Guest guest Posted May 28, 1999 Report Share Posted May 28, 1999 What is POC? Carley Alison Frost wrote: > > > > Hello Ladies, > > I just got back from the Dr.'s office for my yearly pap and am just > thrilled to death. Let me first re-introduce myself for some of the > newbies. I have thought that I have had vv for the whole 5 years that I > have been with my husband. I had not been diagnosed because I just thought > I was young and this is what sex was all about, I only had pain on contact. > This made our intimacy interesting but none the less painful. I have been > misdiagnosed with clamydia by a Dr. in California who told me that she had > seen prostitutes with a cleaner sexual health than mine. This Dr. never did > a culture just speculated that because my vulva was swollen and red, and my > urethra was a little red and irritated then it must be clamydia. I was > furious and later got her fired for her actions. > > Anyhoo, we have learned to cope with this difficulty. I am lucky to only > have it be POC. I think God must know that I wouldn't be able to handle > all IBS, TMJ and VV together so he just let me know that it was there. :-) > > Now to my excitement.... I went to the Dr. and the minute she saw me she > said that she had some info for me. We have never discussed the VV, we > never knew what my problem was. She saw the show on CBS and said that she > thought of me. That I had this and there was no doubt in her mind. > However she did all the test and said that it is definately VV. I gave her > a whole lot of information and she said that she would read through it all. > This is the really good part. She said that she would give me a > prescription for whatever course of treatment I wanted to pursue (within > reason of course). She said that she was going to get some more > information about what was out there and in the meantime she has given me a > prescription for Estrace and Lidocaine gel. > > I was so happy because I had heard that most people have to go to several > Dr.s before getting diagnosed and the first time I go to my regular GYN she > tells me that she thought the same thing I did. This is a really little > town in Texas and pretty conservative. I thought that I had a struggle > ahead of me. Hopefully the Estrace will make things better and the > lidocaine will make it more enjoyable. If these do not work then I will > just go back to coexisting with my astroglide, calcium citrate, stretching > and relaxation on my own. But none the less excited to try something else. > > Sorry I rambled just so excited. If anyone has any other treatment options > that have worked for them (remember, I just have POC) let me know because > if the Estrace doesn't work for me then I may try something else. > > Better get, > ~~Carley~~ > cafrost@... > > ------------------------------------------------------------------------ > How many communities do you think join ONElist each day? > http://www.onelist.com > More than 1,000! Create yours now! > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 1999 Report Share Posted June 11, 1999 Bummer Heidi. My husband and I tried your " method " after reading about it on Dr. Glazers list. We too were successful that night, but I have been dealing with a flare-up since then. I am unable to tell if the two are connected. We will try again. (I also have had success with the lidocaine and will continue to use that if necessary). We are also trying to get pregnant....may the force be with us (heehee)! Marissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 1999 Report Share Posted June 11, 1999 Hang in there Heidi! I'm sure all of us can relate to this. My husband and I were able to have intercouse with no pain only the next time had pain at the end and then for 3 days. Yesterday out of the blue I had awful pain and itching in the vulvar area, still having it today. Before yesterday I only had pain in the vestible area. I'm praying it won't keep getting worse. This disease is so awful it keeps teasing us where we feel great for awhile get our hopes up thinking maybe it's over, and then get them crushed. Stay strong and keep focusing on the positive parts and focus on the future. It has to get better!! Here's hoping for the pitter patter of little feet soon!! ---Heidi Walsh wrote: > > > > Well, last night I tried my " method " of having an orgasm and then > attempting intercourse. I had been successful three times in the past > week with this method. Unfortunately, it didn't go very well last > night. > > I did everything the same, yet when he penetrated me it was painful on > the left side. I was able to tolerate sex until he climaxed (we're > trying to get pregnant), but I told him to go fast and then I was in > pain afterward (and today). *sigh* Hopefully it was just a bad night. > I plan on trying again. > > Warmly, > > Heidi > mailto:dwalsh@... > http://www.angelfire.com/md/vulvardisorders > > ------------------------------------------------------------------------ > Looking for a new hobby? Want to make a new friend? > http://www.onelist.com > Come join one of over 165,000 e-mail communities at ONElist! > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 ---My doctor has me on the 1500 calorie diet also. It took me about 2 weeks to lose ten but I always loose more in the first couple of weeks. Of course this is the same ten I lost 2 years ago and it found its way back and now it left again, hopefully for good. From here on it should be about 1 to 2 pounds a week. Congrats, . It's nice to have a good beginning, makes it easier to stick with it. I am just taking it five pounds at a time. Doesn't seem so out of reach that way! Madge In diabetes@y..., " Weaselhead " <rolling@b...> wrote: > > Re: Update > > > Eight and one half pounds is too much for one week! I'd be interested in > hearing other comments from members of this group. > > It is alot but my numbers are good and I feel great, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 In a message dated 8/23/01 11:10:11 PM Eastern Daylight Time, rolling@... writes: > Congratulations , that is great. Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 In a message dated 8/23/01 11:28:54 PM Eastern Daylight Time, ir004400@... writes: > Eight and one half pounds is too much for one week! She probably lost a lot of fluid, so the first week should be okay. One to two pounds per week is normal, though. Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 ka....good luck with new meds and in selling your car. Hope lots of good things happen. Hugs, Cam UPDATE > I am not at home yet because my roomate still hasnt fixed that septic > tank. But the worse news is that I am hurting very badly and My meds > arent helping one bit..... But the good thing about that is I called > my gp and ASKED IF IT WAS OK FOR ME TO go to the hospital up here > where the specialist for fibro works to get better pain meds because > mine arent working and my gp said sure.....(fibro fingers sorry for > the caps) So tomorrow if I am hurting like I was today we will take > me to the hospital. I had to bring my walker up here because I still > am having problems walking. and my percocet didnt even make > me " loopy " so I doint think it is doing anything for me anymore.... I > was sleeping god with it but not anymore. Well I just wanted to > update everyone on how things are going... Oh yeah I am also trying > to sell my car while I am here because Portland is such a big city > that there are lots of car lots near by that would take cash for a > car if I could get mine sold... then I would be able to drive better > and be more comfortable too. So keep your fingers crossed for the car > thing!!! Talk to you all soon. > > > ka > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 Good morning Group It's veen quite a while since I posted an update. I just spent the last 10 days at the Mayo Clinic in Rochester. I went in for a recheck on my Neuropathy (not diabetic, but unknown cause). They did a sweat test which showed that the Neuropathy has definitely moved from both my feet to both my legs. They also did a nerve conduction study that verified what the sweat test showed. They did a complete body MRI that showed some things wrong - DDD in my back - lower back, An enlarged liver - a possible side effect of certain long term meds that I take, Both knees are bad, especially the left knee. It has given out on me twice in three weeks as I was going down the stairs. Both times I ended up sliding down the stairs. The last time I sprained my knee. They aren't thinking about surgery yet, but it is a possibility in the future. I have two new diagnosis - arthritis in my knees, elbows and fingers and Fibro - wasn't surprised because of the constant pain in my neck and shoulder right below the shoulder blade. They've made recommendations to my primary doctor as for treatment and meds. I see her this afternoon. She will like go along with their recommendations. She has patients that have the same conditions that I have and has been treating them for a long time. I've talked to one patient - chance meeting - that has neuropathy and she has been quite please with the doctor and her treatment and pain meds. My current meds are Lamictal 100 mg 2 x's/day, Neurontin 500 mg/day, Synthroid 100 mcg/day, Coumidan 25 mcg/day, Darvocet 100 mg 3 x's/day and Tylenol 3 150 mg 3 x's/day. My depression/SAD has gotten worse. It's hung on longer that normal. Both myself and the Doctor are quite concerned about it. I've gone for days at a time without getting dressed. We think that it is related to my pain levels. I've been keeping a journal and will look at it this afternoon with her. The arthritis has slowed me down some with my crocheting of afaghans. I can only do it for so long each day and then I have to quit. I've been making a lot of afaghans for nieces, nephews, new babies and grand babies. My grand daughter was born on Halloween, my nephew is getting married in May, my niece is due the first part of July, my step daughter is due the end of July, and two nieces getting married in September. I have 2 1/2 afaghans to go. I have confidence that the Lord will let me get them done in time. Welcome to all the new members. I look forward to getting to know you and giving you input as it relates to me. Hugs Diane-Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Diane, I also have non-Diabetic neuropathy so I read your post with interest. About 3 ½ years ago, I got an intense pain in my butt and down my leg that was diagnosed as sciatica. When returning from the ER, I started to fall down……long story short……I ended up using a walker and after seeing two local neurologists, I went to The Neurological Institute of New York at Columbia University. The diagnosis is lumbar plexitis…..an inflammation of nerves in a nerve “plexis” which I understand somewhat. In any case, I am now on permanent disability. I went through physical therapy and progressed from the walker to a cane and now, manage without the cane. My one leg & foot are numb, but I have considerable pain. I am now terribly concerned since my other foot is now numb. I’m scheduled for another MRI, but there’s really nothing they can do. I take 1800 mg of Neurontin a day (600 mg 3X) and have been through a series of pain meds over the last few years. I also have rheumatoid arthritis which is sometimes much worse than the neuropathy and take meds for that as well. I’ve never heard of a sweat test – how does that work? Depression is a side effect of many illnesses…….I know that going from a fully functioning woman to being disabled has been very trying for me. My income has been cut dramatically so that in itself can cause a lot of stress. The pain and limited abilities to do what we want to do is so frustrating! I try to think about what I do have and not what I’ve lost. I do miss working and interacting with friends on a daily basis, but I also do love being home. Of course, I DO miss the income!! Interestingly, my gynecologist prescribed an antidepressant, Effexor, for hot flashes (yes, I suffer with that on top of everything else!) and I suppose it helps lift my spirits as well. I am surprised that your doctor has not prescribed something for you. I see nothing wrong with not getting dressed for a few days, but if that becomes your lifestyle, then perhaps it should be addressed more aggressively. I’d love to compare notes and if you’d like to do so, I’d be glad to “chat” off list. It’s so hard for people to understand neuropathy…..how can you be numb and feel pain at the same time?? Sometimes, I don’t get it!! Dorothy _____ From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On Behalf Of Diane Sent: Monday, April 27, 2009 11:27 AM To: Hugs-N-Pain Subject: Update Good morning Group It's veen quite a while since I posted an update. I just spent the last 10 days at the Mayo Clinic in Rochester. I went in for a recheck on my Neuropathy (not diabetic, but unknown cause). They did a sweat test which showed that the Neuropathy has definitely moved from both my feet to both my legs. They also did a nerve conduction study that verified what the sweat test showed. They did a complete body MRI that showed some things wrong - DDD in my back - lower back, An enlarged liver - a possible side effect of certain long term meds that I take, Both knees are bad, especially the left knee. It has given out on me twice in three weeks as I was going down the stairs. Both times I ended up sliding down the stairs. The last time I sprained my knee. They aren't thinking about surgery yet, but it is a possibility in the future. I have two new diagnosis - arthritis in my knees, elbows and fingers and Fibro - wasn't surprised because of the constant pain in my neck and shoulder right below the shoulder blade. They've made recommendations to my primary doctor as for treatment and meds. I see her this afternoon. She will like go along with their recommendations. She has patients that have the same conditions that I have and has been treating them for a long time. I've talked to one patient - chance meeting - that has neuropathy and she has been quite please with the doctor and her treatment and pain meds. My current meds are Lamictal 100 mg 2 x's/day, Neurontin 500 mg/day, Synthroid 100 mcg/day, Coumidan 25 mcg/day, Darvocet 100 mg 3 x's/day and Tylenol 3 150 mg 3 x's/day. My depression/SAD has gotten worse. It's hung on longer that normal. Both myself and the Doctor are quite concerned about it. I've gone for days at a time without getting dressed. We think that it is related to my pain levels. I've been keeping a journal and will look at it this afternoon with her. The arthritis has slowed me down some with my crocheting of afaghans. I can only do it for so long each day and then I have to quit. I've been making a lot of afaghans for nieces, nephews, new babies and grand babies. My grand daughter was born on Halloween, my nephew is getting married in May, my niece is due the first part of July, my step daughter is due the end of July, and two nieces getting married in September. I have 2 1/2 afaghans to go. I have confidence that the Lord will let me get them done in time. Welcome to all the new members. I look forward to getting to know you and giving you input as it relates to me. Hugs Diane-Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Dear friends, if u don't hear fr me until after June 8, it's bec I am being happily inundated w/family etc. Have a great get-together, Alice! just gett dressed is an adventure w/only one hand! I hear ya! Just getting my socks on my feet every day is one of those exercises in frustration. Pray for the world!!! Our cyberbonds are strong n positive. A YES! comes before a no can sound." And remember those two beasts pawing at your door. Don't bury your head in the sand but also be careful which beast you feed. Blissings,SamSearch for Soulhttps://sampatron.wordpress.com Quote Link to comment Share on other sites More sharing options...
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