Question

[Guest guest]

Dear martha:

I kept telling my nsgs last fall that my head was going to fall off and that

my neck couldn't support it. What you're saying kind of makes sense to me.

It made sense to my nsg also. My head felt like that whether I was walking

or doing anything other than lying down.

Anyway, there it is. and by the way, my family has always thought I was

stupid. - ha.

Been there done that,

Jen in NM

>

>I was wondering, have any of you ran or got into a big hurry and picked up

>the walking pace and it felt like your head would bobble off if you didn't

>hold it? I don't know if that makes any sense to anyone or not. This has

>been going on with me for a long time and I thought it is normal til I

>started talking to my family and they think I am stupid. We were sitting

>around talking about the things I used to do.

>Thanks in advance.

>Martha P

>mott@...

>icq # 11138464

> " Everyone has opinions, like everyone has a butt. "

>

>

>

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[Guest guest]

Hi Martha,

This bobbling thing-- it makes sense and I do know what you mean--a heavy

feeling head and goofed up muscles in the neck that don't support it

normally--a floating feeling with pressure (right? or no?) I suppose your

balance is kind of goofed up too? Tripping up stairs now and then? Almost

tipping over for no reason?

Meribeth in MI

Question

>Morning to all,

>I was wondering, have any of you ran or got into a big hurry and picked up

>the walking pace and it felt like your head would bobble off if you didn't

>hold it? I don't know if that makes any sense to anyone or not. This has

>been going on with me for a long time and I thought it is normal til I

>started talking to my family and they think I am stupid. We were sitting

>around talking about the things I used to do.

>Thanks in advance.

>Martha P

>mott@...

>icq # 11138464

> " Everyone has opinions, like everyone has a butt. "

>

>

>

>------------------------------------------------------------------------

>WACMA Site: http://www.pressenter.com/~wacma

>Your Personal support group member page:

http://www.eGroups.com/group/chiari/

>**Avoid List Congestion:

>Unsubscribe from this list: mailto:chiari-unsubscribeegroups

>Contact list mgmt: mailto:chiari-owneregroups

>

>

[Guest guest]

a floating feeling with pressure (right? or no?) I suppose your

balance is kind of goofed up too? Tripping up stairs now and then? Almost

tipping over for no reason?<snip>

<<<

Yes, and falling off the front porch and back porch at different times.

Martha P

mott@...

icq # 11138464

" Everyone has opinions, like everyone has a butt. "

[Guest guest]

Hi Everybody,

How are you?

I would have to say that this is just plain wrong.

Of course you don't have to have a Family History of

it to have it yourself. I wonder where some Health

Professionals come up with some of the things they

say!?!

Take Care,

Brande

NotYou@...

My fathers nerurologist claims I cannot have Chiari since I have no family

history.  Is she wrong?

Take Care,

Brande

NotYou@...

Join the Conversation! Chat at http://www.talkcity.com

[Guest guest]

I have heard it does. I have not seen it in my own cycle however.

----------

From: SMIRAB@...

To: diabetes

Subject: Question

Date: Tue, May 22, 2001, 5:19 PM

Hi, My numbers have shot up to 160-185 range for the past few days. Does a

woman's monthly cycle affect this? Or even headaches? I have had a major one

for 2-3 days. I am not eating anything I shouldn't be. I even started mall

walking yesterday, 2 miles yesterday and today. I really expected my numbers

to go down but they aren't. I sure am confused!!! Help!!! Jan

[Guest guest]

---Have you taken your blood reading? what is it now?

In diabetes@y..., " Beth Capozio " <katiebug1998@h...> wrote:

> I have a question that you all may or may not be able to answer.

When you all were first diagnosed, did you have more bad days than

good? I'm sure it's different for each person. I went from feeling

bad yesterday to being very sick and in the hospital last night.

Today I felt better but now I'm feeling bad again (not as bad as last

night). I didn't think I should feel bad that often. I am going to

look for a new Dr tomorrow as my PCP won't treat my diabetes. He led

me to believe it was no big deal. I hope a new Dr will be able to

help me with this. I hate feeling so out of control.

>

> Beth

>

>

>

[Guest guest]

> ---Am glad you are taking the initiative to find a doctor that can

> help you. A diabetic dr. would be the best choice but if you have

> ins. that requires a referral you may need to find a family dr

first

> in order to get that.

> Yes, I have had bad days.

Regardless of the doctor you choose, the most important thing is to

have faith, trust and confidence in them. You are going to be seeing

them often, probably every three months for awhile. I just see my

family doctor and I am really satisfied with her. She is very sweet,

understanding, all the qualities I look for in a doctor.

I think everyone has bad days. I know I do. Sometimes it is so hard

to get on the treadmill after I've eaten more carbs than I should,

but I make myself do it. Again, Beth, dealing with diabetes will get

easier.

Keep asking all the questions you want to. As you ask questions, we

are also learning.

Eunice

[Guest guest]

Now my question is: Is only a four point rise

> normal? Is this

> really accurate? Orange juice will send me to the

> moon and the donut

> along with it will fly me probably to Pluto and

> leave me there.

> Thanks for listening to me let off some steam!!! I

> am happy for her

> if this stays normal but am not real happy for me

> Madge

>

> I'm new to all of this so I'm not to sure if I can

be of any help, but I found out that if i want a no-no

to eat I work up a " sweat " before I eat and most of

the time my sugar is not affected my the no-no I just

enjoyed There are certain foods that that does not

work with, those iI have learned to stay completely

away from

God Bless

Caorl

[Guest guest]

---Hi Carol

Unfortunately I have found that there is a lot of stuff I can't

tolerate!! Pasta, bread, orange juice and forget all cakes and

candy. No matter how low my Bg is before eating any of the above

guaranted it will be in excess of 200-300 in no time flat. Not worth

it. So I have learned to compensate thanks to the list!!

Madge

In diabetes@y..., Carol Stark <carolrstark@y...> wrote:

>

> Now my question is: Is only a four point rise

> > normal? Is this

> > really accurate? Orange juice will send me to the

> > moon and the donut

> > along with it will fly me probably to Pluto and

> > leave me there.

> > Thanks for listening to me let off some steam!!! I

> > am happy for her

> > if this stays normal but am not real happy for me

> > Madge

> >

> > I'm new to all of this so I'm not to sure if I can

> be of any help, but I found out that if i want a no-no

> to eat I work up a " sweat " before I eat and most of

> the time my sugar is not affected my the no-no I just

> enjoyed There are certain foods that that does not

> work with, those iI have learned to stay completely

> away from

> God Bless

> Caorl

[Guest guest]

,

I use to take Flexeril. I no longer take it because it doesnt help

me anymore.

ka

> I was wondering if anyone else is taking flexeril? My doctor has

me

> on it. I take it at night before bed. Just curious.

>

> Hope everyone is doing well today. :-) or as well as can be

expected

> lol

>

>

[Guest guest]

Hi group!

Do any of you use a cream (i.e Bengay) to help with muscle cramps or spasms? I cannot always be taking the muscle relaxers, otherwise I will sounds a sleep on my desk at work!

Thanks so much.

Love to all,

[Guest guest]

Hi :

Most MSers have to be careful with Bengay or stuff like that. Sometimes the heat it gives the muscles is enough to cause us some problems. Remember MSers are affected by hot showers, etc? Other times the nerve issues we already have will escalate wildly by using Bengay. I have successfully used a product called Sombra. It's a natural product made in New Mexico. The physical therapist I went to used it and sold it in his office.

So you are having muscle cramps then? Muscle relaxers aren't always the best thing for MS-Muscle Cramps. With MSers what they are experiencing is usually muscle spasms and spasticity. Do you take Neurontin or Baclofen? There's another popular one and I can't think of the name of it right now.

Sharonkrissyinnh@... wrote:

Hi group!

Do any of you use a cream (i.e Bengay) to help with muscle cramps or spasms? I cannot always be taking the muscle relaxers, otherwise I will sounds a sleep on my desk at work!

Thanks so much.

Love to all,

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge__________________________________________________

[Guest guest]

I agree 100% Sharon. After I had Chloe and was complaining to the doctor about the pain in my legs and back, he prescribed Flexaril (cyclobenzaprine) Number 1 it did nothing for the pain but knocked me out enough so that I didn't feel anything. After MS, I was diagnosed with muscle spasms and was given Baclofen. At one point I was up to 4 10mg pills a day. Now I only take 2 and that seems to do the trick. I feel alot more limber, the muscles don't seem as tight or stiff, and I can walk with little difficulty most days.

Is the other medication you are talking Gabadril(sp)? My father was taken of Neurontin and put on Gabadril for his sever almost convulsion like spasms with very good effect.

Sharon Marsden wrote:

Hi :

Most MSers have to be careful with Bengay or stuff like that. Sometimes the heat it gives the muscles is enough to cause us some problems. Remember MSers are affected by hot showers, etc? Other times the nerve issues we already have will escalate wildly by using Bengay. I have successfully used a product called Sombra. It's a natural product made in New Mexico. The physical therapist I went to used it and sold it in his office.

So you are having muscle cramps then? Muscle relaxers aren't always the best thing for MS-Muscle Cramps. With MSers what they are experiencing is usually muscle spasms and spasticity. Do you take Neurontin or Baclofen? There's another popular one and I can't think of the name of it right now.

Sharonkrissyinnh@... wrote:

Hi group!

Do any of you use a cream (i.e Bengay) to help with muscle cramps or spasms? I cannot always be taking the muscle relaxers, otherwise I will sounds a sleep on my desk at work!

Thanks so much.

Love to all,

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

__________________________________________________

[Guest guest]

Sharon, I haven't worn contacts in years....I miss doing that. Maybe I should go in and get a prescription for the moment!! LOL I wanted to get my eye's laser surgery so I don't have to wear glasses but the Doc say's that I can't since it is optic neuritis and can't be fixed.

Darlene

Kickin Cane Covers

www.canecovers.org

-- [Norton AntiSpam] question

Hi Bill, Thanks for your insight. I have had trouble with the heat for the last several years, but honestly I think it is related more to having gone through menopause (sorry for being so open) but that is no longer an issue and I don't seem to be having as much trouble. My Dad however started having a cluster type of migraine in his 40's due to being out in the heat and to this day he cannot take heat even though the migraines are no longer an issue for him. I'm pretty sure it is from his mother that I have inherited RA and OA. Doesn't matter - I loved that woman dearly!

Your pictures are great - looks like you and your family love doing things together.

Hi heat is a real big enemy to MS I have had double vision now since this past August and I know it was from my being out too long on a few too warm day's we had here in Indiana. I have had 2 steroid treatments and my eye's are a lot better but not back to normal. The heat may have caused you trouble running. Next summer I will limit myself being in the sun too long.

We also took a trip to Florida in April of 2003 and I stayed in the sun too long watching the walt disney parade they have everyday and the sun was so hard on me I couldn't get out of a wheelchair for about 6 weeks. I was glad it went away.

here is a photo of me with my family.

http://moviepics.blogspot.com/

Bill

Yahoo! PersonalsSkip the bars and set-ups and start using Yahoo! Personals for free

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

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