Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 HI PAULA THIS IS CINDI, I KNOW I HAVEN'T POSTED IN A WHILE, BUT HAVE BEEN KEEPING UP WITH EVERYONE. I AM NOT DOING WELL AT ALL, I AM ON MTX AND IT WAS MAKING ME SO VERY SICK, RHEUMY TOOK INJECTIONS ONCE A WEEK FROM .6 ML TO .4ML AND I AM SICK AS A DOG.....NOW HE WANTS TO ADD ENBREL OR WHATEVER MY INSURANCE WILL COVER. I HAVE A FEELING IT WILL BE ENBREL, IF IT IS ENBREL, SHOULD I NOT TAKE THE INJECTIONS OF MTX..... I WOULD GIVE ANYTHING TO GET OFF THE MTX, AND I HAVE TOLD MY DOCTOR AND HE IS UNCOOPERATIVE....ANOTHER LONG STORY....I ALSO HAVE NEUROPATHY AND FIBRO AND I AM TRYING TO GET INTO A PAIN CLINIC BECAUSE MY RHEUMY SAYS HE TREATS ARTHRITIS NOT PAIN......I HAVE BEEN READING ALL THE POSTS ON THE PROBLEMS WITH CHRONIC PAIN PEOPLE GETTING SO MUCH AS AN ASPIRIN THESE DAYS.......I AM GETTING SO VERY DISCOURAGED....... THANKS FOR ANY HELP AT ALL, CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi Cindi. I haven't posted much myself lately. I had family visiting over the holidays and although fun, it was exhausting. But it was special since this was our first Christmas in Florida since moving away from everyone. I'm really sorry you've been so sick from the mtx. If you can get Enbrel approved, it's worth trying. It's done a lot for me. The combo of mtx and Enbrel have had very good results, so if you can stay on it it may work better. I will probably be going on a low dose of mtx, but only 7.5 mg in combo with the Enbrel. My liver enzymes go up with mtx, and my doctor says that the low dose is all that is needed when in combo with Enbrel. I had a problem with doctors prescribing pain meds, but my new rheumy doesn't have a problem prescribing pain meds. All of these doctors have different beliefs. As far as you wanting off mtx, it is your body and your choice. How long does your doctor expect you to stay on meds that make you so sick? I lasted 3 months on oral mtx and all I did was run to the bathroom and have terrible stomach pains. Injectable mtx didn't do that to me, but some people have problems with injectable as well as oral. I hope you get some help. It's heartbreaking to read of your suffering. a On Mon, 03 Jan 2005 18:46:23 -0000, CINDI <heinscsf@...> wrote: > > > HI PAULA > > THIS IS CINDI, I KNOW I HAVEN'T POSTED IN A WHILE, BUT HAVE BEEN > KEEPING UP WITH EVERYONE. > > I AM NOT DOING WELL AT ALL, I AM ON MTX AND IT WAS MAKING ME SO > VERY SICK, RHEUMY TOOK INJECTIONS ONCE A WEEK FROM .6 ML TO .4ML AND > I AM SICK AS A DOG.....NOW HE WANTS TO ADD ENBREL OR WHATEVER MY > INSURANCE WILL COVER. I HAVE A FEELING IT WILL BE ENBREL, IF IT IS > ENBREL, SHOULD I NOT TAKE THE INJECTIONS OF MTX..... > > I WOULD GIVE ANYTHING TO GET OFF THE MTX, AND I HAVE TOLD MY > DOCTOR AND HE IS UNCOOPERATIVE....ANOTHER LONG STORY....I ALSO HAVE > NEUROPATHY AND FIBRO AND I AM TRYING TO GET INTO A PAIN CLINIC > BECAUSE MY RHEUMY SAYS HE TREATS ARTHRITIS NOT PAIN......I HAVE BEEN > READING ALL THE POSTS ON THE PROBLEMS WITH CHRONIC PAIN PEOPLE > GETTING SO MUCH AS AN ASPIRIN THESE DAYS.......I AM GETTING SO VERY > DISCOURAGED....... > > THANKS FOR ANY HELP AT ALL, CINDI > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi Cindi. I haven't posted much myself lately. I had family visiting over the holidays and although fun, it was exhausting. But it was special since this was our first Christmas in Florida since moving away from everyone. I'm really sorry you've been so sick from the mtx. If you can get Enbrel approved, it's worth trying. It's done a lot for me. The combo of mtx and Enbrel have had very good results, so if you can stay on it it may work better. I will probably be going on a low dose of mtx, but only 7.5 mg in combo with the Enbrel. My liver enzymes go up with mtx, and my doctor says that the low dose is all that is needed when in combo with Enbrel. I had a problem with doctors prescribing pain meds, but my new rheumy doesn't have a problem prescribing pain meds. All of these doctors have different beliefs. As far as you wanting off mtx, it is your body and your choice. How long does your doctor expect you to stay on meds that make you so sick? I lasted 3 months on oral mtx and all I did was run to the bathroom and have terrible stomach pains. Injectable mtx didn't do that to me, but some people have problems with injectable as well as oral. I hope you get some help. It's heartbreaking to read of your suffering. a On Mon, 03 Jan 2005 18:46:23 -0000, CINDI <heinscsf@...> wrote: > > > HI PAULA > > THIS IS CINDI, I KNOW I HAVEN'T POSTED IN A WHILE, BUT HAVE BEEN > KEEPING UP WITH EVERYONE. > > I AM NOT DOING WELL AT ALL, I AM ON MTX AND IT WAS MAKING ME SO > VERY SICK, RHEUMY TOOK INJECTIONS ONCE A WEEK FROM .6 ML TO .4ML AND > I AM SICK AS A DOG.....NOW HE WANTS TO ADD ENBREL OR WHATEVER MY > INSURANCE WILL COVER. I HAVE A FEELING IT WILL BE ENBREL, IF IT IS > ENBREL, SHOULD I NOT TAKE THE INJECTIONS OF MTX..... > > I WOULD GIVE ANYTHING TO GET OFF THE MTX, AND I HAVE TOLD MY > DOCTOR AND HE IS UNCOOPERATIVE....ANOTHER LONG STORY....I ALSO HAVE > NEUROPATHY AND FIBRO AND I AM TRYING TO GET INTO A PAIN CLINIC > BECAUSE MY RHEUMY SAYS HE TREATS ARTHRITIS NOT PAIN......I HAVE BEEN > READING ALL THE POSTS ON THE PROBLEMS WITH CHRONIC PAIN PEOPLE > GETTING SO MUCH AS AN ASPIRIN THESE DAYS.......I AM GETTING SO VERY > DISCOURAGED....... > > THANKS FOR ANY HELP AT ALL, CINDI > > Quote Link to comment Share on other sites More sharing options...
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