Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 Welcome Gaby,.....I'm so glad that your here, and hope you enjoy the group. You will find a lot of good information here, great tips, and wonderful people. I'm sorry about your dx with RA, but glad that your catching it early. My rheumy thinks that I have had the RA since childhood, but only dx a few years ago. When were you dx with RA? Do you have a rheumy? Sometimes, you have to change your meds, until you find the right one for you, which isn't always easy. But, if you have a good rheumy, he can keep tabs on your meds, and find out if they are really working for you. Are you on the Prednisone temporarily? I am 41 years old, and have a lot of problems with the RA right now. But, my advise to you is just keep moving. If you can walk some, do that even if it's around the block. Stretching sure helps your joints. I know it's hard to do all, with this disease especially when you have little ones. Just do the best you can, that's all any of us can do. Take care of yourself, Tawny --- In , " aevasmommy " <gabymark2@j...> wrote: > > > HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's > extremely hard for me to deal with the daily chores and keeping up > with her. i'm soooo tired all the time, and achy. i'm on > methotrexate and prednisone, but that is not helping. do you guys > know of ways i could gain some strength or other treatment options > for RA? > > It's not fair for her and not fair for me either. i need to be there > for her. help? > > Gaby > Aeva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 Welcome Gaby,.....I'm so glad that your here, and hope you enjoy the group. You will find a lot of good information here, great tips, and wonderful people. I'm sorry about your dx with RA, but glad that your catching it early. My rheumy thinks that I have had the RA since childhood, but only dx a few years ago. When were you dx with RA? Do you have a rheumy? Sometimes, you have to change your meds, until you find the right one for you, which isn't always easy. But, if you have a good rheumy, he can keep tabs on your meds, and find out if they are really working for you. Are you on the Prednisone temporarily? I am 41 years old, and have a lot of problems with the RA right now. But, my advise to you is just keep moving. If you can walk some, do that even if it's around the block. Stretching sure helps your joints. I know it's hard to do all, with this disease especially when you have little ones. Just do the best you can, that's all any of us can do. Take care of yourself, Tawny > > > HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's > extremely hard for me to deal with the daily chores and keeping up > with her. i'm soooo tired all the time, and achy. i'm on > methotrexate and prednisone, but that is not helping. do you guys > know of ways i could gain some strength or other treatment options > for RA? > > It's not fair for her and not fair for me either. i need to be there > for her. help? > > Gaby > Aeva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 HI Gaby, Just HAVING a 14-mo old child is enough to make you tired! (Just ask my daughter--she has triplets 22 mo. old and a 4-year old!) I don't have RA ( I have Dercum's Disease and Fibro), but do know that resting while you can and exercising the right way are important, as well as proper medication. Hopefully as you're pretty young, with all the new strides being made, they will be able to get you into remission so you can enjoy that little one! Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 HI Gaby, Just HAVING a 14-mo old child is enough to make you tired! (Just ask my daughter--she has triplets 22 mo. old and a 4-year old!) I don't have RA ( I have Dercum's Disease and Fibro), but do know that resting while you can and exercising the right way are important, as well as proper medication. Hopefully as you're pretty young, with all the new strides being made, they will be able to get you into remission so you can enjoy that little one! Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Hi Gaby, I truly understand how hard it can be to take care of little ones and have RA. Im 31 and had 4 kids in 6 years. They are now ages 4-11. I remember when they were younger and how difficult it was to just get out of bed. Especially when you are on MTX. I was diagnosed a little over a year ago and believe Ive had this for several years. I dont have any answers for you. But I can say take one day at a time. Dont feel guilty--- because you cant control life. Dont worry or stress about what you think you should be doing. For me what did help was trusting that God would give me the strength I needed for what had to be done. Everyday at the end of the day I think I didnt do this or that and my husband saysto me often well if it was that important then God would helped you do that. I have had to look at things differently and figure out whats really important and not. There are some days I feed the kids and thats all nothing else. Not even the dishes get done. And some days we get alot done and I try to catch up. I have learned to swallow my pride and ask for the help of my husband. When we lived in CA and I had friends and family I asked them for help. Here in Missouri I dont have anyone yet and my kids are getting older so I depend on them alot. I am still trying to learn to not stress about it and remember all that matters is you daughter knows you love her and give her lots of hugs and kisses. She doesnt need a stressed out mom or a guilty mom just one that loves her and cuddles her. Remember to not look around the messy house when you cant clean it I wish I could more or even help out some. You dont happen to live near St. Louis do you? If so let me know. Take care and I will be praying for you. Love, Latisha aevasmommy <gabymark2@...> wrote: HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's extremely hard for me to deal with the daily chores and keeping up with her. i'm soooo tired all the time, and achy. i'm on methotrexate and prednisone, but that is not helping. do you guys know of ways i could gain some strength or other treatment options for RA? It's not fair for her and not fair for me either. i need to be there for her. help? Gaby Aeva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Hi Gaby, I truly understand how hard it can be to take care of little ones and have RA. Im 31 and had 4 kids in 6 years. They are now ages 4-11. I remember when they were younger and how difficult it was to just get out of bed. Especially when you are on MTX. I was diagnosed a little over a year ago and believe Ive had this for several years. I dont have any answers for you. But I can say take one day at a time. Dont feel guilty--- because you cant control life. Dont worry or stress about what you think you should be doing. For me what did help was trusting that God would give me the strength I needed for what had to be done. Everyday at the end of the day I think I didnt do this or that and my husband saysto me often well if it was that important then God would helped you do that. I have had to look at things differently and figure out whats really important and not. There are some days I feed the kids and thats all nothing else. Not even the dishes get done. And some days we get alot done and I try to catch up. I have learned to swallow my pride and ask for the help of my husband. When we lived in CA and I had friends and family I asked them for help. Here in Missouri I dont have anyone yet and my kids are getting older so I depend on them alot. I am still trying to learn to not stress about it and remember all that matters is you daughter knows you love her and give her lots of hugs and kisses. She doesnt need a stressed out mom or a guilty mom just one that loves her and cuddles her. Remember to not look around the messy house when you cant clean it I wish I could more or even help out some. You dont happen to live near St. Louis do you? If so let me know. Take care and I will be praying for you. Love, Latisha aevasmommy <gabymark2@...> wrote: HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's extremely hard for me to deal with the daily chores and keeping up with her. i'm soooo tired all the time, and achy. i'm on methotrexate and prednisone, but that is not helping. do you guys know of ways i could gain some strength or other treatment options for RA? It's not fair for her and not fair for me either. i need to be there for her. help? Gaby Aeva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 I completely understand how hard it can be with little ones in the house. My kids are grown now, but my oldest son moved back into our house with his two children, ages 4 and 6. , the 6 yr old is in kindergarden and is very easy to deal with. na, the 4yr old has ADHD. She is VERY difficult to deal with. She can't concentrate on anything, and is very clingy. Things are better with her since she was put on medication. She is actually learning now in preschool - her teacher calls her a " smartie-cookie " these days! It is really hard for me to cope some days. I can't keep up with all the messes these new additions make, and the stress is unreal! I had forgotten how hard it is when someone is constantly interrupting you and demanding that you " come look at this " or " please get me that " . I don't have that much energy to begin with, and all those extra steps around the house really add up to sap what little strength I have left. Compounding all this is the fact that my son works 3rd shift. That means we have to watch the kids (without his help) for what amounts to two shifts - one where he is working and one where he is sleeping. He is sleep-deprived all the time, but he tries his best to take care of the kids. His goal was to move out as soon as he could, but I don't see this happening anytime soon with his work schedule. He needs live-in help. My husband is having a hard time dealing with everything. He comes home tired anyway, and then has to deal with " babysitting " every night. He's a good guy and loves the grandkids, but somebody please give us a break! Anyway, that's enough of a rant! Live ain't easy sometimes, but it's what we've got, so we just have to learn to deal with it! Take it easy and good luck with the little ones! Vikki Re: [ ] hi~ to moms with toddlers, how to deal Hi Gaby, I truly understand how hard it can be to take care of little ones and have RA. Im 31 and had 4 kids in 6 years. They are now ages 4-11. I remember when they were younger and how difficult it was to just get out of bed. Especially when you are on MTX. I was diagnosed a little over a year ago and believe Ive had this for several years. I dont have any answers for you. But I can say take one day at a time. Dont feel guilty--- because you cant control life. Dont worry or stress about what you think you should be doing. For me what did help was trusting that God would give me the strength I needed for what had to be done. Everyday at the end of the day I think I didnt do this or that and my husband saysto me often well if it was that important then God would helped you do that. I have had to look at things differently and figure out whats really important and not. There are some days I feed the kids and thats all nothing else. Not even the dishes get done. And some days we get alot done and I try to catch up. I have learned to swallow my pride and ask for the help of my husband. When we lived in CA and I had friends and family I asked them for help. Here in Missouri I dont have anyone yet and my kids are getting older so I depend on them alot. I am still trying to learn to not stress about it and remember all that matters is you daughter knows you love her and give her lots of hugs and kisses. She doesnt need a stressed out mom or a guilty mom just one that loves her and cuddles her. Remember to not look around the messy house when you cant clean it I wish I could more or even help out some. You dont happen to live near St. Louis do you? If so let me know. Take care and I will be praying for you. Love, Latisha aevasmommy <gabymark2@...> wrote: HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's extremely hard for me to deal with the daily chores and keeping up with her. i'm soooo tired all the time, and achy. i'm on methotrexate and prednisone, but that is not helping. do you guys know of ways i could gain some strength or other treatment options for RA? It's not fair for her and not fair for me either. i need to be there for her. help? Gaby Aeva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 I completely understand how hard it can be with little ones in the house. My kids are grown now, but my oldest son moved back into our house with his two children, ages 4 and 6. , the 6 yr old is in kindergarden and is very easy to deal with. na, the 4yr old has ADHD. She is VERY difficult to deal with. She can't concentrate on anything, and is very clingy. Things are better with her since she was put on medication. She is actually learning now in preschool - her teacher calls her a " smartie-cookie " these days! It is really hard for me to cope some days. I can't keep up with all the messes these new additions make, and the stress is unreal! I had forgotten how hard it is when someone is constantly interrupting you and demanding that you " come look at this " or " please get me that " . I don't have that much energy to begin with, and all those extra steps around the house really add up to sap what little strength I have left. Compounding all this is the fact that my son works 3rd shift. That means we have to watch the kids (without his help) for what amounts to two shifts - one where he is working and one where he is sleeping. He is sleep-deprived all the time, but he tries his best to take care of the kids. His goal was to move out as soon as he could, but I don't see this happening anytime soon with his work schedule. He needs live-in help. My husband is having a hard time dealing with everything. He comes home tired anyway, and then has to deal with " babysitting " every night. He's a good guy and loves the grandkids, but somebody please give us a break! Anyway, that's enough of a rant! Live ain't easy sometimes, but it's what we've got, so we just have to learn to deal with it! Take it easy and good luck with the little ones! Vikki Re: [ ] hi~ to moms with toddlers, how to deal Hi Gaby, I truly understand how hard it can be to take care of little ones and have RA. Im 31 and had 4 kids in 6 years. They are now ages 4-11. I remember when they were younger and how difficult it was to just get out of bed. Especially when you are on MTX. I was diagnosed a little over a year ago and believe Ive had this for several years. I dont have any answers for you. But I can say take one day at a time. Dont feel guilty--- because you cant control life. Dont worry or stress about what you think you should be doing. For me what did help was trusting that God would give me the strength I needed for what had to be done. Everyday at the end of the day I think I didnt do this or that and my husband saysto me often well if it was that important then God would helped you do that. I have had to look at things differently and figure out whats really important and not. There are some days I feed the kids and thats all nothing else. Not even the dishes get done. And some days we get alot done and I try to catch up. I have learned to swallow my pride and ask for the help of my husband. When we lived in CA and I had friends and family I asked them for help. Here in Missouri I dont have anyone yet and my kids are getting older so I depend on them alot. I am still trying to learn to not stress about it and remember all that matters is you daughter knows you love her and give her lots of hugs and kisses. She doesnt need a stressed out mom or a guilty mom just one that loves her and cuddles her. Remember to not look around the messy house when you cant clean it I wish I could more or even help out some. You dont happen to live near St. Louis do you? If so let me know. Take care and I will be praying for you. Love, Latisha aevasmommy <gabymark2@...> wrote: HI! i'm Gaby (23) and i have a 14 mo old girl. i have RA, and it's extremely hard for me to deal with the daily chores and keeping up with her. i'm soooo tired all the time, and achy. i'm on methotrexate and prednisone, but that is not helping. do you guys know of ways i could gain some strength or other treatment options for RA? It's not fair for her and not fair for me either. i need to be there for her. help? Gaby Aeva Quote Link to comment Share on other sites More sharing options...
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