Re:talk w/drs., caregiver view

[Guest guest]

Patti, you crack me up. You sound like me! Grab those reports, seak out

advise, ask questions and act semi-educated, LOL! I have to vent for a

moment....Aubrey will like this one. Our regular GP family dr., she loves

all of us and communicates to all of us as a family, s situation, myself

and the kids. s research Doctors assistant research nurse loves me:)

She respects my questions and concerns and answers me promptly. Then there

is the GI doctor.....oh boy, s primary PSC dr.. I'm having a hell of a

time trying to communicate with him. He is a very inpatient man. He gets

frustrated with me when I call him if is having symptoms, etc.. I have

grown to know that everyone doesnt need to like me, haha. But, someday I am

going to lay into him!!! He made me mad when was first dx, he said

that this wasnt as serious as diebetes. I thought to myself, yeh, right!

Guess we didnt hit it off so well. But, finally, the important thing is that

just loves him to death. is a very boisterous and funny man, and

Dr. Donovan really enjoys having as a patient. I think brings

him joy because is a positive person with a positive outlook....So the

Dr. gets some happiness from him, not like having constant dome and gloom

with other patients. So, I stay away from their time together, then just

followup with the nurse on the reports etc. But, I have that " need to know "

syndrome. I like being educated and prepared. Plus, I feel the GI needs to

know when has something going on with him!!! does not report

half the things he should, so I do it. ( he is still a little in

denial).....Sorry, I got really long winded there:) Take care everyone,

wife of dx 1997