[Invitation] (No Subject) @ Mon Jun 29, 2009 (hugs-n-pain@yahoogroups.com)

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Title: (No Subject)

Time: Mon Jun 29, 2009 (Timezone: Central Time)

Calendar: hugs-n-pain

Owner/Creator: renae1943@...

Description: E - it is understandable how angry you must have been. And

having a strong emotion in the midst of such pain, makes matters worse. I'm

on another list where there are a lot of members from the UK & amp; they

explain their system so well. It seems to be such an easy system to adhere

to with the exception of not being able to get, at times or perhaps only

once, biologic like Enbrel.

But the whole thing with me is that it takes away our dignity when no one

will listen to us, specially in an ER situation. Hope you are feeling much

better. Nae

On Sat, Jun 27, 2009 at 11:12 PM, hollygolightly1916

& lt;emaher1916@... & gt; wrote:

Hello Nae: Not sure but feel like " reaching out & amp; pummeling someone " --

frustrated as hell -- and when I try to explain what's going on I get

the " deer in headlights " look (most of the time.) No one is on the same

page with this business. Bloody infuriating. Have a killer headache & amp;

vertigo now -- all seems to be back with a vengence after a brief reprieve.

As far as it being bad migraine? My symptoms tend to be 'all' over the

place. Think it's spinal fluid related but can't seem to get anyone other

than my PT to listen, really listen & amp; take me seriously. Oh the

unfortunte messed up indignant crappy world of Western Medicine ...

& lt;deep sigh & gt; -- E & gt; & gt;

& gt; & gt; & gt; & gt; & gt; Must be having a bad luck streak this week as I

ended up in the ER this & gt; & gt; morning. What started off as a normal

morning -- turned out to be anything & gt; & gt; but. I went to my PT

appointment and they ended up doing ultrasound on my & gt; & gt; shoulders.

Things were okay to begin with -- but about half way through I & gt; & gt;

began to feel strange -- dizzy, lightheaded and felt the onset of a & gt;

& gt; horrendous headache .. all the while both of my arms went numb

Interesting & gt; & gt; thing was when he put the ice on my shoulders things

got worse and my vision & gt; & gt; is still blurry out of my left eye. I

thought to myself, well, this has & gt; & gt; happened before so I'll just go

home, rest, nap and hopefully feel better. & gt; & gt; Hmm, didn't even make

ti to my car. Sat down in reception area chair -- & gt; & gt; thinking somehow

the 'spell' would pass -- only to have the pressure & gt; & gt; headache

continue building, arms/hands/legs begin shaking and feeling as if & gt; & gt;

I'd pass out. While my face felt flushed from outward appearences I

turned & gt; & gt; ghost white. The rest is a bit murkey but do recall one of

the other PT's & gt; & gt; coming in and taking my blood pressure. They called

my doctor's office and & gt; & gt; said to at first come in at 1:00. Believe

at one point one pupil was bigger & gt; & gt; than the other. With all the

various symptoms 'not going together' and my & gt; & gt; blood pressure

continung to rise I had a 'nice' ride by Ambulance to the ER. & gt; & gt; The

ER doctor who saw & amp; looked after me was quite nice and listened to & gt;

& gt; everything I had to say before deciding on an apporopriate course of

action. & gt; & gt; The EKG came back normal -- while the CT scan showed some

calcification & gt; & gt; spots -- not matching up with my presenting

symptoms. End result, they're & gt; & gt; not sure what happened .. as it

could not be explained by standard & gt; & gt; compulsary battery of tests

given to diagnose and treat headaches. At what & gt; & gt; point do you begin

questioning? I felt as if I asked nothing but more and & gt; & gt; more

questions to get to the bottom of things -- but felt as if he'd (ER & gt;

& gt; Doc) hit a wall himself and was not willing to look past it for --

what was & gt; & gt; not there. & gt; & gt; & gt; & gt; On recommended advice I

called my doctor's office when I got home and heard & gt; & gt; back from them

later on this evening. She wants me to go back to the & gt; & gt; neurologist

I saw only once to have him review my CT scan and see what he's & gt; & gt;

able to do. The ER doctor wanted me to have MRI of my brain .. I went

back & gt; & gt; and forth with my doctor's nurse about fact that I only had

MRI of cervical & gt; & gt; spine back in January and the films and report

only show my neck and discuss & gt; & gt; my neck. I'll tackle that & gt; & gt;

molehill on Monday when I see my PT again. Am I feeling better? felt

okay & gt; & gt; enough to go out for walk this evening as the sun finally

came out! and it's & gt; & gt; finally beginning to feel like summer. Am doing

my best not to worry -- but & gt; & gt; am feeling frustrated at continually

coming up against brick wall, the same & gt; & gt; one. It's like I know

what's going on in my mind's eye and heart, self but & gt; & gt; can't seem to

get my & gt; & gt; point across. & gt; & gt; & gt; & gt; I continue to hang in there

and stay positive but with little support it's & gt; & gt; hard sometimes. Am

getting dizzy again and the pain has gotten to blinding & gt; & gt; degree so

I'm headed to bed to rest. The ER doctor said to call my GP & gt; & gt;

tomorrow (again) if I wasn't feeling better or if things got worse -- or

all & gt; & gt; else come back. Hoping to avoid this. E & gt; & gt; & gt; & gt;

& gt; & gt; & gt; & gt; & gt; [Non-text portions of this message have been

removed] & gt;

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