FW: permeability rheumatological diseases---QUESTION ABOUT THIS

[Guest guest]

Sorry if this is confusing when I said it stays in the same spot I really meant

to say it is always the same leg but he says it hurts i a different spot.

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> > > ----- Forwarded Message ----

> > > From: jeanie ward <dreamjeanie@>

> > > To: " miralax " <miralax >

> > > Cc: merry wetherbee <merrywbee@>

> > > Sent: Sat, February 6, 2010 5:37:34 PM

> > > Subject: permeability rheumatological diseases

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> > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255

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[Guest guest]

From: greekteach@...To: miralax Subject: RE: permeability rheumatological diseases---QUESTION ABOUT THISDate: Mon, 27 Jun 2011 13:21:17 +0000

Have you thought about taking your son to a homeopath doctor? You might get answers to why he is sooo sensitive to things. Have you looked into leaky gut and candida? My suggestion would be to look into this route, we did and it is helping my children and myself. It was the best thing we did. Inhalers contribute to candida too. My 4 yr old daughter who has a high case of candida due to antibiotics and inhalers is free of asthma now. She was 1 1/2 - 2 when she started to show signs of asthma and needed inhalers. As of March, no more breathing problems. We are gluten and dairy free, eat everything organic, we drink lemon juice everyday, treating candida and taking supplements under the homeopath supervision. The diet has made a huge difference. Oh and we all have leaky gut which is in the process of healing. Good luck!

To: miralax From: mom2tyler@...Date: Mon, 27 Jun 2011 06:52:47 +0000Subject: Re: Fw: permeability rheumatological diseases---QUESTION ABOUT THIS

Actually he only takes Melatonin at night. When it was allergy season we had trouble finding one he could tolerate so we were trying different things. Once in a while he will need his inhaler. The toxic synovitis I was told is just a virus that lands in the hip joint. Personally I think his Dr. at that time came up with this when he couldn't find any other reason for the limp. He was 3 yrs old at the time. The only thing I think he took regularly then was singulair. Which is another story. LOL. I cannot give my son many things due to his sensitivity to everything. Even supplements and probiotics will cause an issue when taken for prolonged periods of time. I am finding that my son who is now almost 9 seems to have the biggest issue with additives and preservatives causing the worst symptoms. Since I am just finding alot of this out within the past year I cannot really make a time line but I am slowly putting things together. Like another post I recently had on how his tics had come at another time when he was possibly using those colored bath tabs on a regular basis and they have PEG in them He has multiple food intolerances and severe seasonal allergies both of which have atypical symptoms usually affecting his moods and behavior. This is alot of the reason it has taken so long to find a Dr. who understands it. But even the allergist thinks the breathing issue that took us to an ER one night was due to additives or preservatives. Basically since my son was a toddler he has had all sorts of issues that his Drs. could not figure out. He has had multiple evaluations due to behavior issues and asd symptoms but no one Dr. can agree it seems. I am just this past year after finding a new Ped. realizing that seasonal allergies along with food and chemical sensitivities have alot to do with these issues. > > >> > > > > > > > > > > > > > > ----- Forwarded Message ----> > > From: jeanie ward <dreamjeanie@>> > > To: "miralax " <miralax >> > > Cc: merry wetherbee <merrywbee@>> > > Sent: Sat, February 6, 2010 5:37:34 PM> > > Subject: permeability rheumatological diseases> > > > > > > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255> > >> >>

[Guest guest]

Okay................Was your child ever given Miralax? To: miralax Sent: Mon, June 27, 2011 3:18:15 PMSubject: Re: Fw: permeability rheumatological diseases---QUESTION ABOUT THIS

I am sorry I have put all this information out there and confused everyone. LOL. I will try to clear some of it up.

First I will say that I cannot at this moment give the timeline you suggest because I am still trying to link this stuff together myself. Since only recently did I find out that these issues can be due to medicines, foods, and such.

To explain a little more my sons Ped. that he had from about 9 mo. till just last year never connected anything an blew all my concerns off. I wish I would have changed Peds. sooner.

What I can do is give a short history of my sons behaviors and physical issues.

Also I now realize that PEG in one form or another has been in the picture since my son was a baby. In the form of Baby shampoo and many other forms cannot list right now due to how many years it has been.

1.) My son has always had trouble with rashes. When he was a baby he got the repeatable and of course the prescribed Nystatin cream. But they always seemed to come back.

2.) After starting daycare at 1 yr old and shortly after getting his flu shot my son developed rash after rash. I kept taking him back to the Dr. and all they would say was it is a virus. This particular time it would be on one part then go away only to reappear somewhere else. Which prompted his then Ped. to actually look in a book to figure out what it was. Where he came up with Gianotti Crosti Syndrome. Which is basically the bodys reaction to too many viruses. Since my son had just started daycare and kept catching everything it sounded plausible at the time. Plus he had the flu shot not long after being sick and not long before these rashes started.

I have to now wonder if it was more likely food intolerances since at daycares they serve milk and we are both intolerant to it. Something his Dr. who does the food intolerance muscle testing also thinks.

To this day my son gets rashes not bad ones but little red bumps that I cannot pinpoint the cause. Even on this special diet.

Also during this time my son had multiple ear infections which I was told was normal due to catching all the other things from daycare. I mean if he had a stuffy nose he would almost always end up with an ear infection.

It was also during this time between the ages of 1 and 2 yrs old that my son started Singulair and breathing treatments.

3.)My son has always had issues with changes in routine. Alot of the typical behaviors of children with ASD's. His Dr. at the time and alot of the specialists we have since seen like to blame it on me being a single parent and not strict enough. Or since I have anxiety he is just mimicking me etc. I always new different but had a hard time getting anyone to listen.

He also had alot of OCD type behaviors that I did not recognize at the time as OCD.

4.)At 3 yrs old my son had his first major episode with a daycare. He just refused to go one day and for weeks after he would cry and scream and run from me. He was biting himself at school. Chewing his shoes. Refusing to eat. So I took him out and we were referred to a therapist. Who could only come to the conclusion that a teacher must have said something to him.

This is one of the things I may have figured out. I remembered that at about this time they did a big remodel of this particular daycare and I came in one day to see that they had the cleaning supplies right where the children could get to it. A big tub of liquid. I now think this stuff may have set this episode off. But I have no way of knowing what that chemical was.

5.)Found a new daycare and after an adjustment period my son was doing pretty well. Although the repetitive questions and ocd behaviors were seemingly getting worse. Then again about a year and a half after being at this daycare too and with no known trigger the same behavior and refusing to go started again. It came to the point that he actually ran out of this daycare and they had to chase him into the parking lot. That is when I withdrew him from that one and started looking for answers.

During this time they had a preschool graduation where he was literally climbing the walls. This I think now may have been due to the party they had the day before with cupcakes etc. Since he had a similar problem this past year in 3rd grade the day after there Valentine party and his behavior caused him to get suspended.

This is also the period where he had his first limp appear. With no known cause. These limps last 5 to 7 days and are worse in the morning. I have found that ibuprofen will stop the pain. But even the orthopedic dr. could not give a cause. There was blood tests, xrays, an mri all done but all looked good. This is another thing the Ped. who does muscle testing thinks is food related. These limps have also reoccured once or twice a year since.

6.)I called his Dr. after this incident and another Dr. in the practice suggested he may have Aspergers so I looked into finding out if he did.

He was to start kindergarten in the fall so we went through Child Find who said it wasn't Aspergers and upon hearing his paternal Grandmother had been dx'd Bipolar at one point said they thought it was that.

7.)Started kindergarten in a self contained sp. ed class and although very rigid. Did so well they exited him in the first grade. He did so well because this setting is the perfect setting for my son a small class that is very structured and routine.

8.)Had different evaluations during this period and diagnosed with everything from Aspergers to Bipolar.

9.)Between Kindergarten and 1st grade is when I realized the bad effects of Singulair and took my son off of it even though his Ped. didn't think that it could cause the mood swings, prolonged tantrums, etc. He improved alot after I took him off of it.

10.) Started 1st grade in a regular class. Although teacher was nice she was not structured and routine enough and class was too much for my son to handle. Teacher approached me to see about reevaluating my son for sp. ed. again. This particular year a new Principal had started and did not like to give services. Teacher found this out and changed her handling of the reevaluation. Same with Fascilitator. Then I ended up fighting to get my son services the whole year even having to go over the Principals head to make her evaluate my son.

This is the year my sons tics first appeared. Which I now wonder if it may be due to those bath tabs.

I have to explains something else about my son that I have come to find. He seems to have issues with processing things. Where as a little may not show symptoms but if used or taken regularly then symptoms appear. So he could have been using different things with PEG in them and putting these tabs in on a daily basis caused overload. (Daily basis-my son makes a routine out of everything) From what he eats to products he will use.

11.) My sons Psychologist suggested medication for his anxiety so between 1st and 2nd grade during the summer we tried Zoloft. Worked great at first but within about a month or maybe 2 it seems to have caused mania. So I took him off. This was at the end of summer and the start of the school year. Took 1 dose of strattera and instant mood change so I refused to use any other medications like this. The Psychiatrist we saw was the one who suggested Melatonin to help my son sleep when her original suggestion of Benedryl did the opposite.

Tics again appeared during 2nd grade but I cannot remember the timeline of exactly when. I am still researching that.

12.) Although my son had an IEP and was in sp. ed. This schools sp. ed was actually more unstructured than the reg. ed. due to being year round and having pull out class time. So now my sons negative behavior which before usually came out at home started to show up at school. His Resource Teacher was kicking him out of resource on a daily basis at one point because she couldn't handle him. So she would send him to his Reg. Ed. teacher to handle him.

13.) Took my son out of this school and put him into a Charter school. Thought all was going well. But it was just on the surface because my son had found something to focus on and get through the days. Anyways this is when I started looking into his problems with all those medications and what in them could have caused it. I also wonder now about the school and pesticides since they did at one time have roaches then all of a sudden none. It was a used building but quite new looking. This school had just moved into it. My son started obsessive hand washing, tics, chewing on his lip to the point of sores, chewing his clothes (something he had always done in the winter with long sleeves but now it was the neckline too, repetetive questions got really bad, sensory issues got bad too. We thought it was anxiety. Then during Christmas break we found Dr. Baker and he started him on the yeast free dairy free diet with a digestive enzyme, probiotic, and

nystatin (which we had to stop due to inactive ingredients. The change was miraculous. My son didn't even need the Melatonin to sleep at night. His schools Resource teacher noticed he was less anxious, he was less rigid and just a different kid. But then pollen season came and even though we kept finding new food intolerances and taking them out of his diet his behavior/mood just got worse. He also had to start taking his Melatonin again. I now realize these behavior and mood changes along with prior asthma related symptoms and soar throats, strep all came at the same time every year. From the end of January till the end of May. Due to allergy testing I found that he is allergic to most all pollens we have here in Vegas.

But the school also refused to be helpful when it came to diet implementation and my son did not like being singled out by refusing things. This particular charter school used food for rewards alot. Anyways this is what led to the Valentine party and the suspension the next day which led to my sons obsessive focus I referred to that was getting him through the day. Which was a perfect attendance record. So once he got suspended that was blown and the behaviors returned and he started refusing to go again. So after trying everything, even another school. I decided to homeschool and online school next year.

Also right now he is only on Melatonin to help sleep. I am waiting to see his Ped. who does muscle testing now that pollen season is over to see if he thinks yeast is still an issue.

Although he is the one who suggested Miralax he is the only one who seems to really understand these food intolerances and environmental sensitivities. Any suggestions on how I should bring up the Miralax thing. He knows it caused the tics. I just cannot stop being upset that he even suggested it in the first place knowing what he knows about my sons chemical sensitivities.

Sorry this is so long but we have been at this a long time.

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> > > > ----- Forwarded Message ----

> > > > From: jeanie ward <dreamjeanie@>

> > > > To: "miralax " <miralax >

> > > > Cc: merry wetherbee <merrywbee@>

> > > > Sent: Sat, February 6, 2010 5:37:34 PM

> > > > Subject: permeability rheumatological diseases

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> > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255

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[Guest guest]

Only one time has my son ever taken Miralax. This was about a month ago and he

only took it a few times.

I have to ask something. Are you only looking into Miralax reactions or any PEG

products that cause reactions? Since my son only took the Miralax the one time

but due to his sensitivity to chemicals I am now wondering if other products

that contain PEG could have affected him.

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> > > > > ----- Forwarded Message ----

> > > > > From: jeanie ward <dreamjeanie@>

> > > > > To: " miralax " <miralax >

> > > > > Cc: merry wetherbee <merrywbee@>

> > > > > Sent: Sat, February 6, 2010 5:37:34 PM

> > > > > Subject: permeability rheumatological diseases

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> > > > >

> > > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255

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[Guest guest]

I have to apologize since after rereading my long history here I realized I did

not include the time he took Miralax. I think I was getting tired and

overlooked that KEY point. But it was just about 1 month ago in May of this

year. Which is after I withdrew him from school to homeschool.

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> > > > > ----- Forwarded Message ----

> > > > > From: jeanie ward <dreamjeanie@>

> > > > > To: " miralax " <miralax >

> > > > > Cc: merry wetherbee <merrywbee@>

> > > > > Sent: Sat, February 6, 2010 5:37:34 PM

> > > > > Subject: permeability rheumatological diseases

> > > > >

> > > > >

> > > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255

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[Guest guest]

I have to go to your other e-mail to answer these questions to see what he took, so I'm going to answer these questions on a different reply...............To: miralax Sent: Mon, June 27, 2011 8:54:31 PMSubject: Re: Fw: permeability rheumatological

diseases---QUESTION ABOUT THIS

Only one time has my son ever taken Miralax. This was about a month ago and he only took it a few times.

I have to ask something. Are you only looking into Miralax reactions or any PEG products that cause reactions? Since my son only took the Miralax the one time but due to his sensitivity to chemicals I am now wondering if other products that contain PEG could have affected him.

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> > > > > ----- Forwarded Message ----

> > > > > From: jeanie ward <dreamjeanie@>

> > > > > To: "miralax " <miralax >

> > > > > Cc: merry wetherbee <merrywbee@>

> > > > > Sent: Sat, February 6, 2010 5:37:34 PM

> > > > > Subject: permeability rheumatological diseases

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> > > > > http://www.ncbi. nlm.nih.gov/ pubmed/2670255

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