Re: Re: my pity party~ another member

[Guest guest]

my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were not very good. I overdid the PFT because I wanted the numbers to be good. I got home at 1:30p and was totally exhausted. So exhausted, that I became ill and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. When I woke up my chest hurt so bad, and I just knew the end was near. Of course as you all well know, a thousand thoughts crossed my mind. I stayed in bed all day Friday, as I was too weak to get up and down, and could not eat anything. My boys were so concerned. My heart goes out to them. I can tell there are some changes that have taken place, as I don't feel like I can inhale as much air as I have been. Everything Vicky described about being tired of dragging around 02, pills, Dr. appoints., even bartering with God for one more birthday, or Christmas, or just more time, is exacty how I have felt. I know Christ is my Comforter and Saviour. And I know He has prepared a place for me. I just love my friends and family so much. As you can tell, fear has about swallowed me up. I covet your prayers, and lift you up in mine. I love you all...and know you all understand how I feel. Thank you for allowing me to unburden myself.

kiss kis,

~Ginger~

9/04 ipf

[Guest guest]

Hi Everyone,Just curious....when you go to your normal pulmonary visit what tests to they do to see how you are doing? What does a PFT consist of? I'm just wondering if my dad is getting everything he needs from visit to visit. They have just been listening to his lungs and using the oximeter.Thanks so much!Cyndi (dad IPF 12/05)Joyce wrote: Ginger, Of

all the painful and time consuming tests that I have to endure, I dread the PFT the most. I get so exhausted that I can hardly function. I dread them so badly. However, they have never made me so sick. I am so sorry that you are having such a horrid time. You are such a precious and special person.....and especially precious to us. I will remember you to the Father as I always do. Wish I could be there with you. I am there in my heart and I want you to feel our love to you. Please be well. Hugs, Joyce PF 1997 >> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were > not very good. I overdid the PFT because I wanted the numbers to be good. I > got home at 1:30p and was totally exhausted. So

exhausted, that I became ill > and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. > When I woke up my chest hurt so bad, and I just knew the end was near. Of > course as you all well know, a thousand thoughts crossed my mind. I stayed in > bed all day Friday, as I was too weak to get up and down, and could not eat > anything. My boys were so concerned. My heart goes out to them. I can tell > there are some changes that have taken place, as I don't feel like I can inhale > as much air as I have been. Everything Vicky described about being tired of > dragging around 02, pills, Dr. appoints., even bartering with God for one > more birthday, or Christmas, or just more time, is exacty how I have felt. I > know Christ is my Comforter and Saviour. And I know He has prepared a place > for me. I just love my friends and family so much. As you can tell, fear has > about

swallowed me up. I covet your prayers, and lift you up in mine. I love > you all...and know you all understand how I feel. Thank you for allowing me to > unburden myself.> kiss kis,> ~Ginger~> 9/04 ipf>

[Guest guest]

Our sweet precious Ginger, I wish I could wave a magic wand and make you all

better. Warm HUGS and Warm arms around you. God Bless you with mercies

Much Love and Prayers, Peggy 9/04 ipf

> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were

> not very good. I overdid the PFT because I wanted the numbers to be good. I

> got home at 1:30p and was totally exhausted. So exhausted, that I became ill

> and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p.

> When I woke up my chest hurt so bad, and I just knew the end was near. Of

> course as you all well know, a thousand thoughts crossed my mind. I stayed

> in

> bed all day Friday, as I was too weak to get up and down, and could not eat

> anything. My boys were so concerned. My heart goes out to them. I can tell

> there are some changes that have taken place, as I don't feel like I can

> inhale

> as much air as I have been. Everything Vicky described about being tired of

> dragging around 02, pills, Dr. appoints., even bartering with God for one

> more birthday, or Christmas, or just more time, is exacty how I have felt. I

> know Christ is my Comforter and Saviour. And I know He has prepared a place

> for me. I just love my friends and family so much. As you can tell, fear has

> about swallowed me up. I covet your prayers, and lift you up in mine. I love

> you all...and know you all understand how I feel. Thank you for allowing me

> to

> unburden myself.

> kiss kis,

> ~Ginger~

> 9/04 ipf

>

[Guest guest]

Hi Cyndi, A PFT is Pulmonary Function Test. you have to blow into a tube at

different rates. It tells your Dr. how your lungs are doing and also how

your disease is progressing. About every three or four months there is a

HRCT. that is a fancy CT that shows the lung problems more clearly.

they have drawn Arterial Blood Gas three times that's ABG. they do other

blood work every other visit or so. I am done with all that until Nov. I

have to do PFT's then hopefully I will have lost the weight and get eval.

done. How is your Dad doing with the prednisone??

Much Love and Prayers, Peggy 9/04 ipf

> Hi Everyone,

> Just curious....when you go to your normal pulmonary visit what tests to they

> do to see how you are doing? What does a PFT consist of? I'm just wondering

> if my dad is getting everything he needs from visit to visit. They have just

> been listening to his lungs and using the oximeter.

>

> Thanks so much!

> Cyndi (dad IPF 12/05)

>

> Joyce wrote:

> Ginger,

> Of all the painful and time consuming tests that I have to endure, I dread the

> PFT the most. I get so exhausted that I can hardly function. I dread them so

> badly. However, they have never made me so sick. I am so sorry that you are

> having such a horrid time. You are such a precious and special person.....and

> especially precious to us. I will remember you to the Father as I always do.

> Wish I could be there with you. I am there in my heart and I want you to feel

> our love to you.

> Please be well. Hugs, Joyce PF 1997

>

>

>>

>> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were

>> not very good. I overdid the PFT because I wanted the numbers to be good. I

>> got home at 1:30p and was totally exhausted. So exhausted, that I became ill

>> and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p.

>> When I woke up my chest hurt so bad, and I just knew the end was near. Of

>> course as you all well know, a thousand thoughts crossed my mind. I stayed in

>> bed all day Friday, as I was too weak to get up and down, and could not eat

>> anything. My boys were so concerned. My heart goes out to them. I can tell

>> there are some changes that have taken place, as I don't feel like I can

>> inhale

>> as much air as I have been. Everything Vicky described about being tired of

>> dragging around 02, pills, Dr. appoints., even bartering with God for one

>> more birthday, or Christmas, or just more time, is exacty how I have felt. I

>> know Christ is my Comforter and Saviour. And I know He has prepared a place

>> for me. I just love my friends and family so much. As you can tell, fear has

>> about swallowed me up. I covet your prayers, and lift you up in mine. I love

>> you all...and know you all understand how I feel. Thank you for allowing me

>> to

>> unburden myself.

>> kiss kis,

>> ~Ginger~

>> 9/04 ipf

>>

>

>

>

>

>

[Guest guest]

Cyndi, You need to ask for pulmonary function tests. At my doctors I sit in a little box that looks like a phone booth. Then I do a series of breathing tests to measure how much oxygen my lungs are taking in and out, how much oxygen your lungs can hold and a few others. By just listening to my lungs they didn't think I was doing so bad and while I am sitting my O2 level is around 97%, but from the PF tests they could tell I was down to 34% lung volume and below 50 % on all other lung functions. He should also have a 6 minute exercise test. Becaue with most of us our O2 is okay until we start moving. I was diagnosed at the end of March and I have had the PF tests 3 times and the 6 minute exercise test 4 times Hope this helps-. wrote: Hi Everyone,Just curious....when you go to your normal pulmonary visit what tests to they do to see how you are doing? What does a PFT consist of? I'm just wondering if my dad is getting everything he needs from visit to visit. They have just been listening to his lungs and using the oximeter.Thanks so much!Cyndi (dad IPF 12/05)Joyce <joycedalton29aol> wrote: Ginger, Of all the painful and time consuming tests that I have to endure, I dread the PFT the most. I get so exhausted that I can hardly function. I dread them so badly. However, they have never made me so sick. I am so sorry that you are having such a horrid time. You are such a precious and special person.....and especially precious to us. I will remember you to the Father as I always do. Wish I could be there with you. I am there in my heart and I want you to feel our love to you. Please be well. Hugs, Joyce PF 1997 >> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were > not very good. I overdid the

PFT because I wanted the numbers to be good. I > got home at 1:30p and was totally exhausted. So exhausted, that I became ill > and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. > When I woke up my chest hurt so bad, and I just knew the end was near. Of > course as you all well know, a thousand thoughts crossed my mind. I stayed in > bed all day Friday, as I was too weak to get up and down, and could not eat > anything. My boys were so concerned. My heart goes out to them. I can tell > there are some changes that have taken place, as I don't feel like I can inhale > as much air as I have been. Everything Vicky described about being tired of > dragging around 02, pills, Dr. appoints., even bartering with God for one > more birthday, or Christmas, or just more time, is exacty how I have felt. I > know Christ is my Comforter and Saviour. And I know He has prepared a

place > for me. I just love my friends and family so much. As you can tell, fear has > about swallowed me up. I covet your prayers, and lift you up in mine. I love > you all...and know you all understand how I feel. Thank you for allowing me to > unburden myself.> kiss kis,> ~Ginger~> 9/04 ipf>

Get your email and more, right on the new Yahoo.com

[Guest guest]

Hi Cyndi,

My Dad has the Pulmonary Function Test (PFT) at every appt. with his respirologist. It consists of a test where his nose is plugged and he has a tube in his mouth which is attached to a machine. He is then instructed to breath in as deep as he can (through his mouth) and then breath out as hard and fast as he can to determine his lung capacity. He also has the oximeter test.

anne (dad ipf 03/06)

Re: Re: my pity party~ another member

Hi Everyone,Just curious....when you go to your normal pulmonary visit what tests to they do to see how you are doing? What does a PFT consist of? I'm just wondering if my dad is getting everything he needs from visit to visit. They have just been listening to his lungs and using the oximeter.Thanks so much!Cyndi (dad IPF 12/05)Joyce <joycedalton29aol> wrote:

Ginger,

Of all the painful and time consuming tests that I have to endure, I dread the PFT the most. I get so exhausted that I can hardly function. I dread them so badly. However, they have never made me so sick. I am so sorry that you are having such a horrid time. You are such a precious and special person.....and especially precious to us. I will remember you to the Father as I always do. Wish I could be there with you. I am there in my heart and I want you to feel our love to you.

Please be well. Hugs, Joyce PF 1997

>> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were > not very good. I overdid the PFT because I wanted the numbers to be good. I > got home at 1:30p and was totally exhausted. So exhausted, that I became ill > and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. > When I woke up my chest hurt so bad, and I just knew the end was near. Of > course as you all well know, a thousand thoughts crossed my mind. I stayed in > bed all day Friday, as I was too weak to get up and down, and could not eat > anything. My boys were so concerned. My heart goes out to them. I can tell > there are some changes that have taken place, as I don't feel like I can inhale > as much air as I have been. Everything Vicky described about being tired of > dragging around 02, pills, Dr. appoints., even bartering with God for one > more birthday, or Christmas, or just more time, is exacty how I have felt. I > know Christ is my Comforter and Saviour. And I know He has prepared a place > for me. I just love my friends and family so much. As you can tell, fear has > about swallowed me up. I covet your prayers, and lift you up in mine. I love > you all...and know you all understand how I feel. Thank you for allowing me to > unburden myself.> kiss kis,> ~Ginger~> 9/04 ipf>

[Guest guest]

Thank you so much . I am calling the doctor on Monday. He has not had any of those tests.Have a good day.Cyndi (dad IPF 12/05)denise randel wrote: Cyndi, You need to ask for pulmonary function tests. At my doctors I sit in a little box that looks like a phone booth. Then I do a series of breathing tests to measure how much oxygen my lungs are taking in and out, how much oxygen your lungs can hold and a few others. By just listening to my lungs they

didn't think I was doing so bad and while I am sitting my O2 level is around 97%, but from the PF tests they could tell I was down to 34% lung volume and below 50 % on all other lung functions. He should also have a 6 minute exercise test. Becaue with most of us our O2 is okay until we start moving. I was diagnosed at the end of March and I have had the PF tests 3 times and the 6 minute exercise test 4 times Hope this helps-. <2kidsformesbcglobal (DOT) net> wrote: Hi Everyone,Just curious....when you go to your normal pulmonary visit what tests to they do to see how you are doing? What does a PFT consist of? I'm just wondering if my dad is getting everything he needs from visit to visit.

They have just been listening to his lungs and using the oximeter.Thanks so much!Cyndi (dad IPF 12/05)Joyce <joycedalton29aol> wrote: Ginger, Of all the painful and time consuming tests that I have to endure, I dread the PFT the most. I get so exhausted that I can hardly function. I dread them so badly. However, they have never made me so sic! k. I am so sorry that you are having such a horrid time. You are such a precious and special person.....and especially precious to us. I will remember you to the Father as I always do. Wish I could be there with you. I am there in my heart and I want

you to feel our love to you. Please be well. Hugs, Joyce PF 1997 >> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were > not very good. I overdid the PFT because I wanted the numbers to be good. I > got home at 1:30p and was totally exhausted. So exhausted, that I became ill > and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. > When I woke up my chest hurt so bad, and I just knew the end was near. Of > course as you all well know, a thousand thoughts crossed my mind. I stayed in > bed all day Friday, as I was too weak to get up and down, and could not eat > anything. My boys were so concerned. My heart goes out to them. I can tell > there are some changes that have

taken place, as I don't feel like I can inhale > as much air as I have been. Everything Vicky described about being tired of > dragging around 02, pills, Dr. appoints., even bartering with God for one > more birthday, or Christmas, or just more time, is exacty how I have felt. I > know Christ is my Comforter and Saviour. And I know He has prepared a place > for me. I just love my friends and family so much. As you can tell, fear has > about swallowed me up. I covet your prayers, and lift you up in mine. I love > you all...and know you all understand how I feel. Thank you for allowing me to > unburden myself.> kiss kis,> ~Ginger~> 9/04 ipf> Get your email and more, right on the new Yahoo.com

[Guest guest]

Thank you Anne....I can't believe my dad hasn't had this. Lots of phone calls on MOnday. :-)Cyndi ( DAD IPF 12/05)anne wolf wrote: Hi Cyndi, My Dad has the Pulmonary Function Test (PFT) at every appt. with his respirologist. It consists of a test where his nose is plugged and he has a tube in his mouth which is attached to a machine. He is then instructed to breath in as deep as he can (through his mouth) and then breath out as

hard and fast as he can to determine his lung capacity. He also has the oximeter test. anne (dad ipf 03/06) Re: Re: my pity party~ another member Hi Everyone,Just curious....when you go to your normal pulmonary visit what tests to they do to see how you are doing? What does a PFT consist of?

I'm just wondering if my dad is getting everything he needs from visit to visit. They have just been listening to his lungs and using the oximeter.Thanks so much!Cyndi (dad IPF 12/05)Joyce <joycedalton29aol> wrote: Ginger, Of all the painful and time consuming tests that I have to endure, I dread the PFT the most. I get so exhausted that I can hardly function. I dread them so badly. However, they have never made me so sick. I am so sorry that you are having such a horrid time. You are such a precious and special person.....and especially

precious to us. I will remember you to the Father as I always do. Wish I could be there with you. I am there in my heart and I want you to feel our love to you. Please be well. Hugs, Joyce PF 1997 >> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were > not very good. I overdid the PFT because I wanted the numbers to be good. I > got home at 1:30p and was totally exhausted. So exhausted, that I became ill > and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. > When I woke up my chest hurt so bad, and I just knew the end was near. Of > course as you all well know, a thousand thoughts crossed my mind. I stayed in

> bed all day Friday, as I was too weak to get up and down, and could not eat > anything. My boys were so concerned. My heart goes out to them. I can tell > there are some changes that have taken place, as I don't feel like I can inhale > as much air as I have been. Everything Vicky described about being tired of > dragging around 02, pills, Dr. appoints., even bartering with God for one > more birthday, or Christmas, or just more time, is exacty how I have felt. I > know Christ is my Comforter and Saviour. And I know He has prepared a place > for me. I just love my friends and family so much. As you can tell, fear has > about swallowed me up. I covet your prayers, and lift you up in mine. I love > you all...and know you all understand how I feel. Thank you for allowing me to > unburden myself.> kiss kis,> ~Ginger~>

9/04 ipf>

[Guest guest]

Thanks Peggy. I appreciate all the information. My dad has had the usual symptons with the prednisone. He's gained weight, moon face, irritable at time, but we were in the ER last night because he was having passing out episodes. They monitored his heart and sent him home. They said it was the prednisone, but I haven't heard of this symptom yet. He is on 30mg.You are so friendly in your emails. You are a wonderful lady. I hope you have a good day. Thanks for everything.Cyndi (dad IPF 12.05)Peggy wrote: Hi Cyndi, A PFT is Pulmonary Function Test. you have to blow into a tube at different rates. It tells your Dr. how your lungs are doing and also how your disease is progressing. About every three or four months there is a HRCT. that is a fancy CT that shows the lung problems more clearly. they have drawn Arterial Blood Gas three times that's ABG. they do other blood work every other visit or so. I am done with all that until Nov. I have to do PFT's then hopefully I will have lost the weight and get eval. done. How is your Dad doing with the prednisone?? Much Love and Prayers, Peggy 9/04 ipf > Hi Everyone, > Just curious....when you go to your normal pulmonary visit what tests to they > do to see how you are doing? What does a PFT consist of? I'm just wondering > if my dad is getting everything he needs from visit to visit. They have just > been

listening to his lungs and using the oximeter. > > Thanks so much! > Cyndi (dad IPF 12/05) > > Joyce <joycedalton29aol> wrote: > Ginger, > Of all the painful and time consuming tests that I have to endure, I dread the > PFT the most. I get so exhausted that I can hardly function. I dread them so > badly. However, they have never made me so sick. I am so sorry that you are > having such a horrid time. You are such a precious and special person.....and > especially precious to us. I will remember you to the Father as I always do. > Wish I could be there with you. I am there in my heart and I want you to feel > our love to you. > Please be well. Hugs, Joyce PF 1997 > > >> >> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were >> not very good. I overdid the PFT because I wanted the numbers to be good. I >> got home at 1:30p and was totally exhausted. So exhausted, that I became ill >> and had the dry heaves. I layed down at 1:40p and did not wake up till 7:10p. >> When I woke up my chest hurt so bad, and I just knew the end was near. Of >> course as you all well know, a thousand thoughts crossed my mind. I stayed in >> bed all day Friday, as I was too weak to get up and down, and could not eat >> anything. My boys were so concerned. My heart goes out to them. I can tell >> there are some changes that have taken place, as I don't feel like I can >> inhale >> as much air as I have been. Everything Vicky described about being tired of >> dragging around

02, pills, Dr. appoints., even bartering with God for one >> more birthday, or Christmas, or just more time, is exacty how I have felt. I >> know Christ is my Comforter and Saviour. And I know He has prepared a place >> for me. I just love my friends and family so much. As you can tell, fear has >> about swallowed me up. I covet your prayers, and lift you up in mine. I love >> you all...and know you all understand how I feel. Thank you for allowing me >> to >> unburden myself. >> kiss kis, >> ~Ginger~ >> 9/04 ipf >> > > > > >

[Guest guest]

, I do know of the passing out part. I had a few dizzzzzzzzy weak

spells but didn't hit the floor. I was staying in my chair pretty much from

the prednisone. Is he coming off the prednisone yet??

You are a wonderful daughter. I hope your Dad can express his love for you.

Trust me it runs so very deep for our caregivers in a special way. I know

men sometimes have trouble expressing their feelings. God Bless you for all

you do.

Much Love and Prayers, Peggy 9/04 ipf

> Thanks Peggy. I appreciate all the information. My dad has had the usual

> symptons with the prednisone. He's gained weight, moon face, irritable at

> time, but we were in the ER last night because he was having passing out

> episodes. They monitored his heart and sent him home. They said it was the

> prednisone, but I haven't heard of this symptom yet. He is on 30mg.

> You are so friendly in your emails. You are a wonderful lady. I hope you

> have a good day. Thanks for everything.

> Cyndi (dad IPF 12.05)

>

> Peggy wrote: Hi Cyndi, A

> PFT is Pulmonary Function Test. you have to blow into a tube at

> different rates. It tells your Dr. how your lungs are doing and also how

> your disease is progressing. About every three or four months there is a

> HRCT. that is a fancy CT that shows the lung problems more clearly.

> they have drawn Arterial Blood Gas three times that's ABG. they do other

> blood work every other visit or so. I am done with all that until Nov. I

> have to do PFT's then hopefully I will have lost the weight and get eval.

> done. How is your Dad doing with the prednisone??

> Much Love and Prayers, Peggy 9/04 ipf

>

>> Hi Everyone,

>> Just curious....when you go to your normal pulmonary visit what tests to

>> they

>> do to see how you are doing? What does a PFT consist of? I'm just wondering

>> if my dad is getting everything he needs from visit to visit. They have just

>> been listening to his lungs and using the oximeter.

>>

>> Thanks so much!

>> Cyndi (dad IPF 12/05)

>>

>> Joyce wrote:

>> Ginger,

>> Of all the painful and time consuming tests that I have to endure, I dread

>> the

>> PFT the most. I get so exhausted that I can hardly function. I dread them

>> so

>> badly. However, they have never made me so sick. I am so sorry that you are

>> having such a horrid time. You are such a precious and special

>> person.....and

>> especially precious to us. I will remember you to the Father as I always do.

>> Wish I could be there with you. I am there in my heart and I want you to

>> feel

>> our love to you.

>> Please be well. Hugs, Joyce PF 1997

>>

>>

>>>

>>> my precious friends, I had a CT Scan & PFT on Thursday, and my numbers were

>>> not very good. I overdid the PFT because I wanted the numbers to be good. I

>>> got home at 1:30p and was totally exhausted. So exhausted, that I became ill

>>> and had the dry heaves. I layed down at 1:40p and did not wake up till

>>> 7:10p.

>>> When I woke up my chest hurt so bad, and I just knew the end was near. Of

>>> course as you all well know, a thousand thoughts crossed my mind. I stayed

>>> in

>>> bed all day Friday, as I was too weak to get up and down, and could not eat

>>> anything. My boys were so concerned. My heart goes out to them. I can tell

>>> there are some changes that have taken place, as I don't feel like I can

>>> inhale

>>> as much air as I have been. Everything Vicky described about being tired of

>>> dragging around 02, pills, Dr. appoints., even bartering with God for one

>>> more birthday, or Christmas, or just more time, is exacty how I have felt. I

>>> know Christ is my Comforter and Saviour. And I know He has prepared a place

>>> for me. I just love my friends and family so much. As you can tell, fear has

>>> about swallowed me up. I covet your prayers, and lift you up in mine. I love

>>> you all...and know you all understand how I feel. Thank you for allowing me

>>> to

>>> unburden myself.

>>> kiss kis,

>>> ~Ginger~

>>> 9/04 ipf

>>>

>>

>>

>>

>>

>>

>

>

>

>

>