Re: sorry I have not been here- updates some OT

[Guest guest]

I'm glad that your went to ER. I can't imagine how much pain you

have been in, girl. Did the doctor recommend you go to a

specialist? It seems like there is something that can be done. Glad

to hear the med is helping a little.

You have had a difficult time, and I will keep you, and the family in

my prayers,....Tawny

--- In , " dreamer_plus " <dreamer_plus@w...>

wrote:

>

> I posted this today on another group I belong to-

> I broke down finally and went in - been sick since Dec 26, thought

it was ear

> infection or maybe possibly a bad tooth?   I kept hoping that in

spite of my

> chemo, my body might fight it off, anyway, on it's own? (I live in

partial

> denial that I have RA and am on chemo- so used to having a sturdy

healthy

> constitution, ya know?) This morning at pinewood derby weigh in, my

ear began to

> bleed inside. It has been hurting a LOT, and my jaw has been

swelling, so much

> my teeth would not close or meet up lately sometimes. Well, having

my ear bleed

> I though oh you dummy now you went and let your dumb eardrum

rupture, you fool.

> SO I went in to the ER, deciding it should not wait till Monday.

> UG. Doc said my eustachian tubes are damaged, and so are my salivary

> glands....no infection, just chronic fluid that damaged it

all.....and my jaw

> has RA in it.....like my fingers. (and toes and shoulder and knees

etc, yeesh)

> He said he really can do very little for any of it. He gave me a

decongestatnt

> hoping it will help the pressure and pain some, but warned me it

might not and

> this is long term problem. grrrr. and the RA in the jaw will be

just like

> everywhere else, sometimes it will act up and sometimes it won't.

sometimes I

> will be to my knees in pain and unable to eat and sometimes it will

be fine. Oh

> joy. The good news is I took one pill so far and already the

pressure and pain

> are better, bearable, and so is my hearing.

> I really am disgusted with my dumb body turning on itself. LOL. And

I am like

> anyone else, - hey fix me doc! NOW. I am tired of all the things in

me, Ray and

> the kids that medicine cannot yet fix, LOL, I am a product of the

instant

> gratification generation, ya know? LOL.

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> In addition, I was at Shriners childrens hospital with my youngest

for 3 full

> days this week.came home to find a cousin and a friend - both early

40s had

> passed away.....UG. broke her shoulder, I am not yet sure

how......

> I counted, I have been to 8 funerals this year for people in their

teens and

> 20's and 6 for people in their 30s and 40s, and it is hitting me

hard in my

> face. also 2 for teen agers.

> I am in middle of suing our school district for disability

discrimination and

> harrassment for my oldest child.....the trial starts this week, and

sadly I am

> having to represent myself (LONG story)

> Life is just being really hard right now. I did not mean to not be

here and not

> be supportive to you guys in your battles. Please do know I keep

you all in my

> prayers daily, and I am inspired by your attitudes.

> My best to all of you.

[Guest guest]

I'm glad that your went to ER. I can't imagine how much pain you

have been in, girl. Did the doctor recommend you go to a

specialist? It seems like there is something that can be done. Glad

to hear the med is helping a little.

You have had a difficult time, and I will keep you, and the family in

my prayers,....Tawny

>

> I posted this today on another group I belong to-

> I broke down finally and went in - been sick since Dec 26, thought

it was ear

> infection or maybe possibly a bad tooth?   I kept hoping that in

spite of my

> chemo, my body might fight it off, anyway, on it's own? (I live in

partial

> denial that I have RA and am on chemo- so used to having a sturdy

healthy

> constitution, ya know?) This morning at pinewood derby weigh in, my

ear began to

> bleed inside. It has been hurting a LOT, and my jaw has been

swelling, so much

> my teeth would not close or meet up lately sometimes. Well, having

my ear bleed

> I though oh you dummy now you went and let your dumb eardrum

rupture, you fool.

> SO I went in to the ER, deciding it should not wait till Monday.

> UG. Doc said my eustachian tubes are damaged, and so are my salivary

> glands....no infection, just chronic fluid that damaged it

all.....and my jaw

> has RA in it.....like my fingers. (and toes and shoulder and knees

etc, yeesh)

> He said he really can do very little for any of it. He gave me a

decongestatnt

> hoping it will help the pressure and pain some, but warned me it

might not and

> this is long term problem. grrrr. and the RA in the jaw will be

just like

> everywhere else, sometimes it will act up and sometimes it won't.

sometimes I

> will be to my knees in pain and unable to eat and sometimes it will

be fine. Oh

> joy. The good news is I took one pill so far and already the

pressure and pain

> are better, bearable, and so is my hearing.

> I really am disgusted with my dumb body turning on itself. LOL. And

I am like

> anyone else, - hey fix me doc! NOW. I am tired of all the things in

me, Ray and

> the kids that medicine cannot yet fix, LOL, I am a product of the

instant

> gratification generation, ya know? LOL.

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> In addition, I was at Shriners childrens hospital with my youngest

for 3 full

> days this week.came home to find a cousin and a friend - both early

40s had

> passed away.....UG. broke her shoulder, I am not yet sure

how......

> I counted, I have been to 8 funerals this year for people in their

teens and

> 20's and 6 for people in their 30s and 40s, and it is hitting me

hard in my

> face. also 2 for teen agers.

> I am in middle of suing our school district for disability

discrimination and

> harrassment for my oldest child.....the trial starts this week, and

sadly I am

> having to represent myself (LONG story)

> Life is just being really hard right now. I did not mean to not be

here and not

> be supportive to you guys in your battles. Please do know I keep

you all in my

> prayers daily, and I am inspired by your attitudes.

> My best to all of you.

[Guest guest]

WOW it certainly sounds like you have your hands full... I am so sorry about the

rough time you are having. I can relate to you in several ways as my jaw is

involved with RA and is very painful. I did not realize it could cause problems

such as you described , bleeding, damage to eustachian tubes, was this

indirectly caused by RA?

Just curiousity, are you representing your child in an IDEA hearing or other? If

it is IDEA I can certainly relate there as well. We went through several

hearings with our son and I have done alot of advocacy for other children over

the years, it can be quite stressful. Are you in California?

Hope everything starts to look up for you soon,

Faith

-------------- Original message --------------

I posted this today on another group I belong to-

I broke down finally and went in - been sick since Dec 26, thought it was ear

infection or maybe possibly a bad tooth? I kept hoping that in spite of my

chemo, my body might fight it off, anyway, on it's own? (I live in partial

denial that I have RA and am on chemo- so used to having a sturdy healthy

constitution, ya know?) This morning at pinewood derby weigh in, my ear began to

bleed inside. It has been hurting a LOT, and my jaw has been swelling, so much

my teeth would not close or meet up lately sometimes. Well, having my ear bleed

I though oh you dummy now you went and let your dumb eardrum rupture, you fool.

SO I went in to the ER, deciding it should not wait till Monday.

UG. Doc said my eustachian tubes are damaged, and so are my salivary

glands....no infection, just chronic fluid that damaged it all.....and my jaw

has RA in it.....like my fingers. (and toes and shoulder and knees etc, yeesh)

He said he really can do very little for any of it. He gave me a decongestatnt

hoping it will help the pressure and pain some, but warned me it might not and

this is long term problem. grrrr. and the RA in the jaw will be just like

everywhere else, sometimes it will act up and sometimes it won't. sometimes I

will be to my knees in pain and unable to eat and sometimes it will be fine. Oh

joy. The good news is I took one pill so far and already the pressure and pain

are better, bearable, and so is my hearing.

I really am disgusted with my dumb body turning on itself. LOL. And I am like

anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray and

the kids that medicine cannot yet fix, LOL, I am a product of the instant

gratification generation, ya know? LOL.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

In addition, I was at Shriners childrens hospital with my youngest for 3 full

days this week.came home to find a cousin and a friend - both early 40s had

passed away.....UG. broke her shoulder, I am not yet sure how......

I counted, I have been to 8 funerals this year for people in their teens and

20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

face. also 2 for teen agers.

I am in middle of suing our school district for disability discrimination and

harrassment for my oldest child.....the trial starts this week, and sadly I am

having to represent myself (LONG story)

Life is just being really hard right now. I did not mean to not be here and not

be supportive to you guys in your battles. Please do know I keep you all in my

prayers daily, and I am inspired by your attitudes.

My best to all of you.

[Guest guest]

WOW it certainly sounds like you have your hands full... I am so sorry about the

rough time you are having. I can relate to you in several ways as my jaw is

involved with RA and is very painful. I did not realize it could cause problems

such as you described , bleeding, damage to eustachian tubes, was this

indirectly caused by RA?

Just curiousity, are you representing your child in an IDEA hearing or other? If

it is IDEA I can certainly relate there as well. We went through several

hearings with our son and I have done alot of advocacy for other children over

the years, it can be quite stressful. Are you in California?

Hope everything starts to look up for you soon,

Faith

-------------- Original message --------------

I posted this today on another group I belong to-

I broke down finally and went in - been sick since Dec 26, thought it was ear

infection or maybe possibly a bad tooth? I kept hoping that in spite of my

chemo, my body might fight it off, anyway, on it's own? (I live in partial

denial that I have RA and am on chemo- so used to having a sturdy healthy

constitution, ya know?) This morning at pinewood derby weigh in, my ear began to

bleed inside. It has been hurting a LOT, and my jaw has been swelling, so much

my teeth would not close or meet up lately sometimes. Well, having my ear bleed

I though oh you dummy now you went and let your dumb eardrum rupture, you fool.

SO I went in to the ER, deciding it should not wait till Monday.

UG. Doc said my eustachian tubes are damaged, and so are my salivary

glands....no infection, just chronic fluid that damaged it all.....and my jaw

has RA in it.....like my fingers. (and toes and shoulder and knees etc, yeesh)

He said he really can do very little for any of it. He gave me a decongestatnt

hoping it will help the pressure and pain some, but warned me it might not and

this is long term problem. grrrr. and the RA in the jaw will be just like

everywhere else, sometimes it will act up and sometimes it won't. sometimes I

will be to my knees in pain and unable to eat and sometimes it will be fine. Oh

joy. The good news is I took one pill so far and already the pressure and pain

are better, bearable, and so is my hearing.

I really am disgusted with my dumb body turning on itself. LOL. And I am like

anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray and

the kids that medicine cannot yet fix, LOL, I am a product of the instant

gratification generation, ya know? LOL.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

In addition, I was at Shriners childrens hospital with my youngest for 3 full

days this week.came home to find a cousin and a friend - both early 40s had

passed away.....UG. broke her shoulder, I am not yet sure how......

I counted, I have been to 8 funerals this year for people in their teens and

20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

face. also 2 for teen agers.

I am in middle of suing our school district for disability discrimination and

harrassment for my oldest child.....the trial starts this week, and sadly I am

having to represent myself (LONG story)

Life is just being really hard right now. I did not mean to not be here and not

be supportive to you guys in your battles. Please do know I keep you all in my

prayers daily, and I am inspired by your attitudes.

My best to all of you.

[Guest guest]

I hope your jaw and ear will calm down very soon, dreamer. It sounds so

painful.

Sorry also to hear about the numerous deaths of those in your life. So many

young people.

You and yours are in my prayers.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] sorry I have not been here- updates some OT

I posted this today on another group I belong to-

I broke down finally and went in - been sick since Dec 26, thought it was

ear

infection or maybe possibly a bad tooth? I kept hoping that in spite of my

chemo, my body might fight it off, anyway, on it's own? (I live in partial

denial that I have RA and am on chemo- so used to having a sturdy healthy

constitution, ya know?) This morning at pinewood derby weigh in, my ear

began to

bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

much

my teeth would not close or meet up lately sometimes. Well, having my ear

bleed

I though oh you dummy now you went and let your dumb eardrum rupture, you

fool.

SO I went in to the ER, deciding it should not wait till Monday.

UG. Doc said my eustachian tubes are damaged, and so are my salivary

glands....no infection, just chronic fluid that damaged it all.....and my

jaw

has RA in it.....like my fingers. (and toes and shoulder and knees etc,

yeesh)

He said he really can do very little for any of it. He gave me a

decongestatnt

hoping it will help the pressure and pain some, but warned me it might not

and

this is long term problem. grrrr. and the RA in the jaw will be just like

everywhere else, sometimes it will act up and sometimes it won't. sometimes

I

will be to my knees in pain and unable to eat and sometimes it will be fine.

Oh

joy. The good news is I took one pill so far and already the pressure and

pain

are better, bearable, and so is my hearing.

I really am disgusted with my dumb body turning on itself. LOL. And I am

like

anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

and

the kids that medicine cannot yet fix, LOL, I am a product of the instant

gratification generation, ya know? LOL.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

In addition, I was at Shriners childrens hospital with my youngest for 3

full

days this week.came home to find a cousin and a friend - both early 40s had

passed away.....UG. broke her shoulder, I am not yet sure how......

I counted, I have been to 8 funerals this year for people in their teens and

20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

face. also 2 for teen agers.

I am in middle of suing our school district for disability discrimination

and

harrassment for my oldest child.....the trial starts this week, and sadly I

am

having to represent myself (LONG story)

Life is just being really hard right now. I did not mean to not be here and

not

be supportive to you guys in your battles. Please do know I keep you all in

my

prayers daily, and I am inspired by your attitudes.

My best to all of you.

[Guest guest]

I hope your jaw and ear will calm down very soon, dreamer. It sounds so

painful.

Sorry also to hear about the numerous deaths of those in your life. So many

young people.

You and yours are in my prayers.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] sorry I have not been here- updates some OT

I posted this today on another group I belong to-

I broke down finally and went in - been sick since Dec 26, thought it was

ear

infection or maybe possibly a bad tooth? I kept hoping that in spite of my

chemo, my body might fight it off, anyway, on it's own? (I live in partial

denial that I have RA and am on chemo- so used to having a sturdy healthy

constitution, ya know?) This morning at pinewood derby weigh in, my ear

began to

bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

much

my teeth would not close or meet up lately sometimes. Well, having my ear

bleed

I though oh you dummy now you went and let your dumb eardrum rupture, you

fool.

SO I went in to the ER, deciding it should not wait till Monday.

UG. Doc said my eustachian tubes are damaged, and so are my salivary

glands....no infection, just chronic fluid that damaged it all.....and my

jaw

has RA in it.....like my fingers. (and toes and shoulder and knees etc,

yeesh)

He said he really can do very little for any of it. He gave me a

decongestatnt

hoping it will help the pressure and pain some, but warned me it might not

and

this is long term problem. grrrr. and the RA in the jaw will be just like

everywhere else, sometimes it will act up and sometimes it won't. sometimes

I

will be to my knees in pain and unable to eat and sometimes it will be fine.

Oh

joy. The good news is I took one pill so far and already the pressure and

pain

are better, bearable, and so is my hearing.

I really am disgusted with my dumb body turning on itself. LOL. And I am

like

anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

and

the kids that medicine cannot yet fix, LOL, I am a product of the instant

gratification generation, ya know? LOL.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

In addition, I was at Shriners childrens hospital with my youngest for 3

full

days this week.came home to find a cousin and a friend - both early 40s had

passed away.....UG. broke her shoulder, I am not yet sure how......

I counted, I have been to 8 funerals this year for people in their teens and

20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

face. also 2 for teen agers.

I am in middle of suing our school district for disability discrimination

and

harrassment for my oldest child.....the trial starts this week, and sadly I

am

having to represent myself (LONG story)

Life is just being really hard right now. I did not mean to not be here and

not

be supportive to you guys in your battles. Please do know I keep you all in

my

prayers daily, and I am inspired by your attitudes.

My best to all of you.

[Guest guest]

THanks. :-)

- In , " " <Matsumura_Clan@m...> wrote:

> I hope your jaw and ear will calm down very soon, dreamer. It sounds so

> painful.

>

> Sorry also to hear about the numerous deaths of those in your life. So many

> young people.

>

> You and yours are in my prayers.

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] sorry I have not been here- updates some OT

>

>

>

>

> I posted this today on another group I belong to-

> I broke down finally and went in - been sick since Dec 26, thought it was

> ear

> infection or maybe possibly a bad tooth? I kept hoping that in spite of my

> chemo, my body might fight it off, anyway, on it's own? (I live in partial

> denial that I have RA and am on chemo- so used to having a sturdy healthy

> constitution, ya know?) This morning at pinewood derby weigh in, my ear

> began to

> bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

> much

> my teeth would not close or meet up lately sometimes. Well, having my ear

> bleed

> I though oh you dummy now you went and let your dumb eardrum rupture, you

> fool.

> SO I went in to the ER, deciding it should not wait till Monday.

> UG. Doc said my eustachian tubes are damaged, and so are my salivary

> glands....no infection, just chronic fluid that damaged it all.....and my

> jaw

> has RA in it.....like my fingers. (and toes and shoulder and knees etc,

> yeesh)

> He said he really can do very little for any of it. He gave me a

> decongestatnt

> hoping it will help the pressure and pain some, but warned me it might not

> and

> this is long term problem. grrrr. and the RA in the jaw will be just like

> everywhere else, sometimes it will act up and sometimes it won't. sometimes

> I

> will be to my knees in pain and unable to eat and sometimes it will be fine.

> Oh

> joy. The good news is I took one pill so far and already the pressure and

> pain

> are better, bearable, and so is my hearing.

> I really am disgusted with my dumb body turning on itself. LOL. And I am

> like

> anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

> and

> the kids that medicine cannot yet fix, LOL, I am a product of the instant

> gratification generation, ya know? LOL.

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> In addition, I was at Shriners childrens hospital with my youngest for 3

> full

> days this week.came home to find a cousin and a friend - both early 40s had

> passed away.....UG. broke her shoulder, I am not yet sure how......

> I counted, I have been to 8 funerals this year for people in their teens and

> 20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

> face. also 2 for teen agers.

> I am in middle of suing our school district for disability discrimination

> and

> harrassment for my oldest child.....the trial starts this week, and sadly I

> am

> having to represent myself (LONG story)

> Life is just being really hard right now. I did not mean to not be here and

> not

> be supportive to you guys in your battles. Please do know I keep you all in

> my

> prayers daily, and I am inspired by your attitudes.

> My best to all of you.

[Guest guest]

THanks. :-)

- In , " " <Matsumura_Clan@m...> wrote:

> I hope your jaw and ear will calm down very soon, dreamer. It sounds so

> painful.

>

> Sorry also to hear about the numerous deaths of those in your life. So many

> young people.

>

> You and yours are in my prayers.

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] sorry I have not been here- updates some OT

>

>

>

>

> I posted this today on another group I belong to-

> I broke down finally and went in - been sick since Dec 26, thought it was

> ear

> infection or maybe possibly a bad tooth? I kept hoping that in spite of my

> chemo, my body might fight it off, anyway, on it's own? (I live in partial

> denial that I have RA and am on chemo- so used to having a sturdy healthy

> constitution, ya know?) This morning at pinewood derby weigh in, my ear

> began to

> bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

> much

> my teeth would not close or meet up lately sometimes. Well, having my ear

> bleed

> I though oh you dummy now you went and let your dumb eardrum rupture, you

> fool.

> SO I went in to the ER, deciding it should not wait till Monday.

> UG. Doc said my eustachian tubes are damaged, and so are my salivary

> glands....no infection, just chronic fluid that damaged it all.....and my

> jaw

> has RA in it.....like my fingers. (and toes and shoulder and knees etc,

> yeesh)

> He said he really can do very little for any of it. He gave me a

> decongestatnt

> hoping it will help the pressure and pain some, but warned me it might not

> and

> this is long term problem. grrrr. and the RA in the jaw will be just like

> everywhere else, sometimes it will act up and sometimes it won't. sometimes

> I

> will be to my knees in pain and unable to eat and sometimes it will be fine.

> Oh

> joy. The good news is I took one pill so far and already the pressure and

> pain

> are better, bearable, and so is my hearing.

> I really am disgusted with my dumb body turning on itself. LOL. And I am

> like

> anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

> and

> the kids that medicine cannot yet fix, LOL, I am a product of the instant

> gratification generation, ya know? LOL.

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> In addition, I was at Shriners childrens hospital with my youngest for 3

> full

> days this week.came home to find a cousin and a friend - both early 40s had

> passed away.....UG. broke her shoulder, I am not yet sure how......

> I counted, I have been to 8 funerals this year for people in their teens and

> 20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

> face. also 2 for teen agers.

> I am in middle of suing our school district for disability discrimination

> and

> harrassment for my oldest child.....the trial starts this week, and sadly I

> am

> having to represent myself (LONG story)

> Life is just being really hard right now. I did not mean to not be here and

> not

> be supportive to you guys in your battles. Please do know I keep you all in

> my

> prayers daily, and I am inspired by your attitudes.

> My best to all of you.