methotrexate users and lung illness

[Guest guest]

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

Gaby,

I had methotrexate induced lung problems called drug induced pneumonitis.

It started with a dry hacking cough. I woulod cough for no reason and never

be able to bring anything up. The coughing got so bad that I could barely

talk. I was never short of breath or dizzy with it. It was just annoying and

embarassing because I could not get a whole sentence out without going into a

coughing fit. My chest got sore and hurt and my lung hurt! My doc stopped

the MTX immediately and within two weeks the cough was completely gone.

Don't wait to see your rheummy on this. If left untreated or unchecked can

result in permenent lung damage or even death from respiratory failure.

There was an article about a year ago of an older man that died from drug

induced

pneumonitis from MTX use. I would try to get in as soon as possible to see

your rheummy or at least called and get an OK to lower or stop the dosage

until you can get in to see him.

By the way I was talking the oral pills at that time. After I stopped I

restarted about two months later with the injections. Never had anymore lung

problems while on injections but had every other side effect that made me

eventually stop the MTX. I will never take MTX ever again. My rheummy finally

gave up on me and MTX.

Toni

In a message dated 1/14/2005 3:13:39 PM Central Standard Time,

writes:

Date: Fri, 14 Jan 2005 15:59:54 -0000

From: " aevasmommy " <gabymark2@...>

Subject: methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

Gaby,

I had methotrexate induced lung problems called drug induced pneumonitis.

It started with a dry hacking cough. I woulod cough for no reason and never

be able to bring anything up. The coughing got so bad that I could barely

talk. I was never short of breath or dizzy with it. It was just annoying and

embarassing because I could not get a whole sentence out without going into a

coughing fit. My chest got sore and hurt and my lung hurt! My doc stopped

the MTX immediately and within two weeks the cough was completely gone.

Don't wait to see your rheummy on this. If left untreated or unchecked can

result in permenent lung damage or even death from respiratory failure.

There was an article about a year ago of an older man that died from drug

induced

pneumonitis from MTX use. I would try to get in as soon as possible to see

your rheummy or at least called and get an OK to lower or stop the dosage

until you can get in to see him.

By the way I was talking the oral pills at that time. After I stopped I

restarted about two months later with the injections. Never had anymore lung

problems while on injections but had every other side effect that made me

eventually stop the MTX. I will never take MTX ever again. My rheummy finally

gave up on me and MTX.

Toni

In a message dated 1/14/2005 3:13:39 PM Central Standard Time,

writes:

Date: Fri, 14 Jan 2005 15:59:54 -0000

From: " aevasmommy " <gabymark2@...>

Subject: methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

I have read that the RA itself can also affect your lungs...

-------------- Original message --------------

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

I have read that the RA itself can also affect your lungs...

-------------- Original message --------------

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

i always call my rheumi whenever i get sick and double check. they have only

had me hold it once. i held it a week after my wart removal.

kathy in il

[Guest guest]

i always call my rheumi whenever i get sick and double check. they have only

had me hold it once. i held it a week after my wart removal.

kathy in il

[Guest guest]

Gaby, you went to the doctor, and he put you on antibiotics, but

didn't take you off the MTX? You should see the doc that put you on

the MTX, he should know what's going on. My opinion, you should go

off the MTX, if your having problems that long. Keep us posted, Tawny

--- In , " aevasmommy " <gabymark2@j...>

wrote:

>

>

> hi!

>

> i've had this horrible cough since christmas. my reg doc gave me

> some antibiotics, but i'm still the same. i read in the metha

> warnings about lung problems. any of you have had this happen with

> the pill and what were your symptoms?

>

> Gaby

[Guest guest]

Gaby, you went to the doctor, and he put you on antibiotics, but

didn't take you off the MTX? You should see the doc that put you on

the MTX, he should know what's going on. My opinion, you should go

off the MTX, if your having problems that long. Keep us posted, Tawny

>

>

> hi!

>

> i've had this horrible cough since christmas. my reg doc gave me

> some antibiotics, but i'm still the same. i read in the metha

> warnings about lung problems. any of you have had this happen with

> the pill and what were your symptoms?

>

> Gaby

[Guest guest]

gaby, the mtrx just gave me a really bad belly ache, mostly on my right side...

then i had blood work.. and my liver enzymes were sky high... so that is why i

can not take the mtrx... we tried it twice...( it was working on my pain!

rae

[ ] methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

gaby, the mtrx just gave me a really bad belly ache, mostly on my right side...

then i had blood work.. and my liver enzymes were sky high... so that is why i

can not take the mtrx... we tried it twice...( it was working on my pain!

rae

[ ] methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

toni, what are you right now, then... i can not take mtx anymore, either...

rae

methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

toni, what are you right now, then... i can not take mtx anymore, either...

rae

methotrexate users and lung illness

hi!

i've had this horrible cough since christmas. my reg doc gave me

some antibiotics, but i'm still the same. i read in the metha

warnings about lung problems. any of you have had this happen with

the pill and what were your symptoms?

Gaby

[Guest guest]

Rae,

I am not on any meds right now. I chose to come off all meds. They were not

doing much good. In reality they were doing more harm in terms of side

effects than they were doing good. I made some major lifestyle changes(lost

weight, better diet and exercise) which have made more of a diference than

anything

else.

Toni

In a message dated 1/15/2005 3:41:55 PM Central Standard Time,

writes:

Date: Sat, 15 Jan 2005 13:35:03 -0800

From: " Rae Sandberg " <Raes_Yorkies@...>

Subject: Re: Re: methotrexate users and lung illness

toni, what are you right now, then... i can not take mtx anymore, either...

rae

[Guest guest]

Hi,

I have not posted for a long time and I hope it is okay if I just reply

to your question. f you want you can post the answer but it is hard enough

for me now to write back. I am 4o and have been dx with RA for 5 years now. I

have been on MTX for at least 3 years -the pill form. Just last week I was dx

with Chronic Obstructive Pulmonary Disease or COPD and my chest x-ray came

back abnormal with multiple nodules on my left lung. I am due for a CT Scan of

my chest on Monday and a sonogram of the cartiroid artery, the kidneys,

liver, and oneor two more I can't remember. My blood levels were high for liver

enzymes and I have had edema all throughout my body for about two weeks which

is a sign of lung or heart problems. There is rheumatoid lung disease and

there is also damage from MTX, you are can of dammed if you do and dammed if

you

don't I am sorry you are going through all of this. I will let you know what

I find out.

Jacquie

[Guest guest]

oh jaquie... i am so sorry to hear of all the bad news for you... i am waiting

for the reports... wow, i guess i should be glad i could not take mtrx..

pray for the best.... rae

Re: [ ] methotrexate users and lung illness

Hi,

I have not posted for a long time and I hope it is okay if I just reply

to your question. f you want you can post the answer but it is hard enough

for me now to write back. I am 4o and have been dx with RA for 5 years now. I

have been on MTX for at least 3 years -the pill form. Just last week I was dx

with Chronic Obstructive Pulmonary Disease or COPD and my chest x-ray came

back abnormal with multiple nodules on my left lung. I am due for a CT Scan

of

my chest on Monday and a sonogram of the cartiroid artery, the kidneys,

liver, and oneor two more I can't remember. My blood levels were high for

liver

enzymes and I have had edema all throughout my body for about two weeks which

is a sign of lung or heart problems. There is rheumatoid lung disease and

there is also damage from MTX, you are can of dammed if you do and dammed if

you

don't I am sorry you are going through all of this. I will let you know what

I find out.

Jacquie

[Guest guest]

In a message dated 1/29/2005 10:46:22 PM Pacific Standard Time,

Raes_Yorkies@... writes:

Just last week I was dx

with Chronic Obstructive Pulmonary Disease or COPD and my chest x-ray came

back abnormal with multiple nodules on my left lung.

I am so sorry to hear this. Really I am. What kind of symptoms did you have

that led you to this diagnosis? shortness of breath? cough?

Abby

[Guest guest]

Dear Abby,

I had shortness of breath but little to no cough, rib pain and EXTENSIVE

GENERALIZED EDEMA, i have had changes in my skin brown patches ( few of them)

and a great heaviness in the chest.

Hope this helps

Jacquie