Re: DREAMER-PLUS what else is weird? seeing the doctor-- symmetry

January 16, 2005

Hmmm, I get swelling and stuff and call the doc, but by the time I go in, even

if it is the next day, lots of times it is something entirely different swollen

thatn what I called about. Or, sometimes on doc appt day NOTHING is swollen,

that always gets me.

I am noticing some strange little thing... first it can be one finger, maybe the

joint at the tip, maybe the joint at the base in my hand for that finger...just

always different places.

I think each knee of mine has 4 different places it might swell. SOmething else

I noticed, pain does not always go hand in hand with how outwardly obvious the

swelling is, things can swell a lot and look terrible and not be too painful, on

occasion I can have very little swelling and massive impairment of function.

SOmetimes it is NOT in a joint, sometimes it is in a muscle or tendon. Seems

then it takes a little longer to subside...

ANother thing I noticed is even if something is not real red and obvious to

look at, if I take a warm bath, then the area will become VERY VERY bright red

and very obvious as to exactly where the pain is originating very specifically.

I am not sure, I do have the diagnosis for RA, but I read the article posted

here about connective tissue, who knows? My doc really was stuck on the

symmetry stuff. - and I think if I remember right, he also said some of the

joints I complain about are very non typical for RA...and he said it would not

be one finger but all of them at a time?

Who knows? I know the mtx has made a huge difference. I know every 2-3 months

he does the blood work for mtx and also for various other things...and he is

talking about adding Remicade.

- In , aclavern33@a... wrote:

>

> I am also not symetrical as well. My doc really didn't have a lot to say

> about it. Curently I seem to be developing something going on under the

bottom

> of my foot behind the toes. No clue what it is but its only one foot as

usual.

> If it continues I will think about going to see the rheummy. I really hate

> that doc!!! I might see my internal med doc first. I like him a lot.

>

> Toni

>

> In a message dated 1/16/2005 2:12:14 AM Central Standard Time,

> writes:

> Date: Sun, 16 Jan 2005 06:04:57 -0000

> From: " dreamer_plus " <dreamer_plus@w...>

> Subject: Re: DREAMER-PLUS what else is weird?

>

> for example, my wrists..some times it is over here on my wrist, maybe the

> outter edge where the swelling and pain are and I can make this motion but not

> that motion, but another time, the swelling is over HERE on the wrist, in a

> different place on the wrist and now I can move my wrist that way but not this

> way. do you know what I mean or am I an oddball?

> SOme days it is the joint s in my fingers up at the tips and some days it is

> the finger jonts that are down at the base of my fingers in my hand...

> I don't know - maybe other peoples does not move around as oddly as mine

> does, my doc gets nuts with me how mine moves so much from spot to spot. He

> delayed my diagnosis a long time cuz of how mine moves so much...but finally

he

> decided my lab values all said RA....and the mtx did help LOTS....so he

decided

> to just go with that anyway. But he did say usually RA is more symmetrical.

> Mine isn't.

>

January 16, 2005