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Re: Digest Number 809

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HI Lovette, So glad to see you back online, I was worried about you. What

is happening? How'd you end up in the hospital. Wish I'd known you were

ill, we drove through Gettysburg this weekend on the way to onburg,

VA. Would have brought you some laughter.

Hope you are doing better and welcome back, you were missed.

Sharon

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Sharon,

I didn't know Lovey was in the hospital, can you tell me more?

Vicki I am so worried now.

>From: " melillo " <mellillo1@...>

>

>HI Lovette, So glad to see you back online, I was worried about you. What

>is happening? How'd you end up in the hospital. Wish I'd known you were

>ill, we drove through Gettysburg this weekend on the way to onburg,

>VA. Would have brought you some laughter.

>Hope you are doing better and welcome back, you were missed.

>Sharon

>

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  • 1 year later...
Guest guest

In a message dated 03/18/2001 1:57:22 AM Pacific Standard Time,

writes:

>

> CLEVELAND: The Legionnaire's disease outbreak that has focused on a Ford

> Motor Co. plant claimed its first victim last Friday, although health

> officials didn't know it until yesterday.

>

> L. Tafoya, a native of Akron, had been admitted to Fairview General

> Hospital in Cleveland on March 3 with pneumonia symptoms. The

> otherwise-healthy 61-year-old died March 9.

>

> At his funeral Tuesday, family members talked about news reports that two

> men who worked at the same engine casting plant had been diagnosed with

> Legionnaire's disease, an airborne disease that has symptoms similar to

> pneumonia.

Why are they so afraid to identify the legionella as a fungus?

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  • 5 weeks later...
Guest guest

'dwarfism ' wrote:

====

- Looking to unsubscribe? Don't e-mail the list! Just send a blank e-mail to

dwarfism-unsubscribe

- ------------------------------------------------------------------------

-

- There are 18 messages in this issue.

-

- Topics in this digest:

-

- 1. Re: Health insurance question

- From: " Lamb " <slamb0000@...>

- 2. Re: Re: Health insurance question

- From: Cara Egan <egan921@...>

- ...'

> Take a look to the attachment.

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  • 6 months later...

In a message dated 10/29/01 7:09:04 AM Eastern Standard Time,

writes:

>

> > Sometimes you will get headaches and sick type

> > feelings from herbs and supplement if they are

> > causing a healing reaction.

> > Are you following O diet? Drinking PLENTY of water?!

> > Start with very low doses of supplements.

> > See if that helps.

> > Kathy

>

>

Hi Kathy,

Oftentimes people get sick from herbs and supplements because they are

sensitive to them. Allergies to herbs is not uncommon. Sensitivities to supps

too, especially for instance if you are taking something that you're body

doesn't want, or has paradoxically effect or other based on your own

particular chemistry.

One size doesn't fit all when it comes to supps.

Hope this helps.

June

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From: mmlisa2@...

Subject: Aloe vera as skin product

Hi O's,

Anyone know whether it's a problem to use skin products--lotions and

facial cleansers and creams-with aloe vera?

Thanks.From: " Lilla Luoma " <lillabell@...>

Subject: RE: Aloe vera as skin product

I've wondered this myself, I've never noticed any " negative " reaction to

aloe, so am wondering what other O's reactions to it have been.

RE THA ABOVE, I HAVE CONTINUED TO USE ALOR FOR MY SKIN AND MINOR BURNS....

ALTHOUGH AN O, IT DOES SEEM TO WORK FINE FOR ME AND I HAVE NOT STOPPED USE

OF IT FOR THIS REASON.\

ROXY

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There have been some O's that actually have a burning or drying sensation

from aloe vera and have burns not heal as well. That might be sort of like

taking MSM. Some people improve taking it. Others don't notice any

difference or have a bad reaction to it. Both are avoids for O's but if it

helps you, that is your individual choice.

RE: Aloe vera as skin product

>

>

> I've wondered this myself, I've never noticed any " negative " reaction to

> aloe, so am wondering what other O's reactions to it have been.

>

>

> RE THA ABOVE, I HAVE CONTINUED TO USE ALOR FOR MY SKIN AND MINOR BURNS....

> ALTHOUGH AN O, IT DOES SEEM TO WORK FINE FOR ME AND I HAVE NOT STOPPED USE

> OF IT FOR THIS REASON.\

> ROXY

>

>

>

>

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Absolutely . I experience the same thing if I have more than about 4

oz. at a time. Soy nuts, soy flour, soy yogurt, more than two pieces of soy

cheese - all cause the same problem for me. Sheila

In a message dated 10/29/01 6:08:59 AM Central Standard Time,

writes:

> The problem I'm noticing now (in the last couple of months) is that I have

> to avoid it as it gives me extreme heartburn. Does or has anyone

> experienced this?

>

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  • 8 months later...
Guest guest

Dear Kim,

You've come to the right place when discussing aggressiveness in our little

cherubs. Aggression is not at all unusual. Here's what has worked for my son.

He's 4 years old, autistic, dyspraxic and has sensory integration dysfunction.

My son would have an all out meltdown out of no where for what appeared to be

for no reason at all...until we looked deeper into each situation.

We thought he was just completely frustrated because he had almost no means of

communicating with my husband and I. He shrieked, shrilled, kicked, hit, pinched

and threw himself down onto the floor or ground and completely had a meltdown.

Most of the time basket holds and restraining him did not work...just escalated

the problem. We also tried ingoring the inappropriate behavior hoping the lack

of attention from us would work....nope!!! We tried being stern, firm, raising

our voices and being very calm as well...to no avail. So we looked

deeper.......what was it our son was needing at that moment of meltdown. Our OT

had the answer....input and deep pressure.

We've instituted a sensory diet into our daily routine...with the advice of our

OT, of course! Each day...four times a day...we provide our son with a half hour

of deep pressure, compressions, oral motor massage and vestibular swinging. Ever

since we started this sensory diet, he has maybe...MAYBE...one or two meltdowns

a month. Honestly!!!! I, like you and your husband, was at my wits end. There

have been times where I have had to walk out of my house and sit on the back

step because I was becoming so angry and upset and frustrated myself at the

situation. Imagine how our kids feel???

My suggestion....speak with an Occupational Therpist about a possible sensory

diet. Can't hurt to ask. Best of luck. We're all here for you.

Sherie

---------------------------------

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  • 1 year later...

Hi Jeanne Lee,

I loved your soapbox and your explanations of hearing people behind you. I

haven't heard this in years. My hearing is steadily decreasing. This will

probably be my last hearing aid. The expense is what is keeping me from getting

a

CI now.

Thank you for writing, you are an inspiration.

H.

BUT when I got my IMPLANT ..... I was blown

away (yes, it was that profoundly wonderful) by how significantly better I

had heard ...than any hearing aid.... and how I could now even hear

conversations of strangers walking behind me by the Chicago lakefront....

one in particular where the man was describing how mayor Daley had just torn

up the airstrip in Chicago so no terrorist could land or have the excuse to

fly close.....

With today's technology....... and..... the implant keeps allowing us to

improve over time as the brain learns....... OH MY !!!!! If you have the

choice between the hearing aid or the IMPLANT PLEASE give serious thought to

the implant !!!!!!!!!! :>)

Ok... I am ready to step off my soapbox again!!!!!!!!!!!

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  • 2 months later...
Guest guest

Hi,

My husband got official diagnoised last fall with primary Hypogonadism due

to 47 XXY. He started T shots and right away his estrogen shot up. His T

level was like 500 - 900 with E2 level from 60 - 90 I have all the other

levels but these are the ones I have questions about. We got a new

endocrinologist since the one we were working with didn't at all want to

treat the E2 level or think that the conversion was an issue to worry about.

We are doing 100 mg weekly shots and just got a prescription from out new

endocrinologist for Arimidex 1 mg every other day. Question should we be

taking 1 mg or is 1/2 a pill better. Seems to me I've heard several people

talking about taking 1/2 a pill. Also how long before he / we notice a

difference in how he feels? The frustrating thing has been that he never

has felt better from the Testosterone meaning still sort of fatigued, low

energy, difficulty concentrating, poor confidence level and at times

depressing mood? Thanks for any advice or stories of experience

LaVonne in Seattle

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Guest guest

LaVonne,

I would follow prescribing dosage of your endocrinologist and try scheduling

an appointment after ~month to have E2 measured and then see if dosage

correction is warranted.

I started out on 1 mg/dy...beginning levels were:

Estradiol (<54) Estrogen (40-115)

6-04-01.........82............134

7-9-01..........55............200

8-2-01..........87............196

I began 1 mg/dy on August 2nd '01

Next test levels were:

9-29-01.........37.............85

Good luck,

OR eon

Re: Digest Number 809

Hi,

My husband got official diagnoised last fall with primary Hypogonadism due

to 47 XXY. He started T shots and right away his estrogen shot up. His T

level was like 500 - 900 with E2 level from 60 - 90 I have all the other

levels but these are the ones I have questions about. We got a new

endocrinologist since the one we were working with didn't at all want to

treat the E2 level or think that the conversion was an issue to worry about.

We are doing 100 mg weekly shots and just got a prescription from out new

endocrinologist for Arimidex 1 mg every other day. Question should we be

taking 1 mg or is 1/2 a pill better. Seems to me I've heard several people

talking about taking 1/2 a pill. Also how long before he / we notice a

difference in how he feels? The frustrating thing has been that he never

has felt better from the Testosterone meaning still sort of fatigued, low

energy, difficulty concentrating, poor confidence level and at times

depressing mood? Thanks for any advice or stories of experience

LaVonne in Seattle

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Guest guest

Hi LaVonne,

The Arimidex dosage really is dependent on the patient. If you

doctor recommends 1mg every other day (which in my non-professional

opinion seems a bit high), then I would demand/request a blood test

in 2-3 weeks to check E2, as you don't want it to get too low. Mid-

range appears to be just right for most folks. I take 1/2 every

other day, my last blood results were too low, so I may go to every

third day.

Good Luck

> Hi,

>

> My husband got official diagnoised last fall with primary

Hypogonadism due

> to 47 XXY. He started T shots and right away his estrogen shot

up. His T

> level was like 500 - 900 with E2 level from 60 - 90 I have all the

other

> levels but these are the ones I have questions about. We got a new

> endocrinologist since the one we were working with didn't at all

want to

> treat the E2 level or think that the conversion was an issue to

worry about.

> We are doing 100 mg weekly shots and just got a prescription from

out new

> endocrinologist for Arimidex 1 mg every other day. Question should

we be

> taking 1 mg or is 1/2 a pill better. Seems to me I've heard

several people

> talking about taking 1/2 a pill. Also how long before he / we

notice a

> difference in how he feels? The frustrating thing has been that he

never

> has felt better from the Testosterone meaning still sort of

fatigued, low

> energy, difficulty concentrating, poor confidence level and at times

> depressing mood? Thanks for any advice or stories of experience

>

> LaVonne in Seattle

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Guest guest

On Thu, 15 Apr 2004 18:38:46 -0000, you wrote:

>

>The Arimidex dosage really is dependent on the patient. If you

>doctor recommends 1mg every other day (which in my non-professional

>opinion seems a bit high), then I would demand/request a blood test

>in 2-3 weeks to check E2, as you don't want it to get too low. Mid-

>range appears to be just right for most folks. I take 1/2 every

>other day, my last blood results were too low, so I may go to every

>third day.

>

>Good Luck

What are the effects of it going too low?

I just started three weeks ago myself on 1/2 mg a day. By week three

I felt great. Lately I feel like I'm slipping again, but there could

be nonT or E reasons for that.

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Guest guest

You will feel about the same as you did when it was to high. You

will have a low libido and have trouble with fatigue.

Phil

>

> >

> >The Arimidex dosage really is dependent on the patient. If you

> >doctor recommends 1mg every other day (which in my non-

professional

> >opinion seems a bit high), then I would demand/request a blood

test

> >in 2-3 weeks to check E2, as you don't want it to get too low.

Mid-

> >range appears to be just right for most folks. I take 1/2 every

> >other day, my last blood results were too low, so I may go to

every

> >third day.

> >

> >Good Luck

>

>

> What are the effects of it going too low?

>

> I just started three weeks ago myself on 1/2 mg a day. By week

three

> I felt great. Lately I feel like I'm slipping again, but there

could

> be nonT or E reasons for that.

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Guest guest

Yes, byh three weeks at 1/2 a pill a day, if you start " slipping

again " , chances are you are taking too much arimidex. It is VERY

powerful stuff, and what may work well in the begining may be way

too much over the long term. 1/2 a pill every 5 days is enough for

some guys, but not enough for others. Have to figure out what the

optimal level for you is.

Armyguy

>

> >

> >The Arimidex dosage really is dependent on the patient. If you

> >doctor recommends 1mg every other day (which in my non-

professional

> >opinion seems a bit high), then I would demand/request a blood

test

> >in 2-3 weeks to check E2, as you don't want it to get too low.

Mid-

> >range appears to be just right for most folks. I take 1/2 every

> >other day, my last blood results were too low, so I may go to

every

> >third day.

> >

> >Good Luck

>

>

> What are the effects of it going too low?

>

> I just started three weeks ago myself on 1/2 mg a day. By week

three

> I felt great. Lately I feel like I'm slipping again, but there

could

> be nonT or E reasons for that.

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  • 3 months later...
Guest guest

I, for one, have been trimming my posts - unless I forget once in a

while - but if i need to leave a few lines from the person im

replying to, I do, as sometimes I also need to change the subject

accordingly.

i dont get the digests, and I imagne it is most frustrating.

Friday

> PLEASE TRIM YOUR POSTS!

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  • 1 year later...

Hi everybody! We are back from SLC for Nadia's first cast. It was very interesting for several reasons. The first one is that Nadia's first x-ray at 13 months was 31 degrees, RVAD 36 and at 15-1/2 months it was 29 degrees, RVAD 33- in between the time she had been wearing a Kalabas brace. Her Boston ortho said it would be "reasonable" to cast her. We sent the xrays to Erie- they said that they did not necessarily recommend casting as the Kalabas brace was seeming to hold her. They did not think that it would necessarily do better. It sounds as if had we been in Erie, she probably would not have been casted. Well the way things turned out, my cell phone broke and I did not get the message from Erie, so we went ahead with the casting with Dr. Santora and Mike Pond, both of whom were so nice. The next interesting thing was

the procedure: they decided to do fluoroscopy during the casting, which is basically a "live" xray. I don't think they ever did this before- although I believe Erie does it routinely. On the casting table my daughter was at zero degrees (just with traction) and I think no rotation (with Dr. Santora's manipulation). After the procedure, after she had been walking around acouple hours they did a standing xray- she was at 12 degrees and minimal rotation. What do you all think about that!!? Big difference between laying down and standing, I think! They said they did not apply lateral pressure because she was at zero. I wonder what they would do next time. Anyway, the third interesting thing, was Mike reluctantly agreed to cut off the over the arm pieces on her cast as her apex was at T12- Dr. Santora was really fine with it. They did it while she was still in the OR. They also

applied petals in there, too. Mike said he was pleased in the end as well. So our little Nadia is doing pretty well- more irritable than before, but she is also at the everything is "no" age. The doctors and nurses and CNAs were so great. The hospital was so beautiful. volunteers came in at night to entertain the patients. It was a really positive experience. The other thing I would really recommend, is if your child likes animals, to have them be around them as soon as possible, because she really became her cheery self again after she saw my friend's dog!!! Thanks for all your support!!! It really helped!!!! Abigail infantile scoliosis treatment wrote: ------------------------

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Re: Digest Number 809

Hi everybody!

We are back from SLC for Nadia's first cast. It was very interesting for several reasons.

The first one is that Nadia's first x-ray at 13 months was 31 degrees, RVAD 36 and at 15-1/2 months it was 29 degrees, RVAD 33- in between the time she had been wearing a Kalabas brace. Her Boston ortho said it would be "reasonable" to cast her. We sent the xrays to Erie- they said that they did not necessarily recommend casting as the Kalabas brace was seeming to hold her. They did not think that it would necessarily do better. It sounds as if had we been in Erie, she probably would not have been casted. Well the way things turned out, my cell phone broke and I did not get the message from Erie, so we went ahead with the casting with Dr. Santora and Mike Pond, both of whom were so nice.

The next interesting thing was the procedure: they decided to do fluoroscopy during the casting, which is basically a "live" xray. I don't think they ever did this before- although I believe Erie does it routinely. On the casting table my daughter was at zero degrees (just with traction) and I think no rotation (with Dr. Santora's manipulation). After the procedure, after she had been walking around acouple hours they did a standing xray- she was at 12 degrees and minimal rotation. What do you all think about that!!? Big difference between laying down and standing, I think! They said they did not apply lateral pressure because she was at zero. I wonder what they would do next time.

Anyway, the third interesting thing, was Mike reluctantly agreed to cut off the over the arm pieces on her cast as her apex was at T12- Dr. Santora was really fine with it. They did it while she was still in the OR. They also applied petals in there, too. Mike said he was pleased in the end as well.

So our little Nadia is doing pretty well- more irritable than before, but she is also at the everything is "no" age. The doctors and nurses and CNAs were so great. The hospital was so beautiful. volunteers came in at night to entertain the patients. It was a really positive experience. The other thing I would really recommend, is if your child likes animals, to have them be around them as soon as possible, because she really became her cheery self again after she saw my friend's dog!!!

Thanks for all your support!!! It really helped!!!!

Abigail

infantile scoliosis treatment wrote:

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