Re: I am new here

[Guest guest]

one thing I discovered by accident this morning. My husband put his arms around

me and rubbed his knuckles up and down my spine. And it relaxed muscles that had

been in a knot for months. I read one time that the man you loved could help

calm stress just by holding your hand. I guess they can relax muscles too. Give

it a try. It sure worked for me I was like a cat being petted and it hurt

alittle when he hit sore spots. But I have had less pain today than I have in a

long time. Hubby has a new job.

Jena

~:~Jena~:~

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Re: I am new here

Lucy,

Hang in there. All of us go through overwhelming feelings when

newly diagnosed. Do find a doctor that you can have a good

relationship with. Sounds like your current doctor is still working

on a diagnosis, and you must be scared and feeling very alone. Let

your doctor know what you are feeling, including being depressed.

Your doctor can help, but you have to go to him and let him know

what is going on. Doctors cannot treat what they do not know

about. Also, let him know that you want babies, having children is

not out of the picture for you. You will not always feel physically

the way you do now. We all learn how to work around our

limitations, okay sometimes better than other times.

About your husband. My dear BF said it. " Guys just want to fix

things. You are broken and I want you fixed. " He is earnest at

least. He misses the person I was who could walk miles, do almost

anything I set out to do, and never get tired, but he stays with me

anyway. Your husband wants you to be better and his solution is to

make money to fix you. My guy brings me coffee in the morning.

It's his way of giving me a reason to get up in the morning. It is

going to take a while for your husband to figure out what you need.

Not only is not the life you signed up for it isn't the life he

signed up for either. Find parts of the you, you used to be and

make sure you do some of that once in a while for him. Yeah, if I

can bake cookies for the first time in over a year, there must be

something you can do. I know this, because my wrists are killing me

right now, scraping the side of the mixing bowl should not be this

much work.

Whoa, my first post,

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[Guest guest]

Hi Don,

Are you new here too?

~Tommie

Re: I am new here

Don't worry Lucy, We are all in pain here .you are in good company in fact I

am in so much pain this about all I can type at on time Hope to hear from

you again. Don in Michigan.

>

> Good evening! My name is Lucy, I am 31yrs old and live in Lancaster, Pa.

> I did a quick search for chronic pain groups and yours came up so I

> thought I would come and check out what these groups are like.

> I am not sure exactly how to write a message or what to say but will

> give you a brief summary of my life LOL.

> I am new to groups in general so please bear with me.

> I was diagnosed with fibromyalgia about 6 months ago but this was after

> almost 2 yrs in pain. The drs could not figure out what was going on

> and came up with fibro diagnosis which scares me. My specialist is also

> thinking I may have MS but i have to go back for tests ect. I am very

> terrified to tell you the truth and my husband does not understand. He

> says everyone has pain at one pount or another in life and just have to

> deal with it.

> I have been married 11yrs, we have no children and had come to the

> decision we would not have any which upsets me now cause it may be too

> late with my pain and issues ect. I was doing great at my work and

> loved it so much and now have a hard time moving around my house.

> My husband works very long hours at his company he owns and thinks the

> way to make me feel better is to throw money at me or buy me things. I

> just dont know what to do anymore.

> Life is so much more then this big house we have and the money we have

> been blessed with but its not what i need. I have also lost a few dear

> friends because im not able to go on long shopping trips and travel

> like i used to.

> I have become depressed but scared to go to a dr cause the last thing i

> want is to have more meds and my medical bills are high enough as it

> is. I have coverage through my husbands policy but do have to pay some

> out of pocket.

> I apologize for rambling and wanted to say hello. Please tell me if

> this is not the type of messages for this group or where i need to go

> from here. I guess i am looking for some friends and understanding. I

> know my husband tries to understand but he is under lots of stress with

> work and the last thing i wasnt to do is to add to that.

> im not sure what else to write but look forward to meeting you and

> hearing from you.

> I just dont know how to deal with all of this anymore. I really have no

> social life anymore and when i do go out i feel like a burden cause i

> ache so much.

> Thank you for listening to me and allowing me here with you

> Regards,

> Lucy in lancaster area

>

>

>

[Guest guest]

Hi Lucy,

My name is Debi, welcome to the group. Your post is just fine. A lot of

family members don't understand chronic pain diseases!!! My husband used to

talk about how bad he felt for his brother for having RSD. Then when I was

diagnosed with it and fibro, myofacial pain syndrome, TMJ, restless leg

syndrome, neuropathy, diabeties, spinal stenosis, DDD, and bulging discs he

acted like it wasn't a big deal when it really WAS to me! I finally figured

out that he thinks if he doesn't admit it to himself then it isn't true!!!

You have come to the right place, everyone here is wonderful. I came into

the group quite a while back and feel truly that this group has saved my

life more then once!!! So you hang in there and if you ever just wanna chat

just let me know.

Gentle hugs, Debi

-- I am new here

Good evening! My name is Lucy, I am 31yrs old and live in Lancaster, Pa.

I did a quick search for chronic pain groups and yours came up so I

thought I would come and check out what these groups are like.

I am not sure exactly how to write a message or what to say but will

give you a brief summary of my life LOL.

I am new to groups in general so please bear with me.

I was diagnosed with fibromyalgia about 6 months ago but this was after

almost 2 yrs in pain. The drs could not figure out what was going on

and came up with fibro diagnosis which scares me. My specialist is also

thinking I may have MS but i have to go back for tests ect. I am very

terrified to tell you the truth and my husband does not understand. He

says everyone has pain at one pount or another in life and just have to

deal with it.

I have been married 11yrs, we have no children and had come to the

decision we would not have any which upsets me now cause it may be too

late with my pain and issues ect. I was doing great at my work and

loved it so much and now have a hard time moving around my house.

My husband works very long hours at his company he owns and thinks the

way to make me feel better is to throw money at me or buy me things. I

just dont know what to do anymore.

Life is so much more then this big house we have and the money we have

been blessed with but its not what i need. I have also lost a few dear

friends because im not able to go on long shopping trips and travel

like i used to.

I have become depressed but scared to go to a dr cause the last thing i

want is to have more meds and my medical bills are high enough as it

is. I have coverage through my husbands policy but do have to pay some

out of pocket.

I apologize for rambling and wanted to say hello. Please tell me if

this is not the type of messages for this group or where i need to go

from here. I guess i am looking for some friends and understanding. I

know my husband tries to understand but he is under lots of stress with

work and the last thing i wasnt to do is to add to that.

im not sure what else to write but look forward to meeting you and

hearing from you.

I just dont know how to deal with all of this anymore. I really have no

social life anymore and when i do go out i feel like a burden cause i

ache so much.

Thank you for listening to me and allowing me here with you

Regards,

Lucy in lancaster area