Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Hi , Sorry you had the disappointment of the Remicade reactions. I'll hold on to the thought that your rheumy will come up with a new, good plan for your treatment. Sierra --- In , " grannyfellx6 " <grannyfellx6@y...> wrote: > > Hello everyone. > > I had my third and final Remicade treatment Monday and again I had a > reaction, this one only took a couple of minutes, my chest felt heavy > and my face was hot and flushed and my back felt like I had a heating > pad on it. This was after taking 60 mg of prednisone 6 hrs before > plus 25 mg of benadril and two tylonel 30 minutes before. I > recovered quickly when the infusion was turned off but sort of knocks > the heck out of me for a couple of days. So here I am with > everything used up and my Rhuemy said he is going to have to scratch > his head to decide what to treat me with. > > I am still exercising each day, had a bit of a stand still with > weight but am back on the losing end now, eating much better, that > should help my joints some. > > Hopefully something else will come up but I sure get tired of being > poked and taking pills all the time. I guess after 18 years of it I > would be used to it. I don't suppose whining is going to help. > Actually things could be worse. > > Heres to a pain free weekend for everyone. > > Thanks for listening, in Central Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 ,....What a horrible ordeal to go through! I hope that your rheumy comes up with something. I will keep you in my prayers, T --- In , " grannyfellx6 " <grannyfellx6@y...> wrote: > > Hello everyone. > > I had my third and final Remicade treatment Monday and again I had a > reaction, this one only took a couple of minutes, my chest felt heavy > and my face was hot and flushed and my back felt like I had a heating > pad on it. This was after taking 60 mg of prednisone 6 hrs before > plus 25 mg of benadril and two tylonel 30 minutes before. I > recovered quickly when the infusion was turned off but sort of knocks > the heck out of me for a couple of days. So here I am with > everything used up and my Rhuemy said he is going to have to scratch > his head to decide what to treat me with. > > I am still exercising each day, had a bit of a stand still with > weight but am back on the losing end now, eating much better, that > should help my joints some. > > Hopefully something else will come up but I sure get tired of being > poked and taking pills all the time. I guess after 18 years of it I > would be used to it. I don't suppose whining is going to help. > Actually things could be worse. > > Heres to a pain free weekend for everyone. > > Thanks for listening, in Central Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Sorry the Remicade didn't agree with you . Hopefully your rheumy will have something up his sleeve. Finding something that helps can be frustrating. Hang in there. a On Fri, 28 Jan 2005 05:44:34 -0000, grannyfellx6 <grannyfellx6@...> wrote: > > Hello everyone. > > I had my third and final Remicade treatment Monday and again I had a > reaction, this one only took a couple of minutes, my chest felt heavy > and my face was hot and flushed and my back felt like I had a heating > pad on it. This was after taking 60 mg of prednisone 6 hrs before > plus 25 mg of benadril and two tylonel 30 minutes before. I > recovered quickly when the infusion was turned off but sort of knocks > the heck out of me for a couple of days. So here I am with > everything used up and my Rhuemy said he is going to have to scratch > his head to decide what to treat me with. > > I am still exercising each day, had a bit of a stand still with > weight but am back on the losing end now, eating much better, that > should help my joints some. > > Hopefully something else will come up but I sure get tired of being > poked and taking pills all the time. I guess after 18 years of it I > would be used to it. I don't suppose whining is going to help. > Actually things could be worse. > > Heres to a pain free weekend for everyone. > > Thanks for listening, in Central Oregon > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Heidi, Thank you so much for your prayers, they are more precious to me than gold. I am sure there will be some good news. Oops forgot, my BP is fantastic. It was back to normal for me 112/78! The Arava is getting out of my system quickly. Shirley > > Shirley, > You always have such a great attitude, that always helps with any > problem. Be sure to let us know what they find out. I will keep you in my > prayers. > Heidi M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Shirley, Long posts are welcome. I hope you will be OK - no new developments. Not an MD On Thu, Aug 14, 2008 at 6:15 PM, nana2livi <s.p5315@...> wrote: > Hello Group, > I want to thank all of you that were so wonderful to help me with my > fears about doing Enbrel and the shots. I did resolve it. I had my > PPD test and they were suppose to start tomorrow. > Well, my mammmogran last Friday called for an ultasound yesterday. I > got a call at 8:20 this morning telling me that my doctor wanted to > see me at 2 pm today. We decided on a surgeon for the biopsy and > during the breast exam I told her about some discomfort that I have > been having for several months. It is like heartburn but feels deep > in my left breast where the lump is. My daughter and I laughed and I > told her about me referring to it as boobie burn. She said she was > going to give me something for heartburn and I informed her that I > have been on prevacid for years. She raised her eyebrows and asked > when was my last EKG. I had one in May for my pre-op but I am sure > it was OK. She ordered the nurse to do one and said she would be > back. When she came back she asked if I was having boobie burn then. > I said a little, she said yes, let me show you. It had shown up on > my EKG. Well, tomorrow I have a stress test. She told me if the > boobie burn gets worse, go to the ER. I guess when I go tomorrow > they will inform me of my appoitment with the surgeon. > So I summarize it all this way. My rheummy wanted me to get a clear > mammogram, before the Enbrel, which started this snow ball. So, it > must be her fault. I intend to tell her that also. > I just have to find the humor in it. I am fine and not the least > worried. It could be, but just the same it could not be. It sounds > like a bad day, but all things considered, I have had a great day. > I hope all of you have a blessed and wonderful day or night, which > ever it is where you are. > Hugs, > Shirley > P.S. Sorry this is so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 , and Group, Thanks so much! It is so nice to know that people care. My stress test was not bad but not normal either. I am being referred to a Cardiologist. My appointment with the surgeon is next Friday. I really got a great GP this time. She told me yesterday that she couldn't do the stress test because of her schedule. To my surprise she was there. I asked and she said she rearranged her schedule to do the test herself. WOW! I just can't believe it after how her associate had treated me. I hope everyone has a good, pain free evening. Shirley > > Shirley, > > Long posts are welcome. > > I hope you will be OK - no new developments. > > > > Not an MD > Quote Link to comment Share on other sites More sharing options...
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