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Re: Had Enough!

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You are right Biddy, pre-tx I was told to avoid Tylenol

(Acetaminophen). But post-tx it is the only over-the-counter

pain medication allowed.

Tim ltx 4/4/98

--- Biddy Santon wrote:

> Hi!

> Did any of you know that any form of Tylenol is very

> dangerous to our

> livers? That is the biggest no-no with liver disease!!

> When my doc found out that I was taking Tylenol now and then

> for headaches

> he went ballistic!! I have known for a long time about

> Tylenol, but I just

> thought it wouldn't hurt now and then.

> I think it is very strange for the people with Tylenol not to

> say in their

> advertisements that it may irritate the liver. I have been

> taking Tylenol

> since it first came on the market because it didn't hurt your

> stomach in

> anyway whatsoever -- or so I thought.

> Any of you that have taken Tylenol in any form should contact

> your doc

> immediately and I do believe he will tell you to STOP! It has

> just became

> known as " liver killer! " (my name for it). Check around -- it

> may help with

> your liver. After all, the liver is the most incredible part

> of our body --

> if whatever is damaging it, it will rejuvenate itself

> immediately and then a

> new liver forms!!

> Hugs,

> Biddy

__________________________________________________

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My Dr. has told me to take tylenol. Actually he prescribed Tylenol 3 with

codiene for me for my URQ pain. Needless to say, I very rarely took it, and

I'm now on celebrax (anti-inflammatory) in hopes that it will make the

inflammation in my liver go down.

Love,

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Dear Debbie,

I will be praying that the Atarax works for you. They are right, it is

very strong...but is also effective. I know though the fears you have of

taking ANYTHING while pregnant....I would literally get on my knees and pray

that the babies would be perfectly healthy before each time I took

anything!!! I would tell God, " You know how bad these symptoms are and since

You allowed the doc to prescribe it...I will trust you completely and put it

all in your hands and TRY not to worry about it " ....of course like I said I'd

have to pray that daily or otherwise I'd drive myself crazy reading the PDR's

advice about meds.

Anyway, I will pray that your itching stops all together...but also that

God just gives you the peace that passes all understanding!!!!

Much love and many many prayers, (I'm getting my husband and 4

and Calvin 2...if he'll stay still long enough!!ha!...to join me in prayer

for you and your precious baby!! Every thing will be absolutely fine!!!

Love,

Jacquelyn

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Hi,

Someone in another group that I am in has drug induced hep (from methotrexate)

and also has arthritis...she is taking celebrex and is constantly monitored for

LFTs. My internist and I discussed celebrex too for my joint pains/fibro and

she decided it was too risky for me (look at the drug insert or check a NEW

PDR).

Penny

WYBEAR21@... wrote:

> My Dr. has told me to take tylenol. Actually he prescribed Tylenol 3 with

> codiene for me for my URQ pain. Needless to say, I very rarely took it, and

> I'm now on celebrax (anti-inflammatory) in hopes that it will make the

> inflammation in my liver go down.

> Love,

>

>

> ------------------------------------------------------------------------

> Was the salesman clueless?

> Productopia has the answers.

> http://clickhere./click/555

>

> eGroups.com home: /group/

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Biddy- I believe that I read that you are taking Percocet for pain.

Percocet is a combo of oxycodone and acetaminophen, which is tylenol. Just

thought you might want to know that, maybe that is the reason why your doc

doesn't want you to take any additional tylenol? Liz

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Dan, the rash probably was liver associated as his enzymes were at an all

time high at that point (GGT 910), however he had not yet been diagnosed and

the physician we were dealing with at that time did not like the ever

inquisitive wife/nurse asking too many questions, so I never got a

satisfactory answer about anything from him. Needless to say we cut ties

with him ASAP. Some doctors don't like to feel that the patient is

questioning their omnipotence, if you know what I mean. Liz

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Liz,

Not necessarily pertaining to PSC but I ask Phil why I have to do the dirty work

(confrontation and setting things up) he tells me I do it so much better than

him. I keep telling him " You have the Masters degree " I just finished high

school. I get impatient with people that don't practice common sense I guess in

that respect I have a doctorate.

Peg

Rnurse987@... wrote:

> Peg, it is the same in our situation, in that my husband does not ask alot

> of questions, and I sometimes think he almost leaves it up to me to gather

> all the information we need, think of the questions to ask etc., but I think

> he feels that me being a nurse it is natural for me to take the role of

> communicator with the physician. Our current hepatologist is great and very

> receptive to my questions and suggestions regarding his plan of care for my

> husband, so we are very pleased with him. Liz

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

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I like the title of case manager, it sounds less domestic than caregiver. Phil

is still more of a caregiver in my mind than I am. I seem to be more business

oriented that domestic oriented. I was domestic oriented until I was about 33

then I had to have an outlet away from that. Now I'd love to go back to a

domestic life but am stuck in business. As far as I'm concerned domestic work

and business work don't mix with me, it's either one or the other. Phil is

covering the domestic end (I'm sure he'd rather be doing the business).

Actually

neither of us like the domestic stuff and we can't afford a maid so he does it

since he can't work. Sorry for rambling.

Peg

Rnurse987@... wrote:

> Peg, a degree in common sense is, in my opinion, just as important as any in

> higher education. I know a few very intelligent and highly educated people

> who are incredibly inept at figuring out things that require only simple

> common sense. So consider yourself a master! Seriously though, I think you

> and I, and others in the role of caregiver, are able to help those we love a

> great deal by carrying whatever end of the burden they can't at one time or

> another. In our relationship, I am the case manager, so to speak. Thanks

> for your input, it helps to hear from other spouses of PSC'ers. Liz

>

> ------------------------------------------------------------------------

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>

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