Guest guest Posted July 30, 2000 Report Share Posted July 30, 2000 In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, marykaywilson@... writes: > Hi! > Can anyone tell me what meds do they use for the iching. I have a Dr. > appointment today. I have the ich so bad I wake up during the night now. > My primary care Dr. has no clue what to do with me but have to go > through her 1st. > > Thanks > Marilyn This is a repeat of what I know about itching. (Those that have heard my sphiel before can move on to the next posting) Causes of Itching (medical term, puritis) PSC causes the bile ducts to be blocked. The bile backs up in the liver because it cannot drain properly. The backed up bile gets absorbed by the circulatory system and carried to the rest of the body. The bile somehow increase the sensitivity of nerve receptors in the skin and causes itching. Puritis seems to first be noticed in feet/legs, then arms. then rest of body. This varies from person to person. Heat (like hot bath or shower) can cause the itching to worsen. Cholestyramine (Questran--A gross yellow powder partially soluble in water) Cholestyramine binds bile salts in and prevents them from being reabsorbed in the lower intestine. The cholestyramine and bile are " passed " which reduces the overall load of bile in the body. Cholestyramine will also bind Actigall/Urso and render it inactive. If one is to take both medications, they must be taken several hours apart. The most effective protocol might be to take the Questran in the morning before eating any food. Bile gets stored throughout the night so that it can help digest the fats in breakfast. Then have a breakfast to trigger bile release but it should be low in fat. A high fat breakfast could make you feel ill because much of your bile is being bound by Questran. Then take one-third of your actigall dose at about noon, one-third at about 5-6pm, and one-third just before bed. Many of us with PSC also have indigestion and reflux. I personally deal with it with over the counter antacid/heartburn medication. Atarax When my biliruben goes up, I must increase my cholestyramine intake to twice a day and also take Atarax, an antihistamine. I take a very large dosage (50 mg) twice a day. Otherwise, I scratch until I bleed. Other interesting info My GI doctor and a dermatologist never thought to prescribe Questran. They tried different types of antihistamines instead. My hepatologist prescribed the Questran and implied that many doctors did not even know that it is effective for Puritis. Many of us in the Group swear by cholestyramine. Also keep your skin well moisturized. Dry skin doesn't cause the itching but it doesn't help it either. Adam dx96 Age 34 almost a daddy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 Thank you for the information on iching. Marilyn psc 2b age 55 2 grown girls adampsc96@... wrote: > In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, > marykaywilson@... writes: > > > Hi! > > Can anyone tell me what meds do they use for the iching. I have a Dr. > > appointment today. I have the ich so bad I wake up during the night now. > > My primary care Dr. has no clue what to do with me but have to go > > through her 1st. > > > > Thanks > > Marilyn > > This is a repeat of what I know about itching. (Those that have heard my > sphiel before can move on to the next posting) > > Causes of Itching (medical term, puritis) > PSC causes the bile ducts to be blocked. The bile backs up in the liver > because it cannot drain properly. The backed up bile gets absorbed by the > circulatory system and carried to the rest of the body. The bile somehow > increase the sensitivity of nerve receptors in the skin and causes itching. > Puritis seems to first be noticed in feet/legs, then arms. then rest of body. > This varies from person to person. Heat (like hot bath or shower) can cause > the itching to worsen. > > Cholestyramine (Questran--A gross yellow powder partially soluble in water) > Cholestyramine binds bile salts in and prevents them from being reabsorbed in > the lower intestine. The cholestyramine and bile are " passed " which reduces > the overall load of bile in the body. Cholestyramine will also bind > Actigall/Urso and render it inactive. If one is to take both medications, > they must be taken several hours apart. The most effective protocol might be > to take the Questran in the morning before eating any food. Bile gets stored > throughout the night so that it can help digest the fats in breakfast. Then > have a breakfast to trigger bile release but it should be low in fat. A high > fat breakfast could make you feel ill because much of your bile is being > bound by Questran. Then take one-third of your actigall dose at about noon, > one-third at about 5-6pm, and one-third just before bed. Many of us with PSC > also have indigestion and reflux. I personally deal with it with over the > counter antacid/heartburn medication. > > Atarax > When my biliruben goes up, I must increase my cholestyramine intake to twice > a day and also take Atarax, an antihistamine. I take a very large dosage (50 > mg) twice a day. Otherwise, I scratch until I bleed. > > Other interesting info > My GI doctor and a dermatologist never thought to prescribe Questran. They > tried different types of antihistamines instead. My hepatologist prescribed > the Questran and implied that many doctors did not even know that it is > effective for Puritis. Many of us in the Group swear by cholestyramine. > Also keep your skin well moisturized. Dry skin doesn't cause the itching but > it doesn't help it either. > > Adam dx96 > Age 34 almost a daddy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 My itching disappeared when I dropped lactose and sugar from my diet. It was a while before I realized what had happened, but about three months after I'd changed the diet, I realized I hadn't touched my large collection of skin creams in ages. My dermatologist, btw, was useless. He took a lot at me about a year before the psc dx (and before the uc became symptomatic) and decided that I had mono! jon uc,psc dx94 {new to the list} > Re: Marilyn itching > > Thank you for the information on iching. > Marilyn > psc 2b age 55 2 grown girls > adampsc96@... wrote: > > > In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, > > marykaywilson@... writes: > > > > > Hi! > > > Can anyone tell me what meds do they use for the iching. I have a Dr. > > > appointment today. I have the ich so bad I wake up during the night > now. > > > My primary care Dr. has no clue what to do with me but have to go > > > through her 1st. > > > > > > Thanks > > > Marilyn > > > > This is a repeat of what I know about itching. (Those that have heard > my > > sphiel before can move on to the next posting) > > > > Causes of Itching (medical term, puritis) > > PSC causes the bile ducts to be blocked. The bile backs up in the liver > > because it cannot drain properly. The backed up bile gets absorbed by > the > > circulatory system and carried to the rest of the body. The bile > somehow > > increase the sensitivity of nerve receptors in the skin and causes > itching. > > Puritis seems to first be noticed in feet/legs, then arms. then rest of > body. > > This varies from person to person. Heat (like hot bath or shower) can > cause > > the itching to worsen. > > > > Cholestyramine (Questran--A gross yellow powder partially soluble in > water) > > Cholestyramine binds bile salts in and prevents them from being > reabsorbed in > > the lower intestine. The cholestyramine and bile are " passed " which > reduces > > the overall load of bile in the body. Cholestyramine will also bind > > Actigall/Urso and render it inactive. If one is to take both > medications, > > they must be taken several hours apart. The most effective protocol > might be > > to take the Questran in the morning before eating any food. Bile gets > stored > > throughout the night so that it can help digest the fats in breakfast. > Then > > have a breakfast to trigger bile release but it should be low in fat. A > high > > fat breakfast could make you feel ill because much of your bile is being > > bound by Questran. Then take one-third of your actigall dose at about > noon, > > one-third at about 5-6pm, and one-third just before bed. Many of us > with PSC > > also have indigestion and reflux. I personally deal with it with over > the > > counter antacid/heartburn medication. > > > > Atarax > > When my biliruben goes up, I must increase my cholestyramine intake to > twice > > a day and also take Atarax, an antihistamine. I take a very large > dosage (50 > > mg) twice a day. Otherwise, I scratch until I bleed. > > > > Other interesting info > > My GI doctor and a dermatologist never thought to prescribe Questran. > They > > tried different types of antihistamines instead. My hepatologist > prescribed > > the Questran and implied that many doctors did not even know that it is > > effective for Puritis. Many of us in the Group swear by cholestyramine. > > Also keep your skin well moisturized. Dry skin doesn't cause the > itching but > > it doesn't help it either. > > > > Adam dx96 > > Age 34 almost a daddy. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Thank you so much for the info. I now also have tingling in my hand and feet this is new. I am listed as 2b . Marilyn Jon Hill wrote: > My itching disappeared when I dropped lactose and sugar from my diet. It > was a while before I realized what had happened, but about three months > after I'd changed the diet, I realized I hadn't touched my large collection > of skin creams in ages. My dermatologist, btw, was useless. He took a lot > at me about a year before the psc dx (and before the uc became symptomatic) > and decided that I had mono! > > jon > uc,psc dx94 > {new to the list} > > > Re: Marilyn itching > > > > Thank you for the information on iching. > > Marilyn > > psc 2b age 55 2 grown girls > > adampsc96@... wrote: > > > > > In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, > > > marykaywilson@... writes: > > > > > > > Hi! > > > > Can anyone tell me what meds do they use for the iching. I have a Dr. > > > > appointment today. I have the ich so bad I wake up during the night > > now. > > > > My primary care Dr. has no clue what to do with me but have to go > > > > through her 1st. > > > > > > > > Thanks > > > > Marilyn > > > > > > This is a repeat of what I know about itching. (Those that have heard > > my > > > sphiel before can move on to the next posting) > > > > > > Causes of Itching (medical term, puritis) > > > PSC causes the bile ducts to be blocked. The bile backs up in the liver > > > because it cannot drain properly. The backed up bile gets absorbed by > > the > > > circulatory system and carried to the rest of the body. The bile > > somehow > > > increase the sensitivity of nerve receptors in the skin and causes > > itching. > > > Puritis seems to first be noticed in feet/legs, then arms. then rest of > > body. > > > This varies from person to person. Heat (like hot bath or shower) can > > cause > > > the itching to worsen. > > > > > > Cholestyramine (Questran--A gross yellow powder partially soluble in > > water) > > > Cholestyramine binds bile salts in and prevents them from being > > reabsorbed in > > > the lower intestine. The cholestyramine and bile are " passed " which > > reduces > > > the overall load of bile in the body. Cholestyramine will also bind > > > Actigall/Urso and render it inactive. If one is to take both > > medications, > > > they must be taken several hours apart. The most effective protocol > > might be > > > to take the Questran in the morning before eating any food. Bile gets > > stored > > > throughout the night so that it can help digest the fats in breakfast. > > Then > > > have a breakfast to trigger bile release but it should be low in fat. A > > high > > > fat breakfast could make you feel ill because much of your bile is being > > > bound by Questran. Then take one-third of your actigall dose at about > > noon, > > > one-third at about 5-6pm, and one-third just before bed. Many of us > > with PSC > > > also have indigestion and reflux. I personally deal with it with over > > the > > > counter antacid/heartburn medication. > > > > > > Atarax > > > When my biliruben goes up, I must increase my cholestyramine intake to > > twice > > > a day and also take Atarax, an antihistamine. I take a very large > > dosage (50 > > > mg) twice a day. Otherwise, I scratch until I bleed. > > > > > > Other interesting info > > > My GI doctor and a dermatologist never thought to prescribe Questran. > > They > > > tried different types of antihistamines instead. My hepatologist > > prescribed > > > the Questran and implied that many doctors did not even know that it is > > > effective for Puritis. Many of us in the Group swear by cholestyramine. > > > Also keep your skin well moisturized. Dry skin doesn't cause the > > itching but > > > it doesn't help it either. > > > > > > Adam dx96 > > > Age 34 almost a daddy. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 If you're interested, I'll talk your ear off (write your eyes off?) about the Specific Carbohydrate Diet, but I'm guessing that this group is already v familiar with it. I'll just say that my UC went from horrible (bathroom visits 12-15x/day) to very good (2-4x/day) three days after I adopted the diet. I also lost a lot of weight, and as mentioned, stopped itching. > Re: Marilyn itching > > > > > > Thank you for the information on iching. > > > Marilyn > > > psc 2b age 55 2 grown girls > > > adampsc96@... wrote: > > > > > > > In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, > > > > marykaywilson@... writes: > > > > > > > > > Hi! > > > > > Can anyone tell me what meds do they use for the iching. I have a > Dr. > > > > > appointment today. I have the ich so bad I wake up during the > night > > > now. > > > > > My primary care Dr. has no clue what to do with me but have to go > > > > > through her 1st. > > > > > > > > > > Thanks > > > > > Marilyn > > > > > > > > This is a repeat of what I know about itching. (Those that have > heard > > > my > > > > sphiel before can move on to the next posting) > > > > > > > > Causes of Itching (medical term, puritis) > > > > PSC causes the bile ducts to be blocked. The bile backs up in the > liver > > > > because it cannot drain properly. The backed up bile gets absorbed > by > > > the > > > > circulatory system and carried to the rest of the body. The bile > > > somehow > > > > increase the sensitivity of nerve receptors in the skin and causes > > > itching. > > > > Puritis seems to first be noticed in feet/legs, then arms. then rest > of > > > body. > > > > This varies from person to person. Heat (like hot bath or shower) > can > > > cause > > > > the itching to worsen. > > > > > > > > Cholestyramine (Questran--A gross yellow powder partially soluble in > > > water) > > > > Cholestyramine binds bile salts in and prevents them from being > > > reabsorbed in > > > > the lower intestine. The cholestyramine and bile are " passed " which > > > reduces > > > > the overall load of bile in the body. Cholestyramine will also bind > > > > Actigall/Urso and render it inactive. If one is to take both > > > medications, > > > > they must be taken several hours apart. The most effective protocol > > > might be > > > > to take the Questran in the morning before eating any food. Bile > gets > > > stored > > > > throughout the night so that it can help digest the fats in > breakfast. > > > Then > > > > have a breakfast to trigger bile release but it should be low in > fat. A > > > high > > > > fat breakfast could make you feel ill because much of your bile is > being > > > > bound by Questran. Then take one-third of your actigall dose at > about > > > noon, > > > > one-third at about 5-6pm, and one-third just before bed. Many of us > > > with PSC > > > > also have indigestion and reflux. I personally deal with it with > over > > > the > > > > counter antacid/heartburn medication. > > > > > > > > Atarax > > > > When my biliruben goes up, I must increase my cholestyramine intake > to > > > twice > > > > a day and also take Atarax, an antihistamine. I take a very large > > > dosage (50 > > > > mg) twice a day. Otherwise, I scratch until I bleed. > > > > > > > > Other interesting info > > > > My GI doctor and a dermatologist never thought to prescribe > Questran. > > > They > > > > tried different types of antihistamines instead. My hepatologist > > > prescribed > > > > the Questran and implied that many doctors did not even know that it > is > > > > effective for Puritis. Many of us in the Group swear by > cholestyramine. > > > > Also keep your skin well moisturized. Dry skin doesn't cause the > > > itching but > > > > it doesn't help it either. > > > > > > > > Adam dx96 > > > > Age 34 almost a daddy. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 Ok, My ears are waiting. Eileen Re: Marilyn itching > > > > > > Thank you for the information on iching. > > > Marilyn > > > psc 2b age 55 2 grown girls > > > adampsc96@... wrote: > > > > > > > In a message dated 7/10/00 6:57:16 AM Pacific Daylight Time, > > > > marykaywilson@... writes: > > > > > > > > > Hi! > > > > > Can anyone tell me what meds do they use for the iching. I have a > Dr. > > > > > appointment today. I have the ich so bad I wake up during the > night > > > now. > > > > > My primary care Dr. has no clue what to do with me but have to go > > > > > through her 1st. > > > > > > > > > > Thanks > > > > > Marilyn > > > > > > > > This is a repeat of what I know about itching. (Those that have > heard > > > my > > > > sphiel before can move on to the next posting) > > > > > > > > Causes of Itching (medical term, puritis) > > > > PSC causes the bile ducts to be blocked. The bile backs up in the > liver > > > > because it cannot drain properly. The backed up bile gets absorbed > by > > > the > > > > circulatory system and carried to the rest of the body. The bile > > > somehow > > > > increase the sensitivity of nerve receptors in the skin and causes > > > itching. > > > > Puritis seems to first be noticed in feet/legs, then arms. then rest > of > > > body. > > > > This varies from person to person. Heat (like hot bath or shower) > can > > > cause > > > > the itching to worsen. > > > > > > > > Cholestyramine (Questran--A gross yellow powder partially soluble in > > > water) > > > > Cholestyramine binds bile salts in and prevents them from being > > > reabsorbed in > > > > the lower intestine. The cholestyramine and bile are " passed " which > > > reduces > > > > the overall load of bile in the body. Cholestyramine will also bind > > > > Actigall/Urso and render it inactive. If one is to take both > > > medications, > > > > they must be taken several hours apart. The most effective protocol > > > might be > > > > to take the Questran in the morning before eating any food. Bile > gets > > > stored > > > > throughout the night so that it can help digest the fats in > breakfast. > > > Then > > > > have a breakfast to trigger bile release but it should be low in > fat. A > > > high > > > > fat breakfast could make you feel ill because much of your bile is > being > > > > bound by Questran. Then take one-third of your actigall dose at > about > > > noon, > > > > one-third at about 5-6pm, and one-third just before bed. Many of us > > > with PSC > > > > also have indigestion and reflux. I personally deal with it with > over > > > the > > > > counter antacid/heartburn medication. > > > > > > > > Atarax > > > > When my biliruben goes up, I must increase my cholestyramine intake > to > > > twice > > > > a day and also take Atarax, an antihistamine. I take a very large > > > dosage (50 > > > > mg) twice a day. Otherwise, I scratch until I bleed. > > > > > > > > Other interesting info > > > > My GI doctor and a dermatologist never thought to prescribe > Questran. > > > They > > > > tried different types of antihistamines instead. My hepatologist > > > prescribed > > > > the Questran and implied that many doctors did not even know that it > is > > > > effective for Puritis. Many of us in the Group swear by > cholestyramine. > > > > Also keep your skin well moisturized. Dry skin doesn't cause the > > > itching but > > > > it doesn't help it either. > > > > > > > > Adam dx96 > > > > Age 34 almost a daddy. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Jon Hill wrote: >If you're interested, I'll talk your ear off (write your eyes off?) about >the Specific Carbohydrate Diet, but I'm guessing that this group is already >v familiar with it. Jon, I'm interested in knowing more about that diet. I am only a month joining the group so I am not familiar with it yet, can you give me some more info? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Well, after spending another sleepless night due to itching, I want to hear aboutit too!!! RE: Marilyn itching If you're interested, I'll talk your ear off (write your eyes off?) about the Specific Carbohydrate Diet, but I'm guessing that this group is already Quote Link to comment Share on other sites More sharing options...
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