Re: sorry I have not been here- updates some OT I have to wonder

[Guest guest]

If my eustachian tube is swollen, couldn't it press on something for the jaw?

Or maybe if the jaw is swollen, couldn't it put pressure on the eustachian tube.

I am not sure I am gonna buy in to what the ER doc said, after all. And maybe

it IS just an ear infection.

- In , " dreamer_plus " <dreamer_plus@w...> wrote:

>

> No, the doc said the eustachian tubes and salivary glands are a seperate issue

from the jaw and RA.

> Yes, the school thing is IDEA stuff, due process, IEP non compliance and

change of placement stuff, we are in Illinois. We have had NAMI, CABF and

advocates and I have advocated....for myself and others... even civil liberties

and ADA has been involved along the way. It really is a nightmare.

>

>

> - In , fmt2002@c... wrote:

> > WOW it certainly sounds like you have your hands full... I am so sorry about

the rough time you are having. I can relate to you in several ways as my jaw is

involved with RA and is very painful. I did not realize it could cause problems

such as you described , bleeding, damage to eustachian tubes, was this

indirectly caused by RA?

> >

> > Just curiousity, are you representing your child in an IDEA hearing or

other? If it is IDEA I can certainly relate there as well. We went through

several hearings with our son and I have done alot of advocacy for other

children over the years, it can be quite stressful. Are you in California?

> >

> > Hope everything starts to look up for you soon,

> > Faith

> >

> >

> >

> > -------------- Original message --------------

> >

> > I posted this today on another group I belong to-

> > I broke down finally and went in - been sick since Dec 26, thought it was

ear

> > infection or maybe possibly a bad tooth? I kept hoping that in spite of my

> > chemo, my body might fight it off, anyway, on it's own? (I live in partial

> > denial that I have RA and am on chemo- so used to having a sturdy healthy

> > constitution, ya know?) This morning at pinewood derby weigh in, my ear

began to

> > bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

much

> > my teeth would not close or meet up lately sometimes. Well, having my ear

bleed

> > I though oh you dummy now you went and let your dumb eardrum rupture, you

fool.

> > SO I went in to the ER, deciding it should not wait till Monday.

> > UG. Doc said my eustachian tubes are damaged, and so are my salivary

> > glands....no infection, just chronic fluid that damaged it all.....and my

jaw

> > has RA in it.....like my fingers. (and toes and shoulder and knees etc,

yeesh)

> > He said he really can do very little for any of it. He gave me a

decongestatnt

> > hoping it will help the pressure and pain some, but warned me it might not

and

> > this is long term problem. grrrr. and the RA in the jaw will be just like

> > everywhere else, sometimes it will act up and sometimes it won't. sometimes

I

> > will be to my knees in pain and unable to eat and sometimes it will be fine.

Oh

> > joy. The good news is I took one pill so far and already the pressure and

pain

> > are better, bearable, and so is my hearing.

> > I really am disgusted with my dumb body turning on itself. LOL. And I am

like

> > anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

and

> > the kids that medicine cannot yet fix, LOL, I am a product of the instant

> > gratification generation, ya know? LOL.

> > XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> > In addition, I was at Shriners childrens hospital with my youngest for 3

full

> > days this week.came home to find a cousin and a friend - both early 40s had

> > passed away.....UG. broke her shoulder, I am not yet sure how......

> > I counted, I have been to 8 funerals this year for people in their teens and

> > 20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

> > face. also 2 for teen agers.

> > I am in middle of suing our school district for disability discrimination

and

> > harrassment for my oldest child.....the trial starts this week, and sadly I

am

> > having to represent myself (LONG story)

> > Life is just being really hard right now. I did not mean to not be here and

not

> > be supportive to you guys in your battles. Please do know I keep you all in

my

> > prayers daily, and I am inspired by your attitudes.

> > My best to all of you.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

If my eustachian tube is swollen, couldn't it press on something for the jaw?

Or maybe if the jaw is swollen, couldn't it put pressure on the eustachian tube.

I am not sure I am gonna buy in to what the ER doc said, after all. And maybe

it IS just an ear infection.

- In , " dreamer_plus " <dreamer_plus@w...> wrote:

>

> No, the doc said the eustachian tubes and salivary glands are a seperate issue

from the jaw and RA.

> Yes, the school thing is IDEA stuff, due process, IEP non compliance and

change of placement stuff, we are in Illinois. We have had NAMI, CABF and

advocates and I have advocated....for myself and others... even civil liberties

and ADA has been involved along the way. It really is a nightmare.

>

>

> - In , fmt2002@c... wrote:

> > WOW it certainly sounds like you have your hands full... I am so sorry about

the rough time you are having. I can relate to you in several ways as my jaw is

involved with RA and is very painful. I did not realize it could cause problems

such as you described , bleeding, damage to eustachian tubes, was this

indirectly caused by RA?

> >

> > Just curiousity, are you representing your child in an IDEA hearing or

other? If it is IDEA I can certainly relate there as well. We went through

several hearings with our son and I have done alot of advocacy for other

children over the years, it can be quite stressful. Are you in California?

> >

> > Hope everything starts to look up for you soon,

> > Faith

> >

> >

> >

> > -------------- Original message --------------

> >

> > I posted this today on another group I belong to-

> > I broke down finally and went in - been sick since Dec 26, thought it was

ear

> > infection or maybe possibly a bad tooth? I kept hoping that in spite of my

> > chemo, my body might fight it off, anyway, on it's own? (I live in partial

> > denial that I have RA and am on chemo- so used to having a sturdy healthy

> > constitution, ya know?) This morning at pinewood derby weigh in, my ear

began to

> > bleed inside. It has been hurting a LOT, and my jaw has been swelling, so

much

> > my teeth would not close or meet up lately sometimes. Well, having my ear

bleed

> > I though oh you dummy now you went and let your dumb eardrum rupture, you

fool.

> > SO I went in to the ER, deciding it should not wait till Monday.

> > UG. Doc said my eustachian tubes are damaged, and so are my salivary

> > glands....no infection, just chronic fluid that damaged it all.....and my

jaw

> > has RA in it.....like my fingers. (and toes and shoulder and knees etc,

yeesh)

> > He said he really can do very little for any of it. He gave me a

decongestatnt

> > hoping it will help the pressure and pain some, but warned me it might not

and

> > this is long term problem. grrrr. and the RA in the jaw will be just like

> > everywhere else, sometimes it will act up and sometimes it won't. sometimes

I

> > will be to my knees in pain and unable to eat and sometimes it will be fine.

Oh

> > joy. The good news is I took one pill so far and already the pressure and

pain

> > are better, bearable, and so is my hearing.

> > I really am disgusted with my dumb body turning on itself. LOL. And I am

like

> > anyone else, - hey fix me doc! NOW. I am tired of all the things in me, Ray

and

> > the kids that medicine cannot yet fix, LOL, I am a product of the instant

> > gratification generation, ya know? LOL.

> > XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> > In addition, I was at Shriners childrens hospital with my youngest for 3

full

> > days this week.came home to find a cousin and a friend - both early 40s had

> > passed away.....UG. broke her shoulder, I am not yet sure how......

> > I counted, I have been to 8 funerals this year for people in their teens and

> > 20's and 6 for people in their 30s and 40s, and it is hitting me hard in my

> > face. also 2 for teen agers.

> > I am in middle of suing our school district for disability discrimination

and

> > harrassment for my oldest child.....the trial starts this week, and sadly I

am

> > having to represent myself (LONG story)

> > Life is just being really hard right now. I did not mean to not be here and

not

> > be supportive to you guys in your battles. Please do know I keep you all in

my

> > prayers daily, and I am inspired by your attitudes.

> > My best to all of you.

> >

> >

> >

> >

> >

> >

> >