Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hi , I don't want to bother you because I understand you need your rest but when you feel up to it I 'm curious about a few things. What was your bloodwork like before transplant-bilirubin levels, alk levels etc, bleeding time? Did you have any edema, ascites, or varices? How long were you on the list? Did you have any bowel problems associated with the PSC? This whole list process is confusing with the wait time and point process. Its scary because although I'm fatiqued and have probs with UC my bilirubin just dropped two point from 4.5 to 2.5 on my last blood test and I quess that effects my listing. But I don't want a transplant too soon If I can still have an acceptable quality of life and work but if its enevitable I don't want to wait to a point where I may not make it through the surgery. Did you doctors talk to you at all about this? Also, Is there anyone on prednisone for UC? After many drug trials, I was just put in 15mg a day. (5mg 3x a day). Thanks, Michele ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.