A lillte help

[Guest guest]

Hi every body I am feeling a little sorry for my self over this

weekend. I must admit the sun is shining and I have cut the lawn

today.(First time we have seen the sun since Dec and that was in Florida).

I went for my regular Drs appointment on Friday. It was not much fun

as I was informed that 90% of my problems are in the mind.

I would not care too much but here I am back on large dose of

Dofetilide and having pains in the left arm and back. I was also informed

that AF boards are for sad people and you must try and forget about your

condition. I can see the logic in this reasoning but there again I am the

one still suffering. I sometime wish (not really) that some of these Drs

would have AF for just one Hour just to see how it feels. The Dr I saw is

not going to NAPSE so perhaps I should not take any notice of him<

Talking abut NAPSE here is a tool I found on their website on how to

find a DR in your area.

http://www.naspe.org/cgi-bin/locate_public.pl5

<http://www.naspe.org/cgi-bin/locate_public.pl5> .

From one sad person to all the sads on the boards ENJOY WHAT IS LEFT

OF YOUR WEEKEND.

As I am writing this and looking at the word SAD , could it stand

for Still another Dr

Or sick of DRS but that's SOD.

Have a great week,

JOHN C

Essex (Where the sun shines sometimes but it always rains)

UK

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[Guest guest]

I am sorry to hear that C. is having pains in his left arm and back. I

am surprised that he doesn't also complain of a big pain the neck after

hearing from his doctor that 90% of his problems are in the mind, and that

AF boards are for sad people. I know could see the logic in his

reasoning, but I doubt the dr realized that, if we are sad, it is because of

health care workers just like him, who devalue us as their patients. We are

sad for the inadequacy of their care.

My anger roils up hearing these things, because of a cardiologist who not

only took my AF with a grain of salt, but prescribed a medication that made

it worse for years, until I found this board, and reaped the benefits of the

knowledge shared by more informed AF'ers than myself. After some research I

was able to find a cardiologist who is at least on the same team as I am.

Since Dale came aboard, I have been using an ionzier. I take it to my

office every day and home again at night. At work I (and everyone else who

works there) can tell that it definitely increases alertness and reduces

fatigue and tension, but at home, while I am quite sure that it improves the

quality of the air, I can't tell that it makes any difference in the number

of fullblown AF episodes (yet). Nor has it made any difference in the

number of extra beats and skipped beats I feel every day (which make me

anxious with worry that they are going to develop into a full blown episode,

even though I have been dealing with them for years, even before the AF

developed). Some days I can deal with them okay, and put them out of my

mind; other days I have a hard time. I have, nevertheless, been continuing

with my exercise, as without it I can feel my body losing strength and

stamina. Yesterday was a beautiful day. My husband and I went for a bike

ride. I was hesitant at first but soon the feeling of the wind through my

hair became more important than the worry about my heartbeats. After ten

miles, I was pleasantly tired, and had no skipped or extra beats for several

hours. It was a nice relief. Other times, the exercise will bring on more

weird heartbeats. A very idiosyncratic condition. Next episode I will try,

like Steve, to mentally snap myself out of it. Anyone else been successful

with this? Before I go, I want to say to Codling, I hope you are

feeling better and enjoy today's sunshine. Congratulations to Grandpa Greg,

and thanks for your encouragement to continue with exercises; and to Lee

Joslin, are you back from Panama yet??? Lawrence?? We haven't heard from

you in a while? Do you continue successfully on the new meds? Best to all,

Sandy

[Guest guest]

>Hi every body I am feeling a little sorry for my self over this

>weekend. I must admit the sun is shining and I have cut the lawn

>today.(First time we have seen the sun since Dec and that was in Florida).

>I went for my regular Drs appointment on Friday. It was not much fun

>as I was informed that 90% of my problems are in the mind.

>

Maybe time to get a new Doc ? I think he is talking tosh. I was out with

friends on Friday night an popped into AF as soon as I got home. Spent all of

Saturday in bed (my rate was around 140 in bed but as soon as I got up my rate

shot up). I almost took myself off to hospital on Saturday afternoon because the

palpitations were getting bad but I realise they would do very little other than

put me on heparin and wait until I reverted. 24 hours later I came back into

NSR - I slept a lot of today and am still sore on my rib cage (left hand side

but on the outside). As far as I'm concerned this is another 48 hours I've lost

through this illness. It's been almost 3 years since I started with AF and

clearly medicine does not have all the answers. Groups like this not only offer

support but I believe valuable research and knowledge into this strange illness.

I'm not a hypochondriac - I'm 32 now and have only ever been to see my GP once

before my AF (to get pain killers for a sprained shoulder) and only once to the

hospital (to get stitches put in a broken nose - long story!)

>I would not care too much but here I am back on large dose of

>Dofetilide and having pains in the left arm and back. I was also informed

>that AF boards are for sad people and you must try and forget about your

>condition. I can see the logic in this reasoning but there again I am the

>one still suffering.

I'll forget about my condition when it's gone away or until I can live a normal

life with it. I don't think I'm anywhere near this yet and until then I'll use

all the resources available to me to get nearer to that goal. Of course an

experiment you could do if you think he may be talking sense is have a break

from the board for a month and see if you feel better. We will still be here if

you want some support (and you have my number if you want a chat). Some people

have reported some success in 'willing' there way out of AF others have not been

so fortunate. I know you have a big event coming up and imagine this may be

quite a stressful time for you. (stress and AF and not a good mix!)

The bottom line is that Doctors don't have all the answers and it is very hard

to imagine what AF is like until you have it. There are so many types of AF that

some people with AF find it hard to imagine what other people are going through!

You are not crazy and you should continue to do what you think is best -

'experts' are often wrong, we once thought the earth was flat!

all the best from Sunny Leeds

P.S.

I see my cardiologist tomorrow (Monday) - I think I'll be asking about

disopyramide - drug number seven for me - maybe we are crazy

--

D

[Guest guest]

Oh .....don't listen to that Doctor. Remember what happened to

me over a period of seven months? They told me it was all in my

head. They put me on one anxiety pill after another, one

antidepressant pill after another..........and I ended up on the

*Nut* floor at Duke, with a team of people asking me if I felt

suicidal and a lot of locked doors. They had me believing my back

pain was *all in my head*. The more I worried, the more Panic Attacks

I had! The more Panic Attacks I had, the more they were convinced,

it was *all in my head*. Was it me that was crazy, or was it THEM?

Oh boy.....after seeing those tiny little fingers wrapped around that

surgeon's hand (see the photograph in my previous post entitled

*Bashing the Medical World*), I promised myself I would go easy on

the medical profession...........(slap my hands)!!

How much Dofetilide are you on now? And why is it working for me and

not you? We were in this together! Please cheer up.......you were

my Dofetilide backbone.......ochs, let's stay away from the

back......that hurts <g>.

Have you tried calling the Pharmacy Department of Pfizer (1-877-845-

6796) about your Dofetilide dosage and the pain in your back and

arms? They were very courteous and helpful to me when I was going

through my problems. Also, my little book on Dofetilide states that

although your local pharmacist cannot dispense Dofetilde, he or she

has access to all the relevant information about this particular

drug.

Your Doctor's appointment in France will be promising...I just know

it! I am crossing my arms, closing my eyes and clicking NSR your way.

Hang in there.......please..........

Considering what we all have been through and what many of us are

oing through now, I think we're a pretty *happy* bunch of people.

What do they know anyway?

Your Doctor's appointment in France will be promising...I just know

it! I am crossing my arms, closing my eyes and clicking NSR your way.

Hang in there.......please..........

Ellen

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Hi every body I am feeling a little sorry for my self over this

weekend. (snip) I was informed that 90% of my problems are in the

mind. (snip)I'm back on large dose of Dofetilide and having pains in

the left arm and back. I was also informed that AF boards are for sad

people

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