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Hello Everyone:

I'm new to this forum. I was diagosed with Lyme & echrilosis (sp?) about two

months ago. I had been having symptoms similiar to MS for a year. I had my

gallbladder out in January 2010 and then about two weeks later, developed crazy

symptoms which included but are not limited to Tingling/vibration/numbness

various area of body/trembling/twitching. There are many more symptoms, but

those are all I can think of at the time.

Anyhow, I am seeing an LLMD in San Francisco. He says that my immune system was

most likely keeping the lyme in-check but because of the stress/trauma of the

surgery, the lyme flaired. Makes total sense to me. I know for certain I was

bit by a tick when I was a teenager (I'm now 49) and had one burrowed in my

belly button for probably a few days while backpacking in the woods. Also, I've

been camping every year with my family, so I don't know how long I might have

had this.

When my symptoms first started, I went to two neuro's and they said I have

anxiety. Then finally, my gastrointerologist sent me to UCSF MS center to make

sure this wasn't early MS. I had a brain MRI which showed 20 small and

scattered lesions not typical for MS. My doctor, upon reviewing the MRI asked

me if I'd had lyme disease. During the first month of my symptoms, I'd

suspected lyme disease and ordered a kit from Igenex but my family doctor threw

it out and ordered a basic test from a lab that came back negative. So, I told

the doctor " no " . So, tons and tons of tests later, they said this is not MS.

Finally, in October, I found a new family doctor and ordered another test kit

from Igenex and drove myself to Palo Alto (i'm only about an hour away). The

results went to my family doctor who called me and said the tests look negative

but she wasn't 100% sure how to read and would call the lab and call me back if

anything different. No word from her. So, in January, I got copy of the tests

and in-fact it was a positive test. How she missed it is beyond me.

I am now seeing an LLMD in San Fran and have been on abx treatment for about two

months. All my symptoms are gone (with occasional flairs..probably herxing)

which is amazing however the abx are causing me to have heartburn or acid reflux

which makes me miserable.

I probably jumped the gun, but I ordered a rife machine off the internet

yesterday (a Doug Coil). I pray that I ordered from a good person and am

worried now because they are quite expensive. I talked to the guy who builds

them and he seems nice, but I just hope I'm getting the right stuff.

I plan on staying on the abx for now, but am hoping that I can eliminate at some

point after getting going on the rife machine.

I'm also ordering a far infrared sauna today too. I'll do anything to get

better and get off these drugs.

Anyway, any advice from anyone would sure be appreciated. Did I order the right

machine?

Thanks!

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