Re: Diff between MS pain and RA pain???

January 9, 2005

Hi! Believe it or not, I have both MS and RA--a double whammy.

Thankfully my MS has been kind to me and I have few symptoms, but MRI

shows lesions on brain. MY RA however is awful. The catch 22 is

finding a medicine that I can take that won't affect MS--all the TNF

inhibitors make MS worse. My doc is actually thinking of putting me

back on Enbrel since the RA is the big problem--throw caution to the

wind.

MS can cause tremendous facial pain--like sharp needles. I thankfully

haven't experienced that. I'm only 36 but have had a RA dx since 1996

and an MS dx since 1995.

Kirsten

-- In , " lem820 " <lem820@y...> wrote:

>

> Does anyone suffer from both of these horrible afflictions?..I saa

> Montel the other day and he was talking about the " pain "

that

> he was in, especially at night. He also revealed that he takes

> " medicinal marijuana " for his MS pain. (he has tried morphine drips

> and they do not work!!) He swears by the pot..I do not think my RA

> pain is as bad to ask the doc to prescribe medicinal m.j. ..the

> question I have is: Does anyone know or have any idea as to what

kind

> of pain he might be referring to??...How does it differ from the

pain

> that we with RA suffer from??..

>

> Shrug..I guess everyone has their own definition, thresholds of

pain,

> and such, but thought I would put this question out here as the

pain I

> feel is quite REAL..

>

> Soft hugs...

>

> Lindylou

> from rainy Calif..

January 9, 2005

Hi! Believe it or not, I have both MS and RA--a double whammy.

Thankfully my MS has been kind to me and I have few symptoms, but MRI

shows lesions on brain. MY RA however is awful. The catch 22 is

finding a medicine that I can take that won't affect MS--all the TNF

inhibitors make MS worse. My doc is actually thinking of putting me

back on Enbrel since the RA is the big problem--throw caution to the

wind.

MS can cause tremendous facial pain--like sharp needles. I thankfully

haven't experienced that. I'm only 36 but have had a RA dx since 1996

and an MS dx since 1995.

Kirsten

-- In , " lem820 " <lem820@y...> wrote:

>

> Does anyone suffer from both of these horrible afflictions?..I saa

> Montel the other day and he was talking about the " pain "

that

> he was in, especially at night. He also revealed that he takes

> " medicinal marijuana " for his MS pain. (he has tried morphine drips

> and they do not work!!) He swears by the pot..I do not think my RA

> pain is as bad to ask the doc to prescribe medicinal m.j. ..the

> question I have is: Does anyone know or have any idea as to what

kind

> of pain he might be referring to??...How does it differ from the

pain

> that we with RA suffer from??..

>

> Shrug..I guess everyone has their own definition, thresholds of

pain,

> and such, but thought I would put this question out here as the

pain I

> feel is quite REAL..

>

> Soft hugs...

>

> Lindylou

> from rainy Calif..

January 9, 2005

Hi,

It's Judi in soggy Indiana (southern half)

I don't have RA but have Dercum's Disease and fibro, and, according

to my neurologist, " very early MS. " The Dercum's causes a lot of

pain, as does fibro, and as far as MS goes, the only thing that has

really shown up is the brain lesion and some other minor problems

relating to MS. I also have trigeminal neuralgia. Can't take any

TNF inhibitors either because they aggravate MS...and they also

aggravate the Dercum's. I was on experimental chemotherapy last year

(alpha Interferon) which caused the Dercum's tumors to grow fast and

furious besides extreme joint pain and fevers, so they took me off

it. Most recently I was told that even though Remicade shows some

promise for Dercum's, it's contra-indicated in MS!

I have a lot of respect for Montel--he's overcome a lot.

Judi

January 9, 2005