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June, so sorry about your night sweats. How long has it been going on?

Have you contacted your rheumatologist about this? I would.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] This and That

> First, welcome to all new members. It is great to see how many people

are recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and

change my pj's and get another pillow. At first, my head was so wet I

thought my water pillow was leaking. I spoke to my GP about it and he is

sending me for blood tests today to see if something is going on. He

mentioned a couple of things, which I was not impressed with, like

Lymphoma or neoplasia and other than that he says it may well be

something I just have to live with. Hard to explain to a male doc how

important my hair is to me and waking up with wet hair pretty well

confines me to staying home. I depend on my hairdresser every week to

keep my hair looking good and this is now getting too much when I go on

Sat to get it done and wake up Sunday with totally wet, yucky looking

hair. CBC called yesterday wanting to do another interview and I had to

refuse since that was no way I would appear on tv with ratty looking

hair.

> Vanity, thy name is woman.

>

> Hugs

> June

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June,

Have you had a TB test? Since night sweats is a primary symptom of TB and

Enbrel use has been linked to TB, the possibility exists. Hyperthyroidism

is another possibility. I can imagine you're pretty scared at the serious

possibilities, but try not to think that it's something like Lymphoma or

neoplasia.

I'd be hiding out from TV cameras too if I were having a bad hair day. I

hope your blood tests find out what is going on.

a

> First, welcome to all new members. It is great to see how many people are

> recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and change my

> pj's and get another pillow. At first, my head was so wet I thought my water

> pillow was leaking. I spoke to my GP about it and he is sending me for blood

> tests today to see if something is going on. He mentioned a couple of things,

> which I was not impressed with, like Lymphoma or neoplasia and other than that

> he says it may well be something I just have to live with. Hard to explain to

> a male doc how important my hair is to me and waking up with wet hair pretty

> well confines me to staying home. I depend on my hairdresser every week to

> keep my hair looking good and this is now getting too much when I go on Sat to

> get it done and wake up Sunday with totally wet, yucky looking hair. CBC

> called yesterday wanting to do another interview and I had to refuse since

> that was no way I would appear on tv with ratty looking hair.

> Vanity, thy name is woman.

>

> Hugs

> June

>

>

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I had a TB test before I started Enbrel but may be something I should be

mentioning to my doctor. Thanks.

Hugs

June

----- Original Message -----

From: a54

June,

Have you had a TB test? Since night sweats is a primary symptom of TB and

Enbrel use has been linked to TB, the possibility exists. Hyperthyroidism

is another possibility. I can imagine you're pretty scared at the serious

possibilities, but try not to think that it's something like Lymphoma or

neoplasia.

I'd be hiding out from TV cameras too if I were having a bad hair day. I

hope your blood tests find out what is going on.

a

> First, welcome to all new members. It is great to see how many people are

> recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and change

my

> pj's and get another pillow. At first, my head was so wet I thought my water

> pillow was leaking. I spoke to my GP about it and he is sending me for blood

> tests today to see if something is going on. He mentioned a couple of

things,

> which I was not impressed with, like Lymphoma or neoplasia and other than

that

> he says it may well be something I just have to live with. Hard to explain

to

> a male doc how important my hair is to me and waking up with wet hair pretty

> well confines me to staying home. I depend on my hairdresser every week to

> keep my hair looking good and this is now getting too much when I go on Sat

to

> get it done and wake up Sunday with totally wet, yucky looking hair. CBC

> called yesterday wanting to do another interview and I had to refuse since

> that was no way I would appear on tv with ratty looking hair.

> Vanity, thy name is woman.

>

> Hugs

> June

>

>

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, it has been on and off for about a month but recently has been every

night. I am emailing my rheumatologist today. Thanks.

Hugs

June

[ ] This and That

> First, welcome to all new members. It is great to see how many people

are recognizing that if you need help, this is the group to join.

> Lately, I have been having night sweats so bad, I have to get up and

change my pj's and get another pillow. At first, my head was so wet I

thought my water pillow was leaking. I spoke to my GP about it and he is

sending me for blood tests today to see if something is going on. He

mentioned a couple of things, which I was not impressed with, like

Lymphoma or neoplasia and other than that he says it may well be

something I just have to live with. Hard to explain to a male doc how

important my hair is to me and waking up with wet hair pretty well

confines me to staying home. I depend on my hairdresser every week to

keep my hair looking good and this is now getting too much when I go on

Sat to get it done and wake up Sunday with totally wet, yucky looking

hair. CBC called yesterday wanting to do another interview and I had to

refuse since that was no way I would appear on tv with ratty looking

hair.

> Vanity, thy name is woman.

>

> Hugs

> June

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  • 3 months later...

Hello all,

I just got out of the hot tub..all tucked into bed with my lap top...

Boy has it been a rough couple of days.. I find myself fearing going

to sleep because of the pain that heightens so much during the night

into the morning and afternoon. I had a horrible day on tuesday..wed

and thursday were a little better..then today I got hit full force

again. Along with this my psoriasis is flaring as well..when that

happens my skin feels like it is burning.

I just wanted to say hi to all the newcomers and a thanks to all who

so warmly welcomed me earlier this week.

I saw my primary care physician yesterday,( got my first thiamin

shot) my appointment with the rheumatologist is jan 26..that is a

rush appointment... as they were already booking into April.

Does anyone in this group see a rheumatologist in sacramento,

california area..named Dr. Cheema,@ UCDAVIS med center?

I am so ready to kick butt in this disease... I think I can.. I think

I can... I think I can... I think I can..

I hope I can figure out who is who and keep it straight in my mind. I

belong to a weightloss surgery support group where each post has the

posters picture attached..it helped so much in getting to know each

person... I got spoiled by that as I am terrible at remember names

alone.. Ineed a face to go with it..

I hope everyone is doing well..talk again soon

Faith

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