Dealing with pain (was) s/c and mms

[Guest guest]

,Has tried getting a massage? ?They canbe very relaxing especially if you take a magnesium bath afterwards.I take hydrocodone Apap.It takes the edge off my pain when hot soaks and my herbs dont work.You can use St swort topically make a tea and rub it on the body or get hypericum by Hyland and spray on the body.incense essential oil also helps resolve pain .Boswellia is a form of frankincense in capsule form..Has tried chiropractic care ?perhaps achange in diet might also help the painjan Posted by: "j1o2yl" 4blessings4us@... j1o2yl Date: Fri May 27, 2011 7:16 pm ((PDT))Jim,.Chris

had an extremely bad night. We went to Mass and he was one of the altar servers. He usually does not serve a Low Mass (mostly kneeling), but he volunteered tonight. He made it about 8 minutes and he had to come off the altar. I walked out of the church and he was crying, which

does not do much. I completely fell apart along with him.He did have a bulls eye in June 1999 and many positive Lyme tests. So, I know without a doubt he has Lyme. I also saw the spirochetes in his live blood viewing. No doubt at all.How long were you on pain killers? I think is afraid that he will be addicted (lol) and is afraid to go on meds. What type of pain meds are you speaking of? Morphines are out. All the children are allergic to morphine. Wouldn't a spinal MRI have seen if the myelin sheath was affected?Also

it would have shown nerve impingement, but there was none. I am going to forward Chris' records to another neurosurgeon (friend of my brother)

to see what she thinks.I have had his hair tested and he has no mercury in his system. He has no cavities and has only about 3 or 4 vaccines. His energy is good as well as his appetite, he WANTS to do things. Besides his back, he has no other pains or aches. He has been in PT three separate times...that did not work. "Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller

[Guest guest]

Jan,

I will definitely try your suggestions! Chris' last Lyme tested Negative, so

pain meds are going to be hard to get. Even the sports med and neurologist did

not offer or suggest. My brother and SIL are both Chiros (one is an AO chiro).

I also took him to another in VA (we are in NC), who was adjusting wonderfully,

but was just not holding the adjustment. I have also tried acupuncture.

I do not even think we have an LLMD down here (northeast NC).

does not like baths. I think it makes the pressure worse so he avoids

them.

I do have incense essential oil. I have also started the sauna.

Did your daughter use a coil/rife? How did she get better?

What is hydrocodone apap?

Thanks so much for your help. I will email you.

>

>

>

>

> ,Has tried getting a massage? ?They canbe very relaxing especially

if you take a magnesium bath afterwards.I take hydrocodone Apap.It takes the

edge off my pain when hot soaks and my herbs dont work.You can use St swort

topically make a tea and rub it on the body or get hypericum by Hyland and spray

on the body.incense essential oil also helps resolve pain .Boswellia is a

form of frankincense in capsule form..Has tried chiropractic care ?perhaps

achange in diet might also help the pain

>

> jan

>

>

>     Posted by: " j1o2yl " 4blessings4us@... j1o2yl

>     Date: Fri May 27, 2011 7:16 pm ((PDT))

>

> Jim,.

> Chris

> had an extremely bad night.  We went to Mass and he was one of the

> altar servers.  He usually does not serve a Low Mass (mostly kneeling),

> but he volunteered tonight.  He made it about 8 minutes and he had to

> come off the altar.  I walked out of the church and he was crying, which

> does not do much.  I completely fell apart along with him.

> He

> did have a bulls eye in June 1999 and many positive Lyme tests.  So, I

> know without a doubt he has Lyme.  I also saw the spirochetes in his

> live blood viewing.  No doubt at all.

> How long were you on pain

> killers?  I think is afraid that he will be addicted (lol) and is

> afraid to go on meds.  What type of pain meds are you speaking of? 

> Morphines are out.  All the children are allergic to morphine. 

> Wouldn't a spinal MRI have seen if the myelin sheath was affected?

> Also

> it would have shown nerve impingement, but there was none.  I am going

> to forward Chris' records to another neurosurgeon (friend of my brother)

> to see what she thinks.

> I have had his hair tested and he has no mercury in his system.  He has no

cavities and has only about 3 or 4 vaccines. 

> His energy is good as well as his appetite, he WANTS to do things.  Besides

his back, he has no other pains or aches. 

> He has been in PT three separate times...that did not work.

>

>

>  

>

> " Im not trying to counsel any of you to do anything

> really special,except to dare to think, and to dare to go with the truth ,and

to dare to love completely. " -R. Buckminster Fuller

>

[Guest guest]

Sorry...has not had any massages. His back IS like a brick, and I wonder

if he has not exacerbated this by becoming tense.

I see the endo on June 6th, so I will have them test adrenals, TSH, DHEA, D3,

Pituitary.

>

>

>

>

> ,Has tried getting a massage? ?They canbe very relaxing especially

if you take a magnesium bath afterwards.I take hydrocodone Apap.It takes the

edge off my pain when hot soaks and my herbs dont work.You can use St swort

topically make a tea and rub it on the body or get hypericum by Hyland and spray

on the body.incense essential oil also helps resolve pain .Boswellia is a

form of frankincense in capsule form..Has tried chiropractic care ?perhaps

achange in diet might also help the pain

>

> jan

>

>

>     Posted by: " j1o2yl " 4blessings4us@... j1o2yl

>     Date: Fri May 27, 2011 7:16 pm ((PDT))

>

> Jim,.

> Chris

> had an extremely bad night.  We went to Mass and he was one of the

> altar servers.  He usually does not serve a Low Mass (mostly kneeling),

> but he volunteered tonight.  He made it about 8 minutes and he had to

> come off the altar.  I walked out of the church and he was crying, which

> does not do much.  I completely fell apart along with him.

> He

> did have a bulls eye in June 1999 and many positive Lyme tests.  So, I

> know without a doubt he has Lyme.  I also saw the spirochetes in his

> live blood viewing.  No doubt at all.

> How long were you on pain

> killers?  I think is afraid that he will be addicted (lol) and is

> afraid to go on meds.  What type of pain meds are you speaking of? 

> Morphines are out.  All the children are allergic to morphine. 

> Wouldn't a spinal MRI have seen if the myelin sheath was affected?

> Also

> it would have shown nerve impingement, but there was none.  I am going

> to forward Chris' records to another neurosurgeon (friend of my brother)

> to see what she thinks.

> I have had his hair tested and he has no mercury in his system.  He has no

cavities and has only about 3 or 4 vaccines. 

> His energy is good as well as his appetite, he WANTS to do things.  Besides

his back, he has no other pains or aches. 

> He has been in PT three separate times...that did not work.

>

>

>  

>

> " Im not trying to counsel any of you to do anything

> really special,except to dare to think, and to dare to go with the truth ,and

to dare to love completely. " -R. Buckminster Fuller

>

[Guest guest]

,

has had many positive tests before, but last April was the one that was

negative...no surprise.

It's funny you said about a male doing the massage. It's one reason does

not want to go....lol May he always be that modest

Thanks for the advise on oxycotin...scary, and how many do not know this? I am

sure you are correct about his muscles being weak. He has not used them

properly in a long time. One of the chiros explained that because

children/adults do not do the physical pull and push motion while working

anymore causes the back/stomach muscles to become weak. I completely agree.

The endo I scheduled with is an endo of mine. I had a miscarriage in 2008

and he was the one that ran the spectrum of tests, much like the ones you

listed, and a couple more. I have a decent knowledge on hypo/hyperthyroidism

because my family is littered with it, so I am hoping he goes along with the

tests. I will beg and cry if I have to (half kidding). I have a friend that

requested cortisol test from her endo and he declined because he felt it was not

warranted. Unfortunately his appt. is a 3:30, so I am unsure what he will do

about the cortisol.

I have been to so many bad endos and feel , besides Lyme, it is one of the most

understudied fields. To find a good one is like finding a needle in a haystack.

The classes sound interesting.....

Thanks for your help.

> > >

> > >

> > >

> > >

> > > ,Has tried getting a massage? ?They canbe very relaxing

> > especially if you take a magnesium bath afterwards.I take hydrocodone

> > Apap.It takes the edge off my pain when hot soaks and my herbs dont work.You

> > can use St swort topically make a tea and rub it on the body or get

> > hypericum by Hyland and spray on the body.incense essential oil also

> > helps resolve pain .Boswellia is a form of frankincense in capsule form..Has

> > tried chiropractic care ?perhaps achange in diet might also help the

> > pain

> > >

> > > jan

> > >

> > >

> > > Posted by: " j1o2yl " 4blessings4us@ j1o2yl

> >

> > > Date: Fri May 27, 2011 7:16 pm ((PDT))

> > >

> > > Jim,.

> > > Chris

> > > had an extremely bad night. We went to Mass and he was one of the

> > > altar servers. He usually does not serve a Low Mass (mostly kneeling),

> > > but he volunteered tonight. He made it about 8 minutes and he had to

> > > come off the altar. I walked out of the church and he was crying, which

> > > does not do much. I completely fell apart along with him.

> > > He

> > > did have a bulls eye in June 1999 and many positive Lyme tests. So, I

> > > know without a doubt he has Lyme. I also saw the spirochetes in his

> > > live blood viewing. No doubt at all.

> > > How long were you on pain

> > > killers? I think is afraid that he will be addicted (lol) and is

> > > afraid to go on meds. What type of pain meds are you speaking of?

> > > Morphines are out. All the children are allergic to morphine.

> > > Wouldn't a spinal MRI have seen if the myelin sheath was affected?

> > > Also

> > > it would have shown nerve impingement, but there was none. I am going

> > > to forward Chris' records to another neurosurgeon (friend of my brother)

> > > to see what she thinks.

> > > I have had his hair tested and he has no mercury in his system. He has

> > no cavities and has only about 3 or 4 vaccines.

> > > His energy is good as well as his appetite, he WANTS to do things.

> > Besides his back, he has no other pains or aches.

> > > He has been in PT three separate times...that did not work.

> > >

> > >

> > >

> > >

> > > " Im not trying to counsel any of you to do anything

> > > really special,except to dare to think, and to dare to go with the truth

> > ,and to dare to love completely. " -R. Buckminster Fuller

> > >

> >

> >

> >

>

[Guest guest]

Hi If chris doesnt like baths , get magnesium oil spary dilute it and spray and rub into the skin all over , he can leave on 20 -30 minutes and rinse off in the shower,But the point of a hot bath is to getmoist heat into the body to relax it.HydrocodoneAPAP is a pain killer with tylenol .Most doctors arent going to suggest pain killers unless you ask and tell them how bad the pain is and demand something from them.You have to be a strong advocate for chris. With chiropractic care my adjustments didnt start holding until I did 3 sessions a week and acupuncture .then i could move to twice a week.For some reason , acupuncture in the spine area helped my body hold the adjustments longer.It really does help keep the pain under control to a great degree.Im not the one with the daughter who

healed but I do use the doug coil for rifing and it has helped a great dealjan Re: Dealing with pain (was) s/c and mms Posted by: "j1o2yl" 4blessings4us@... j1o2yl Date: Sat May 28, 2011 7:08 am ((PDT))Jan,I

will definitely try your suggestions! Chris' last Lyme tested Negative, so pain meds are going to be hard to get. Even the sports med

and neurologist did not offer or suggest. My brother and SIL are both Chiros (one is an AO chiro). I also took him to another in VA (we are in NC), who was adjusting wonderfully, but was just not holding the adjustment. I have also tried acupuncture. I do not even think we have an LLMD down here (northeast NC).does not like baths. I think it makes the pressure worse so he avoids them. I do have incense essential oil. I have also started the sauna.Did your daughter use a coil/rife? How did she get better?What is hydrocodone apap? Thanks so much for your help. I will email you. "Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller

[Guest guest]

Hi ,

Pain medications are not prescribed because of illness or disease, they are

prescribed for pain... When my pain meds were initially prescribed, I had no

illness or disease I or my docs knew of, only severe abdominal pain...

Each time visits a doctor, have him document his pain and what it is

preventing him from doing.. At some point, the brain may not rest because of the

pain, and he may also have to deal with insomnia... I can tell you dealing with

pain 16 hours a day is every difficult, but it is far worse dealing with it for

20 or more... Been there, done that...

LLMDs may not prescribe pain medication, if they do, it may be the wrong kind or

wrong dose... A pain management doctor really knows a lot more about pain...

Hydrocodone APAP is an opiate pain medication with Tylenol... This kind of

medication can relieve pain..

Take care,

Jim

> >

> >

> >

> >

> > ,Has tried getting a massage? ?They canbe very relaxing especially

if you take a magnesium bath afterwards.I take hydrocodone Apap.It takes the

edge off my pain when hot soaks and my herbs dont work.You can use St swort

topically make a tea and rub it on the body or get hypericum by Hyland and spray

on the body.incense essential oil also helps resolve pain .Boswellia is a

form of frankincense in capsule form..Has tried chiropractic care ?perhaps

achange in diet might also help the pain

> >

> > jan

> >

> >

> >     Posted by: " j1o2yl " 4blessings4us@ j1o2yl

> >     Date: Fri May 27, 2011 7:16 pm ((PDT))

> >

> > Jim,.

> > Chris

> > had an extremely bad night.  We went to Mass and he was one of the

> > altar servers.  He usually does not serve a Low Mass (mostly kneeling),

> > but he volunteered tonight.  He made it about 8 minutes and he had to

> > come off the altar.  I walked out of the church and he was crying, which

> > does not do much.  I completely fell apart along with him.

> > He

> > did have a bulls eye in June 1999 and many positive Lyme tests.  So, I

> > know without a doubt he has Lyme.  I also saw the spirochetes in his

> > live blood viewing.  No doubt at all.

> > How long were you on pain

> > killers?  I think is afraid that he will be addicted (lol) and is

> > afraid to go on meds.  What type of pain meds are you speaking of? 

> > Morphines are out.  All the children are allergic to morphine. 

> > Wouldn't a spinal MRI have seen if the myelin sheath was affected?

> > Also

> > it would have shown nerve impingement, but there was none.  I am going

> > to forward Chris' records to another neurosurgeon (friend of my brother)

> > to see what she thinks.

> > I have had his hair tested and he has no mercury in his system.  He has no

cavities and has only about 3 or 4 vaccines. 

> > His energy is good as well as his appetite, he WANTS to do things.  Besides

his back, he has no other pains or aches. 

> > He has been in PT three separate times...that did not work.

> >

> >

> >  

> >

> > " Im not trying to counsel any of you to do anything

> > really special,except to dare to think, and to dare to go with the truth

,and to dare to love completely. " -R. Buckminster Fuller

> >

>

[Guest guest]

Jim,

has had over 20 sessions over three different physical therapists equaling

more than 60 sessions total. It helped his aversion fracture in his hip

tremendously, but not the back. is PT'd out.

I understand what you are saying about the pain meds. I did order a coil

machine and I am going to start massaging his back daily, get him back to the

chiro and start the MMS2. A friend has let use his GB4000 also.

The last pain med doc suggested those three protocols I mentioned, but did

mention some other type of PT...is SO averse to it right now.

I think knowing what it is does make a difference. If it is from the Lyme then

I treat with Lyme protocols, but what I do not understand is that the pain in

the L3 started the moment his back was hit. I understand how the Spiros form

colonies in injured sites, but that quickly?

Pain Management docs...hard to find a good one? The last one was a bust, but I

have to be realistic. If I go to an MD, he is going to prescribe drugs...more

profitable to treat than to cure.

You all have given me so many great suggestions..thank you

>

> Hi ,

>

> I can see this is really affecting Chris's life, first the exams he failed,

> now not able to kneel for more than 8 minutes... Something is very wrong to

> cause this pain, but it could be just a damaged nerve rubbing on bone, that

> is all it takes... And because it can be such a small thing, often hard to

> detect what it is... When pain interferes with life and doctors can not

> cure this pain, changes are good it will continue indefinitely... Mine

> started in 1991, first surgery in 1996, second in 2002 after pain

> worsened... At that point, I had no other options but pain medication, I am

> still prescribed it today...

>

> The point I am trying to make, this pain now is controlling Chris's life...

> Here is a comparison I can make... With Lyme, I can concentrate on other

> things and not think of Lyme, thus it is not controlling me 24 hours a

> day... But if I stop my pain meds, my pain will be unrelenting every second

> of the day and it is what my brain will concentrate on, not the things I

> want to do... Pain that is unrelenting, means the brain is always dealing

> with and thus thinking of pain only... Other things in life become

> unimportant as his brain can not comprehend beyond he feelings of pain.. I

> know the pain is in his back, but in reality, it is the brain that suffers

> for this pain as pain is registered by the brain.. And there also is a risk

> of " phantom pain. " This happens when the brain registers the pain from an

> area for a long time.. The pain may stop, but the brain still recognizes it

> is there... Take the guy who has severe pain in his had for several years,

> then one day he loses the hand in an auto accident... The hand is gone, no

> longer there... But he still feels the pain coming from that hand... This

> really dose happen, my pain doctor felt I had this pain for so long, it was

> possible it was now phantom pain...

>

> http://www.mayoclinic.com/health/phantom-pain/DS00444

>

> Whether this pain is caused by Lyme or something else really does not

> matter... What matters is the pain will not stop... If at some point this

> pain is relieved, then he will have no further need for the pain

> medication.. But since I personally know a lot about pain, I would not count

> on this pain curing on its own in the future, some kind of intervention most

> likely will be necessary and unfortunately, it often is very hard to

> understand what is causing pain, thus attempts to fix it often fail... Chris

> can not continue to live his life like this, the pain will control his life

> and there will be many things in life he will never do...

>

> I don't think an MRI can detect myelin sheath damage, but I am not 100% sure

> about this... I've had 14 CT-Scans, 8 MRI's of my gut and back, nothing

> showed up... But it is definitely worth a try, if something can be detected

> that is causing his pain, correcting it is the best thing.

>

> When you do forward his records to this other neurosurgeon, if he tells you

> he doesn't not see anything causing this pain, ask him to refer to a

> pain management specialist.... These doctors can also do diagnostic testing,

> using needles and anesthetics, called nerve blocks to see if these will

> control the pain... I've had 8 of these blocks, 2 helped, but could not be

> duplicated. Often pain meds are the last thing a pain docs wants to use if

> physical therapy or nerve blocks work, they may be the answer to either

> ridding or controlling this pain.. But if all else fails, pain medication

> can give his life back... They really do work... I never feel any

> effect from my medication, unless I forget to take one on time, then I start

> feeling pain... I would prefer not to have to use pain medication, but for

> some people, it is the only option...

>

> I don't really put a lot of faith in physical therapy, it never helped me...

> But some do benefit... If has been to PT just for 3 sessions, this

> really is not enough... I was prescribed 8 sessions, then 8 more...

>

> My back pain was finally control after 18 weeks of MedX therapy... I value

> this therapy far superior to normal PT as it was initially developed to

> correct back problems and thus back pain...

>

> In the mean time, try ice and heat... Ice for 20 minutes, 20 minues of

> nothing, 20 minutes of heat... Repeat if needed... Sometimes this is a good

> shorter term option for relieving some pain...

>

> --

> Take care,

> Jim

>

> Rife, M-M-S, Salt/C, Ozone water

> I have NO financial interest in anything I discuss.

>

>

[Guest guest]

My error..has an avulsion fracture.

Jim, did you use the MedX at a therapist's office?

> >

> > Hi ,

> >

> > I can see this is really affecting Chris's life, first the exams he failed,

> > now not able to kneel for more than 8 minutes... Something is very wrong to

> > cause this pain, but it could be just a damaged nerve rubbing on bone, that

> > is all it takes... And because it can be such a small thing, often hard to

> > detect what it is... When pain interferes with life and doctors can not

> > cure this pain, changes are good it will continue indefinitely... Mine

> > started in 1991, first surgery in 1996, second in 2002 after pain

> > worsened... At that point, I had no other options but pain medication, I am

> > still prescribed it today...

> >

> > The point I am trying to make, this pain now is controlling Chris's life...

> > Here is a comparison I can make... With Lyme, I can concentrate on other

> > things and not think of Lyme, thus it is not controlling me 24 hours a

> > day... But if I stop my pain meds, my pain will be unrelenting every second

> > of the day and it is what my brain will concentrate on, not the things I

> > want to do... Pain that is unrelenting, means the brain is always dealing

> > with and thus thinking of pain only... Other things in life become

> > unimportant as his brain can not comprehend beyond he feelings of pain.. I

> > know the pain is in his back, but in reality, it is the brain that suffers

> > for this pain as pain is registered by the brain.. And there also is a risk

> > of " phantom pain. " This happens when the brain registers the pain from an

> > area for a long time.. The pain may stop, but the brain still recognizes it

> > is there... Take the guy who has severe pain in his had for several years,

> > then one day he loses the hand in an auto accident... The hand is gone, no

> > longer there... But he still feels the pain coming from that hand... This

> > really dose happen, my pain doctor felt I had this pain for so long, it was

> > possible it was now phantom pain...

> >

> > http://www.mayoclinic.com/health/phantom-pain/DS00444

> >

> > Whether this pain is caused by Lyme or something else really does not

> > matter... What matters is the pain will not stop... If at some point this

> > pain is relieved, then he will have no further need for the pain

> > medication.. But since I personally know a lot about pain, I would not count

> > on this pain curing on its own in the future, some kind of intervention most

> > likely will be necessary and unfortunately, it often is very hard to

> > understand what is causing pain, thus attempts to fix it often fail... Chris

> > can not continue to live his life like this, the pain will control his life

> > and there will be many things in life he will never do...

> >

> > I don't think an MRI can detect myelin sheath damage, but I am not 100% sure

> > about this... I've had 14 CT-Scans, 8 MRI's of my gut and back, nothing

> > showed up... But it is definitely worth a try, if something can be detected

> > that is causing his pain, correcting it is the best thing.

> >

> > When you do forward his records to this other neurosurgeon, if he tells you

> > he doesn't not see anything causing this pain, ask him to refer to a

> > pain management specialist.... These doctors can also do diagnostic testing,

> > using needles and anesthetics, called nerve blocks to see if these will

> > control the pain... I've had 8 of these blocks, 2 helped, but could not be

> > duplicated. Often pain meds are the last thing a pain docs wants to use if

> > physical therapy or nerve blocks work, they may be the answer to either

> > ridding or controlling this pain.. But if all else fails, pain medication

> > can give his life back... They really do work... I never feel any

> > effect from my medication, unless I forget to take one on time, then I start

> > feeling pain... I would prefer not to have to use pain medication, but for

> > some people, it is the only option...

> >

> > I don't really put a lot of faith in physical therapy, it never helped me...

> > But some do benefit... If has been to PT just for 3 sessions, this

> > really is not enough... I was prescribed 8 sessions, then 8 more...

> >

> > My back pain was finally control after 18 weeks of MedX therapy... I value

> > this therapy far superior to normal PT as it was initially developed to

> > correct back problems and thus back pain...

> >

> > In the mean time, try ice and heat... Ice for 20 minutes, 20 minues of

> > nothing, 20 minutes of heat... Repeat if needed... Sometimes this is a good

> > shorter term option for relieving some pain...

> >

> > --

> > Take care,

> > Jim

> >

> > Rife, M-M-S, Salt/C, Ozone water

> > I have NO financial interest in anything I discuss.

> >

> >

>

[Guest guest]

Dear

I 2nd both Jim's and Anadraya's comments about using pain meds properly.

However, I would also caution you about relying on a pharmacist. They

often have out-dated notions or bias against use or narcotic pain

meds. I've had more than one pharmacist make comments, or call my

doctor to question my RX for pain meds. (Probably because I looked so

healthy & was young when I was injured (26). Some people used to say

you are too young - you can't stay on these forever, so it's best not

to even start - blah, blah, blah...

But severe pain taxes the body in many ways. Leaving severe pain

untreated leads to chronic pain that may become very difficult or

impossible to control. Taking pain meds has never made me high or

*euphoric*. All they do is cut the pain to (almost) manageable

levels.

Too many TV shows make people on pain meds look like goof balls and

idiots, when in fact they can even be safely used by truck driver's,

police officer's and firefighters. When such professionals want to

return to work despite chronic pain testing shows that their skills

are better when taking pain RX than not taking pain RX. Have severe

pain can be distracting and restrict movement & limit activity.

Please do MORE research before condeming your son to further suffering.

Kendra

PS: When my ex was in medical school I read every medical textbook

published on the management of chronic pain. J. Bonica authored

some of the best and was considered a pioneer in the field of chronic

pain management.

> Jim,

> Instead of asking doctors about meds, I go to the pharmacists (not

assistants).  I find that they are much more knowledgeable about drugs and drug

interactions.

> Thanks for posting this.

>

>

>

>

>

>> >

>> > Dear ,

>> > Several thoughts here:

>> > Chris' last Lyme test being negative *is typical* - our bodies stop

>> > producing antibodies after a while because the Lyme has changed our DNA

>> > structure so that our bodies no longer see Lyme as a threat. This is part

>> of

>> > the reason why so many test negative, but really are positive.

>> > As far as pain meds go, one doc insisted that NO ONE EVER take oxycotin.

>> He

>> > was a psych. with the Amen Clinic and said that this drug (and maybe

>> > oxycodone) is like meth. Many people become addicted with one dose.

>> > I think that massage is a great idea, maybe look for a male massage

>> > therapist so your son won't be embarrassed. Go in with him.

>> > He probably didn't hold the adjustment because his muscle are weak. I

>> > prefer PT (with a talented PT) because they also focus on strengthening.

>> > Be prepared, your endocrimologist appt. may be very disappointing. I'm

>> *hoping

>> > *your endo is either Lyme literate or into integrative meds. Otherwise

>> these

>> > folks are usual by the book - unfortunately it is the wrong book. You'll

>> be

>> > lucky if they run the tests you ask for, and chances are they will look

>> > twice at you for asking them. That's OK, ask, get as many as you can. The

>> > bare *minimum *would be:

>> > a.m. cortisol, drawn before 8:30

>> > TSH

>> > Free T3

>> > Free T4

>> > Reverse T3

>> > DHEA and Vitamin D would be good, but I'd bet he's very low.

>> >

>> > My endo was horrible. I got my thyroid and adrenal meds through a regular

>> > MD, who understood how flawed the tests are. They are around. If you need

>> > ideas on how to find them, let me know.

>> >

>> > As far as the essential oils go, there is a lady on the net who has a

>> class

>> > on Biblical essential oils. I've thought about taking it, but my plate is

>> > darn full right now. I'm trying to get my Lyme friend, whose kids are

>> grown

>> > and doesn't work to take it, but so far no luck.

>> >

>> > Best,

>> >

>>

>

>

>

>

> ------------------------------------

>

> If your post is not about electronic devices used in the treatment of Lyme

then please put an OT: in the subject line.

>

> -------------------------------

>

[Guest guest]

Kendra,

While I do thoroughly appreciate your advice, I am insulted and offended at your

wording: Please do MORE research before condeming your son to further

suffering.

The thought of what you insinuate is really sad. If you knew me, and how much

time and care I give you would have hesitated to write this.

-

[Guest guest]

, You are too kind!

Kendra, My apologies also...When I read your response I had just made an

appointment for for a deep tissue massage and he was arguing with me that

he did not want to go. I was reading that deep tissue massage, in many

instances, can be more effective than pain killers.

I know since Chris' back injury his whole gate has changed and he has

compensated tremendously (which I understand). Could this be playing a

significant factor in his pain?...not sure. I also ordered a coil machine, and

am VERY anxious to try that.

But, anyway, I do appreciate any advice, I know if comes from painful suffering

and from trying to prevent others from suffering.

>

> Jim and all,

>

> I've always agreed with the theory that if you are managing pain you will

> not become addicted. But, (the big 'but') I'm not sure if I would agree that

> *all opiates* are the same. Yes, they all work on your opiate receptors, but

> if they were all the same there wouldn't be so many.

>

> This psychiatrist didn't say to not use opiates he specifically said that

> oxycotin (I'm pretty sure it was oxycotin not oxycodone) was easily

> addictive. I really don't know, but he is a 'brain doc' so he sees a lot of

> this stuff. I'm more in line to follow the mega geek :-) researchers on

> this group than a doc, but I think it is something to take note of. *It

> seems very possible to me that one opiate could work in such a way to create

> a dependence easier than another opiate.

> *

> Also, yes, many people take pain meds for the 'high' but some people start

> with managing pain and then become addicted not just dependent. Is this a

> reason to deny pain meds - absolutely not.

>

> And there are people - like my son - who I would want to avoid anything that

> could give him a 'high'. With all his neuro issues and his genetics and

> with how crappy he feels (not pain) he is a prime candidate for addiction.

> No, I wouldn't let him suffer if he was in pain, but I would be *very*careful.

>

> My chemistry? I do not get 'high' off of opiates or tranquilizers. The

> opiates make me so sick that usually the pain is more tolerable. I have

> several friends who have different chemistry - taking half a tylenol 3 (for

> pain) gives them a high, or .5 mg of xanax for stress makes them euphoric -

> not me - xanax makes me feel 'normal'. I think a lot of this has to do with

> our neuro-transmitters. My one friend (who gets the 'high') also has huge

> cravings for alcohol, however, when she is taking L-tyrosin (I think) her

> cravings are gone.

>

> There is a lot of research on addiction and neurotransmitters and treating

> with amino acids. Actually, the groups who treat with amino acids are having

> the highest success in treating people. (See Ross' books and

> Braverman) Interestingly enough, they are having the same success with

> anorexia.

>

> , you are doing a great job as a mom! I'm sure Kendra didn't mean it as

> in insult. Please keep in mind that all of us on this group are stressed

> out and most of us are sick. Sometimes we are at the computer when we

> aren't feeling well enough to do anything else. Sometimes things simply come

> out wrong when we are typing. For myself, I've written a comment and then

> I've read it a few days later - not even remembering writing it. Or reading

> it thinking, wow, I was rather curt. We all have different backgrounds,

> experiences and fears - that's what makes us a good resource.

>

> Best,

>

>

[Guest guest]

Hi ,

I did deep tissue massages and they do help but keep in mind that they also help

the body detox and therefore he should drink alot of water. I also had

tremendous pain throughout my illness but chose not to use pain medication for

fear of becoming dependent and I was also afraid of giving my body anything else

to detox.

I found that accupunture did help my pain in addition to the massages. I was

really hesitant to start but I would say may pain lessened after a few visits by

at least 50%. It was tremendous.

Tamara

> >

> > Jim and all,

> >

> > I've always agreed with the theory that if you are managing pain you will

> > not become addicted. But, (the big 'but') I'm not sure if I would agree that

> > *all opiates* are the same. Yes, they all work on your opiate receptors, but

> > if they were all the same there wouldn't be so many.

> >

> > This psychiatrist didn't say to not use opiates he specifically said that

> > oxycotin (I'm pretty sure it was oxycotin not oxycodone) was easily

> > addictive. I really don't know, but he is a 'brain doc' so he sees a lot of

> > this stuff. I'm more in line to follow the mega geek :-) researchers on

> > this group than a doc, but I think it is something to take note of. *It

> > seems very possible to me that one opiate could work in such a way to create

> > a dependence easier than another opiate.

> > *

> > Also, yes, many people take pain meds for the 'high' but some people start

> > with managing pain and then become addicted not just dependent. Is this a

> > reason to deny pain meds - absolutely not.

> >

> > And there are people - like my son - who I would want to avoid anything that

> > could give him a 'high'. With all his neuro issues and his genetics and

> > with how crappy he feels (not pain) he is a prime candidate for addiction.

> > No, I wouldn't let him suffer if he was in pain, but I would be

*very*careful.

> >

> > My chemistry? I do not get 'high' off of opiates or tranquilizers. The

> > opiates make me so sick that usually the pain is more tolerable. I have

> > several friends who have different chemistry - taking half a tylenol 3 (for

> > pain) gives them a high, or .5 mg of xanax for stress makes them euphoric -

> > not me - xanax makes me feel 'normal'. I think a lot of this has to do with

> > our neuro-transmitters. My one friend (who gets the 'high') also has huge

> > cravings for alcohol, however, when she is taking L-tyrosin (I think) her

> > cravings are gone.

> >

> > There is a lot of research on addiction and neurotransmitters and treating

> > with amino acids. Actually, the groups who treat with amino acids are having

> > the highest success in treating people. (See Ross' books and

> > Braverman) Interestingly enough, they are having the same success with

> > anorexia.

> >

> > , you are doing a great job as a mom! I'm sure Kendra didn't mean it as

> > in insult. Please keep in mind that all of us on this group are stressed

> > out and most of us are sick. Sometimes we are at the computer when we

> > aren't feeling well enough to do anything else. Sometimes things simply come

> > out wrong when we are typing. For myself, I've written a comment and then

> > I've read it a few days later - not even remembering writing it. Or reading

> > it thinking, wow, I was rather curt. We all have different backgrounds,

> > experiences and fears - that's what makes us a good resource.

> >

> > Best,

> >

> >

>

[Guest guest]

What is MMS treatment?

> > >

> > > Jim and all,

> > >

> > > I've always agreed with the theory that if you are managing pain you will

> > > not become addicted. But, (the big 'but') I'm not sure if I would agree

that

> > > *all opiates* are the same. Yes, they all work on your opiate receptors,

but

> > > if they were all the same there wouldn't be so many.

> > >

> > > This psychiatrist didn't say to not use opiates he specifically said that

> > > oxycotin (I'm pretty sure it was oxycotin not oxycodone) was easily

> > > addictive. I really don't know, but he is a 'brain doc' so he sees a lot

of

> > > this stuff. I'm more in line to follow the mega geek :-) researchers on

> > > this group than a doc, but I think it is something to take note of. *It

> > > seems very possible to me that one opiate could work in such a way to

create

> > > a dependence easier than another opiate.

> > > *

> > > Also, yes, many people take pain meds for the 'high' but some people start

> > > with managing pain and then become addicted not just dependent. Is this a

> > > reason to deny pain meds - absolutely not.

> > >

> > > And there are people - like my son - who I would want to avoid anything

that

> > > could give him a 'high'. With all his neuro issues and his genetics and

> > > with how crappy he feels (not pain) he is a prime candidate for addiction.

> > > No, I wouldn't let him suffer if he was in pain, but I would be

*very*careful.

> > >

> > > My chemistry? I do not get 'high' off of opiates or tranquilizers. The

> > > opiates make me so sick that usually the pain is more tolerable. I have

> > > several friends who have different chemistry - taking half a tylenol 3

(for

> > > pain) gives them a high, or .5 mg of xanax for stress makes them euphoric

-

> > > not me - xanax makes me feel 'normal'. I think a lot of this has to do

with

> > > our neuro-transmitters. My one friend (who gets the 'high') also has huge

> > > cravings for alcohol, however, when she is taking L-tyrosin (I think) her

> > > cravings are gone.

> > >

> > > There is a lot of research on addiction and neurotransmitters and treating

> > > with amino acids. Actually, the groups who treat with amino acids are

having

> > > the highest success in treating people. (See Ross' books and

> > > Braverman) Interestingly enough, they are having the same success with

> > > anorexia.

> > >

> > > , you are doing a great job as a mom! I'm sure Kendra didn't mean it

as

> > > in insult. Please keep in mind that all of us on this group are stressed

> > > out and most of us are sick. Sometimes we are at the computer when we

> > > aren't feeling well enough to do anything else. Sometimes things simply

come

> > > out wrong when we are typing. For myself, I've written a comment and then

> > > I've read it a few days later - not even remembering writing it. Or

reading

> > > it thinking, wow, I was rather curt. We all have different backgrounds,

> > > experiences and fears - that's what makes us a good resource.

> > >

> > > Best,

> > >

> > >

> >

>

[Guest guest]

Never mind, found it in the message archives. I was thinking you were talking

about MSM rather than MMS

> >

> > Hi ,

> >

> > I did deep tissue massages and they do help but keep in mind that they also

help the body detox and therefore he should drink alot of water. I also had

tremendous pain throughout my illness but chose not to use pain medication for

fear of becoming dependent and I was also

[Guest guest]

Hi Kendra, and Anadraya,

Severe pain is so devasting on the body, I would never consider driving

a car while in severe pain as my concentration level is very low, concerned

about causing an accident because of this...

However once my pain is controlled with medication, I feel completely normal

and comfortable driving as my concentration level is normal... This is why I

take

my pain meds when directed to do, thus avoiding any severe pain... but just

forget

once, and Mr. pain is right there to remind me...

, relate this to the exams just took, pain really lowers concentration

levels, all we think about is pain... Once pain is controlled, concentration

becomes normal again.. This would be the same for Chris...

I am glad to see others are chiming in here, confirming what I have been

saying... This way you have more perspective about the benefits gained

by controlling pain...

Jim

> >> >

> >> > Dear ,

> >> > Several thoughts here:

> >> > Chris' last Lyme test being negative *is typical* - our bodies stop

> >> > producing antibodies after a while because the Lyme has changed our DNA

> >> > structure so that our bodies no longer see Lyme as a threat. This is part

> >> of

> >> > the reason why so many test negative, but really are positive.

> >> > As far as pain meds go, one doc insisted that NO ONE EVER take oxycotin.

> >> He

> >> > was a psych. with the Amen Clinic and said that this drug (and maybe

> >> > oxycodone) is like meth. Many people become addicted with one dose.

> >> > I think that massage is a great idea, maybe look for a male massage

> >> > therapist so your son won't be embarrassed. Go in with him.

> >> > He probably didn't hold the adjustment because his muscle are weak. I

> >> > prefer PT (with a talented PT) because they also focus on strengthening.

> >> > Be prepared, your endocrimologist appt. may be very disappointing. I'm

> >> *hoping

> >> > *your endo is either Lyme literate or into integrative meds. Otherwise

> >> these

> >> > folks are usual by the book - unfortunately it is the wrong book. You'll

> >> be

> >> > lucky if they run the tests you ask for, and chances are they will look

> >> > twice at you for asking them. That's OK, ask, get as many as you can. The

> >> > bare *minimum *would be:

> >> > a.m. cortisol, drawn before 8:30

> >> > TSH

> >> > Free T3

> >> > Free T4

> >> > Reverse T3

> >> > DHEA and Vitamin D would be good, but I'd bet he's very low.

> >> >

> >> > My endo was horrible. I got my thyroid and adrenal meds through a regular

> >> > MD, who understood how flawed the tests are. They are around. If you need

> >> > ideas on how to find them, let me know.

> >> >

> >> > As far as the essential oils go, there is a lady on the net who has a

> >> class

> >> > on Biblical essential oils. I've thought about taking it, but my plate is

> >> > darn full right now. I'm trying to get my Lyme friend, whose kids are

> >> grown

> >> > and doesn't work to take it, but so far no luck.

> >> >

> >> > Best,

> >> >

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> > If your post is not about electronic devices used in the treatment of Lyme

then please put an OT: in the subject line.

> >

> > -------------------------------

> >

[Guest guest]

Hi Barb,

There are a lot of answers to your question, but in short there are two kinds of

MMS, MMS1 is a liquid taken internally, later on used transdermally, it is

effective at killing almost all pathogens, does not cause encysting, breaks up

biofilms and cysts and oxidizes heavy metals... MMS2 is a powder, this is used

with MMS1, but usually not in the beginnig, it is actually hypochlorous acid,

same acid in our body that the immune system uses to kill pathogens...

Here is Jim Humble's link, he discovered MMS1 and MMS2... On the left are the

protocols, on the right some of the things MMS is used for.. I have plenty more

answers if you have questions after reading this link, including where to buy

and how to slowly start using MMS... Very inexpensive, easy to use..

http://jimhumble.biz/

Take care,

Jim

> > > >

> > > > Jim and all,

> > > >

> > > > I've always agreed with the theory that if you are managing pain you

will

> > > > not become addicted. But, (the big 'but') I'm not sure if I would agree

that

> > > > *all opiates* are the same. Yes, they all work on your opiate receptors,

but

> > > > if they were all the same there wouldn't be so many.

> > > >

> > > > This psychiatrist didn't say to not use opiates he specifically said

that

> > > > oxycotin (I'm pretty sure it was oxycotin not oxycodone) was easily

> > > > addictive. I really don't know, but he is a 'brain doc' so he sees a

lot of

> > > > this stuff. I'm more in line to follow the mega geek :-) researchers on

> > > > this group than a doc, but I think it is something to take note of. *It

> > > > seems very possible to me that one opiate could work in such a way to

create

> > > > a dependence easier than another opiate.

> > > > *

> > > > Also, yes, many people take pain meds for the 'high' but some people

start

> > > > with managing pain and then become addicted not just dependent. Is this

a

> > > > reason to deny pain meds - absolutely not.

> > > >

> > > > And there are people - like my son - who I would want to avoid anything

that

> > > > could give him a 'high'. With all his neuro issues and his genetics and

> > > > with how crappy he feels (not pain) he is a prime candidate for

addiction.

> > > > No, I wouldn't let him suffer if he was in pain, but I would be

*very*careful.

> > > >

> > > > My chemistry? I do not get 'high' off of opiates or tranquilizers. The

> > > > opiates make me so sick that usually the pain is more tolerable. I have

> > > > several friends who have different chemistry - taking half a tylenol 3

(for

> > > > pain) gives them a high, or .5 mg of xanax for stress makes them

euphoric -

> > > > not me - xanax makes me feel 'normal'. I think a lot of this has to do

with

> > > > our neuro-transmitters. My one friend (who gets the 'high') also has

huge

> > > > cravings for alcohol, however, when she is taking L-tyrosin (I think)

her

> > > > cravings are gone.

> > > >

> > > > There is a lot of research on addiction and neurotransmitters and

treating

> > > > with amino acids. Actually, the groups who treat with amino acids are

having

> > > > the highest success in treating people. (See Ross' books and

> > > > Braverman) Interestingly enough, they are having the same success with

> > > > anorexia.

> > > >

> > > > , you are doing a great job as a mom! I'm sure Kendra didn't mean

it as

> > > > in insult. Please keep in mind that all of us on this group are

stressed

> > > > out and most of us are sick. Sometimes we are at the computer when we

> > > > aren't feeling well enough to do anything else. Sometimes things simply

come

> > > > out wrong when we are typing. For myself, I've written a comment and

then

> > > > I've read it a few days later - not even remembering writing it. Or

reading

> > > > it thinking, wow, I was rather curt. We all have different backgrounds,

> > > > experiences and fears - that's what makes us a good resource.

> > > >

> > > > Best,

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Barb,

If the lesions are pathogen based, definitely... If no, won't help...

Take care

Jim

> > >

>

[Guest guest]

Barb-

Do you have the Morgellons kind of skin lesions? I have dealt with

them for a long time now. No topical makes much of a difference. You

really have to go at it by treating the pathogens from within. They

are likely Bartonella related mixed with fungal pathogens. MMS baths

may help some but they will start healing permanently as you treat

Lyme and coinfections.

Aandraya