New here, looking for Mom's of pediatric Lupus patients

[Guest guest]

Hi, I'm Crystal and my daughter Mackenzie, age 4, was diagnosed with

Lupus this week. We have known for about a month that the blood tests

pointed to Lupus, but we just got the offical diagnosis this week. I

am trying to find some parents of pediatric lupus patients, but I'm

not having much luck. I have been told by both her dotors that Lupus

is rare under the age of five, but do know that there are other

parents out there in the same boat as us. I would really like someone

I can talk to , so we can learn more about this disease and what to

expect. If anyone here has a small child with Lupus, I would love to

talk to you.Or if anyone knows of a group for children with Lupus, I

would really appreciate the help. Thanks in advance.

Crystal and Mac