Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 Laurie, I don't know much about the band, butI would also check about teeth etc. Maybe you could try putting it on the floor and letting her play with it for awhile. Then you could put it up to your head and then hers for a few seconds make it into a game. I feel so sorry for you about her gettting upset, I can only imagine how tired etc. you must be. Hang in there. Sam's mom > I posted earlier, but I think I forgot to put in a subject. got her > band yesterday and hates it!! PLEASE share any tips on making the first few > days a little easier! Also, I am on line tonight, so if anyone is on line > and has any advice, please feel free to e-mail me. non stop cried for > 4 months and finally stopped (colic). Now with the helmet at six months, it > is bringing back memories of her previous crying spells. It is really > frustrating and upsetting. > Laurie ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 Thank you to everyone for your support and suggestions. I don't think 's problems are teething, though because when we take the helmet off, she is fine. We are trying not to just take it off immediately when she cries or else she will learn that by crying, it will come off. It may take her a little longer to get adjusted, but eventually I am sure she will. Laurie ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 My story: I am desperate and I need help. For a couple of years, I get headachefrom Monday thru Friday. I will be coughing my lungs out frequently and have to leave my floor to get relief. I frequently get flu like symstoms and they turn to respiratory infections that lasted for 6 to 7 weeks. Last year, I will lose my voice when I am at work, breathless,headaches,lost my concentration,fatigue, etc. My family doctor diagnosed my problem to be reactive airway disease. My enviromental dr. told me that I was exposed to molds (mold tray confirmed ) Now, I am taking antigens shots and carrying around histamine shots when I go out. I would loss my voice and have problems breathing everywhere I go. I do not know what would hit me, even plastic bag, ink, fragrance, certain food, and raining weather. I used to be a healthy person and now I am homebound if I want to breath. Should I go crazy homebound or should I be breathless. I am sure by now you get the picture of how my life is. Medical: my doctor is very expensive and my HMO is not covering the fees. I have no idea what kind of treatment to get. Blood test, steroid, etc. Workman's comp: Now I am appealing worker's com for their rejection. Reason: Preexisting condition. How can it be preexisting condition when I was always a healthy person. Job: the company I worked for, conveniently eliminated my job when they terminated a bunch of jobs. They offered good packages to everyone but me. I was waiting for my disability to get approval and job placement agency called me. I called HR and he conveniently not available. Two weeks later, he called me back telling me that my disability has been approved and that my elimination is no longer an issue. I think the company pressured the insurance company to approve my disability so they do not have to pay me severance package. Lawyer: It is a joke. I need someone who can actually help me determine what to do. One of them tells me that it is too costly to fight a mold case. Mold lawyers have too many cases to handle. Am I ever going to get well? Isn't the company responsible for a clean evironment? Now that I am on disability, they no longer contribute to my 401K. I get hazzled every 6 months from the disability insurance people. I rather go to work then staying at home. I cannot find a right lawyer in Texas. There are people at my floor who suffer from eye infections, flu-like symtoms, headaches, etc. I am drowning, I need help or suggestions1 I am sorry but I am at the end of my rope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 i am raynell crumpilive at muscle,shoals ala. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Hello: If you look back through the posts, there are doctors (Dr. Bahari is one of them) that will do a phone consultation and prescribe LDN. I believe there is one in Wisconsin also. Good Luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 What part of the world do you live in? Noland ----- Original Message ----- From: " skraggz827 " <skraggz827@...> <low dose naltrexone > Sent: Thursday, January 22, 2004 7:40 AM Subject: [low dose naltrexone] HELP!!! > Hello Everyone, > > I am new to the group. I was diagnosed wirh MS in 1991, I have > read a lot from the group and became quie interested in trying LDN. > I saw my neuro yesterday and wanted a prescription.. He looked at me > as if I had grown an extra head and then proceeded to say he had no > idea what I was talking about and that he had not heard of this > medicine for MS. IS THIS EVEN POSSIBLE? I want to try this. What > other ways might I get a prescription? I am going to try my GP but > if that fails I want a back-up plan. Anyone with any suggesion would > be greatly appreciated. Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 I am not surprised that your neuro hadn't heard of LDN, a lot of doctors haven't. You might have better luck with your GP, but go in there prepared. Print off important facts off the website, and testimonials are very helpful. I told my GP about LDN, gave him all the info, then I gave him two weeks to read what I had given him and for him to look into it himself if he wanted. I told him I had already gone off my Rebif and I needed to do something soon lol...so he caved in and let me try it for a month. That's all it took, and after the difference he seen in me, he's now telling his other MS patients about it..awesome huh? Good Luck Kerry > I am new to the group. I was diagnosed wirh MS in 1991, I have > read a lot from the group and became quie interested in trying LDN. > I saw my neuro yesterday and wanted a prescription.. He looked at me > as if I had grown an extra head and then proceeded to say he had no > idea what I was talking about and that he had not heard of this > medicine for MS. IS THIS EVEN POSSIBLE? I want to try this. What > other ways might I get a prescription? I am going to try my GP but > if that fails I want a back-up plan. Anyone with any suggesion would > be greatly appreciated. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Kerry, You did exactly what we all need to do. Educate the doctors regarding LDN. It's a shame that nobody is promoting this therapy but it's just not lucrative enough for a pharmaceutical company to waste their time on it. If the generic pharmaceutical manufacturers knew the potential of LDN they would make it in the doses that we need and at least tell doctors about it but until then that job belongs to us. Best Wishes, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Good job Lori! Doesn't it make you sick that a group of two bit lawyers can be involved in making medical decisions that affect your life? I credit your doctor for being excited about LDN and would keep her in the loop. Maybe she'll go back to the lawyers and tell them to do a little research before making decisions that affect people's lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Dr is just like any other good doc... > > > > FIRST: Call and make a phone appointment... > > > > 2ND: He will expect you to fill out an application (Medical history stuff) > you do not need to forward medical records. > > > > This is all done by mail or fax, if you are lucky to have one... > > > > 3RD: You will call Dr. on your appointment time(don't forget time > difference, eastern, pacific, central, mountain) > > > > 4TH: Dr. will fax your script to the Prescription Center (You must > call the Prescription Center to give them your Credit card #) (as well as > the Dr), and they will ship your meds to you. > > > > That's it in a nutshell. > > > > Dr. usually starts you out on 3mg for a month and then 4.5mg the > second month. (he gives you 2 months the first appt.) Then you call him > before 2nd month is over, so you don't run out of ldn, and he will see how > you're doing, and what doseage you feel comfortable with, and then give you > 6 month script. > > > > My 1st charge was $85.00 and 2nd appointment was $50.00. He was very > reasonable as is the Prescription Center. Dr is a nice guy I think you > will like him. He doesnt quite give you the attention and time of Dr Bahari, > and of course, not as knowledgeable, but who is??? > > > > God Bless you. > > Sally > > > > Dr. (in Wisconsin) 1-608-785-0038 > > > > The Prescription Center (Wisconsin) 1-800-203-9066 > > > > I am in Ohio, but I got the Prescription Center from LDN site, and they > gave me Dr. s name. > > > > I had a phone consult with him and he faxed the prescription for ldn to > prescription center and they shipped to me USmail or you can have them do > UPS at an extra charge. > > > > The 3mg capsules are $25.00 per month and Dr 's first charge was > $85.00........$125.00 now) > > > > A lot less expensive than Dr Bahari. > > I hope this helps you. > > > > Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 HI RAYNELL COME JOIIN IN. IF YOU HAVE ANY QUESTIONS WE'LL TRY TO HELP ANSWER THEM. DENISE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Good afternoon, Raynell: To try to get a LDN prescription from your Doctor I'd recommend copying everything you can about LDN and MS from the following sites and the attached document to give to him when you make the request for a prescription: www.LDNinfo.org http://www.mwt.net/~drbrewer/ http://www.remedyfind.com http://www.voy.com/156761/ http://www.digitalnaturopath.com/treat/T74481.html http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK If he exhibits reluctance, request that he call Dr. Bihari and discuss LDN with him. I understand that Dr. Bihari takes calls from Doctors at no charge. Also, request that he call Skip Lenz at Skip's Pharmacy in Boca Raton, FL, and ask him about LDN. If he still refuses, then request a copy of your medical records to send to another Doctor who will write a prescription. Then, due to your location to Skip's Pharmacy, call Skip and ask him if he knows a Doctor in your area that is writing LDN prescriptions. At www.acam.org there are 8 Doctor's listed in Alabama that are supposed to be forward thinking Doctors that you could call and ask them if they are aware of LDN and write prescriptions for it. Also, you could call a number of Homeopathic or Naturopathic Doctors in the area and ask them the same. Another source might be to call some local compounding pharmacies and ask if they know of any Doctors who prescribe Low Dose Naltrexone. The following also provides some additional information: Doctors who have prescribed LDN. Some of these will do it over the phone charging a consultation fee. Dr. Bernard Bihari New York, NY 212-929-4196 Dr. Sidney, NY 607-561-2000 Dr. Carole Saratoga Springs, NY 518-587-3438 Dr. Guddesblatt, Bayshore, Long Island, NY 631-666-3939 Dr. Stafford Colorado Springs, CO 719-636-5234 Dr. Bruce Sharpnack Hickory, PA 724-356-2273 Dr. Jeff Esper Erie, PA 814-877-4600 Sullivan Mechanicsburg, PA 717-697-5050 Dr. Patti Townely Dwight, IL 815-584-3343 Dr. Myers Skokie, IL 847-677-2980 Dr. Alan Buchman Chicago, IL 312-695-5620 Dr. Bernard s Vernon Hills, Illinois 847-367-0843 Dr. Stanley Knep (Neuro) Clifton, NJ 973-471-3680 Dr. Wisconsin 608-785-0038 Dr. ph Wezensky, MD, GP Dr. Rick Jensen, ND Kokopelli Health & Wellness Grand Junction, CO 970-263-4660 http://www.acam.org/dr_search/ Dr. search www.lef.org search of innovative DR. Pharmacies that fill LDN prescriptions correctly including or in addition to those listed on the www.LDNinfo.org web site: ================================================= The Prescription Center Wisconsin 800-203-9066 Skip's Pharmacy Boca Raton, Florida 800-553-7429 Fallston Pharmacy Beatty Fallston, land., 410-879-9000 fallstonpharmacy@..., (From Dr. Bihari's website) Irmat Pharmacy ; New York, NY 212-685-0500 Village Apothecary New York, NY 212-807-7566 Key Pharmacy South Kent, WA 800-878-1322 The Medicine Shoppe, Canandaigua, NY 800-396-9970 's Pharmacy, Toronto, Canada 800-361-6624 & 416-488-2600 Skip's Pharmacy is really set up to produce the LDN capsules at a very reasonable price. I pay $32 for a 3 month supply of 3 mg capsules. If you don't have any success with the above information, let me know and I can probably think of something else. Noland rangeus50@... ----- Original Message ----- From: <nanie1934@...> <low dose naltrexone > Sent: Thursday, January 22, 2004 8:32 AM Subject: Re: [low dose naltrexone] HELP!!! > i am raynell crumpilive at muscle,shoals ala. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 do you have to pay after each talkwith the doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Yes, this did make me quite angry at lawyers. I wish they could watch me for a day....she how challenging everything is. I have 3 teen boys, so just groceries and laundry is a lot of work. I have been working a ton on trying to forgive and let go of past hurts....now I have something new to work on. I see the neuro tomorrow. She is going to monitor this for me... I keep reminding myself I am not mad at her. It should be a good visit!! > Good job Lori! Doesn't it make you sick that a group of two bit lawyers can be involved in making medical decisions that affect your life? I credit your doctor for being excited about LDN and would keep her in the loop. Maybe she'll go back to the lawyers and tell them to do a little research before making decisions that affect people's lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Usually ----- Original Message ----- From: <nanie1934@...> <low dose naltrexone > Sent: Thursday, January 22, 2004 4:29 PM Subject: Re: [low dose naltrexone] Re: HELP!!! > do you have to pay after each talkwith the doctor? > > > > Quote Link to comment Share on other sites More sharing options...
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