Celiac's Disease and other immunological challenges

[Guest guest]

When I hear of immunological problems such as Celiac, Crohn's, Raynaud's, Lupus, etc., I think of one of our business partners, Mack-Jeansonne who almost lost her life struggling with poor health. A few years ago, she was given her last rights and was not expected to survive. Fortunate to have survived with several of of these diseases, she now helps others... and will do so free of charge. The doctors in the Baton Rouge, LA, area will refer their patients to as she offers her knowledge to those who are looking for help.

belongs to the Celiac Disease Foundation, CA, Gluten Intolerance Group (GIG), Auburn WA, and the National Foundation of Celiac Awareness.

If anyone would like to contact Mack-Jeansonne, please write to celiacsbr@... or call .

She is a wealth of knowledge and will be very happy to speak with you.

You might even welcome her to the Miralax group!

B. Torlucci

cell

Juice PLUS+ www.healthwithsusan.com

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Free product for children ages 4-18 and 19+ yr old FT undergrad college students!

To: miralax From: ctaj10@...Date: Sun, 5 Dec 2010 13:47:20 -0600Subject: Re: Re: NEW- constipation issues in Hirschsprung's toddler....suggestions needed...help

According to our nutritionist, saliva tests the gold standard in testing. More reliable than biopsies. My son had 2 biopsies and blood work. Finally saliva is what proved it (I had always known, but the docs needed "proof").

My son just got backed up again (only the second time in 2 years ...we're making headway!) and we used xylitol. I dumped 2 tablespoons into some water and he sucked it right down. Not something to use on a regular basis, but when he needs to go, it works.

Tracie- THANKS. I am thinking about starting mag. Just talked to my ped about it to find out dosing for my 2 yr old. I had started him on a calc/mag supplement RIGHT before this last episode of 'constipation' started and of course that gets me wondering if the supp had anything to do w/ the stopping of the poop!!!!!!!The celiac testing was done a bunch....I know we had basic allergy testing done and also an ige and/or iga....a few of the 'ig' tests. I would have to go and find the copy of lab work to see exactly what tests they were. I know it was more than one test. how reliable are the saliva tests???Thanks,> >> > Hi,> > My story is long so I will try and condense it as much as possible. > My almost two year old was born w/ Hirschsprung's disease and lost 1/3 > of his colon. He had is last surgery to re-connect and remove 'bad' > portion in 5/09.> >> > From 5/09-7/10 he pooped wonderfully...actually too much. We > suffered from brutual diaper rash and had to dilate (tight anus) and > had major middle of night gas issues BUT that entire time he was > pooping 8-10x a day and by a year post surgery (5/10) down to 3-4x per > day.> >> > Then in 7/10 he stopped pooping all together for 8 weeks. We had to > clean him out w/ irrigations. Have been trying senna (as per surgeon- > who is the leading HD expert in the world) in different amounts...> > His system 'woke' up in 9/10 and we were good for 6 weeks, pooping > 3-4x per day EVERY single day. Has never had a hard or formed > poop...it is always oatmeal consistency.> >> > So now we are on week 4 of no poop. Various increases in senna not > working. Was thinking about trying miralax BUT really not wanting too > and surgeon is not on board w/ this type of lax for HD kids.> >> > here is what we have tried.> > ~exclusively breast fed till 7 months- intro'd solids VERY slowly > and he is still BF'ing 2x per day.> > ~dairy free- didn't change a thing-tried it several times for 2-4 > weeks at clip> > ~we have been on probiotic since month one of life> > ~just started prebiotic> > ~multi-> > ~omega's> > ~flax sees EVERY day 1-2 tbs> >> > he gets approx 5g of fiber per meal. We've tried prunes, prune > juice, pear juice, cooking w/ more oil (olive, coconut)> >> > he has been tested for celiac, food allergies, and many many many > other GI 'stuff' and everything came back fine> >> > I don't know if anyone has anything else to offer us. With HD > constipation is an issue`, but confusing for us because we were > pooping so much for so long.> >> > IF you got this far THANKS so much for reading.> > > >>