Re: Lucy I am new here

December 12, 2006

Hi Lucy,

It sure sounds like you came to the right place Welcome to the group. You

will love it here. Everyone here offers such great support, you'll wish you

found this group earlier!! Not bragging on everyone, just being honest!!

Gosh, it sounds like you have been hit hard. Fibromyalgia is a horrible illness

to have. I've had it for 12 yrs now. I've been suspect for MS as well, but they

never have found lesions on my brain so they would never DX (diagnose) it. What

testing is your doc going to do in order to test for MS? Has he told you yet?

Everything, from what I have experienced anyway, is pretty painless in testing,

except for the spinal, if that is done. I think it's pretty rare that it be done

in testing. They usually don't have to go that far. Here is where you can find

what testing is available so you might know what you are up against.

http://www.webmd.com/hw/multiple_sclerosis/hw190951.asp?pagenumber=2

I have always found it helpful to be well educated about my illnesses and even

potential illnesses. Stay on top of things. Doc's won't see everything.

Sometimes they need a little push. Always go armed to the doc, armed with

knowledge! Here's an example.

My 15 yr old son has presented signs of either Diabetes, Chronic Fatigue

Syndrome or Hypothyroidism. I have researched all 3 in the past, as I have all 3

of them. I took him to the doc last week in order to start some testing. I

mentioned doing the Hemoglobin A1c test for Diabetes and doc thought that was

off the wall at first. Then once he learned of 's symptoms, he agreed that

the testing needed to be done. He also mentioned Mono, he is thinking Mono. Then

I told him I'd like to check for Hypothyroidism as well. In which he agreed to

both. Now, had I not been knowledgeable on what 's symptoms could

represent, he would probably only be tested for the Mono. Perhaps doc might have

tested for the other 2 at a later date. But why put through drawing blood

more than what needs to be done? Do it all at once. Some docs might feel

threatened by you having knowledge, but this is only because they have big ego's

and think they are Medical God's. And we know they aren't. lol They are only

human too.

I have several Fibro sites too if you'd like me to post them for you? Just let

me know.

I'm sorry you feel you have lost friends due to your illness, but Lucy, if they

aren't your friend anymore because you are sick, then they weren't a true friend

to begin with. You might have only served a purpose in their lives, a shopping

partner. That's the way I see it. Stick with the friends who are likely to stay

by your side as you ride this physical and emotional roller coaster. Those are

your true friends.

Your hubby, well, he is scared too. He doesn't want his wife to be sick for one

thing. Secondly this is all foreign to him and a major loop thrown in your

lives. He will come around. Just don't exclude him, but be gentle. As far as a

baby, people who are sick have children too. It just depends on each person.

Having a child while being ill is a great challenge, but it is doable! I've

known several who have Fibro, Lyme and other illnesses who have had babies and

have done just fine. Granted their life is totally revolved around the baby, but

that is their choice and it works.

I hope this long post has helped you in some way. If there is anything else I

can do for you Lucy, please don't hesitate to ask. One more thing, I use to live

in Lancaster County, a small town, Leola. I loved it up there and wish I was

still there, but I had to move back to Oklahoma, where I am now. Also, a little

bit about me. I'm 43, have 2 son's ages 15 and 20, and a fiancee in which we

live together. Someday we'll marry, just don't know when. lol I have fibro, cfs,

congestive heart failure, beginnings of COPD, asthma, sleep apnea, restless leg

syndrome, hypothyroidism, spinal stenosis, just to name a few. Living with

illness isn't easy as you know, but we all get through each day and sometimes

only one moment at a time.

Have a great day and keep in touch.

Gentle hugs,

~Tommie

I am new here

Good evening! My name is Lucy, I am 31yrs old and live in Lancaster, Pa.

I did a quick search for chronic pain groups and yours came up so I

thought I would come and check out what these groups are like.

I am not sure exactly how to write a message or what to say but will

give you a brief summary of my life LOL.

I am new to groups in general so please bear with me.

I was diagnosed with fibromyalgia about 6 months ago but this was after

almost 2 yrs in pain. The drs could not figure out what was going on

and came up with fibro diagnosis which scares me. My specialist is also

thinking I may have MS but I have to go back for tests ect. I am very

terrified to tell you the truth and my husband does not understand. He

says everyone has pain at one point or another in life and just have to

deal with it.

I have been married 11yrs, we have no children and had come to the

decision we would not have any which upsets me now cause it may be too

late with my pain and issues ect. I was doing great at my work and

loved it so much and now have a hard time moving around my house.

My husband works very long hours at his company he owns and thinks the

way to make me feel better is to throw money at me or buy me things. I

just don't know what to do anymore.

Life is so much more then this big house we have and the money we have

been blessed with but its not what I need. I have also lost a few dear

friends because I'm not able to go on long shopping trips and travel

like I used to.

I have become depressed but scared to go to a dr cause the last thing I

want is to have more meds and my medical bills are high enough as it

is. I have coverage through my husbands policy but do have to pay some

out of pocket.

I apologize for rambling and wanted to say hello. Please tell me if

this is not the type of messages for this group or where I need to go

from here. I guess I am looking for some friends and understanding. I

know my husband tries to understand but he is under lots of stress with

work and the last thing I wasnt to do is to add to that.

I'm not sure what else to write but look forward to meeting you and

hearing from you.

I just don't know how to deal with all of this anymore. I really have no

social life anymore and when I do go out I feel like a burden cause I

ache so much.

Thank you for listening to me and allowing me here with you

Regards,

Lucy in Lancaster area

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December 12, 2006

wow Tommie you give the best advice. I sure wish I could be like you.

Jena

~:~Jena~:~

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