Guest guest Posted January 9, 2005 Report Share Posted January 9, 2005 Hi everyone, Sorry I don't post much but I do read all the messages on the list. My hands have really been bothering me since I can't take any of my old RA meds..including MTX which was working a whole lot better than I realized. I've started having horrible flares in hands, wrists, feet and elbows which precludes much typing-or anything else for that matter. Oh well, like everyone else, I just take it 1 day at a time; remain grateful for what I can do and pray for a miracle!!! I must admit I forgot how terribly painful a fullblown flare is. Anyway, right now I'm on oxycontin:20am,10 afternoon and 10pm. My doc going to increase dosage slowly. Also have added 10mgs pred. YUCK!!!! Made it down to ll0lbs. from 170 and now I'm just waiting for the scales to go up. Because of my liver, many meds can't be taken including MTX, anything with Tylenol, aspirin,etc, I'm allergic to sulfa and plaquenil. That leaves the biologics which I can't take because of a seizure disorder. So my doctor wants to start me on Kinaret injections every day. Not too crazy about that but can handle the shots if they help. My only fear is that I've heard the med causes a pretty bad skin reaction. I'm supposed to take a benadryl and rub cortisone(sp) cream on my skin 1 hr. before the injection. Sorry this has turned into a book but I'm a little nervous about starting a new drug after all the problems I've had and am hoping someone out there can give me some info before I start this. The prefilled syringes will be in Monday but I have to go to shot class in case I have a reaction to it. Any help will be greatly appreciated. Don't be afraid to tell me if the Kinaret hurts...that's the least of my worries. Thanks tons and God Bless, in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 , Kineret (anakinra) is a biologic, but it inhibits IL-1 instead of TNF. I know of a few success stories. Skin reactions can occur, but don't have to. Have you tried reading information on Kineret at the manufacturers site? http://www.kineretrx.com/ I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Anyone have any info/experience with Kineret? > > > Hi everyone, Sorry I don't post much but I do read all the messages on the > list. My hands have really been bothering me since I can't take any of my > old RA meds..including MTX which was working a whole lot better than I > realized. I've started having horrible flares in hands, wrists, feet and > elbows which precludes much typing-or anything else for that matter. Oh > well, like everyone else, I just take it 1 day at a time; remain grateful > for what I can do and pray for a miracle!!! I must admit I forgot how > terribly painful a fullblown flare is. > Anyway, right now I'm on oxycontin:20am,10 afternoon and 10pm. My doc > going > to increase dosage slowly. Also have added 10mgs pred. YUCK!!!! Made it > down > to ll0lbs. from 170 and now I'm just waiting for the scales to go up. > Because of my liver, many meds can't be taken including MTX, anything with > Tylenol, aspirin,etc, I'm allergic to sulfa and plaquenil. That leaves the > biologics which I can't take because of a seizure disorder. So my doctor > wants to start me on Kinaret injections every day. Not too crazy about > that > but can handle the shots if they help. My only fear is that I've heard the > med causes a pretty bad skin reaction. I'm supposed to take a benadryl and > rub cortisone(sp) cream on my skin 1 hr. before the injection. > Sorry this has turned into a book but I'm a little nervous about starting > a > new drug after all the problems I've had and am hoping someone out there > can > give me some info before I start this. The prefilled syringes will be in > Monday but I have to go to shot class in case I have a reaction to it. Any > help will be greatly appreciated. Don't be afraid to tell me if the > Kinaret > hurts...that's the least of my worries. > Thanks tons and God Bless, > in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 , Kineret (anakinra) is a biologic, but it inhibits IL-1 instead of TNF. I know of a few success stories. Skin reactions can occur, but don't have to. Have you tried reading information on Kineret at the manufacturers site? http://www.kineretrx.com/ I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Anyone have any info/experience with Kineret? > > > Hi everyone, Sorry I don't post much but I do read all the messages on the > list. My hands have really been bothering me since I can't take any of my > old RA meds..including MTX which was working a whole lot better than I > realized. I've started having horrible flares in hands, wrists, feet and > elbows which precludes much typing-or anything else for that matter. Oh > well, like everyone else, I just take it 1 day at a time; remain grateful > for what I can do and pray for a miracle!!! I must admit I forgot how > terribly painful a fullblown flare is. > Anyway, right now I'm on oxycontin:20am,10 afternoon and 10pm. My doc > going > to increase dosage slowly. Also have added 10mgs pred. YUCK!!!! Made it > down > to ll0lbs. from 170 and now I'm just waiting for the scales to go up. > Because of my liver, many meds can't be taken including MTX, anything with > Tylenol, aspirin,etc, I'm allergic to sulfa and plaquenil. That leaves the > biologics which I can't take because of a seizure disorder. So my doctor > wants to start me on Kinaret injections every day. Not too crazy about > that > but can handle the shots if they help. My only fear is that I've heard the > med causes a pretty bad skin reaction. I'm supposed to take a benadryl and > rub cortisone(sp) cream on my skin 1 hr. before the injection. > Sorry this has turned into a book but I'm a little nervous about starting > a > new drug after all the problems I've had and am hoping someone out there > can > give me some info before I start this. The prefilled syringes will be in > Monday but I have to go to shot class in case I have a reaction to it. Any > help will be greatly appreciated. Don't be afraid to tell me if the > Kinaret > hurts...that's the least of my worries. > Thanks tons and God Bless, > in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi I did Kineret for 6 mo without success. Good Luck Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi I did Kineret for 6 mo without success. Good Luck Joanne Quote Link to comment Share on other sites More sharing options...
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