Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 http://www.fightipf.com/wt/page/index http://www.pilotforipf.org/ http://www.merck.com/mmhe/sec04/ch050/ch050b.html http://www.healthnewsflash.com/conditions/idiopathic_pulmonary_fibrosis.php I have more sites but this should give you a lot of info P UIP 8/2000 doughtydiana wrote: I am so new to all of this. My husband and the love of my life was diagonsed with IPF in May. When I spoke to the doctor he told me that 1/3 can live for 5 years,1/3 can live for 10 years and the other 1/3 need a lung transplant and is treated with heavy doses of steroids. Well my husband is in the last 1/3, and is too old for a lung transplant. We are learning and I am trying to be patient with him. He is getting very demanding which I feel is probably his frustration and anger coming out. Ell is on oxygen 24/7 and tries to keep active. We are noticing dizziness and being very unsteady. Ell's coordination is also getting bad. That is just a couple of things that are happening. I called the doctor and asked for some info or reading material that might help me understand and it is the same old story, "Make an appointment and we can talk". I do that and I learn absolutely nothing. If anyone can shed some light I would greatly appreciate it. Groups are talking. We´re listening. Check out the handy changes to Yahoo! Groups. Quote Link to comment Share on other sites More sharing options...
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