Thank you

[Guest guest]

Hello:

Thank you to all that sent in good wishes to me. They really mean so much to

me. I could never have gotten to this point in my life without the knowledge

that everyone has given me over the years about new technology, or surgical

ways, etc. The support has been enormous in my emotional healing as well.

The only thing that bothers me is that I received such good medical care, and

still am, while others on this list are being pushed aside by doctors, or told

to live with it, etc. It really pisses me off that a doctor could/would just

expect someone to " just live with it " and not try to get them back to some

semblance of their life. Even if I was never able to return to work, I still

had hope that my life would be easier than it was in the beginning and my doctor

(esp. my physiatrist) was and is always looking for new and better ways to treat

me.

Whenever he goes to conferences he always brings my file for other doctors to

look at (you know if you change the letters if file you get life?...something to

think about...) The point being, I have this great doctor on my side and we all

need someone like him in our lives that believes we can get to a better point of

health and if he/she's not the one to do it, then they'll make sure they find a

doctor who can help us.

Please, don't give up - and DO NOT ever accept less than a superior doctor (not

one that thinks they're superior...but one who is.) Once you find that doctor,

do all you can to keep him/her and let them know always how much you appreciate

what they are doing.

Kathy

[Guest guest]

Welcome to the group. You are in a great place to get information

and also vent! You wrote that you were diagnosed with neuropathy

after an accident. Do you have RSD? And what kind of accident did you have?

At 09:42 PM 1/27/2007, you wrote:

>thank you for letting me join the group.

>my name is jenn tidwell. i am 28 yrs old. i was diagnosed with

>neuropathy a few months ago.they say it was brought on by an accident

>i was in.

[Guest guest]

IT IS MY REGULAR DOCTOR. MY MEDICAID WILL NOT COVER A PAIN MANAGMENT DOCTOR.

I LIVE IN SOUTHERN LOUISIANA. IN FACT LAKE CHARLES. WHERE HURRICANE RITA HIT

JENN

-- Re: thank you

is the doctor a pain management doctor or your regular family doctor?

And where is 'down here?' You have to emphasize how much pain you

have. You need something like Neurontin, Lyrica, Gabatril, Topomax. I

have been on all 4. The Neurontin didn't work, the Lyrica helped me

gain 60 pounds, of which I just lost 15 pounds. YIPPEE! Still more to

go. Lyrica also caused double vision, and I was homebound because I

certainly wasn't goint to drive. The Topomax didn't do anything for

my neuropathy. I take Gabatril and it has taken away almost all of the pain.

At 10:36 PM 1/27/2007, you wrote:

>None. Here is why. Down here they refuse to give anything but 800 mg

>ibuprophen.

>But I go back to the doc this week I am gonna make her give me something

for

>this horrible pain.

>Jenn

[Guest guest]

Yes. I am afraid to have needles going any where near my back.or a knives.

Jenn

-- Re: thank you

Steroid injections?

At 10:37 PM 1/27/2007, you wrote:

>But I had one doc talking about shots in the back.

[Guest guest]

yes, Jenn, I agree with you there. When I had my daughter and the

doctor determined that I needed a C-section, she gave me the option

of an epidural or being knocked out. I asked to be knocked out!

At 10:58 PM 1/27/2007, you wrote:

>Yes. I am afraid to have needles going any where near my back.or a knives.

>Jenn

>

>-- Re: thank you

>

>Steroid injections?

>

>A