Guest guest Posted June 27, 2011 Report Share Posted June 27, 2011 Okay...........your breathing treatments have many chemicals that affect the nervous systemAfter reading this, Gluten comes to mind as a food allergy that should be looked atSingular has PEG in it. It all seems to stem from the flu shot, though, don't you think? There is a lot of controversy of the thimerysol and other preservatives in vaccines and they recommend preservative free shots.Zoloft has PEG in it.Yes, if one if exposed to something, anything with the ingredient could make them react later, this was why I asked my original question about Miralax. The repetitive chewing and sucking is a typical symptom of PEG. See the attachment.These children that took PEG seem to react to any POLY's including polyeurythane that they seal hard wood floors, etc. so any medication with PEG in it, they would probably react to. Typically one would not react over something with a little PEG in it, UNLESS, they were previously exposed in large doses. It sounds like, he either had a reaction to the flu shot, or could have a gluten / casien issue *(you mentioned you are intolerant to milk, typically, they go hand n hand) The question is,,,,,,,,,,,,,,what caused the asthma in the first place? With what you've told us, You can bet that Miralax is going to surely make these symptoms worse, and in our case, we have permanent damage from using it for 10 days. You never mentioned he was constipated? Please read the attached from the FDA To: miralax Sent: Mon, June 27, 2011 3:18:15 PMSubject: Re: Fw: permeability rheumatological diseases---QUESTION ABOUT THIS I am sorry I have put all this information out there and confused everyone. LOL. I will try to clear some of it up. First I will say that I cannot at this moment give the timeline you suggest because I am still trying to link this stuff together myself. Since only recently did I find out that these issues can be due to medicines, foods, and such. To explain a little more my sons Ped. that he had from about 9 mo. till just last year never connected anything an blew all my concerns off. I wish I would have changed Peds. sooner. What I can do is give a short history of my sons behaviors and physical issues. Also I now realize that PEG in one form or another has been in the picture since my son was a baby. In the form of Baby shampoo and many other forms cannot list right now due to how many years it has been. 1.) My son has always had trouble with rashes. When he was a baby he got the repeatable and of course the prescribed Nystatin cream. But they always seemed to come back. 2.) After starting daycare at 1 yr old and shortly after getting his flu shot my son developed rash after rash. I kept taking him back to the Dr. and all they would say was it is a virus. This particular time it would be on one part then go away only to reappear somewhere else. Which prompted his then Ped. to actually look in a book to figure out what it was. Where he came up with Gianotti Crosti Syndrome. Which is basically the bodys reaction to too many viruses. Since my son had just started daycare and kept catching everything it sounded plausible at the time. Plus he had the flu shot not long after being sick and not long before these rashes started. I have to now wonder if it was more likely food intolerances since at daycares they serve milk and we are both intolerant to it. Something his Dr. who does the food intolerance muscle testing also thinks. To this day my son gets rashes not bad ones but little red bumps that I cannot pinpoint the cause. Even on this special diet. Also during this time my son had multiple ear infections which I was told was normal due to catching all the other things from daycare. I mean if he had a stuffy nose he would almost always end up with an ear infection. It was also during this time between the ages of 1 and 2 yrs old that my son started Singulair and breathing treatments. 3.)My son has always had issues with changes in routine. Alot of the typical behaviors of children with ASD's. His Dr. at the time and alot of the specialists we have since seen like to blame it on me being a single parent and not strict enough. Or since I have anxiety he is just mimicking me etc. I always new different but had a hard time getting anyone to listen. He also had alot of OCD type behaviors that I did not recognize at the time as OCD. 4.)At 3 yrs old my son had his first major episode with a daycare. He just refused to go one day and for weeks after he would cry and scream and run from me. He was biting himself at school. Chewing his shoes. Refusing to eat. So I took him out and we were referred to a therapist. Who could only come to the conclusion that a teacher must have said something to him. This is one of the things I may have figured out. I remembered that at about this time they did a big remodel of this particular daycare and I came in one day to see that they had the cleaning supplies right where the children could get to it. A big tub of liquid. I now think this stuff may have set this episode off. But I have no way of knowing what that chemical was. 5.)Found a new daycare and after an adjustment period my son was doing pretty well. Although the repetitive questions and ocd behaviors were seemingly getting worse. Then again about a year and a half after being at this daycare too and with no known trigger the same behavior and refusing to go started again. It came to the point that he actually ran out of this daycare and they had to chase him into the parking lot. That is when I withdrew him from that one and started looking for answers. During this time they had a preschool graduation where he was literally climbing the walls. This I think now may have been due to the party they had the day before with cupcakes etc. Since he had a similar problem this past year in 3rd grade the day after there Valentine party and his behavior caused him to get suspended. This is also the period where he had his first limp appear. With no known cause. These limps last 5 to 7 days and are worse in the morning. I have found that ibuprofen will stop the pain. But even the orthopedic dr. could not give a cause. There was blood tests, xrays, an mri all done but all looked good. This is another thing the Ped. who does muscle testing thinks is food related. These limps have also reoccured once or twice a year since. 6.)I called his Dr. after this incident and another Dr. in the practice suggested he may have Aspergers so I looked into finding out if he did. He was to start kindergarten in the fall so we went through Child Find who said it wasn't Aspergers and upon hearing his paternal Grandmother had been dx'd Bipolar at one point said they thought it was that. 7.)Started kindergarten in a self contained sp. ed class and although very rigid. Did so well they exited him in the first grade. He did so well because this setting is the perfect setting for my son a small class that is very structured and routine. 8.)Had different evaluations during this period and diagnosed with everything from Aspergers to Bipolar. 9.)Between Kindergarten and 1st grade is when I realized the bad effects of Singulair and took my son off of it even though his Ped. didn't think that it could cause the mood swings, prolonged tantrums, etc. He improved alot after I took him off of it. 10.) Started 1st grade in a regular class. Although teacher was nice she was not structured and routine enough and class was too much for my son to handle. Teacher approached me to see about reevaluating my son for sp. ed. again. This particular year a new Principal had started and did not like to give services. Teacher found this out and changed her handling of the reevaluation. Same with Fascilitator. Then I ended up fighting to get my son services the whole year even having to go over the Principals head to make her evaluate my son. This is the year my sons tics first appeared. Which I now wonder if it may be due to those bath tabs. I have to explains something else about my son that I have come to find. He seems to have issues with processing things. Where as a little may not show symptoms but if used or taken regularly then symptoms appear. So he could have been using different things with PEG in them and putting these tabs in on a daily basis caused overload. (Daily basis-my son makes a routine out of everything) From what he eats to products he will use. 11.) My sons Psychologist suggested medication for his anxiety so between 1st and 2nd grade during the summer we tried Zoloft. Worked great at first but within about a month or maybe 2 it seems to have caused mania. So I took him off. This was at the end of summer and the start of the school year. Took 1 dose of strattera and instant mood change so I refused to use any other medications like this. The Psychiatrist we saw was the one who suggested Melatonin to help my son sleep when her original suggestion of Benedryl did the opposite. Tics again appeared during 2nd grade but I cannot remember the timeline of exactly when. I am still researching that. 12.) Although my son had an IEP and was in sp. ed. This schools sp. ed was actually more unstructured than the reg. ed. due to being year round and having pull out class time. So now my sons negative behavior which before usually came out at home started to show up at school. His Resource Teacher was kicking him out of resource on a daily basis at one point because she couldn't handle him. So she would send him to his Reg. Ed. teacher to handle him. 13.) Took my son out of this school and put him into a Charter school. Thought all was going well. But it was just on the surface because my son had found something to focus on and get through the days. Anyways this is when I started looking into his problems with all those medications and what in them could have caused it. I also wonder now about the school and pesticides since they did at one time have roaches then all of a sudden none. It was a used building but quite new looking. This school had just moved into it. My son started obsessive hand washing, tics, chewing on his lip to the point of sores, chewing his clothes (something he had always done in the winter with long sleeves but now it was the neckline too, repetetive questions got really bad, sensory issues got bad too. We thought it was anxiety. Then during Christmas break we found Dr. Baker and he started him on the yeast free dairy free diet with a digestive enzyme, probiotic, and nystatin (which we had to stop due to inactive ingredients. The change was miraculous. My son didn't even need the Melatonin to sleep at night. His schools Resource teacher noticed he was less anxious, he was less rigid and just a different kid. But then pollen season came and even though we kept finding new food intolerances and taking them out of his diet his behavior/mood just got worse. He also had to start taking his Melatonin again. I now realize these behavior and mood changes along with prior asthma related symptoms and soar throats, strep all came at the same time every year. From the end of January till the end of May. Due to allergy testing I found that he is allergic to most all pollens we have here in Vegas. But the school also refused to be helpful when it came to diet implementation and my son did not like being singled out by refusing things. This particular charter school used food for rewards alot. Anyways this is what led to the Valentine party and the suspension the next day which led to my sons obsessive focus I referred to that was getting him through the day. Which was a perfect attendance record. So once he got suspended that was blown and the behaviors returned and he started refusing to go again. So after trying everything, even another school. I decided to homeschool and online school next year. Also right now he is only on Melatonin to help sleep. I am waiting to see his Ped. who does muscle testing now that pollen season is over to see if he thinks yeast is still an issue. Although he is the one who suggested Miralax he is the only one who seems to really understand these food intolerances and environmental sensitivities. Any suggestions on how I should bring up the Miralax thing. He knows it caused the tics. I just cannot stop being upset that he even suggested it in the first place knowing what he knows about my sons chemical sensitivities. Sorry this is so long but we have been at this a long time. > > > > > > > > > > > > > > > > > > > > > > > > ----- Forwarded Message ---- > > > > From: jeanie ward <dreamjeanie@> > > > > To: "miralax " <miralax > > > > > Cc: merry wetherbee <merrywbee@> > > > > Sent: Sat, February 6, 2010 5:37:34 PM > > > > Subject: permeability rheumatological diseases > > > > > > > > > > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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