Re: Going to the rheumatologist tomorrow, feeling excited and scared...

[Guest guest]

Hi Penny,

I can sure understand your feeling of these illnesses not being fair. We all

feel that way. We have been defeated by our own bodies in a sense, well not

actually defeated, but left to learn to do things differently or not at all. So

I guess in some cases, defeated. That was so hard for me to swallow. I was so

angry when I came to this realization years ago. Nothing has ever defeated me

and then my own body does? That has been the hardest part for me to get over and

still not over it I don't think. I'm still angry about it when I allow myself to

be. But we can't spend much time on being angry as it is not useful to us. I

tend to like to spend what energy I have on positive things. And positive things

tend to take less energy than negative ones.

I also understand the concept of welcoming a new diagnosis or another one as you

know this can't just be fibro alone. For me, I have thought this many times, I

hope for something else that might have a cure, of course it always comes back

to the fibro for me. I never get so lucky I know RA doesn't have a cure and

it would really stink if you have this, but maybe there is some better treatment

out there for it. That disease gets more attention because there are lab

findings to dx it and it is visible. With fibro we don't have either.

Good luck with your appt. Let us know how it goes.

Hugs,

Tommie

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

[Guest guest]

Jena, judging by the age of your parents, you must be pretty young yourself. Let

me guess? LOL 40's? It just dawned on me while reading this that I didn't know

your age. Not that it really matters, but I'm 43! How old is Beth? I thought she

was much older for some reason, but she is just out of highschool isn't she?

Tommie

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

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[Guest guest]

Jena,

Also, I didn't know you had broken your back, twice even? How did you manage

this? I'm so sorry, that has to be so painful. I guess I didn't know about what

causes your pain or I had forgotten, one or the other.

I've just had such an enjoyable time visiting with you that I didn't even think

about what might cause you pain. I'm sorry. I just knew you hurt, just like me.

Hugs,

Tommie

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

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[Guest guest]

the first fracture was in 2003. when my brother had his heart surgery. He could

not walk when he went into the hospital. or stand up on his own. the muscle had

gotten so bad in his legs. The nurse kept saying I know you hurt but you have to

stand up. We could not get across to them that it wasn't he didn't want to. it

was he couldn't. so I quit calling the nurse's and I would just bear hug him and

pick him up out of the chair and turn him around to get back in the bed or vise

versa. I was picking him up one morning. " even though he was sick he still was a

big man. he wt. 220. " And my back went pow. And I had to sit him back down. It

scared him worse than me because he had 3 back surgeries in the past. I never

went to the Dr with this. It hurt but not unbearable. And after he died I called

it my memory of .

Then the 2nd and worst came this past May we were remolding and I had painted a

window. it had stuck. I was determined to get it up. so stupid. my husband was

right there in the room with me. It finally turned loose and so did my back. I

hit my knees with pain. that is when I broke or fractured T-7 and ruptured the

disc T7-8. And it has gradually gotten worse. I had a Vertobroplasty at the end

of June. they put cement in the fracture to stabilize it. and as my dr explain

the vertebrae was like a broken stick rubbing back and forth. so the fracture is

not doing that anymore. but it and the ruptured disc has also really set off my

other fracture which did heal on its own but with arthritis. Even though it

stabilize my fracture. I would not recommend that Vertebroplasty to anyone. I

never felt pain that bad in my life. I had to be awake so I could talk to the

Dr. and I am by no means in line as far as my spine.

Ok, here is another book. and also I ulnar nerve neuropathy. since my back my

arm I tend to forget. I also have a ruptured disc in my neck pinching a nerve

that causes severe pain down my Left arm. I had a epidural done just before

Thanksgiving. and it is slowly wearing off. so that is my story. or parts of it

anyways.

Jena

~:~Jena~:~

My Home Page

My E-mail

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

----------------------------------------------------------

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[Guest guest]

Beth is 22, when they had special needs they can go to school until 21.

I am 45, and getting real close to 46. LOL

~:~Jena~:~

My Home Page

My E-mail

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.16.1/611 - Release Date: 12/31/2006

[Guest guest]

See you are only 2 yrs older than me lol

Going to the rheumatologist tomorrow, feeling excited

and scared...

Hi!

I have an appointment with a rheumalogist tomorrow and I have not

been to one since my diagnosis in 2000. I have just been going to a

general practioner for the past 6 years and since my symptoms have

worsened, I asked for a referral and tomorrow I am going. I am

scared and I do not know why. I suspect that I have more than

fibromyalgia going on and I would welcome a diagnosis, but I am also

afraid of it.

My mom has and her dad had rheumatoid arthritis, and she thinks she

can see changes in my hands. I have noticed more pain in my feet,

ankles, hips, elbows, wrists and hands and I am angry and afraid

because of the pain. I guess part of me always thought that I would

get better, or at least stay the same, and I think it is unfair,

after working so hard all these years, that I have this now. I feel

alone in my painful body and even though I know that I am more

mobile than many on this site, my pain levels are starting to

concern me.

I am having to limit my activities more and more and I do not like

to do that. I try to be a good sport most days, but today is not

one of those days. Thanks for reading my vent and making me not feel

so all alone. Penny

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.409 / Virus Database: 268.16.1/611 - Release Date: 12/31/2006