Re: OT: Info help! for Lymie friend facing back surgery

[Guest guest]

Lena,I don't have the info, but I vaguely remember that there is something important regarding Lyme and anesthesia. I'd look into it.Hope she feels better soon.

 

Hi Group,

I’m writing on behalf of a

Lymie friend who doesn’t have easy access to the internet. I’m hoping you can

provide me with some answers for her present situation.

 

She’s going to be having back

surgery on July 8th. It’s supposed to be as relatively non-invasive

as possible and her surgeon has a wonderful reputation (I’ve asked around).

 

She has spondylolisthesis,

secondary to spinal stenosis. It’s causing tingling and numbness in one

leg/foot, and now both legs and feet have a heavy, clumsy feeling that I guess

is typical of this condition as it advances. After steroids, which didn’t help

and worried her because of their immune-suppressant nature, she’s now peaceful

with the idea of the surgery. Presently she’s pretty much immobilized.

 

She’s wondering what, as a

Lymie, she should discuss with her surgeon and anesthesiologist: what specific,

non-routine things might need to be considered before the procedure.

 

I had no answers, but knew

there might be someone here who does. We’d be so grateful for any and all

feedback.

 

Thanks and be well,

Léna

 

[Guest guest]

Hi ,Thanks! Anything you might recall will help. Just knowing that her question would be considered by this group eased her mind somewhat.Be well,LénaLena,I don't have the info, but I vaguely remember that there is something important regarding Lyme and anesthesia. I'd look into it.Hope she feels better soon. Hi Group,I’m writing on behalf of a Lymie friend who doesn’t have easy access to the internet. I’m hoping you can provide me with some answers for her present situation. She’s going to be having back surgery on July 8th. It’s supposed to be as relatively non-invasive as possible and her surgeon has a wonderful reputation (I’ve asked around). She has spondylolisthesis, secondary to spinal stenosis. It’s causing tingling and numbness in one leg/foot, and now both legs and feet have a heavy, clumsy feeling that I guess is typical of this condition as it advances. After steroids, which didn’t help and worried her because of their immune-suppressant nature, she’s now peaceful with the idea of the surgery. Presently she’s pretty much immobilized. She’s wondering what, as a Lymie, she should discuss with her surgeon and anesthesiologist: what specific, non-routine things might need to be considered before the procedure. I had no answers, but knew there might be someone here who does. We’d be so grateful for any and all feedback. Thanks and be well,Léna

[Guest guest]

IDK Lena. Are you coming up empty on the search engines?

 

Hi ,Thanks! Anything you might recall will help. Just knowing that her question would be considered by this group eased her mind somewhat.

Be well,Léna

Lena,I don't have the info, but I vaguely remember that there is something important regarding Lyme and anesthesia. I'd look into it.

Hope she feels better soon.On Tue, Jun 21, 2011 at 5:28 PM, Guyot Léna  wrote:

 

Hi Group,I’m writing on behalf of a Lymie friend who doesn’t have easy access to the internet. I’m hoping you can provide me with some answers for her present situation.

 She’s going to be having back surgery on July 8th. It’s supposed to be as relatively non-invasive as possible and her surgeon has a wonderful reputation (I’ve asked around).

 She has spondylolisthesis, secondary to spinal stenosis. It’s causing tingling and numbness in one leg/foot, and now both legs and feet have a heavy, clumsy feeling that I guess is typical of this condition as it advances. After steroids, which didn’t help and worried her because of their immune-suppressant nature, she’s now peaceful with the idea of the surgery. Presently she’s pretty much immobilized.

 She’s wondering what, as a Lymie, she should discuss with her surgeon and anesthesiologist: what specific, non-routine things might need to be considered before the procedure.

 I had no answers, but knew there might be someone here who does. We’d be so grateful for any and all feedback.

 Thanks and be well,

Léna 

[Guest guest]

Thanks for the suggestion! Not quite. Some useless stuff, but one good set of documents concerning anesthesia/liver and amounts needed. I sent it on to her to give to her docs. (a bit over my head and probably hers.) Will search some more. thanks!Be well,LénaIDK Lena. Are you coming up empty on the search engines? Hi ,Thanks! Anything you might recall will help. Just knowing that her question would be considered by this group eased her mind somewhat.Be well,LénaLena,I don't have the info, but I vaguely remember that there is something important regarding Lyme and anesthesia. I'd look into it.Hope she feels better soon. Hi Group,I’m writing on behalf of a Lymie friend who doesn’t have easy access to the internet. I’m hoping you can provide me with some answers for her present situation. She’s going to be having back surgery on July 8th. It’s supposed to be as relatively non-invasive as possible and her surgeon has a wonderful reputation (I’ve asked around). She has spondylolisthesis, secondary to spinal stenosis. It’s causing tingling and numbness in one leg/foot, and now both legs and feet have a heavy, clumsy feeling that I guess is typical of this condition as it advances. After steroids, which didn’t help and worried her because of their immune-suppressant nature, she’s now peaceful with the idea of the surgery. Presently she’s pretty much immobilized. She’s wondering what, as a Lymie, she should discuss with her surgeon and anesthesiologist: what specific, non-routine things might need to be considered before the procedure. I had no answers, but knew there might be someone here who does. We’d be so grateful for any and all feedback. Thanks and be well,Léna

[Guest guest]

Hi Lena,

I am sorry to hear about your friend. I know that surgery can really

exascerbate Lyme problems, but sometimes it may be necessary. I read once that

women who have had previous surgeries are more prone to Lyme disease. It is

probably because surgery may compromise the immune system in some way. I am not

sure what she needs to discuss with her surgeon since most of what we do would

be laughed at in the Allopathic community. I would however, advise her to get

some redisorb glutathione and put a few drops in coffee enemas on a daily basis

for awhile after surgery to detox out the anesthesia. I have big time problems

with Anesthesia even the little bit that I get while at the dentist. I feel

like crap for a week or so after having it administered. The other thing that

she might do is to find an Alternative Medicine doctor who will inject her

surgery scar with procaine once it heals. Dr. K says that scars are a huge

source of toxin storage. It is hard to say what I would do if I were in her

shoes, but I would probably try coiling or do other things before opting for

surgery because much of her problem could be Lyme related and not mechanical,

but only your friend knows how much she can tolerate before taking the radical

step of a surgical procedure. I really sympathize with her. I hope it all goes

well for her and please let us know how she does.

>

> Hi Group,

> I'm writing on behalf of a Lymie friend who doesn't have easy access

> to the internet. I'm hoping you can provide me with some answers for

> her present situation.

>

> She's going to be having back surgery on July 8th. It's supposed to be

> as relatively non-invasive as possible and her surgeon has a wonderful

> reputation (I've asked around).

>

> She has spondylolisthesis, secondary to spinal stenosis. It's causing

> tingling and numbness in one leg/foot, and now both legs and feet have

> a heavy, clumsy feeling that I guess is typical of this condition as

> it advances. After steroids, which didn't help and worried her because

> of their immune-suppressant nature, she's now peaceful with the idea

> of the surgery. Presently she's pretty much immobilized.

>

> She's wondering what, as a Lymie, she should discuss with her surgeon

> and anesthesiologist: what specific, non-routine things might need to

> be considered before the procedure.

>

> I had no answers, but knew there might be someone here who does. We'd

> be so grateful for any and all feedback.

>

> Thanks and be well,

> Léna

>

[Guest guest]

Hello,

Lena says a lot like always.

1 month an d1/2 afetr having received a shut of corticoid my paralysis began ,

the time for one circle for the lyme and the cyst to open and matture .

I found nobody in the medical field to guide me everything they proposed was

very dangerous for a lyme person in the classical medecin field and not

efficient enought in the alternative field except in this forum .

numbeness is the first sign for me of paralyis. My paralysis went away with the

coil machine + 2 to 3 colonics a week plus welchol and silver 1 to 2 bottle a

day . it decreased liltle by litle.

it is due to neurotoxines accumulations. No surgery if she has lyme will remove

theses neurotoxines just the oposit.

Surgeons are not lyme specialist they look for xray not for neurotoxines .

for me I tryed 2 consecutive colonics plus a third one two days later and a

liver flush the recipy is on this site and 2 bottle of silver per day for a few

day that is what trouble shut my paralysis.

waiitng ofr th ecoil to come . I had a very ltille slow down in the agravation

it was enought fo rem to see i was on the right track .

Also gerovital intamuscular did an excellent job for me even thought it was not

the long shut successfull treatment it pushed back the paralyis long enought to

allow me to implement all the other aproach gave me time .Thi swas acting fast

right afetr the day afetr the injection for me

.. I am not a Doctor thsi is just my experience not an advise.

Hoping your friend will get better ,

Kindly Marie

> >

> > Hi Group,

> > I'm writing on behalf of a Lymie friend who doesn't have easy access

> > to the internet. I'm hoping you can provide me with some answers for

> > her present situation.

> >

> > She's going to be having back surgery on July 8th. It's supposed to

> be

> > as relatively non-invasive as possible and her surgeon has a

> wonderful

> > reputation (I've asked around).

> >

> > She has spondylolisthesis, secondary to spinal stenosis. It's causing

> > tingling and numbness in one leg/foot, and now both legs and feet

> have

> > a heavy, clumsy feeling that I guess is typical of this condition as

> > it advances. After steroids, which didn't help and worried her

> because

> > of their immune-suppressant nature, she's now peaceful with the idea

> > of the surgery. Presently she's pretty much immobilized.

> >

> > She's wondering what, as a Lymie, she should discuss with her surgeon

> > and anesthesiologist: what specific, non-routine things might need to

> > be considered before the procedure.

> >

> > I had no answers, but knew there might be someone here who does. We'd

> > be so grateful for any and all feedback.

> >

> > Thanks and be well,

> > Léna

> >

>

[Guest guest]

Hi Kindly Marie,Your story has given me a new way of looking at my friend's situation, and I've sent it on to her for her consideration. Not having seen her MRI, I don't know if this has progressed to the point where only mechanical surgical work will help, but I know she'd love to avoid the surgery. Will let you know how it goes, or if it goes.thanks so much.Be well,LeenaHello,Lena says a lot like always. 1 month an d1/2 afetr having received a shut of corticoid my paralysis began , the time for one circle for the lyme and the cyst to open and matture .I found nobody in the medical field to guide me everything they proposed was very dangerous for a lyme person in the classical medecin field and not efficient enought in the alternative field except in this forum .numbeness is the first sign for me of paralyis. My paralysis went away with the coil machine + 2 to 3 colonics a week plus welchol and silver 1 to 2 bottle a day . it decreased liltle by litle.it is due to neurotoxines accumulations. No surgery if she has lyme will remove theses neurotoxines just the oposit.Surgeons are not lyme specialist they look for xray not for neurotoxines .for me I tryed 2 consecutive colonics plus a third one two days later and a liver flush the recipy is on this site and 2 bottle of silver per day for a few day that is what trouble shut my paralysis.waiitng ofr th ecoil to come . I had a very ltille slow down in the agravation it was enought fo rem to see i was on the right track . Also gerovital intamuscular did an excellent job for me even thought it was not the long shut successfull treatment it pushed back the paralyis long enought to allow me to implement all the other aproach gave me time .Thi swas acting fast right afetr the day afetr the injection for me . I am not a Doctor thsi is just my experience not an advise.Hoping your friend will get better ,Kindly Marie> >> > Hi Group,> > I'm writing on behalf of a Lymie friend who doesn't have easy access> > to the internet. I'm hoping you can provide me with some answers for> > her present situation.> >> > She's going to be having back surgery on July 8th. It's supposed to > be> > as relatively non-invasive as possible and her surgeon has a > wonderful> > reputation (I've asked around).> >> > She has spondylolisthesis, secondary to spinal stenosis. It's causing> > tingling and numbness in one leg/foot, and now both legs and feet > have> > a heavy, clumsy feeling that I guess is typical of this condition as> > it advances. After steroids, which didn't help and worried her > because> > of their immune-suppressant nature, she's now peaceful with the idea> > of the surgery. Presently she's pretty much immobilized.> >> > She's wondering what, as a Lymie, she should discuss with her surgeon> > and anesthesiologist: what specific, non-routine things might need to> > be considered before the procedure.> >> > I had no answers, but knew there might be someone here who does. We'd> > be so grateful for any and all feedback.> >> > Thanks and be well,> > Léna> >>

[Guest guest]

Hey Marie,

Nice to see you back on group! I am glad our plan worked... :-)

Jim

> > >

> > > Hi Group,

> > > I'm writing on behalf of a Lymie friend who doesn't have easy access

> > > to the internet. I'm hoping you can provide me with some answers for

> > > her present situation.

> > >

> > > She's going to be having back surgery on July 8th. It's supposed to

> > be

> > > as relatively non-invasive as possible and her surgeon has a

> > wonderful

> > > reputation (I've asked around).

> > >

> > > She has spondylolisthesis, secondary to spinal stenosis. It's causing

> > > tingling and numbness in one leg/foot, and now both legs and feet

> > have

> > > a heavy, clumsy feeling that I guess is typical of this condition as

> > > it advances. After steroids, which didn't help and worried her

> > because

> > > of their immune-suppressant nature, she's now peaceful with the idea

> > > of the surgery. Presently she's pretty much immobilized.

> > >

> > > She's wondering what, as a Lymie, she should discuss with her surgeon

> > > and anesthesiologist: what specific, non-routine things might need to

> > > be considered before the procedure.

> > >

> > > I had no answers, but knew there might be someone here who does. We'd

> > > be so grateful for any and all feedback.

> > >

> > > Thanks and be well,

> > > Léna

> > >

> >

>

[Guest guest]

Hi Lena,

I'd like to share my experience with undergoing surgery while having Lyme...I

found out I had Lyme disease because of the surgery. I had a simple bladder

surgery 3 1/2 years ago and was given sedative and anesthesia. The sedatives and

anesthesia caused severe seizures and then paralysis (paralysis for approx 80%

of the day for 7 days and then on and off paralysis for 5 months). We eventually

discovered that (for me) the medicines: to include steroids, long-term use

antibiotics, benadryl, and other sedating or pain killing drugs caused seizures,

paralysis, mental retardation, and a myriad of other unfun symptoms. All the

time we were thinking that I was " allergic " to the above meds. I'm not

" allergic " to them. The LD and a parasite are in my brain (and in other areas),

this causes the brain to be sensitive, etc. I'm not trying to give a talk on

what I went through or explain med and brain problems...I was wondering if your

friend has LD in her brain...could be a horrible mix if anesthesia and/or

sedatives are involved. Also, I was diagnosed with ankylosing spondilitis and a

myriad of other athritis and back problem diagnoses...they all turned out to be

false diagnoses when we found the LD. I didn't share this story to deter your

friend from surgery. She and her doctor know what's best for her health. If she

were to have severe symptoms/reactions after her surgery it may be from LD and

co-infections. It would be best not to treat these symptoms as the medical field

usually does....it almost killed me and it set my life back 2 1/2 years. She

would be wise to have a doctor that will be open to the complexities of LD

symptoms/reactions and be there to support her without being quick to administer

drugs that further compound and exacerbate LD problems. I hope this was somewhat

helpful. Have a great day, Misty

>

> Hi Group,

> I'm writing on behalf of a Lymie friend who doesn't have easy access

> to the internet. I'm hoping you can provide me with some answers for

> her present situation.

>

> She's going to be having back surgery on July 8th. It's supposed to be

> as relatively non-invasive as possible and her surgeon has a wonderful

> reputation (I've asked around).

>

> She has spondylolisthesis, secondary to spinal stenosis. It's causing

> tingling and numbness in one leg/foot, and now both legs and feet have

> a heavy, clumsy feeling that I guess is typical of this condition as

> it advances. After steroids, which didn't help and worried her because

> of their immune-suppressant nature, she's now peaceful with the idea

> of the surgery. Presently she's pretty much immobilized.

>

> She's wondering what, as a Lymie, she should discuss with her surgeon

> and anesthesiologist: what specific, non-routine things might need to

> be considered before the procedure.

>

> I had no answers, but knew there might be someone here who does. We'd

> be so grateful for any and all feedback.

>

> Thanks and be well,

> Léna

>