Re: Anyone else have severe pain from tethered cord?

[Guest guest]

At 09:13 AM 3/12/2004 -0600, kim wrote:

>I wanted to see if people with tethered cords have pain like this.

I never had any pain, my muscles just quit and I was half numb from the

waist down. Still no pain other than muscle pain either from over use or

cramping up.

Rick

[Guest guest]

The doctors theory so far is that in one of Eds car accidents he had a spinal

cord injury where his cord bled, became tethered and he developed the syrinx.

The pain is neuropathic pain and the tethered cord pain and syrinx pain can be

very similar.

Re: Myelogram

>

>

> At 10:45 AM 3/10/2004 -0600, kim wrote:

> >She wants him to have a myelogram because she said the type

> >of tethering he has would show up better on that type of test. Anyone

> >else had a myelogram to diagnose TSC? Thanks for your help.

>

> Kim,

> I had a Myelogram to confirm that the MRI showed my cord tethered.

> Rick

>

>

>

[Guest guest]

You know, I asked my doctor one time, " if I have tethered cord, syringomyelia,

and a spinal arachnoid cyst, and there is clearly nerve damage, and more

happening as time goes on, and pain is one of the major symptoms of all of

these, why dont I have pain? "

Somedays it's hard to consider myself lucky, but, when I really think of all of

this logically, I am getting away (so far) with murder. I must have a guardian

angel. I have such a low pain tolerance it's awful.. and so far, I have been

spared.

When I was about 11, or somewhere around that age, I had terrible leg and hip

pains. I don't remember when they stopped, but I know nothing helped them. I

didn't take drugs for them, as they weren't constant. But when they came, man,

they were awful. If my leg would start to hurt in my sleep, i'd wake up almost

screaming in pain. I'd put heat on them, squeeze them, try to walk it out..

nothing helped. I don't remember how long each time they would last, all I

remember is they were intolerable. If I had to deal with that day in and day

out with no break, I think I'd go off the deep end.

Laurie

lauray@...

" If you judge people, you

have no time to love them. "

-Mother Theresa

Re: Myelogram

>

>

> At 10:45 AM 3/10/2004 -0600, kim wrote:

> >She wants him to have a myelogram because she said the type

> >of tethering he has would show up better on that type of test.

Anyone

> >else had a myelogram to diagnose TSC? Thanks for your help.

>

> Kim,

> I had a Myelogram to confirm that the MRI showed my cord tethered.

> Rick

>

>

>

[Guest guest]

Hi Kim,

I kinda jumped back in here after several months of not being able to keep

up with the list, so please spare me if this has already been discussed on

the list. Is Ed going to have surgery? Or has he already had surgery? Do

you think the syrinx is putting pressure on a nerve(s) and causing the

pain? If so, I think surgery to remove the pressure would bring relief.

Having a car accident really complicates the situation, where I was not

involved in any kind of accident and am structurally sound.

Rick

At 08:19 PM 3/12/2004 -0600, kim wrote:

>The doctors theory so far is that in one of Eds car accidents he had a

>spinal cord injury where his cord bled, became tethered and he developed

>the syrinx. The pain is neuropathic pain and the tethered cord pain and

>syrinx pain can be very similar.

> Re: Myelogram

> >

> >

> > At 10:45 AM 3/10/2004 -0600, kim wrote:

> > >She wants him to have a myelogram because she said the type

> > >of tethering he has would show up better on that type of

> test. Anyone

> > >else had a myelogram to diagnose TSC? Thanks for your help.

> >

> > Kim,

> > I had a Myelogram to confirm that the MRI showed my cord tethered.

> > Rick

> >

> >

> >