Re: Humira??

[Guest guest]

Hi Kelli,....I have taken Humira for awhile, and have never

experienced any of those symptoms. I have never heard of prescribing

Benadryl for chest pains. I would think your doc would take you off

the med, if it's causing chest pains. Have you thought about another

rheumy? I am anxious to hear some opinions from others about your

problem. I'm kind of stunned that a doctor isn't worried about your

symptoms.

Sorry that your going through a stressful time right now. You sure

don't need extra stress, but know that it's not so easy to keep it

away. Please take care, Tawny

--- In , " Kelli " <highestexaulted@s...>

wrote:

>

>

> Hi everyone. Sorry I haven't posted or responded lately but my

family

> has been going through a family crisis that is not going away

anytime

> soon. It's a trip how one family members bad choice will have a

> ripple effect through out the whole family huh??? Doesn't help that

> the stress is really, really unhealthy for me.

>

> Anyway, about Humira. That's what I'm taking right now along with

> other meds. My question here is to anyone here who takes it. Do you

> every experience chest pains with it? I've been taking it for about

4

> months now, and I'll experience these chest pains. I told my doc on

> my last visit and he prescribed Benadryl to offset the chest pains.

> It's has helped somewhat, but I just don't like the idea of having

to

> take one medicine then taking another to offset the side effects

from

> it, especially when the side effects are chest pains. I've also

> noticed sometimes my finger tips will get kinda dark, along with my

> toes. I know I may not know everything it is to know, but that

> doesn't sound right to me. I go for my regular six week visit next

> week and I was thinking about asking him to maybe try me on

Remicade

> or Enbrel. Any suggestions are welcome.

>

> Sorry About the long post

>

> Have A Joyful Day,

> Kelli

[Guest guest]

Hi Kelli,....I have taken Humira for awhile, and have never

experienced any of those symptoms. I have never heard of prescribing

Benadryl for chest pains. I would think your doc would take you off

the med, if it's causing chest pains. Have you thought about another

rheumy? I am anxious to hear some opinions from others about your

problem. I'm kind of stunned that a doctor isn't worried about your

symptoms.

Sorry that your going through a stressful time right now. You sure

don't need extra stress, but know that it's not so easy to keep it

away. Please take care, Tawny

>

>

> Hi everyone. Sorry I haven't posted or responded lately but my

family

> has been going through a family crisis that is not going away

anytime

> soon. It's a trip how one family members bad choice will have a

> ripple effect through out the whole family huh??? Doesn't help that

> the stress is really, really unhealthy for me.

>

> Anyway, about Humira. That's what I'm taking right now along with

> other meds. My question here is to anyone here who takes it. Do you

> every experience chest pains with it? I've been taking it for about

4

> months now, and I'll experience these chest pains. I told my doc on

> my last visit and he prescribed Benadryl to offset the chest pains.

> It's has helped somewhat, but I just don't like the idea of having

to

> take one medicine then taking another to offset the side effects

from

> it, especially when the side effects are chest pains. I've also

> noticed sometimes my finger tips will get kinda dark, along with my

> toes. I know I may not know everything it is to know, but that

> doesn't sound right to me. I go for my regular six week visit next

> week and I was thinking about asking him to maybe try me on

Remicade

> or Enbrel. Any suggestions are welcome.

>

> Sorry About the long post

>

> Have A Joyful Day,

> Kelli

[Guest guest]

Hey, thanks for responding. Um, I don't know if it's that he's not

concerned or not, I think that he is. He just was gonna try me on it

with the Benadryl. When I go back next week I'll tell him the latest

and see what he says is the next step. I'll keep ya'll updated...

Thanks for any future suggestions.

Have A Joyful Day,

Kelli

> >

> >

> > Hi everyone. Sorry I haven't posted or responded lately but my

> family

> > has been going through a family crisis that is not going away

> anytime

> > soon. It's a trip how one family members bad choice will have a

> > ripple effect through out the whole family huh??? Doesn't help

that

> > the stress is really, really unhealthy for me.

> >

> > Anyway, about Humira. That's what I'm taking right now along with

> > other meds. My question here is to anyone here who takes it. Do

you

> > every experience chest pains with it? I've been taking it for

about

> 4

> > months now, and I'll experience these chest pains. I told my doc

on

> > my last visit and he prescribed Benadryl to offset the chest

pains.

> > It's has helped somewhat, but I just don't like the idea of

having

> to

> > take one medicine then taking another to offset the side effects

> from

> > it, especially when the side effects are chest pains. I've also

> > noticed sometimes my finger tips will get kinda dark, along with

my

> > toes. I know I may not know everything it is to know, but that

> > doesn't sound right to me. I go for my regular six week visit

next

> > week and I was thinking about asking him to maybe try me on

> Remicade

> > or Enbrel. Any suggestions are welcome.

> >

> > Sorry About the long post

> >

> > Have A Joyful Day,

> > Kelli

[Guest guest]

Hey, thanks for responding. Um, I don't know if it's that he's not

concerned or not, I think that he is. He just was gonna try me on it

with the Benadryl. When I go back next week I'll tell him the latest

and see what he says is the next step. I'll keep ya'll updated...

Thanks for any future suggestions.

Have A Joyful Day,

Kelli

> >

> >

> > Hi everyone. Sorry I haven't posted or responded lately but my

> family

> > has been going through a family crisis that is not going away

> anytime

> > soon. It's a trip how one family members bad choice will have a

> > ripple effect through out the whole family huh??? Doesn't help

that

> > the stress is really, really unhealthy for me.

> >

> > Anyway, about Humira. That's what I'm taking right now along with

> > other meds. My question here is to anyone here who takes it. Do

you

> > every experience chest pains with it? I've been taking it for

about

> 4

> > months now, and I'll experience these chest pains. I told my doc

on

> > my last visit and he prescribed Benadryl to offset the chest

pains.

> > It's has helped somewhat, but I just don't like the idea of

having

> to

> > take one medicine then taking another to offset the side effects

> from

> > it, especially when the side effects are chest pains. I've also

> > noticed sometimes my finger tips will get kinda dark, along with

my

> > toes. I know I may not know everything it is to know, but that

> > doesn't sound right to me. I go for my regular six week visit

next

> > week and I was thinking about asking him to maybe try me on

> Remicade

> > or Enbrel. Any suggestions are welcome.

> >

> > Sorry About the long post

> >

> > Have A Joyful Day,

> > Kelli

[Guest guest]

I had really good results with Humira and no side effects. It eventually

stopped working which is why I came off it, but things were definitely a lot

better when I was on it.

Kathy F.

[Guest guest]

Dear , I don’t normally answer these emails about Humira, but you

said you wanted the good and the bad as far as how we reacted to it. I only

took it for one week. In that time, I thought I was starting to feel

better, but basically I had a really bad reaction to the drug. I ended up

with pneumonia and it took me almost 6 months to get over it. I ended up on

60mg of predinsone just so I could breathe. It was horrible. The other

side effects I had were swollen glands and it also put me into early heart

failure. The good thing was once I got off the drug, my heart was ok. I

had to go through 2 echocardiograms and I still have trouble when I sleep at

night and require the use of oxygen when I lie down.

The good news is I reacted almost the same way to Enbrel, so I know these

drugs are dangerous for me. It’s either the preservatives in the solution

or something else that triggers such a strong reaction. I know that I’m not

the norm, so don’t base your decision on me. I did find a few other people

who developed heart problems from Humira and Enbrel though, so my advice is

to watch for any signs of reactions. Even if it is something you wouldn’t

consider as a big deal, be sure to tell your doctor about it ASAP. I almost

took another dose of Enbrel thinking the side effects weren’t connected.

Luckily, I got a hold of my doctor and they had me stop it. I don’t know

what would have happened if I had continued to take it.

Remember most people have a positive reaction, or no reaction at all. I

wanted both of these drugs to work so badly since I had waited for ages to

be approved and for a doctor to make the right diagnosis. At the time I

took Enbrel and Humira, nothing was mentioned about heart failure. Now

there are warnings on both drugs. Yet even with those bad reactions, I took

another chance and tried Arava. It’s not a shot, but a pill and luckily I

did really well on it. I’ve talked to people though who have had horrible

reactions to Arava, so it’s a chance regardless what you take. Just be

careful and watchful and I’m sure you’ll do ok. I hope I haven’t scared you

away. Our disease is a hard one to treat and for me my life was pretty

miserable before I found Arava. So it’s a decision that each of us have to

make. Good luck and I hope you have nothing but success.

Sincerely, Fran in Florida

Hey everyone, I'm getting ready to start taking Humira and just wanted

to know if anyones had any good or bad results with this specific

medication. Just want to know what I'm getting myself into. I'm 26 and

just recently diagnosed. I'm a massage therapist and this has effected

my ability to work quite a bit. As of right now I'm only take

Indometicin and some Vicodin for the pain. Anything advice would be

appreciated!! Thanks everyone!! W.

_____

[Guest guest]

Thank you so much Fran for you info concerning Humira. I'm so sorry to hear the

side effects that you had while on the medication. I guess it is always a risk

when we're putting something new into are bodies. I'm not big on taking

medication to begin with. I don't even like taking Asprin or Tylenol unless I

have to, so going on some of these medications is a little scary for me. Thanks

again for letting me know your experience with this drug. W.

[Editor's Note: , you are right to approach this and all medicines with

caution, however, stories such as Fran's are rare whereas severe damage from the

progression of PA is not. I urge anyone who is thinking of taking ANY

medication or over-the-counter " Health Food " to learn all they can about it and

to listen to their bodies very closely once they begin to put something new and

powerful inside them. Terrible things can happen. Good luck with Humira. Hope

it works as well for you as it has for many of us. Kathy F.]

Fran Mishler <fran@...> wrote: Dear , I don’t normally answer

these emails about Humira, but you

said you wanted the good and the bad as far as how we reacted to it. I only

took it for one week. In that time, I thought I was starting to feel

better, but basically I had a really bad reaction to the drug. I ended up

with pneumonia and it took me almost 6 months to get over it. I ended up on

60mg of predinsone just so I could breathe. It was horrible. The other

side effects I had were swollen glands and it also put me into early heart

failure. The good thing was once I got off the drug, my heart was ok. I

had to go through 2 echocardiograms and I still have trouble when I sleep at

night and require the use of oxygen when I lie down.

The good news is I reacted almost the same way to Enbrel, so I know these

drugs are dangerous for me. It’s either the preservatives in the solution

or something else that triggers such a strong reaction. I know that I’m not

the norm, so don’t base your decision on me. I did find a few other people

who developed heart problems from Humira and Enbrel though, so my advice is

to watch for any signs of reactions. Even if it is something you wouldn’t

consider as a big deal, be sure to tell your doctor about it ASAP. I almost

took another dose of Enbrel thinking the side effects weren’t connected.

Luckily, I got a hold of my doctor and they had me stop it. I don’t know

what would have happened if I had continued to take it.

Remember most people have a positive reaction, or no reaction at all. I

wanted both of these drugs to work so badly since I had waited for ages to

be approved and for a doctor to make the right diagnosis. At the time I

took Enbrel and Humira, nothing was mentioned about heart failure. Now

there are warnings on both drugs. Yet even with those bad reactions, I took

another chance and tried Arava. It’s not a shot, but a pill and luckily I

did really well on it. I’ve talked to people though who have had horrible

reactions to Arava, so it’s a chance regardless what you take. Just be

careful and watchful and I’m sure you’ll do ok. I hope I haven’t scared you

away. Our disease is a hard one to treat and for me my life was pretty

miserable before I found Arava. So it’s a decision that each of us have to

make. Good luck and I hope you have nothing but success.

Sincerely, Fran in Florida