Hi ,

Interesting question that you ask. I was in an auto accident when I was 21. Thrown out of the car, knocked out and woke up with a concussion. No other injuries but the ms symptoms started shortly thereafter. That was in 1962.

Regards,

Tom

[Guest guest]

SOZ! TYPED WRONG: NOT YOUGER BUT YOUNGER!

HUGS, Andreia

Re: Intro

I'm youger! I was born in 1973! not funny cos today is too close my next birthday: March, the 1st!

babies....lol....I was out of college when you were born.....hehe

Beverlyhttp://www.parsonwhitestudios.com/-

[Guest guest]

Tom,

Hmmm..Interesting. I was hit by a wooden swing (the corner of it) in

the head with an adult man on the swing and in full swing, and I know

2 others with MS that both had head injuries. They were older when

they had theirs, but their symptoms started shortly thereafter, too,

and then several years later they were diagnosed. Just something I

wonder if there is a link there....Thanks for sharing your story!

> Hi ,

> Interesting question that you ask. I was in an auto accident when

I was 21. Thrown out of the car, knocked out and woke up with a

concussion. No other injuries but the ms symptoms started shortly

thereafter. That was in 1962.

> Regards,

> Tom

[Guest guest]

Andreia,

Don't forget........"Beauty is in the eye of the beholder".

Regards,

Tom

[Guest guest]

hi linda my name is wayne. I also lwas using 70-30 semce the early nineties and

I starteed on lantis in thae eavening amd humalog thre ee times a daoy about

twwo weeks ago and sence thean I have felt a lot b'etter snce my sugars are not

as aretic as thaay used to ge. friends wwayne

intro

First of all thanks to those of you who responded to my earlier

post. I'm what is known as a brittle diabetic and this has been driving

my Drs. crazy since I was diagnosed in 1973.

My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

found me lying unconsess on the living room floor. I was three at the time.

I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in the

a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I had

been asking my Dr about changing my insulin for several weeks since it

hadn't been changed since I was 22.

I'm trying to do better with checking my blood sugars and try to get in at

least 2 a day. Knock on wood; my eye site is the only thing this rotten

disease has effected which baffels the heck out of my Dr. Talk again later.

Lynda

------------------------------------------------------------------------------

[Guest guest]

,

Welcome to this list serve. I hope you have come just in time to save the

rest of your vision from going away.

Several here are former so-called brittle diabetics, but they are brittle no

longer. In fact some of them lost their vision completely before learning

how to have normal blood sugars. You, too, can have normal blood sugars and

be a brittle diabetic no more.

The answers to prevent diabetic complications are simple to learn, and with

practice, trial and error easy to apply.

If your answers to the two questions below are an unequivocal " yes " , you

already know how to do it. If the answer you give is a " no " either

hesitatingly or unequivocally, then you have definitely come to the right

place.

We will teach you how to have normal blood sugars, and you in turn can teach

your doctor what you learn here, since you will need his cooperation and

assistance in normalizing your blood sugars.

1. Can you tell us exactly how many grams of carbohydrates you eat or

consume for each meal, for a snack or for the total in a day?

2. Do you measure your glucose level two hours after a meal to see if you

are in the normal range under 120?

I already know your answer to the second question, which is a " no " .

If you don't know the answer to the first question, then you do not know how

to count grams of carbohydrates consumed.

As far as I know, with your using 70/30 insulin, there is no way you will

ever obtain normal glucose levels, and therefore your eye sight may continue

to decline, if you still have some.

Unless you can give a resounding " yes! " to the two questions posed above,

you may never obtain normal glucose levels in your blood stream.

According to your reported A1C's your diabetes is out of control, and it is

imperative that you get on the right track quickly and stay there for the

rest of your life.

Last August I had an A1C of 9.2, and with the help of the folks here, I now

run normal glucose levels. By the way a normal glucose level A1C is well

below 5.5, where this is where you want to be with normal glucose management

and control. Last March my A1C was 5.1, and I plan to stay near that

reading for the rest of my life to avoid diabetic complications, which you

are having.

Welcome aboard, and I hope you get to know others like , who use to be

a brittle diabetic, too. He is brittle no more. With today's knowledge and

technology there is no good reason not to have normal glucose levels.

Follow our recommendations to the letter and share them with your doctor and

family. You will have a dramatic and positive change in your glucose levels

as well as in your behavior. Believe me when I say it is not that

complicated to learn how to do it and you and your doctor will soon see the

results.

Can you get your docgtor to make some changes in the medications he/she

prescribes?

Can you get your doctor to order some lab tests for you?

I am looking forward to hearing from you often, and you will be in control

in just a few weeks.

Thumbs up to you, and we will see you later!

intro

> First of all thanks to those of you who responded to my earlier

> post. I'm what is known as a brittle diabetic and this has been driving

> my Drs. crazy since I was diagnosed in 1973.

>

> My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

> suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

> found me lying unconsess on the living room floor. I was three at the

time.

>

> I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in

the

> a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

> April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I

had

> been asking my Dr about changing my insulin for several weeks since it

> hadn't been changed since I was 22.

>

> I'm trying to do better with checking my blood sugars and try to get in at

> least 2 a day. Knock on wood; my eye site is the only thing this rotten

> disease has effected which baffels the heck out of my Dr. Talk again

later.

>

> Lynda

>

>

>

>

>

>

[Guest guest]

,

Harry speaks the truth.

My new bride is a Diabetic and I joined this list to learn about

controlling Diabetes.

My bride, Crystal, has run well over 400 on her blood sugar levels.

We have been working on this for just about a month I think and Crystal

now regularly has levels in the 70s in the morning. She still has an

occasional spike in the afternoon but we are gaining on that also.

The only thing we have really changed is the amount of carbs Crystal

takes in during the day.

She now takes her levels several times during the day in order to know

where she is and then adjusts her diet accordingly.

, it will work and it will work well.

Cy Selfridge, the Ancient One...

Oh yes, Welcome aboard this train.

Re: intro

,

Welcome to this list serve. I hope you have come just in time to save

the rest of your vision from going away. Several here are former

so-called brittle diabetics, but they are brittle no longer. In fact

some of them lost their vision completely before learning how to have

normal blood sugars. You, too, can have normal blood sugars and be a

brittle diabetic no more. The answers to prevent diabetic complications

are simple to learn, and with practice, trial and error easy to apply.

If your answers to the two questions below are an unequivocal " yes " , you

already know how to do it. If the answer you give is a " no " either

hesitatingly or unequivocally, then you have definitely come to the

right place. We will teach you how to have normal blood sugars, and you

in turn can teach your doctor what you learn here, since you will need

his cooperation and assistance in normalizing your blood sugars. 1. Can

you tell us exactly how many grams of carbohydrates you eat or consume

for each meal, for a snack or for the total in a day? 2. Do you measure

your glucose level two hours after a meal to see if you are in the

normal range under 120? I already know your answer to the second

question, which is a " no " . If you don't know the answer to the first

question, then you do not know how to count grams of carbohydrates

consumed. As far as I know, with your using 70/30 insulin, there is no

way you will ever obtain normal glucose levels, and therefore your eye

sight may continue to decline, if you still have some. Unless you can

give a resounding " yes! " to the two questions posed above, you may never

obtain normal glucose levels in your blood stream. According to your

reported A1C's your diabetes is out of control, and it is imperative

that you get on the right track quickly and stay there for the rest of

your life. Last August I had an A1C of 9.2, and with the help of the

folks here, I now run normal glucose levels. By the way a normal

glucose level A1C is well below 5.5, where this is where you want to be

with normal glucose management and control. Last March my A1C was 5.1,

and I plan to stay near that reading for the rest of my life to avoid

diabetic complications, which you are having. Welcome aboard, and I hope

you get to know others like , who use to be a brittle diabetic,

too. He is brittle no more. With today's knowledge and technology

there is no good reason not to have normal glucose levels. Follow our

recommendations to the letter and share them with your doctor and

family. You will have a dramatic and positive change in your glucose

levels as well as in your behavior. Believe me when I say it is not

that complicated to learn how to do it and you and your doctor will soon

see the results. Can you get your docgtor to make some changes in the

medications he/she prescribes? Can you get your doctor to order some lab

tests for you? I am looking forward to hearing from you often, and you

will be in control in just a few weeks. Thumbs up to you, and we will

see you later!

intro

> First of all thanks to those of you who responded to my earlier

> post. I'm what is known as a brittle diabetic and this has been

driving

> my Drs. crazy since I was diagnosed in 1973.

>

> My name is Lynda and I'm 36 and live in Ohio; home of the

> Dum-Dum suckers and The Etch-A-Sketch. I was diagnosed with diabetes

> after my Mom found me lying unconsess on the living room floor. I was

> three at the

time.

>

> I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis

> in

the

> a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started

> this April after my hemoblobin went from 7.0 to 9.1 and then back to

> 8.2. I

had

> been asking my Dr about changing my insulin for several weeks since it

> hadn't been changed since I was 22.

>

> I'm trying to do better with checking my blood sugars and try to get

> in at least 2 a day. Knock on wood; my eye site is the only thing

> this rotten disease has effected which baffels the heck out of my Dr.

> Talk again

later.

>

> Lynda

>

>

>

>

>

>

[Guest guest]

Lynda,

This time I think I spelled your name correctly.

Most likely you are a brittle diabetic because of the abnormal fluctuations

in your glucose levels. This is usually caused by inadequate mastery of

carb counting and inadequate dosing of medication. These two factors lead

one to have large swings in their glucose levels from some very lows to some

very highs.

The blurring of your vision or the loss of your vision is usually the

results of spikes in your glucose levels above 160, where glycation occurs,

causing the formation of sorbitol in the affected cell, and thus its death.

It sounds like you are experiencing some deterioration in your vision due to

a form of neuropathy affecting your retina. In the case of visual

impairment as a result of diabetic complications, I hesitate to tell you

that as far as I know, there is no way to gain back the vision you have

lost. I, on the other hand, am happy to tell you that the prevention of

further loss of vision is quite possible by your mastery and control of

diabetes by having and maintaining normal blood glucose levels.

Unfortunately, and I say this with some regret, most doctors do not know how

to establish and maintain normal glucose levels in a diabetic. I must also

say that there even fewer doctors, even if they know what they are doing,

who take the time and effort to instruct the diabetic on how to do this.

Most doctors are not up on the latest research. Most doctors depend upon

drug representatives to instruct them on what to do, when it comes to

medication for various medical problems, and in the case of a diabetic, most

doctors depend on a dietician or a nutritionist trained and schooled in the

ways of the food exchange system as touted by the American Diabetes

Association, to teach the diabetic about diet.

Well, I hope your physician will listen to you as my doctor listens to me

regarding what I have learned from my fellow listers here. We are the

experts and you are amongst us, and you, too, will soon become an expert on

your treatment and care. We are highly motivated and knowledgeable about

diabetes. Most likely your doctor, if he/she is like most of our doctors,

do not have diabetes themselves. So most of us here view diabetes

management and control with a different view. We do it all or as much of it

as we can. We are the experts. We walk the walk and we talk the talk. We

are always looking out for a better way to do it. We are glad to teach you

and your doctor, if necessary how to do it.

All of your comments are welcomed, and I hope you stick around and post

with us.

Remember this one basic fact. Insulin works on carbohydrates; not fat and

not protein.

Again,

Welcome aboard!

intro

> First of all thanks to those of you who responded to my earlier

> post. I'm what is known as a brittle diabetic and this has been driving

> my Drs. crazy since I was diagnosed in 1973.

>

> My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

> suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

> found me lying unconsess on the living room floor. I was three at the

time.

>

> I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in

the

> a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

> April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I

had

> been asking my Dr about changing my insulin for several weeks since it

> hadn't been changed since I was 22.

>

> I'm trying to do better with checking my blood sugars and try to get in at

> least 2 a day. Knock on wood; my eye site is the only thing this rotten

> disease has effected which baffels the heck out of my Dr. Talk again

later.

>

> Lynda

>

>

>

>

>

>

[Guest guest]

Hi Harry,

I have been totally blind for 12 years now. I had 13 eye surgeries trying

to save my eye sight. The last surgery was done on July 1992 and I had a

vitreous hemmorage and my retina detached. I had the top retinal surgeon

doing all the surgeries and he cried right along with me when he told me I

would never see again. To this day we remian good friends and he always

takes my calls when I call to just say hi.

Tonights blood sugar at midnight was 154 which is right where my Dr. wants

it. He likes me to run between 100-150. I drop to low if under 100. I

plan on staying here for awhile and hope to learn more. Things have

changed so much since I was diagnosed and they will continue to change as I

get older.

At 11:57 PM 5/17/2004 -0400, you wrote:

>Lynda,

>This time I think I spelled your name correctly.

>Most likely you are a brittle diabetic because of the abnormal fluctuations

>in your glucose levels. This is usually caused by inadequate mastery of

>carb counting and inadequate dosing of medication. These two factors lead

>one to have large swings in their glucose levels from some very lows to some

>very highs.

>The blurring of your vision or the loss of your vision is usually the

>results of spikes in your glucose levels above 160, where glycation occurs,

>causing the formation of sorbitol in the affected cell, and thus its death.

>It sounds like you are experiencing some deterioration in your vision due to

>a form of neuropathy affecting your retina. In the case of visual

>impairment as a result of diabetic complications, I hesitate to tell you

>that as far as I know, there is no way to gain back the vision you have

>lost. I, on the other hand, am happy to tell you that the prevention of

>further loss of vision is quite possible by your mastery and control of

>diabetes by having and maintaining normal blood glucose levels.

>Unfortunately, and I say this with some regret, most doctors do not know how

>to establish and maintain normal glucose levels in a diabetic. I must also

>say that there even fewer doctors, even if they know what they are doing,

>who take the time and effort to instruct the diabetic on how to do this.

>Most doctors are not up on the latest research. Most doctors depend upon

>drug representatives to instruct them on what to do, when it comes to

>medication for various medical problems, and in the case of a diabetic, most

>doctors depend on a dietician or a nutritionist trained and schooled in the

>ways of the food exchange system as touted by the American Diabetes

>Association, to teach the diabetic about diet.

>Well, I hope your physician will listen to you as my doctor listens to me

>regarding what I have learned from my fellow listers here. We are the

>experts and you are amongst us, and you, too, will soon become an expert on

>your treatment and care. We are highly motivated and knowledgeable about

>diabetes. Most likely your doctor, if he/she is like most of our doctors,

>do not have diabetes themselves. So most of us here view diabetes

>management and control with a different view. We do it all or as much of it

>as we can. We are the experts. We walk the walk and we talk the talk. We

>are always looking out for a better way to do it. We are glad to teach you

>and your doctor, if necessary how to do it.

>All of your comments are welcomed, and I hope you stick around and post

>with us.

> Remember this one basic fact. Insulin works on carbohydrates; not fat and

>not protein.

>Again,

>Welcome aboard!

>

>

> intro

>

>

> > First of all thanks to those of you who responded to my earlier

> > post. I'm what is known as a brittle diabetic and this has been driving

> > my Drs. crazy since I was diagnosed in 1973.

> >

> > My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

> > suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

> > found me lying unconsess on the living room floor. I was three at the

>time.

> >

> > I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in

>the

> > a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

> > April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I

>had

> > been asking my Dr about changing my insulin for several weeks since it

> > hadn't been changed since I was 22.

> >

> > I'm trying to do better with checking my blood sugars and try to get in at

> > least 2 a day. Knock on wood; my eye site is the only thing this rotten

> > disease has effected which baffels the heck out of my Dr. Talk again

>later.

> >

> > Lynda

> >

> >

> >

> >

> >

> >

[Guest guest]

.

I was diagnosed in 1972 as a type 1 diabetic, live in Ohio, and am 32. For years

I was told I was brittle diabetic and now run a pre meal sugar of 80 and a 2

hour post meal sugar of 120 or less. My last three a1c readings were 5.3, 5.3,

and 5.4. So how did I lose the brittle diabetic status over night? Simple, carb

counting and learning how to dose humalog insulin to cover carbs. If you want

some help on how to get your a1c down to around 5, let me know and we can help

you out.

Sounds like we have a very similar background smile.

Regards,

intro

First of all thanks to those of you who responded to my earlier

post. I'm what is known as a brittle diabetic and this has been driving

my Drs. crazy since I was diagnosed in 1973.

My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

found me lying unconsess on the living room floor. I was three at the time.

I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in the

a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I had

been asking my Dr about changing my insulin for several weeks since it

hadn't been changed since I was 22.

I'm trying to do better with checking my blood sugars and try to get in at

least 2 a day. Knock on wood; my eye site is the only thing this rotten

disease has effected which baffels the heck out of my Dr. Talk again later.

Lynda

------------------------------------------------------------------------------

[Guest guest]

amen amen amen. couldn't have said it better myself Harry.

Regards,

intro

> First of all thanks to those of you who responded to my earlier

> post. I'm what is known as a brittle diabetic and this has been driving

> my Drs. crazy since I was diagnosed in 1973.

>

> My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

> suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

> found me lying unconsess on the living room floor. I was three at the

time.

>

> I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in

the

> a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

> April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I

had

> been asking my Dr about changing my insulin for several weeks since it

> hadn't been changed since I was 22.

>

> I'm trying to do better with checking my blood sugars and try to get in at

> least 2 a day. Knock on wood; my eye site is the only thing this rotten

> disease has effected which baffels the heck out of my Dr. Talk again

later.

>

> Lynda

>

>

>

>

>

>

[Guest guest]

, There is a great book out by Dr. Bernstein which is called

" Diabetic Solutions: Revised " . he is a very long term diabetic himself and

has a great diet that can help you get in control. I had the book put on

tape at the Braille volunteer cent in L.S. YOu can get it at no cost by

calling 800-braille () If that doesn't work, call them long

distance at and ask for the volunteer reading departmen and ask

for the book. intro

First of all thanks to those of you who responded to my earlier

post. I'm what is known as a brittle diabetic and this has been driving

my Drs. crazy since I was diagnosed in 1973.

My name is Lynda and I'm 36 and live in Ohio; home of the Dum-Dum

suckers and The Etch-A-Sketch. I was diagnosed with diabetes after my Mom

found me lying unconsess on the living room floor. I was three at the time.

I take 3 shots a day 15 units of 70/30 Humulin and 8 units of Lantis in the

a.m. and 8 units of 70/30 Humulin at supper. The Lantis was started this

April after my hemoblobin went from 7.0 to 9.1 and then back to 8.2. I had

been asking my Dr about changing my insulin for several weeks since it

hadn't been changed since I was 22.

I'm trying to do better with checking my blood sugars and try to get in at

least 2 a day. Knock on wood; my eye site is the only thing this rotten

disease has effected which baffels the heck out of my Dr. Talk again later.

Lynda

[Guest guest]

Is fentanyl the same thing as Dura-gesic patches?

that is what my Mama uses 75 mg.

Jena

~:~Jena~:~

My Home Page

My E-mail

Intro

Hi all,

I am new here, I have been a chronic pain pt for over 5 yrs now. I

had surgery for my neck and back and both failed. I had the fusion

with a plate in c5-6 and a laminectomy l4-5. I was left with the

normal nerve damage, my left leg and foot is trashed and I still have

constant pain. I am on Fentanyl 100mcg, neurontin 3600, norco 10/325

however many I want up to 180 per month for breakthru pain, topamax,

flexeril, ultram, and elavil for pain. I also take lexipro, lotensin

hctz, zocor and nitro as needed.

All that and I am still in pain. My biggest issue at the moment is

finding a Dr in the Dallas/Ft Worth area that can write for the

fentanyl. I have been thru a myriad of drs already and cant find one

that can/WILL write for the fentanyl. If I could come off this drug,

trust me, I would, but thats just not an option at this point unless I

want to be dead. Does anyone here know of any pain Drs in the Dallas

Area?

I had no problems when I was in San Diego and am glad I moved with a

supply of meds but now I am getting desperate to find someone since I

cant afford to fly back and forth to San Diego.

If anyone here knows of anyone I would greatly appreciate the info!!

Hoping all have a pain free day!

Thanks so much,

------------------------------------------------------------------------------

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AM

[Guest guest]

What is norco and hctz? never heard of those.

Jena

~:~Jena~:~

My Home Page

My E-mail

Intro

Hi all,

I am new here, I have been a chronic pain pt for over 5 yrs now. I

had surgery for my neck and back and both failed. I had the fusion

with a plate in c5-6 and a laminectomy l4-5. I was left with the

normal nerve damage, my left leg and foot is trashed and I still have

constant pain. I am on Fentanyl 100mcg, neurontin 3600, norco 10/325

however many I want up to 180 per month for breakthru pain, topamax,

flexeril, ultram, and elavil for pain. I also take lexipro, lotensin

hctz, zocor and nitro as needed.

All that and I am still in pain. My biggest issue at the moment is

finding a Dr in the Dallas/Ft Worth area that can write for the

fentanyl. I have been thru a myriad of drs already and cant find one

that can/WILL write for the fentanyl. If I could come off this drug,

trust me, I would, but thats just not an option at this point unless I

want to be dead. Does anyone here know of any pain Drs in the Dallas

Area?

I had no problems when I was in San Diego and am glad I moved with a

supply of meds but now I am getting desperate to find someone since I

cant afford to fly back and forth to San Diego.

If anyone here knows of anyone I would greatly appreciate the info!!

Hoping all have a pain free day!

Thanks so much,

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.5.432 / Virus Database: 268.17.24/668 - Release Date: 2/4/2007 1:30

AM

[Guest guest]

yes, they are the same.

At 08:26 PM 2/4/2007, you wrote:

>Is fentanyl the same thing as Dura-gesic patches?

>that is what my Mama uses 75 mg.

>Jena

>

>~:~Jena~:~

>My Home Page

>My E-mail

[Guest guest]

Hi ,

Here are a bunch of pain clinics in and around the Dallas area. Pick one and see

what happens. Good luck. I hope you can find one in this list.

Hugs,

Tommie

PS. Welcome to the group!

Southwestern Pain Institute (Dallas )

THE PAIN MEDICINE CENTER AT DOCTOR'S HOSPITAL (DALLAS )

PAIN CENTER (DALLAS )

ANODYNE PAINCARE (DALLAS )

TEXAS PAIN MEDICINE CLINIC (DALLAS )

PRODUCTIVE REHABILITATION INSTITUTE OF DALLAS FOR ERGONOMICS (PRIDE) (DALLAS )

UNIVERSITY OF TEXAS - SOUTHWESTERN MEDICAL CENTER

EUGENE MCDERMOTT CENTER FOR PAIN MANAGEMENT (DALLAS )

DALLAS MEDICAL ASSOCIATES (DALLAS )

BAYLOR CENTER FOR PAIN Management (DALLAS )

PAIN NET OF TEXAS INC (DALLAS )

U.T. SOUTHWESTERN MEDICAL CENTER ANESTHESIOLOGY DEPARTMENT (DALLAS )

NORTH TEXAS PAIN MANAGEMENT ASSOCIATES PA (DALLAS )

THE PAIN MANAGEMENT CENTER

METHODIST MEDICAL CENTER (DALLAS )

ANODYNE HEADACHE PAIN CARE (DALLAS )

DALLAS MIND/BODY MEDICINE (DALLAS )

WOLSKI MEDICAL CLINIC (DALLAS )

DALLAS HEADACHE CLINIC (DALLAS )

TEXOMA PAIN CLINIC (DENISON )

WOLSKI MEDICAL CLINIC (DENTON )

TEXAS PAIN MEDICINE CLINIC (DALLAS )

PRODUCTIVE REHABILITATION INSTITUTE OF DALLAS FOR ERGONOMICS (PRIDE) (DALLAS )

UNIVERSITY OF TEXAS - SOUTHWESTERN MEDICAL CENTER

EUGENE MCDERMOTT CENTER FOR PAIN MANAGEMENT (DALLAS )

DALLAS MEDICAL ASSOCIATES (DALLAS )

BAYLOR CENTER FOR PAIN Management (DALLAS )

PAIN NET OF TEXAS INC (DALLAS )

U.T. SOUTHWESTERN MEDICAL CENTER ANESTHESIOLOGY DEPARTMENT (DALLAS )

NORTH TEXAS PAIN MANAGEMENT ASSOCIATES PA (DALLAS )

THE PAIN MANAGEMENT CENTER

METHODIST MEDICAL CENTER (DALLAS )

ANODYNE HEADACHE PAIN CARE (DALLAS )

DALLAS MIND/BODY MEDICINE (DALLAS )

WOLSKI MEDICAL CLINIC (DALLAS )

DALLAS HEADACHE CLINIC (DALLAS )

TEXOMA PAIN CLINIC (DENISON )

WOLSKI MEDICAL CLINIC (DENTON )

SOUTHWEST BRAIN AND SPINE (FORT WORTH )

FORT WORTH ANESTHETICS & PAIN MANAGEMENT (FORT WORTH )

TEXAS INSTITUTE OF PAIN MEDICINE

ADVANCED PAIN CARE (FORT WORTH )

POSITIVE PAIN MANAGEMENT, INC. (GARLAND )

CENTER FOR PAIN CONTROL (GARLAND )

GRAPEVINE PAIN MANAGEMENT CLINIC (GRAPEVINE )

METROPLEX PAIN MANAGEMENT, P.A. (HURST )

ALPHA TREATMENT CENTERS, INC (IRVING )

SANJOY SUNDARESAN, M.D.

INTERVENTIONAL PAIN MANAGEMENT (WICHITA FALLS )

Intro

Hi all,

I am new here, I have been a chronic pain pt for over 5 yrs now. I

had surgery for my neck and back and both failed. I had the fusion

with a plate in c5-6 and a laminectomy l4-5. I was left with the

normal nerve damage, my left leg and foot is trashed and I still have

constant pain. I am on Fentanyl 100mcg, neurontin 3600, norco 10/325

however many I want up to 180 per month for breakthru pain, topamax,

flexeril, ultram, and elavil for pain. I also take lexipro, lotensin

hctz, zocor and nitro as needed.

All that and I am still in pain. My biggest issue at the moment is

finding a Dr in the Dallas/Ft Worth area that can write for the

fentanyl. I have been thru a myriad of drs already and cant find one

that can/WILL write for the fentanyl. If I could come off this drug,

trust me, I would, but thats just not an option at this point unless I

want to be dead. Does anyone here know of any pain Drs in the Dallas

Area?

I had no problems when I was in San Diego and am glad I moved with a

supply of meds but now I am getting desperate to find someone since I

cant afford to fly back and forth to San Diego.

If anyone here knows of anyone I would greatly appreciate the info!!

Hoping all have a pain free day!

Thanks so much,

[Guest guest]

Hi Tommie, Do you know of any pain clinics over my

way? Texarkana or Idabel ot Mt Pleasant?

Thanks,

--- Tommie wrote:

> Hi ,

>

> Here are a bunch of pain clinics in and around the

> Dallas area. Pick one and see what happens. Good

> luck. I hope you can find one in this list.

> Hugs,

> Tommie

> PS. Welcome to the group!

>

> Southwestern Pain Institute (Dallas )

> THE PAIN MEDICINE CENTER AT DOCTOR'S HOSPITAL

> (DALLAS )

> PAIN CENTER (DALLAS )

> ANODYNE PAINCARE (DALLAS )

> TEXAS PAIN MEDICINE CLINIC (DALLAS )

> PRODUCTIVE REHABILITATION INSTITUTE OF DALLAS FOR

> ERGONOMICS (PRIDE) (DALLAS )

> UNIVERSITY OF TEXAS - SOUTHWESTERN MEDICAL CENTER

> EUGENE MCDERMOTT CENTER FOR PAIN MANAGEMENT (DALLAS

> )

> DALLAS MEDICAL ASSOCIATES (DALLAS )

> BAYLOR CENTER FOR PAIN Management (DALLAS )

> PAIN NET OF TEXAS INC (DALLAS )

> U.T. SOUTHWESTERN MEDICAL CENTER ANESTHESIOLOGY

> DEPARTMENT (DALLAS )

> NORTH TEXAS PAIN MANAGEMENT ASSOCIATES PA (DALLAS )

> THE PAIN MANAGEMENT CENTER

> METHODIST MEDICAL CENTER (DALLAS )

> ANODYNE HEADACHE PAIN CARE (DALLAS )

> DALLAS MIND/BODY MEDICINE (DALLAS )

> WOLSKI MEDICAL CLINIC (DALLAS )

> DALLAS HEADACHE CLINIC (DALLAS )

> TEXOMA PAIN CLINIC (DENISON )

> WOLSKI MEDICAL CLINIC (DENTON )

> TEXAS PAIN MEDICINE CLINIC (DALLAS )

> PRODUCTIVE REHABILITATION INSTITUTE OF DALLAS FOR

> ERGONOMICS (PRIDE) (DALLAS )

> UNIVERSITY OF TEXAS - SOUTHWESTERN MEDICAL CENTER

> EUGENE MCDERMOTT CENTER FOR PAIN MANAGEMENT (DALLAS

> )

> DALLAS MEDICAL ASSOCIATES (DALLAS )

> BAYLOR CENTER FOR PAIN Management (DALLAS )

> PAIN NET OF TEXAS INC (DALLAS )

> U.T. SOUTHWESTERN MEDICAL CENTER ANESTHESIOLOGY

> DEPARTMENT (DALLAS )

> NORTH TEXAS PAIN MANAGEMENT ASSOCIATES PA (DALLAS )

> THE PAIN MANAGEMENT CENTER

> METHODIST MEDICAL CENTER (DALLAS )

> ANODYNE HEADACHE PAIN CARE (DALLAS )

> DALLAS MIND/BODY MEDICINE (DALLAS )

> WOLSKI MEDICAL CLINIC (DALLAS )

> DALLAS HEADACHE CLINIC (DALLAS )

> TEXOMA PAIN CLINIC (DENISON )

> WOLSKI MEDICAL CLINIC (DENTON )

> SOUTHWEST BRAIN AND SPINE (FORT WORTH )

> FORT WORTH ANESTHETICS & PAIN MANAGEMENT (FORT WORTH

> )

> TEXAS INSTITUTE OF PAIN MEDICINE

> ADVANCED PAIN CARE (FORT WORTH )

> POSITIVE PAIN MANAGEMENT, INC. (GARLAND )

> CENTER FOR PAIN CONTROL (GARLAND )

> GRAPEVINE PAIN MANAGEMENT CLINIC (GRAPEVINE )

> METROPLEX PAIN MANAGEMENT, P.A. (HURST )

> ALPHA TREATMENT CENTERS, INC (IRVING )

> SANJOY SUNDARESAN, M.D.

> INTERVENTIONAL PAIN MANAGEMENT (WICHITA FALLS )

>

>

> Intro

>

>

> Hi all,

> I am new here, I have been a chronic pain pt for

> over 5 yrs now. I

> had surgery for my neck and back and both failed.

> I had the fusion

> with a plate in c5-6 and a laminectomy l4-5. I was

> left with the

> normal nerve damage, my left leg and foot is

> trashed and I still have

> constant pain. I am on Fentanyl 100mcg, neurontin

> 3600, norco 10/325

> however many I want up to 180 per month for

> breakthru pain, topamax,

> flexeril, ultram, and elavil for pain. I also take

> lexipro, lotensin

> hctz, zocor and nitro as needed.

> All that and I am still in pain. My biggest issue

> at the moment is

> finding a Dr in the Dallas/Ft Worth area that can

> write for the

> fentanyl. I have been thru a myriad of drs already

> and cant find one

> that can/WILL write for the fentanyl. If I could

> come off this drug,

> trust me, I would, but thats just not an option at

> this point unless I

> want to be dead. Does anyone here know of any pain

> Drs in the Dallas

> Area?

> I had no problems when I was in San Diego and am

> glad I moved with a

> supply of meds but now I am getting desperate to

> find someone since I

> cant afford to fly back and forth to San Diego.

> If anyone here knows of anyone I would greatly

> appreciate the info!!

> Hoping all have a pain free day!

> Thanks so much,

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

>

[Guest guest]

Hi:

Don't get me wrong, I understand what you are saying. I come personally from

a family of drinkers as well as drug abusers that steal from not only each other

but other family and friends just so they can get their kicks of weed, cocaine,

heroin. I've seem some pop pills as if they are candy and then some and be

shocked that they are still alived.

The whole family is very concerned for my father in law, and what I mean for

the whole family I mean my husbands, family as my parents are gone and there is

no one else on my side(there is but not as far as I am concerned and I will

leave it at that). I know that that my father in law, Bruce is going through so

major pain. Heck, my own father whose disease literally ate him inside out,

went through some pain as well, and Bruces pain is nothing like what my father

went through, but what Bruce is going through is more than I can physically at

this point image.

The drug itself can become addicting. Do we think that he is addicted,

definetly? I'm not saying that we don't care nor want to understand what he is

going through because if that is the case I as his daugther in law would not be

on this forum let alone up at this time of hour when I have to go to work in

four hours. I know that there is not a cure, but I know in my heart of all

hearts that taking the Vicodin is not right for him. I personally am not asking

him to stop taking it as ie and my Jeffy are doing, but rather asking him

to cut down because I am fearing another drug overdose. Ever take candy from a

baby? Don't dare even suggest detox to the man let alone take away his pills

its bad. And right now he has two pills as we speak left. He cant get another

refill until the 18th of the month. Each month he keeps running out and tops

that he is to take is 3 a day. I asked him honestly because I am his favorite

and he knows how upset that I am but at the same

time I try to be understanding and tell him I trying to find you other options,

I want you to be able to deal with the pain, I want you to see me have your

grandbaby and have somewhat a life than to sit in a recliner not able to get out

of it because the pain is too much. You know what he said, he rather have his

legs taken off just so that the pain in his feet does not spread, because he

can't take it anymore. That he can't sleep at night either. He gets 30 minutes

in he takes a pill and he is out for an hour, he takes another pill, sleeps for

about 30 minutes and on and hour to where he is taking about 5 pills if not

more. And when he does not have his pills he is nasty to everyone, he knows

better than to be nasty to me. It has happen to me once and it was not a good

site later of which he broke down and cried because he knew that he hurt my

feelings and then some. The doctor said that he has to get up and walk around,

each 5 small meals a day, go to classes and I

can't even help me on those two because I don't know where to start or go, and

he tells me that he can't because its too much and pops another pill. And after

he takes all of these pills, his skin turns gray, and he is sweating profusely,

and when you try to talk to him he doesn't really respond. You know that he is

alive because his chest is beating and I feel a pulse. I know that he needs the

viocidin or something like it for the pain I just don't want him to take so much

that he overdoses again. I am fine to a point of his taking it with whatever he

needs if it means that it will give him a hour back of his life to be a human

person again, to want to make every effort of going out to the store that is 3

minutes away.

You may think that I am asking for a miracle or too much, or may think that I

am selfish. I hope that is not the case. Im deeply concerned because I already

lost two parents back to back at their young age of 53, I am not ready to lose

him yet without a fight. I couldn't help my parents, but I believe in faith,

and my heart that with a doctor that is not pumping him full of medications that

he may or may not need that he is getting everything out there that could

possibly give him another day of life then to be at an comtose level because he

is eating literally vicodin as if it is candy. Im not doubting the pain that he

is in, but at the same time I am in fact doubting that on a mental level that he

feels that he has to take it because he has no choice and that he does have to a

point an addition of the vicodin since he has been taking it for some long.

Carol

" Lotacatz>^.^ wrote:

Hi:

Glad you're here. This is a nice place to be.

I just wanted to say do not to let the word

" addicting " become a criteria on what meds he uses.

Some people get it mixed up with tolerance. Sometimes

that can be controlled. Depends on how the doc wants

to handle it. I manage to keep mine low.

At best maybe 2% of painers on so called " addicting "

pain meds may have to make use of a treatment program

for it but it is by no means automatic to become

addicted. Addiction is phyco/social/ and has nothing

to do with the tolerance which follows addiction like

a dumb dog.

http://www.painlaw.org/opioids.html

Just didn't want you to use that as a criteria to his

treatment. Confusion about addiction has prevented

people from getting proper pain relief due to

misunderstanding by some doctors who really aren't

very good at diagnosing addiction and families who

don't understand it. Some doctors throw the word

around to discourage people from having them write an

opiate prescription as they don't want to flag the DEA

for any reason or risk someone that is not kosher

about his/her pain.

Taking opiates for pain is a whole different criteria

for us as the addict uses it for a high. Painers

hardly feel " high " ...crap...we just wanna get the pain

within the range of being able to tolerate it and

function best we can.

I have to use opiates as it closes the " gateway " to a

specific myofacial spasm and prevents it's occurance

as well as stops it from doing what it does.

I have fibromyalgia, myofacial pain syndrome,

debilitating osteo arthritis that effected my arms and

spine badly and ate thru L3 and L4 and crashed on the

nerves causing burning/pain/shooting pains down the

from of my left leg..on top and sciatica on the right

from an old back injury. The joint damage is

progressive.

I try to make myself useful by working with internet

victims and sending goodies to soldiers and running an

online t shirt shop. Keeps me busy and my mind as

active as possible for someone with some heavy duty

" Fibro Fog " . Trust me...addicts aren't into that.

Is he seeing a pain specialist? Sometimes that helps.

I use my own family doc as he is good at understanding

fibro and pain. The real pain doc is for the birds.

You never know who'll work out best.

Former substance abuse coucelor/psych nurse rnc.

*¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬*

On the internet, no knows you're a cat.

~StrykerMom~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--- carolyn wrote:

> Hi!. I just joined this forum on the behalf of my

> father-in-law

> Bruce whom is 63 years young and has Diabetes

> Neuropathy. Please

> feel free to call me Carol.

>

> My purpose of joining this forum is that I have

> already lost

> personally my mother and father, therefore my

> husbands father whom

> was already special to me, is even now more special.

> He has had

> this disease for a about a year or two. I am the

> first daugther for

> him and his favorite.

>

> He is in a lot of pain, and the mediciations that

> this doctor has

> him on is unbelieveable(and I thought my dad was on

> a lot of

> medicines). There are just days that the pain is

> too much and what

> he is taking which is addicting is not helping.

> I've done my homework, I know that it is not 100%

> cureable, but I am

> also a firm believer that he is not the only one in

> the world that

> is going through this and I am bond and determine to

> find a

> treatment to where he can get some type of relieve

> so that he has

> the strength to be on this feet to actually do some

> walking that is

> suppose to help instead of crying in agony pain

> because it hurts to

> walk just to the bathroom at times.

>

> And I am also hoping to learn from those that have

> had the

> experience, the knowledge the stories and can relate

> because my

> father in law feels that he is alone in this world

> with this

> disease. Each night I'll be printing and reading to

> him(he likes

> that...its our special time together) about what I

> have learned and

> research. I see that small glimmer of light in his

> eyes (because I

> know that this disease also can cause depression)

> that I am going to

> fight along with him on this, and it will prove to

> him that he is

> not alone and that maybe there are suggestions and

> stories of how

> one lives with it on a day to day basis.

>

> Sorry for the long post

> carol

>

>

Lotacats >^.^<

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/2715248

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[Guest guest]

Hi ,

Welcome to the group. Look forard to getting to know you.

wrote:

hey yall im new to the group. im and im 26 yrs.old yall have

a good day

To read these messages on the Hugs web site go to:

http://groups.yahoo.com/group/Hugs-N-Pain

you can contact me privately at starlyin@...

Rose

Owner/ Moderator Hugs N Pain

God Bless our Troops

Please Pray for them

[Guest guest]

if he is taking so many pills he is out in 15 days what does he do for the

other 15 days .. until U know nerve pain U cant possibly tell someone to deal

with it he is using to many to kill the pain because 3 vicadin's wont touch

it he is addicted to not feeling the pain not the med's... a addict

couldn't go all those days without med's..those symptoms U describe sound more

like

his sugar then vicadin..there are much better pain med's then that that he

could use two a day of and if U think he is abusing get in control of his

med's ..it is hard to NOT take another when U R in pain...

and remembering U mentioning it there are people on this list who have had

there legs removed over nerve pain and it does travel almost always also and

then U have phantom pains that are there wether your legs are or not ..

there are pain med's to relieve his pain he just needs a Dr to handle it

please remember the suicide rate for people in chronic pain is 800 percent

above normal and most of them are because there pain isn't treated properly

Love to you all

God bless and keep you

Rose

Owner/Moderator Hugs for Pain

_ http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086_

(http://health.groups.yahoo.com/group/Hugs-N-Pain/?yguid=2992086) _

http://hometown.aol.com/starlyin/HUGS.html_

(http://hometown.aol.com/starlyin/HUGS.html)

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