Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Hello Everyone: I'm new to this forum. I was diagosed with Lyme & echrilosis (sp?) about two months ago. I had been having symptoms similiar to MS for a year. I had my gallbladder out in January 2010 and then about two weeks later, developed crazy symptoms which included but are not limited to Tingling/vibration/numbness various area of body/trembling/twitching. There are many more symptoms, but those are all I can think of at the time. Anyhow, I am seeing an LLMD in San Francisco. He says that my immune system was most likely keeping the lyme in-check but because of the stress/trauma of the surgery, the lyme flaired. Makes total sense to me. I know for certain I was bit by a tick when I was a teenager (I'm now 49) and had one burrowed in my belly button for probably a few days while backpacking in the woods. Also, I've been camping every year with my family, so I don't know how long I might have had this. When my symptoms first started, I went to two neuro's and they said I have anxiety. Then finally, my gastrointerologist sent me to UCSF MS center to make sure this wasn't early MS. I had a brain MRI which showed 20 small and scattered lesions not typical for MS. My doctor, upon reviewing the MRI asked me if I'd had lyme disease. During the first month of my symptoms, I'd suspected lyme disease and ordered a kit from Igenex but my family doctor threw it out and ordered a basic test from a lab that came back negative. So, I told the doctor " no " . So, tons and tons of tests later, they said this is not MS. Finally, in October, I found a new family doctor and ordered another test kit from Igenex and drove myself to Palo Alto (i'm only about an hour away). The results went to my family doctor who called me and said the tests look negative but she wasn't 100% sure how to read and would call the lab and call me back if anything different. No word from her. So, in January, I got copy of the tests and in-fact it was a positive test. How she missed it is beyond me. I am now seeing an LLMD in San Fran and have been on abx treatment for about two months. All my symptoms are gone (with occasional flairs..probably herxing) which is amazing however the abx are causing me to have heartburn or acid reflux which makes me miserable. I probably jumped the gun, but I ordered a rife machine off the internet yesterday (a Doug Coil). I pray that I ordered from a good person and am worried now because they are quite expensive. I talked to the guy who builds them and he seems nice, but I just hope I'm getting the right stuff. I plan on staying on the abx for now, but am hoping that I can eliminate at some point after getting going on the rife machine. I'm also ordering a far infrared sauna today too. I'll do anything to get better and get off these drugs. Anyway, any advice from anyone would sure be appreciated. Did I order the right machine? Thanks! Quote Link to comment Share on other sites More sharing options...
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