Re: Re: 43 year old guy !

[Guest guest]

Allstar

It may be worth getting in touch with the docs on the P2P system. If you ask on the group you will get a reply telling you how to do it

B

Re: 43 year old guy !

well the mri did not reveal anything. I will speak with the doctoragain next week. and see what my options are. i do not get many emails or responses from the 40 and under support group so i guess youguys are stuck with me. I am having a hard time with all of this,nylife has not been the same. I dont want to do the treatment.--- InProstateCancerSupport , sam mcdaniel wrote:>> Its not good in my opinion. Mine wasent found until they attemptedthe RP. I had a 3/4" inch tumor in the nodes.> > allstar003 wrote: I had a an MRI and and15 minutes later was asked told to come back> for more pic's ? anyone ever had this experience ? so i went back and> was told it would only take 15 minutes....an hour and fifteen minutes> later i was told" my lymph nodes were being looked at...this is not> good is it !> > 43years old gleason 8 psa 25.7 no sysmptoms,feel great.> > > > > > > ---------------------------------> Want to be your own boss? Learn how on Yahoo! Small Business.>

[Guest guest]

Hello allstar 003

Very sorry to hear you have to deal with this at an early

age. It sucks. You're right, Gleason 8 and PSA 25 are a

clear signal of probable aggressive prostate cancer, which

may already be out of the capsule. Have you been given a

clinical STAGE? See:

http://www.psa-rising.com/med/info/staging.html

An MRI might not tell whether you have positive nodes

unless they are grossly enlarged. Several other ways are of

doing so are in semi-developed form, the newest, which is

not ready for prime time, is described here:

http://www.psa-rising.com/detection/occult-nodes_test06.htm

That test when it is arrives will be done on men after

they've been opened up and slices of the prostate taken for

what's called " patholgic biopsy. "

Today for non-invasive nodal staging ask about ProstaScint

test or do what my husband did many years ago when he was

dx'd age 55 with PSA 102 and Gleason 8. Not wishing to be

cut and sewn back together he asked for a CT guided fine-

needle aspiration biopsy (FNAB)of his pelvic nodes. His

urologist (a very good man at IUPUI in Indanapolis) readily

agreed to do it. Looking back I see PUBMED has a review of

the procedure from 1994:

Lymph node staging of localized prostatic carcinoma with CT

and CT-guided fine-needle aspiration biopsy: prospective

study of 285 patients.

http://tinyurl.com/jwe44

" Combined CT and FNAB is highly efficient for assessment of

lymph node metastasis. Therefore, it could be considered an

alternative to surgical or laparoscopic lymphadenectomy in

patients scheduled for radical prostatectomy or curative

radiation therapy. "

You have more to deal with than whether you have positive

nodes (and whether they are macroscopic like my husband's

or just show microscopic spread of PCa.)

For your MRI of your pelvis did they use an endorectal coil

(advisable)? How many positive cores in your biopsy? Are

your seminal vesicles involved? Any sign of spread toward

the bladder or the rectum? In short does it actually look

like it's still contained in the prostate? Had you ever had

a PSA test before the diagnosis and if so what is you

" doubling time, " rate of rise?

You need a second opinion on your biopsy from an expert

pathologist specializing in prostate cancer. Some are

listed along with related info here:

http://psa-rising.com/caplinks/medical_biopsy.htm

Are you in the UK or the US or elsewhere? This may affect

treatment choices.

Basically I strongly agree with Ann Melei - make an

appointment ASAP with a recognized, proven specialist in

prostate cancer at a leading cancer center. Make more than

one appt. Get genuine second opinions, i.e. do NOT

passively stay with you dx'ing uro (unless he's exceptiona)

not let him hand you over to his local buddy, e.g. a local

radiation oncologist or clinical oncologist with whom he

has a contractual arrangement. Any doc you see, you need to

know his/her record of treatment success, does he publish

results, how excellent is his equipment, how skilled is he

and his staff in the methods he uses. The one proviso is,

leading centers have some less experienced doctors. Also,

some doctors any place may try to grab " bodies " for

clinical trials whether or not the trial suits your needs.

At every moment keep in mind, your need is to stay alive

and stay healthy. You come first. Learn to be an activist

cancer patient on your own behalf (and take someone with

you for support).

Leading cancer centers range from MSKCC in NYC, Dana Farber

in Boston, Fox Chase in Philly, MD , Houston, USCF,

possibly UCLA. For some things, Oregon. Some smaller

centers are quality too. Also consider independents with

extensive experience like Dr. Myers in Virginia

(oncologist) or if the method fits your final staging and

stats, Dr. Critz at RCOG in GA (Seeds and EBR).

You don't have to race around the country or the world

seeing dozens of docs. You might decide to make a choice of

the best in your sector of the country. You might decide to

fly a distance for a key consult or even for a treatment.

Whatever you do, get to know the scene. If you have cancer

already in your pelvis I would urge you to hook up with an

oncologist who knows and cares enough to apply subtle

methods and to get you a chance at advanced treatments as

soon as available. E.g assuming that the Provenge vaccine

has a good chance of FDA approval in a couple of years, you

need to think of positioning y/self with a doc who will go

all out to get it for you ASAP (or any similar advanced

med) if/when you need it.

You need an oncologist who knows a lot about aggressive

cancer in younger men and who also cares enough to help you

eat right and exercise and who encourages you to deal with

emotional, sexual and intimacy issues - not just shoot you

up with hormone blockade and say come back in 3 months. Ask

howmany younger men like you he's treated. Don't let anyone

treat you like a rare bird they don't know how to handle.

If they haven't learned and practiced and gotten good

results, why let them learn on you?

I'd encourage you to stay on this list and join other lists

like PPML and some of the Prostate Pointers lists and PHML

list, and you'll do all right.

Some younger men have put their stories on psa-rising,

you'll find them here. These are not the latest word on

treatments but they give you a feel for how other younger

men have felt and acted:

Here is My Story...I Will Read Your Words Too

By Elgort

http://www.psa-rising.com/voices/gary_elgort.htm

A Simple Blood Test BY JONATHAN BAKER

http://www.psa-rising.com/living/jon.html

Options, Age & Failure: Aggressive Prostate Cancer With Low

PSA - BY BURNS MIXON

http://www.psa-rising.com/living/burnsm121803.htm

Tomorrow Will be as Good as Today (and sequels) BY LENNY

HIRSCH

http://www.psa-rising.com/living/hirschl1.htm

An story by a 60 y/o is worth reading:

Living in the Nanosecond: My Prostate Cancer Clock

By Nawrocki

http://www.psa-rising.com/voices/david_nawrocki.htm

I hope you won't feel I'm dumping all this on your screen.

I remember how I felt and how my husband felt about his dx

at age 55. Stay strong.

best

Jacquie

http://www.psa-rising.com

==============

well the mri did not reveal anything. I will speak with the

doctor again next week. and see what my options are. i do not get

many emails or responses from the 40 and under support group so i

guess you guys are stuck with me. I am having a hard time with all of

this,ny life has not been the same. I dont want to do the

treatment.

wrote: I had a an MRI

and and

15 minutes later was asked told to come back

> for more pic's ? anyone ever had this experience ? so i

>went back and was told it would only take 15 minutes....an

>hour and fifteen minutes later i was told " my lymph nodes

>were being looked at...this is not good is it !

>

> 43years old gleason 8 psa 25.7 no sysmptoms,feel great.