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>,

>

>I also got that Medscape news this morning. Very interersting reading for all

of us. The >study on the use of vitamin C.

>How do you or others read this. Can it be taken to mean that vitamin C might

lengthen the >periods between episodes?

I think we need to see the full text or the abstract. Looks interesting but I

think many of the drugs we try prolong the refractory period so I'm not getting

my hopes up :) I'm pretty sure there is a significant amount of people with AF

popping Vit C pills already but I've not heard of any miracles cures with it.

(happy to be wrong though)

--

D

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Diann Payne Diann Payne wrote :

>The study on the use of vitamin C.

- - -

> " In another study, Carnes and colleagues[13] examined the efficacy

>of treatment with the antioxidant vitamin C in preventing the

>shortening of the atrial effective refractory period that

>occurs with remodeling. The drug was effective during the early

>pacing period. These results raise the possibility that a widely

>available over-the-counter drug is effective in delaying atrial

>fibrillation recurrence. Further studies are required to clarify the

>role of vitamin C in this common arrhythmia. "

Diann, I have searched but can't find the original reference or web url

for this - can you help? I'd like to read it.

Best of health to all,

Vicky

http://www.vagalafibportal.fsnet.co.uk/

" Science may be described as the art of systematic over-simplification "

- Karl Popper

" All truth goes through three stages: first it is ridiculed, then it is

violently

opposed, finally it is accepted as self evident. " - Schopenhauer

" Wisdom is the quality that keeps you from getting into situations where we

need it " - Doug Larsen

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - -

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Hi all there was news paper report in the UK all last week re Vit C.

It would seem that doses over 1 mg per day (not sure of the exact dose).

Effects the DNA structure and has been proven to cause the BIG C.

C

Re: Re: News

Diann Payne Diann Payne wrote :

>The study on the use of vitamin C.

- - -

> " In another study, Carnes and colleagues[13] examined the efficacy

>of treatment with the antioxidant vitamin C in preventing the

>shortening of the atrial effective refractory period that

>occurs with remodeling. The drug was effective during the early

>pacing period. These results raise the possibility that a widely

>available over-the-counter drug is effective in delaying atrial

>fibrillation recurrence. Further studies are required to clarify

the

>role of vitamin C in this common arrhythmia. "

Diann, I have searched but can't find the original reference or web

url

for this - can you help? I'd like to read it.

Best of health to all,

Vicky

http://www.vagalafibportal.fsnet.co.uk/

" Science may be described as the art of systematic

over-simplification "

- Karl Popper

" All truth goes through three stages: first it is ridiculed, then it

is violently

opposed, finally it is accepted as self evident. " - Schopenhauer

" Wisdom is the quality that keeps you from getting into situations

where we

need it " - Doug Larsen

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - -

Web Page http://groups.yahoo.com/group/AFIBsupport

For more information: http://www.dialsolutions.com/af

Post message: AFIBsupport

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>

> Hi all there was news paper report in the UK all last week re Vit C.

>

> It would seem that doses over 1 mg per day (not sure of the exact

dose).

> Effects the DNA structure and has been proven to cause the BIG C.

Well, not exactly. Someone saw a reaction in a petrie(sp?) dish and

speculated that it might have some affect on DNA in humans. I have

enough trouble keeping track of the monthly reversals in actual test

results in humans for various things without worrying about petrie

dishes and speculation. I note also that the doc was quoted as

saying supplements are unnecessary and that we get all the nutrients

needed from food.

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Vicky,

the text Diann posted can be found here

http://www.medscape.com/Medscape/CNO/2001/NASPECME/Story.cfm?story_id=2196

it's the last para in the section 'Remodeling During Atrial Fibrillation'

the ref is

13. Carnes CA, Nakayama T, Nakayama H, et al. Vitamin C attenuates

pacing-induced atrial electrical remodeling. Program and abstracts of the North

American Society of Pacing and Electrophysiology 22nd Annual Scientific

Sessions; May 2-5, 2001; Boston, Massachusetts. Abstract 137.

if you can convert this ref into a URL please pass it on :)

--

D

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  • 2 weeks later...
Guest guest

,

Thank-you for finding and posting that interesting article.

Greg

>

> Hi Here is some news I found on the Maze board. It is quite

interesting and

> in depth.

>

> Re the Asthma New s I posted last night I realise that it did not

come out

> on the email I will try and find it tonight and re post.

>

>

> Regards

>

> john C

>

> http://cvm.controlled-trials.com/Commentaries/CVM-2-2-067.pdf

>

>

>

>

>

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> This message may contain information which is confidential or

privileged.

> If you are not the intended recipient, please advise the sender

immediately

> by reply e-mail and delete this message and any attachments

> without retaining a copy.

>

>

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  • 5 years later...
Guest guest

>

>

> Well, Boys and Girls....my answer was NO! I got my letter today and

> they decided that I had too many other medical problems to proceed

with

> transplant plans.

>

> I was positive for antiphospholipid syndrome, (have always been)

which

> is a Lupus related blood clotting disorder. I had tested negative

the

> last time so that is why the evaluation even took place. Then thier

> bloodwork came up positive.

>

> They also stated the newly found coronary artery disease and 16

other

> conditions. So, I am back in the hands of God....same place I have

been

> all along.

>

> Please remember me in your prayers. I am especially concerned with

my

> larynx condition. I would have to go off Plavix to have biopsy and

that

> would be suicide. Or I can let it go, never talk again, and

possibly be

> ignoring cancer. Aaaargh!!! I am leaving all that up to the

docs. I

> am not capable of making a decision like that!

>

> Just a little numb today. Some days it is hard to keep thinking

> positive. I am so glad that we are planning this vacation.......I

need

> a break and some HAPPY!

>

> Just another little irritant....they said in the list of reasons

that I

> was Obese! I have lost down from 222 to 153 and have been feeling

so

> skinny. HA! now, to find out I am still obese. I could show them

> Obese!!! [/:)]

>

> Hugs,

>

> Joyce PF 1997

>

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Joyce, get another opinion on the syndrome or, find out if its

borderline or what. You MIGHT Ahave been under the wire that day.

Phred

---- Original Message ----

From: pinkrockybeach@...

To: Breathe-Support

Subject: RE: Re: News

Date: Mon, 17 Jul 2006 01:06:07 -0000

>

>>

>>

>> Well, Boys and Girls....my answer was NO! I got my letter today

>and

>> they decided that I had too many other medical problems to proceed

>with

>> transplant plans.

>>

>> I was positive for antiphospholipid syndrome, (have always been)

>which

>> is a Lupus related blood clotting disorder. I had tested negative

>the

>> last time so that is why the evaluation even took place. Then

>thier

>> bloodwork came up positive.

>>

>> They also stated the newly found coronary artery disease and 16

>other

>> conditions. So, I am back in the hands of God....same place I have

>

>been

>> all along.

>>

>> Please remember me in your prayers. I am especially concerned with

>

>my

>> larynx condition. I would have to go off Plavix to have biopsy and

>

>that

>> would be suicide. Or I can let it go, never talk again, and

>possibly be

>> ignoring cancer. Aaaargh!!! I am leaving all that up to the

>docs. I

>> am not capable of making a decision like that!

>>

>> Just a little numb today. Some days it is hard to keep thinking

>> positive. I am so glad that we are planning this vacation.......I

>need

>> a break and some HAPPY!

>>

>> Just another little irritant....they said in the list of reasons

>that I

>> was Obese! I have lost down from 222 to 153 and have been feeling

>so

>> skinny. HA! now, to find out I am still obese. I could show them

>> Obese!!! [/:)]

>>

>> Hugs,

>>

>> Joyce PF 1997

>>

>

>

>

>

>

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Guest guest

Fred,

Thanks for caring. Actually, the Antiphospholipid Syndrome, anticardiolipin antibody, and Lupus anticoagulant has always been positive until last December when they tested negative. The tests at Jewish were all positive. It would be suicide to try transplant. I have already had a stroke (with seizure disorder as a result) and blood clots in my legs.

They also found that my ribs had been broken...which I knew (ouch) That means osteoporosis (steroids) and no doc wants to saw through powerdery bones!

There are many complications because of life long connective tissue including Lupus. Even though take complicated cases, I was off the scale. The coronary artery disease that they found there is another important reason why they said no.

I am glad that I went. The stent probably saved my life. My docs here now can confer with the best docs in the land. They got so much valuable information and hopefully will be able to extend my life a little longer.

I am not going to lie down and die. They are going to find my cold dead body at the Mall. I push, push, push myself. It has worked for nine years. God gave me THIS day and I am going to use it. I refuse to sit down and quit. Sometimes I am sick and I do sit down....even lay down....but I will not quit!!!!

You are not the only stubborn member of our group!!!

Hugs,

Joyce PF 1997> >>> >> > >> Well, Boys and Girls....my answer was NO! I got my letter today> >and> >> they decided that I had too many other medical problems to proceed > >with> >> transplant plans.> >> > >> I was positive for antiphospholipid syndrome, (have always been) > >which> >> is a Lupus related blood clotting disorder. I had tested negative > >the> >> last time so that is why the evaluation even took place. Then> >thier> >> bloodwork came up positive.> >> > >> They also stated the newly found coronary artery disease and 16 > >other> >> conditions. So, I am back in the hands of God....same place I have> >> >been> >> all along.> >> > >> Please remember me in your prayers. I am especially concerned with> >> >my> >> larynx condition. I would have to go off Plavix to have biopsy and> >> >that> >> would be suicide. Or I can let it go, never talk again, and > >possibly be> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the > >docs. I> >> am not capable of making a decision like that!> >> > >> Just a little numb today. Some days it is hard to keep thinking> >> positive. I am so glad that we are planning this vacation.......I > >need> >> a break and some HAPPY!> >> > >> Just another little irritant....they said in the list of reasons > >that I> >> was Obese! I have lost down from 222 to 153 and have been feeling > >so> >> skinny. HA! now, to find out I am still obese. I could show them> >> Obese!!! [/:)]> >> > >> Hugs,> >> > >> Joyce PF 1997> >>> >> >> >> >> >>

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Well, Joyce, it seems I have bronchiolitis NOT ipf! Doesn't seem to

have any trace of asbestos in my xrays. It makes me feel better but,

am NOT sure if it is ethical for any scholarship for Lani.

Phred

---- Original Message ----

From: joycedalton29@...

To: Breathe-Support

Subject: RE: Re: News

Date: Mon, 17 Jul 2006 13:48:24 -0000

>

>Fred,

>

>Thanks for caring. Actually, the Antiphospholipid Syndrome,

>anticardiolipin antibody, and Lupus anticoagulant has always been

>positive until last December when they tested negative. The tests at

> Jewish were all positive. It would be suicide to try

>transplant.

>I have already had a stroke (with seizure disorder as a result) and

>blood clots in my legs.

>

>They also found that my ribs had been broken...which I knew (ouch)

>That

>means osteoporosis (steroids) and no doc wants to saw through

>powerdery

>bones!

>

>There are many complications because of life long connective tissue

>including Lupus. Even though take complicated cases, I was

>off

>the scale. The coronary artery disease that they found there is

>another

>important reason why they said no.

>

>I am glad that I went. The stent probably saved my life. My docs

>here

>now can confer with the best docs in the land. They got so much

>valuable information and hopefully will be able to extend my life a

>little longer.

>

>I am not going to lie down and die. They are going to find my cold

>dead

>body at the Mall. I push, push, push myself. It has worked for nine

>years. God gave me THIS day and I am going to use it. I refuse to

>sit

>down and quit. Sometimes I am sick and I do sit down....even lay

>down....but I will not quit!!!!

>

>You are not the only stubborn member of our group!!!

>

>Hugs,

>

>Joyce PF 1997

>

>> >>

>> >>

>> >> Well, Boys and Girls....my answer was NO! I got my letter today

>> >and

>> >> they decided that I had too many other medical problems to

>proceed

>> >with

>> >> transplant plans.

>> >>

>> >> I was positive for antiphospholipid syndrome, (have always been)

>> >which

>> >> is a Lupus related blood clotting disorder. I had tested

>negative

>> >the

>> >> last time so that is why the evaluation even took place. Then

>> >thier

>> >> bloodwork came up positive.

>> >>

>> >> They also stated the newly found coronary artery disease and 16

>> >other

>> >> conditions. So, I am back in the hands of God....same place I

>have

>> >

>> >been

>> >> all along.

>> >>

>> >> Please remember me in your prayers. I am especially concerned

>with

>> >

>> >my

>> >> larynx condition. I would have to go off Plavix to have biopsy

>and

>> >

>> >that

>> >> would be suicide. Or I can let it go, never talk again, and

>> >possibly be

>> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the

>> >docs. I

>> >> am not capable of making a decision like that!

>> >>

>> >> Just a little numb today. Some days it is hard to keep thinking

>> >> positive. I am so glad that we are planning this

>vacation.......I

>> >need

>> >> a break and some HAPPY!

>> >>

>> >> Just another little irritant....they said in the list of reasons

>> >that I

>> >> was Obese! I have lost down from 222 to 153 and have been

>feeling

>> >so

>> >> skinny. HA! now, to find out I am still obese. I could show them

>> >> Obese!!! [/:)]

>> >>

>> >> Hugs,

>> >>

>> >> Joyce PF 1997

>> >>

>> >

>> >

>> >

>> >

>> >

>>

>

>

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Phred, are the drs able to treat you now, and how is your prognosis.It seems like here a few of us who have gone thru the misdiagnosis this year. HP 6/06phredta11bl@... wrote: Well, Joyce, it seems I have bronchiolitis NOT ipf! Doesn't seem tohave any trace of asbestos in my xrays. It makes me feel better but,am NOT sure if it is ethical for any scholarship for Lani.Phred---- Original Message ----From: joycedalton29aolTo: Breathe-Support Subject: RE: Re: NewsDate: Mon, 17 Jul 2006 13:48:24 -0000>>Fred,>>Thanks for caring. Actually, the Antiphospholipid Syndrome,>anticardiolipin antibody, and Lupus anticoagulant has always been>positive until last December when they tested negative. The tests at> Jewish were all positive. It would be suicide to try>transplant.>I have already had a stroke (with seizure disorder as a result) and>blood clots in my legs.>>They also found that my ribs had been broken...which I knew (ouch) >That>means osteoporosis (steroids) and no doc wants to saw through>powerdery>bones!>>There are many complications because of life long connective

tissue>including Lupus. Even though take complicated cases, I was>off>the scale. The coronary artery disease that they found there is>another>important reason why they said no.>>I am glad that I went. The stent probably saved my life. My docs>here>now can confer with the best docs in the land. They got so much>valuable information and hopefully will be able to extend my life a>little longer.>>I am not going to lie down and die. They are going to find my cold>dead>body at the Mall. I push, push, push myself. It has worked for nine>years. God gave me THIS day and I am going to use it. I refuse to>sit>down and quit. Sometimes I am sick and I do sit down....even lay>down....but I will not quit!!!!>>You are not the only stubborn member of our group!!!>>Hugs,>>Joyce PF 1997>>> >>>> >>>> >> Well, Boys and Girls....my answer was NO! I got my letter today>> >and>> >> they decided

that I had too many other medical problems to>proceed>> >with>> >> transplant plans.>> >>>> >> I was positive for antiphospholipid syndrome, (have always been)>> >which>> >> is a Lupus related blood clotting disorder. I had tested>negative>> >the>> >> last time so that is why the evaluation even took place. Then>> >thier>> >> bloodwork came up positive.>> >>>> >> They also stated the newly found coronary artery disease and 16>> >other>> >> conditions. So, I am back in the hands of God....same place I>have>> >>> >been>> >> all along.>> >>>> >> Please remember me in your prayers. I am especially concerned>with>> >>> >my>> >>

larynx condition. I would have to go off Plavix to have biopsy>and>> >>> >that>> >> would be suicide. Or I can let it go, never talk again, and>> >possibly be>> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the>> >docs. I>> >> am not capable of making a decision like that!>> >>>> >> Just a little numb today. Some days it is hard to keep thinking>> >> positive. I am so glad that we are planning this>vacation.......I>> >need>> >> a break and some HAPPY!>> >>>> >> Just another little irritant....they said in the list of reasons>> >that I>> >> was Obese! I have lost down from 222 to 153 and have been>feeling>> >so>> >> skinny. HA! now, to find out I am still obese. I

could show them>> >> Obese!!! [/:)]>> >>>> >> Hugs,>> >>>> >> Joyce PF 1997>> >>>> >>> >>> >>> >>> >>>>>

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Joyce...I am awed by your courage and strength! You have so much on your plate and yet you remain courageous and strong. I admire in you what I have not achieved in myself. God bless you with mighty blessings!

Hugs to you, Sher ipf 5-06

Re: News

Fred,

Thanks for caring. Actually, the Antiphospholipid Syndrome, anticardiolipin antibody, and Lupus anticoagulant has always been positive until last December when they tested negative. The tests at Jewish were all positive. It would be suicide to try transplant. I have already had a stroke (with seizure disorder as a result) and blood clots in my legs.

They also found that my ribs had been broken...which I knew (ouch) That means osteoporosis (steroids) and no doc wants to saw through powerdery bones!

There are many complications because of life long connective tissue including Lupus. Even though take complicated cases, I was off the scale. The coronary artery disease that they found there is another important reason why they said no.

I am glad that I went. The stent probably saved my life. My docs here now can confer with the best docs in the land. They got so much valuable information and hopefully will be able to extend my life a little longer.

I am not going to lie down and die. They are going to find my cold dead body at the Mall. I push, push, push myself. It has worked for nine years. God gave me THIS day and I am going to use it. I refuse to sit down and quit. Sometimes I am sick and I do sit down....even lay down....but I will not quit!!!!

You are not the only stubborn member of our group!!!

Hugs,

Joyce PF 1997> >>> >> > >> Well, Boys and Girls....my answer was NO! I got my letter today> >and> >> they decided that I had too many other medical problems to proceed > >with> >> transplant plans.> >> > >> I was positive for antiphospholipid syndrome, (have always been) > >which> >> is a Lupus related blood clotting disorder. I had tested negative > >the> >> last time so that is why the evaluation even took place. Then> >thier> >> bloodwork came up positive.> >> > >> They also stated the newly found coronary artery disease and 16 > >other> >> conditions. So, I am back in the hands of God....same place I have> >> >been> >> all along.> >> > >> Please remember me in your prayers. I am especially concerned with> >> >my> >> larynx condition. I would have to go off Plavix to have biopsy and> >> >that> >> would be suicide. Or I can let it go, never talk again, and > >possibly be> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the > >docs. I> >> am not capable of making a decision like that!> >> > >> Just a little numb today. Some days it is hard to keep thinking> >> positive. I am so glad that we are planning this vacation.......I > >need> >> a break and some HAPPY!> >> > >> Just another little irritant....they said in the list of reasons > >that I> >> was Obese! I have lost down from 222 to 153 and have been feeling > >so> >> skinny. HA! now, to find out I am still obese. I could show them> >> Obese!!! [/:)]> >> > >> Hugs,> >> > >> Joyce PF 1997> >>> >> >> >> >> >>

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Guest guest

Phred...I'm glad when I hear one does not have ipf! Perhaps this will ease your life some. Sher ipf 5-06

RE: Re: News

Phred, are the drs able to treat you now, and how is your prognosis.It seems like here a few of us who have gone thru the misdiagnosis this year.

HP 6/06phredta11bl@... wrote:

Well, Joyce, it seems I have bronchiolitis NOT ipf! Doesn't seem tohave any trace of asbestos in my xrays. It makes me feel better but,am NOT sure if it is ethical for any scholarship for Lani.Phred---- Original Message ----From: joycedalton29aolTo: Breathe-Support Subject: RE: Re: NewsDate: Mon, 17 Jul 2006 13:48:24 -0000>>Fred,>>Thanks for caring. Actually, the Antiphospholipid Syndrome,>anticardiolipin antibody, and Lupus anticoagulant has always been>positive until last December when they tested negative. The tests at> Jewish were all positive. It would be suicide to try>transplant.>I have already had a stroke (with seizure disorder as a result) and>blood clots in my legs.>>They also found that my ribs had been broken...which I knew (ouch) >That>means osteoporosis (steroids) and no doc wants to saw through>powerdery>bones!>>There are many complications because of life long connective tissue>including Lupus. Even though take complicated cases, I was>off>the scale. The coronary artery disease that they found there is>another>important reason why they said no.>>I am glad that I went. The stent probably saved my life. My docs>here>now can confer with the best docs in the land. They got so much>valuable information and hopefully will be able to extend my life a>little longer.>>I am not going to lie down and die. They are going to find my cold>dead>body at the Mall. I push, push, push myself. It has worked for nine>years. God gave me THIS day and I am going to use it. I refuse to>sit>down and quit. Sometimes I am sick and I do sit down....even lay>down....but I will not quit!!!!>>You are not the only stubborn member of our group!!!>>Hugs,>>Joyce PF 1997>>> >>>> >>>> >> Well, Boys and Girls....my answer was NO! I got my letter today>> >and>> >> they decided that I had too many other medical problems to>proceed>> >with>> >> transplant plans.>> >>>> >> I was positive for antiphospholipid syndrome, (have always been)>> >which>> >> is a Lupus related blood clotting disorder. I had tested>negative>> >the>> >> last time so that is why the evaluation even took place. Then>> >thier>> >> bloodwork came up positive.>> >>>> >> They also stated the newly found coronary artery disease and 16>> >other>> >> conditions. So, I am back in the hands of God....same place I>have>> >>> >been>> >> all along.>> >>>> >> Please remember me in your prayers. I am especially concerned>with>> >>> >my>> >> larynx condition. I would have to go off Plavix to have biopsy>and>> >>> >that>> >> would be suicide. Or I can let it go, never talk again, and>> >possibly be>> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the>> >docs. I>> >> am not capable of making a decision like that!>> >>>> >> Just a little numb today. Some days it is hard to keep thinking>> >> positive. I am so glad that we are planning this>vacation.......I>> >need>> >> a break and some HAPPY!>> >>>> >> Just another little irritant....they said in the list of reasons>> >that I>> >> was Obese! I have lost down from 222 to 153 and have been>feeling>> >so>> >> skinny. HA! now, to find out I am still obese. I could show them>> >> Obese!!! [/:)]>> >>>> >> Hugs,>> >>>> >> Joyce PF 1997>> >>>> >>> >>> >>> >>> >>>>>

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YAHOO, Wow Fred you must be dancing all over the place.. CONGRADULATION !!!

I can not imagine hearing that.. I can only imagine..Go do stuff..

Peggy 09/04 ipf

> Well, Joyce, it seems I have bronchiolitis NOT ipf! Doesn't seem to

> have any trace of asbestos in my xrays. It makes me feel better but,

> am NOT sure if it is ethical for any scholarship for Lani.

>

> Phred

>

> ---- Original Message ----

> From: joycedalton29@...

> To: Breathe-Support

> Subject: RE: Re: News

> Date: Mon, 17 Jul 2006 13:48:24 -0000

>

>>

>> Fred,

>>

>> Thanks for caring. Actually, the Antiphospholipid Syndrome,

>> anticardiolipin antibody, and Lupus anticoagulant has always been

>> positive until last December when they tested negative. The tests at

>> Jewish were all positive. It would be suicide to try

>> transplant.

>> I have already had a stroke (with seizure disorder as a result) and

>> blood clots in my legs.

>>

>> They also found that my ribs had been broken...which I knew (ouch)

>> That

>> means osteoporosis (steroids) and no doc wants to saw through

>> powerdery

>> bones!

>>

>> There are many complications because of life long connective tissue

>> including Lupus. Even though take complicated cases, I was

>> off

>> the scale. The coronary artery disease that they found there is

>> another

>> important reason why they said no.

>>

>> I am glad that I went. The stent probably saved my life. My docs

>> here

>> now can confer with the best docs in the land. They got so much

>> valuable information and hopefully will be able to extend my life a

>> little longer.

>>

>> I am not going to lie down and die. They are going to find my cold

>> dead

>> body at the Mall. I push, push, push myself. It has worked for nine

>> years. God gave me THIS day and I am going to use it. I refuse to

>> sit

>> down and quit. Sometimes I am sick and I do sit down....even lay

>> down....but I will not quit!!!!

>>

>> You are not the only stubborn member of our group!!!

>>

>> Hugs,

>>

>> Joyce PF 1997

>>

>>>>>

>>>>>

>>>>> Well, Boys and Girls....my answer was NO! I got my letter today

>>>> and

>>>>> they decided that I had too many other medical problems to

>> proceed

>>>> with

>>>>> transplant plans.

>>>>>

>>>>> I was positive for antiphospholipid syndrome, (have always been)

>>>> which

>>>>> is a Lupus related blood clotting disorder. I had tested

>> negative

>>>> the

>>>>> last time so that is why the evaluation even took place. Then

>>>> thier

>>>>> bloodwork came up positive.

>>>>>

>>>>> They also stated the newly found coronary artery disease and 16

>>>> other

>>>>> conditions. So, I am back in the hands of God....same place I

>> have

>>>>

>>>> been

>>>>> all along.

>>>>>

>>>>> Please remember me in your prayers. I am especially concerned

>> with

>>>>

>>>> my

>>>>> larynx condition. I would have to go off Plavix to have biopsy

>> and

>>>>

>>>> that

>>>>> would be suicide. Or I can let it go, never talk again, and

>>>> possibly be

>>>>> ignoring cancer. Aaaargh!!! I am leaving all that up to the

>>>> docs. I

>>>>> am not capable of making a decision like that!

>>>>>

>>>>> Just a little numb today. Some days it is hard to keep thinking

>>>>> positive. I am so glad that we are planning this

>> vacation.......I

>>>> need

>>>>> a break and some HAPPY!

>>>>>

>>>>> Just another little irritant....they said in the list of reasons

>>>> that I

>>>>> was Obese! I have lost down from 222 to 153 and have been

>> feeling

>>>> so

>>>>> skinny. HA! now, to find out I am still obese. I could show them

>>>>> Obese!!! [/:)]

>>>>>

>>>>> Hugs,

>>>>>

>>>>> Joyce PF 1997

>>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>

>>

>>

>

>

>

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Guest guest

... I'll put it this way, we need all the blessings we can

get! So, with mucho gratitude and humbleness, we accept ... thank all

of you! Keep us posted on whut's whut. 5/3rd Bank is pretty good here

and, I have people I can see there to do things.

As for my prognosis, I am relieved that it IS good but, now am going

to go nuts trying to tie it in to asbestos/CS (tear) gas/sub-zero

exposures.

As it is, I do appear to be getting better day by day, as per heart.

I even have had a coke once in awhile. so far, I've lost 21 lbs. My

goal is to get to 200 (thank God, there's a Steve & Barry's here so I

can get new khakis/jeans/shorts at $5.95!!!).

You have done well ... how is your husband now? MY saving grace from

all this is that I DON'T smoke (tried cigarettes once for a play ...

ONCE; dabbled in cigars (out in the field as an infantryman, they DO

keep the bugs away ... problem was the El Ropos I used were B-A-D

and, tried a pipe but, too much fiddling, too much bother for the

paraphenalia, too much money so, I never started). My wife has been a

blessing, she's overseen the menu and, I've dropped weight like a

stone (more like 2 stone, if you understand the Brit measurement)

which has helped the diabetes.

SIX kids! Wow! We had Lani late but, what a good kid ... she just

finished up her first day in Bible School as a preschool asst to the

teacher tonight.

Tell us what's next and, will comply.

Phred

---- Original Message ----

From: dnsrndl@...

To: Breathe-Support

Subject: RE: Re: News

Date: Mon, 17 Jul 2006 19:34:19 -0700 (PDT)

>Hi Phred,

> Glad to hear of your diagnosis. Much better prognosis and I am

>so excited for you, but I would still like to set up the account for

>Lani. Citibank is looking into the legal and will let me know this

>week. When my oldest son was Lani's age my husband had heart

>failure and the first of what would end up being 4 bypass

>surgeries. He was just 38 years old and it was touch and go in the

>hospital for awhile. It was so hard on my kids. I was gone at the

>hospital all the time (Jim was in for 4 months straight and then off

>and on for the next three years) and for the first time I had to

>think about working. I went back to school and a wonderful man at

>my husband's work paid for all of my books. Without his help I

>would not have become a teacher and I would not have been able to

>support my 6 children. When you wrote about Lani I felt it was a

>great time to pass back the blessing I got 15 years ago. I realize

>you are not a " poverty case " but I also know

> first hand the stress of hospital, doctor bills and the cost of just

> driving back and forth to appointments. If you don't feel good

>about the scholarship I'll understand, BUT I am hoping you will allow

> us to bless Lani as many of us have been blessed. Take care and

>not too much wine with the celebrating-

>phredta11bl@... wrote:

> Well, Joyce, it seems I have bronchiolitis NOT ipf! Doesn't

>seem to

> have any trace of asbestos in my xrays. It makes me feel better

>but,

> am NOT sure if it is ethical for any scholarship for Lani.

>

> Phred

>

> ---- Original Message ----

> From: joycedalton29@...

> To: Breathe-Support

> Subject: RE: Re: News

> Date: Mon, 17 Jul 2006 13:48:24 -0000

>

> >

> >Fred,

> >

> >Thanks for caring. Actually, the Antiphospholipid Syndrome,

> >anticardiolipin antibody, and Lupus anticoagulant has always been

> >positive until last December when they tested negative. The tests

>at

> > Jewish were all positive. It would be suicide to try

> >transplant.

> >I have already had a stroke (with seizure disorder as a result)

>and

> >blood clots in my legs.

> >

> >They also found that my ribs had been broken...which I knew (ouch)

>

> >That

> >means osteoporosis (steroids) and no doc wants to saw through

> >powerdery

> >bones!

> >

> >There are many complications because of life long connective

>tissue

> >including Lupus. Even though take complicated cases, I was

> >off

> >the scale. The coronary artery disease that they found there is

> >another

> >important reason why they said no.

> >

> >I am glad that I went. The stent probably saved my life. My docs

> >here

> >now can confer with the best docs in the land. They got so much

> >valuable information and hopefully will be able to extend my life

>a

> >little longer.

> >

> >I am not going to lie down and die. They are going to find my

>cold

> >dead

> >body at the Mall. I push, push, push myself. It has worked for

>nine

> >years. God gave me THIS day and I am going to use it. I refuse

>to

> >sit

> >down and quit. Sometimes I am sick and I do sit down....even lay

> >down....but I will not quit!!!!

> >

> >You are not the only stubborn member of our group!!!

> >

> >Hugs,

> >

> >Joyce PF 1997

> >

> >> >>

> >> >>

> >> >> Well, Boys and Girls....my answer was NO! I got my letter

>today

> >> >and

> >> >> they decided that I had too many other medical problems to

> >proceed

> >> >with

> >> >> transplant plans.

> >> >>

> >> >> I was positive for antiphospholipid syndrome, (have always

>been)

> >> >which

> >> >> is a Lupus related blood clotting disorder. I had tested

> >negative

> >> >the

> >> >> last time so that is why the evaluation even took place. Then

> >> >thier

> >> >> bloodwork came up positive.

> >> >>

> >> >> They also stated the newly found coronary artery disease and

>16

> >> >other

> >> >> conditions. So, I am back in the hands of God....same place I

> >have

> >> >

> >> >been

> >> >> all along.

> >> >>

> >> >> Please remember me in your prayers. I am especially concerned

> >with

> >> >

> >> >my

> >> >> larynx condition. I would have to go off Plavix to have

>biopsy

> >and

> >> >

> >> >that

> >> >> would be suicide. Or I can let it go, never talk again, and

> >> >possibly be

> >> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the

> >> >docs. I

> >> >> am not capable of making a decision like that!

> >> >>

> >> >> Just a little numb today. Some days it is hard to keep

>thinking

> >> >> positive. I am so glad that we are planning this

> >vacation.......I

> >> >need

> >> >> a break and some HAPPY!

> >> >>

> >> >> Just another little irritant....they said in the list of

>reasons

> >> >that I

> >> >> was Obese! I have lost down from 222 to 153 and have been

> >feeling

> >> >so

> >> >> skinny. HA! now, to find out I am still obese. I could show

>them

> >> >> Obese!!! [/:)]

> >> >>

> >> >> Hugs,

> >> >>

> >> >> Joyce PF 1997

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> >

> >>

> >

> >

>

>

>

>

>

> __________________________________________________

>

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Guest guest

Yabbut, I can DEAL better with it all now, Sher ... !!!

Phred

---- Original Message ----

From: bofus@...

To: Breathe-Support

Subject: Re: Re: News

Date: Mon, 17 Jul 2006 19:46:06 -0700

>Whoops! Well I guess a reprieve from ipf didn't help to ease your

>life some. Sorry. Sher

> RE: Re: News

> > Date: Mon, 17 Jul 2006 13:48:24 -0000

> >

> > >

> > >Fred,

> > >

> > >Thanks for caring. Actually, the Antiphospholipid Syndrome,

> > >anticardiolipin antibody, and Lupus anticoagulant has always

> >been

> > >positive until last December when they tested negative. The

> >tests at

> > > Jewish were all positive. It would be suicide to try

> > >transplant.

> > >I have already had a stroke (with seizure disorder as a result)

> >and

> > >blood clots in my legs.

> > >

> > >They also found that my ribs had been broken...which I knew

> >(ouch)

> > >That

> > >means osteoporosis (steroids) and no doc wants to saw through

> > >powerdery

> > >bones!

> > >

> > >There are many complications because of life long connective

> >tissue

> > >including Lupus. Even though take complicated cases, I

> >was

> > >off

> > >the scale. The coronary artery disease that they found there is

> > >another

> > >important reason why they said no.

> > >

> > >I am glad that I went. The stent probably saved my life. My docs

> > >here

> > >now can confer with the best docs in the land. They got so much

> > >valuable information and hopefully will be able to extend my

> >life a

> > >little longer.

> > >

> > >I am not going to lie down and die. They are going to find my

> >cold

> > >dead

> > >body at the Mall. I push, push, push myself. It has worked for

> >nine

> > >years. God gave me THIS day and I am going to use it. I refuse

> >to

> > >sit

> > >down and quit. Sometimes I am sick and I do sit down....even lay

> > >down....but I will not quit!!!!

> > >

> > >You are not the only stubborn member of our group!!!

> > >

> > >Hugs,

> > >

> > >Joyce PF 1997

> > >

> > >> >>

> > >> >>

> > >> >> Well, Boys and Girls....my answer was NO! I got my letter

> >today

> > >> >and

> > >> >> they decided that I had too many other medical problems to

> > >proceed

> > >> >with

> > >> >> transplant plans.

> > >> >>

> > >> >> I was positive for antiphospholipid syndrome, (have always

> >been)

> > >> >which

> > >> >> is a Lupus related blood clotting disorder. I had tested

> > >negative

> > >> >the

> > >> >> last time so that is why the evaluation even took place.

> >Then

> > >> >thier

> > >> >> bloodwork came up positive.

> > >> >>

> > >> >> They also stated the newly found coronary artery disease

> >and 16

> > >> >other

> > >> >> conditions. So, I am back in the hands of God....same place

> >I

> > >have

> > >> >

> > >> >been

> > >> >> all along.

> > >> >>

> > >> >> Please remember me in your prayers. I am especially

> >concerned

> > >with

> > >> >

> > >> >my

> > >> >> larynx condition. I would have to go off Plavix to have

> >biopsy

> > >and

> > >> >

> > >> >that

> > >> >> would be suicide. Or I can let it go, never talk again, and

> > >> >possibly be

> > >> >> ignoring cancer. Aaaargh!!! I am leaving all that up to the

> > >> >docs. I

> > >> >> am not capable of making a decision like that!

> > >> >>

> > >> >> Just a little numb today. Some days it is hard to keep

> >thinking

> > >> >> positive. I am so glad that we are planning this

> > >vacation.......I

> > >> >need

> > >> >> a break and some HAPPY!

> > >> >>

> > >> >> Just another little irritant....they said in the list of

> >reasons

> > >> >that I

> > >> >> was Obese! I have lost down from 222 to 153 and have been

> > >feeling

> > >> >so

> > >> >> skinny. HA! now, to find out I am still obese. I could show

> >them

> > >> >> Obese!!! [/:)]

> > >> >>

> > >> >> Hugs,

> > >> >>

> > >> >> Joyce PF 1997

> > >> >>

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >>

> > >

> > >

> >

> >

> >

> >

> >

> >

> >----------------------------------------------------------

> >---------

> > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US

>(and

> >30+ countries) for 2¢/min or less.

> >

> >

>

>

>

>

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  • 5 years later...

@kathy,

hahahha.... if i was married to robbie, i wouldnt be an IMP. Ill be sitting

pretty.

grace

>

> If one of us was married to a Kardashian, we would get the publicity. Who's

> up for it?

>

>

>

>

>

> Kathy Saradarian, MD

>

> Branchville, NJ

>

> www.qualityfamilypractice.com

>

> Solo 4/03, Practicing since 9/90

>

> Practice Partner 5/03

>

> Low staffing

>

>

>

>

>

>

>

> From:

> [mailto: ] On Behalf Of pricklyfinger2007

> Sent: Tuesday, November 01, 2011 2:02 AM

> To:

> Subject: News

>

>

>

>

>

> sigh...

> i wish there was more press to our plight of primary care physicians than

> the breakup of kim kardashian and what'shisname...

> the world is upside down..

>

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