Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 > As a new person here on this forum, I was wondering if all of you > were diagnosed with PSC or if anyone is as yet undiagnosed. Most of us have been diagnosed with PSC, although there are a few whose diagnosis is still tentative. Most of us can relate to the long search for the diagnosis though. I know it took several months for me to be positively diagnosed, and I think there are people here whose diagnosis took even longer than that. Welcome to the group! athan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi all, I hope you are having as less pain as possible. I finally had my first visit to the pain specialist today, and quite frankly, I am shocked! In some ways, I am relieved because the pain- level I have been experiencing has been explained. But on the other hand, I really believed the pain I was having was due to the extensive cervical fusion surgeries I have had in the last year. The pain doc summary letter for the appointment says I have the following: Cervical Spondylosis Postlaminectomy Syndrome - Cervical Region Myofacial Pain Syndrome - Right Paraspinous Muscles Sciatica Bi-Lateral Carpal Tunnel Syndrome whew! I guess that explains a lot and never again will I let any doctor put me off with a vague 'maybe' explanation for any pain I am in! Anyway, he put me on some new medications, they don't seem to be helping much at all. Maybe that's due to the physical therapy I am doing, not sure. He has me on the following meds, please let me know what you all think about from your experience if this seems appropriate or not. MS Contin - 30 mg 4 times a day Neurontin - 300 mg 3 times a day Zanaflex - 2 mg every 6 hours as needed Norco - 10/325 two tabs every 4-6 hours as needed Your input is appreciated and I promise to try and be a much less 'holier than thou' member of this group from now on. Thanks for your patience. Tammie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Don't know anything about any of then but Zanaflex, that puts me to sleep. I don't know how you can stay awake taking it that often. I would find my self napping! Gwen MS Contin - 30 mg 4 times a day Neurontin - 300 mg 3 times a day Zanaflex - 2 mg every 6 hours as needed Norco - 10/325 two tabs every 4-6 hours as needed Your input is appreciated and I promise to try and be a much Tammie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Gwen wrote: <<Don't know anything about any of then but Zanaflex, that puts me to sleep. I don't know how you can stay awake taking it that often.>> Gwen, I don't know what the deal is with me. It seems I can take extraordinary amounts of meds and not seem to be very affected by them. Even the pharmacist today was 'drop-jawed' that I would be taking the Norco with the morphine and Zanaflex. But I seriously haven't noticed any reduction in my pain today since I started on the new meds. I am really hoping it's because of the physical therapy and the meds really are working. Tammie Quote Link to comment Share on other sites More sharing options...
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