Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 After all the tests and consultations my husband went through we have no doubt that the absolute right decision for cancer treatment is MD in Houston. His surgery is scheduled for June 21, robotic. They did every test, he saw 4 doctors there and those along with the two he saw when he first started this journey all agree on the road he is taking. At this point I am a firm believer that go to a CANCER HOSPITAL...not just a doctor who specializes...Find the BEST PLACE and don't take your time.ewalton1 wrote: To comment on the post below: In my husband's case, at age 50, PSA 35, the urologist recommended surgery, but the second opinion doc (a well-known surgeon in our area said he wished he could do something for Ed, but surgery wouldn't do him any good) and the 3rd opinion doc felt that the first doctor should be sued for malpractice for even suggesting surgery because the primary tumor sends information to prevent the secondary tumors from growing. If you took out the primary tumor in the prostate by either radiation or surgery, then there is nothing to prevent the secondary tumors from growing. The 2nd doc and 3rd doc said that any PSA over 10 is likely to be in a secondary place, even if it does not show up on any scan. Therefore, if the 2nd and 3rd doc is right, which in fact matches with current research that is out now about this..you can find it on the net..(and that's what we chose to do), you should not be getting rid of the primary tumor. As soon as the primary is gone, you'll find the cancer spreading in the bones like wildfire. Ed's PSA has stayed very stable these last 3 years...it's still around 30. Once it dipped to 21, and once it jumped up to the 40's, but overall, it stayed around 30. We are trying many things, trying to see what works, and haven't found the solution yet. Joani Walton Re: PSA 25.7 Gleason 8 - I've only been a member of this group for 7 months but I have learned a lot from reading posts from others. Forgive me if I'm way off base here, because I try hard not to give advice to people in this group because I'm NOT a doctor. However, at age 43 unless your cancer has already spread out of the prostate, most doctors will recommend that you treat your cancer aggressively with either radiation or possibly even prostate removal. I will go out on a limb (hoping to be challenged) by saying that with a PSA of 25.7 and a Gleason 8, you should definitely be going after this cancer with a vengeance. Sorry I didn't answer your question but Im worried about you man or I wouldn't be writing this! Hopefully some others will add their comments. M ick Hicks wrote: hell0I am 43 25.7 psa and gleason 8. I ahev seen 4 doctorsand they all reccomend 2 years hormone and imrtradiation. I have no sypmtoms and i am really notsure what to do for treatment. I have posed thisquestion before and have got many responses (thnaks) Iam writing this morning to ask about capsaisin. I donot want to do any of the treament options reccomendedso far but i dont want to just do nothing either. I amgoing out of my hmo network to see doctors (paying outof pocket). I asked the oncologist from ceders ifthere was some other type treament i could have (lessinvasive) and he gave me the name of dr. steventucker. I called him and told him a bit of my stortand how i was reffered. he is a oncolgist but myquestion to tyhe groupis after seeing 4 doctors thathave given me the same diag and treatmentreccomendations that i AM NOT IN AGREEANT WITH, WHATCOULD THIS GUY POSSIBLY SHARE WITH ME THAT'S LESSINVASIVE OR AM I WAISTING MY MONEY ? I cant put aprice tag on my health but i AM NOT INTO THROWING AWAYMONEY ! FORGIVE THE SPELLING ! God rewards those that keep on keeping on. Stay positive. Think positive. Pray positive. And talk positive. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. There are just two rules for this group 1 No Spam 2 Be kind to othersTry to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 My story and comment discovery psa 4 may of 04 second test psa 11.6 november 04 ct's mri bone scan neg surgery aborted because it had already invaded the lymphatic system, lymph node totally consumed and 2cm in size. HT started psa dropped but not to zero current psa rising total ht blockade Point ct mri bone scans didnt show anything but my cancer was well on its way. Point my primary tumor is still inside me yet my cancer is still going and going Point if they dont do surgery there may be tumors hiding and waiting Good luck ewalton1 wrote: To comment on the post below: In my husband's case, at age 50, PSA 35, the urologist recommended surgery, but the second opinion doc (a well-known surgeon in our area said he wished he could do something for Ed, but surgery wouldn't do him any good) and the 3rd opinion doc felt that the first doctor should be sued for malpractice for even suggesting surgery because the primary tumor sends information to prevent the secondary tumors from growing. If you took out the primary tumor in the prostate by either radiation or surgery, then there is nothing to prevent the secondary tumors from growing. The 2nd doc and 3rd doc said that any PSA over 10 is likely to be in a secondary place, even if it does not show up on any scan. Therefore, if the 2nd and 3rd doc is right, which in fact matches with current research that is out now about this..you can find it on the net..(and that's what we chose to do), you should not be getting rid of the primary tumor. As soon as the primary is gone, you'll find the cancer spreading in the bones like wildfire. Ed's PSA has stayed very stable these last 3 years...it's still around 30. Once it dipped to 21, and once it jumped up to the 40's, but overall, it stayed around 30. We are trying many things, trying to see what works, and haven't found the solution yet. Joani Walton Re: PSA 25.7 Gleason 8 - I've only been a member of this group for 7 months but I have learned a lot from reading posts from others. Forgive me if I'm way off base here, because I try hard not to give advice to people in this group because I'm NOT a doctor. However, at age 43 unless your cancer has already spread out of the prostate, most doctors will recommend that you treat your cancer aggressively with either radiation or possibly even prostate removal. I will go out on a limb (hoping to be challenged) by saying that with a PSA of 25.7 and a Gleason 8, you should definitely be going after this cancer with a vengeance. Sorry I didn't answer your question but Im worried about you man or I wouldn't be writing this! Hopefully some others will add their comments. M ick Hicks wrote: hell0I am 43 25.7 psa and gleason 8. I ahev seen 4 doctorsand they all reccomend 2 years hormone and imrtradiation. I have no sypmtoms and i am really notsure what to do for treatment. I have posed thisquestion before and have got many responses (thnaks) Iam writing this morning to ask about capsaisin. I donot want to do any of the treament options reccomendedso far but i dont want to just do nothing either. I amgoing out of my hmo network to see doctors (paying outof pocket). I asked the oncologist from ceders ifthere was some other type treament i could have (lessinvasive) and he gave me the name of dr. steventucker. I called him and told him a bit of my stortand how i was reffered. he is a oncolgist but myquestion to tyhe groupis after seeing 4 doctors thathave given me the same diag and treatmentreccomendations that i AM NOT IN AGREEANT WITH, WHATCOULD THIS GUY POSSIBLY SHARE WITH ME THAT'S LESSINVASIVE OR AM I WAISTING MY MONEY ? I cant put aprice tag on my health but i AM NOT INTO THROWING AWAYMONEY ! FORGIVE THE SPELLING ! God rewards those that keep on keeping on. Stay positive. Think positive. Pray positive. And talk positive. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. I always do what the voices in my head tell me. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 anyone getting have experience with hormone treatment followed by imrt therapy (radiation). I am not currently being treated because i am very scared of side effects. I have read about the side effects but would love to hear the experience of someone who is actaully haveing this type of treatment. I AM 43 WITH 25.7 PSA AND GLEASON OF 8. --- ewalton1 wrote: > To comment on the post below: > In my husband's case, at age 50, PSA 35, the > urologist recommended surgery, but the second > opinion doc (a well-known surgeon in our area said > he wished he could do something for Ed, but surgery > wouldn't do him any good) and the 3rd opinion doc > felt that the first doctor should be sued for > malpractice for even suggesting surgery because the > primary tumor sends information to prevent the > secondary tumors from growing. If you took out the > primary tumor in the prostate by either radiation or > surgery, then there is nothing to prevent the > secondary tumors from growing. The 2nd doc and 3rd > doc said that any PSA over 10 is likely to be in a > secondary place, even if it does not show up on any > scan. Therefore, if the 2nd and 3rd doc is right, > which in fact matches with current research that is > out now about this..you can find it on the net..(and > that's what we chose to do), you should not be > getting rid of the primary tumor. As soon as the > primary is gone, you'll find the cancer spreading in > the bones like wildfire. Ed's PSA has stayed very > stable these last 3 years...it's still around 30. > Once it dipped to 21, and once it jumped up to the > 40's, but overall, it stayed around 30. We are > trying many things, trying to see what works, and > haven't found the solution yet. > Joani Walton > Re: PSA 25.7 > Gleason 8 > > > - I've only been a member of this group > for 7 months but I have learned a lot from reading > posts from others. Forgive me if I'm way off base > here, because I try hard not to give advice to > people in this group because I'm NOT a doctor. > However, at age 43 unless your cancer has already > spread out of the prostate, most doctors will > recommend that you treat your cancer aggressively > with either radiation or possibly even prostate > removal. I will go out on a limb (hoping to be > challenged) by saying that with a PSA of 25.7 and a > Gleason 8, you should definitely be going after this > cancer with a vengeance. Sorry I didn't answer your > question but Im worried about you man or I wouldn't > be writing this! Hopefully some others will add > their comments. > > M ick > > > > Hicks wrote: > hell0 > I am 43 25.7 psa and gleason 8. I ahev seen 4 > doctors > and they all reccomend 2 years hormone and imrt > radiation. I have no sypmtoms and i am really > not > sure what to do for treatment. I have posed this > question before and have got many responses > (thnaks) I > am writing this morning to ask about capsaisin. > I do > not want to do any of the treament options > reccomended > so far but i dont want to just do nothing > either. I am > going out of my hmo network to see doctors > (paying out > of pocket). I asked the oncologist from ceders > if > there was some other type treament i could have > (less > invasive) and he gave me the name of dr. steven > tucker. I called him and told him a bit of my > stort > and how i was reffered. he is a oncolgist but my > question to tyhe groupis after seeing 4 doctors > that > have given me the same diag and treatment > reccomendations that i AM NOT IN AGREEANT WITH, > WHAT > COULD THIS GUY POSSIBLY SHARE WITH ME THAT'S > LESS > INVASIVE OR AM I WAISTING MY MONEY ? I cant put > a > price tag on my health but i AM NOT INTO > THROWING AWAY > MONEY ! FORGIVE THE SPELLING ! > > > > > > > God rewards those that keep on keeping on. Stay > positive. Think positive. Pray positive. And talk > positive. > > > ------------------------------------------------------------------------------ > Talk is cheap. Use Yahoo! Messenger to make > PC-to-Phone calls. Great rates starting at 1¢/min. > > There are just two rules for this group > 1 No Spam > 2 Be kind to others > > Try to delete old material that is no longer > applying when clicking reply > Try to change the title if the content requires it > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 Would someone explain what a Gleason is for me? I am still new to this whole thing. Thank you - Hicks wrote: anyone getting have experience with hormone treatmentfollowed by imrt therapy (radiation). I am notcurrently being treated because i am very scared ofside effects. I have read about the side effects butwould love to hear the experience of someone who isactaully haveing this type of treatment. I AM 43 WITH25.7 PSA AND GLEASON OF 8. --- ewalton1 wrote:> To comment on the post below:> In my husband's case, at age 50, PSA 35, the> urologist recommended surgery, but the second> opinion doc (a well-known surgeon in our area said> he wished he could do something for Ed, but surgery> wouldn't do him any good) and the 3rd opinion doc> felt that the first doctor should be sued for> malpractice for even suggesting surgery because the> primary tumor sends information to prevent the> secondary tumors from growing. If you took out the> primary tumor in the prostate by either radiation or> surgery, then there is nothing to prevent the> secondary tumors from growing. The 2nd doc and 3rd> doc said that any PSA over 10 is likely to be in a> secondary place, even if it does not show up on any> scan. Therefore, if the 2nd and 3rd doc is right,> which in fact matches with current research that is> out now about this..you can find it on the net..(and> that's what we chose to do), you should not be> getting rid of the primary tumor. As soon as the> primary is gone, you'll find the cancer spreading in> the bones like wildfire. Ed's PSA has stayed very> stable these last 3 years...it's still around 30. > Once it dipped to 21, and once it jumped up to the> 40's, but overall, it stayed around 30. We are> trying many things, trying to see what works, and> haven't found the solution yet. > Joani Walton > Re: PSA 25.7> Gleason 8> > > - I've only been a member of this group> for 7 months but I have learned a lot from reading> posts from others. Forgive me if I'm way off base> here, because I try hard not to give advice to> people in this group because I'm NOT a doctor. > However, at age 43 unless your cancer has already> spread out of the prostate, most doctors will> recommend that you treat your cancer aggressively> with either radiation or possibly even prostate> removal. I will go out on a limb (hoping to be> challenged) by saying that with a PSA of 25.7 and a> Gleason 8, you should definitely be going after this> cancer with a vengeance. Sorry I didn't answer your> question but Im worried about you man or I wouldn't> be writing this! Hopefully some others will add> their comments.> > M ick> > > > Hicks wrote:> hell0> I am 43 25.7 psa and gleason 8. I ahev seen 4> doctors> and they all reccomend 2 years hormone and imrt> radiation. I have no sypmtoms and i am really> not> sure what to do for treatment. I have posed this> question before and have got many responses> (thnaks) I> am writing this morning to ask about capsaisin.> I do> not want to do any of the treament options> reccomended> so far but i dont want to just do nothing> either. I am> going out of my hmo network to see doctors> (paying out> of pocket). I asked the oncologist from ceders> if> there was some other type treament i could have> (less> invasive) and he gave me the name of dr. steven> tucker. I called him and told him a bit of my> stort> and how i was reffered. he is a oncolgist but my> question to tyhe groupis after seeing 4 doctors> that> have given me the same diag and treatment> reccomendations that i AM NOT IN AGREEANT WITH,> WHAT> COULD THIS GUY POSSIBLY SHARE WITH ME THAT'S> LESS> INVASIVE OR AM I WAISTING MY MONEY ? I cant put> a> price tag on my health but i AM NOT INTO> THROWING AWAY> MONEY ! FORGIVE THE SPELLING !> > > > > > > God rewards those that keep on keeping on. Stay> positive. Think positive. Pray positive. And talk> positive. > > >------------------------------------------------------------------------------> Talk is cheap. Use Yahoo! Messenger to make> PC-to-Phone calls. Great rates starting at 1¢/min. > > There are just two rules for this group > 1 No Spam > 2 Be kind to others> > Try to delete old material that is no longer> applying when clicking reply> Try to change the title if the content requires it> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 Joani and all The theory about the removal of the main tumor allowing distant mestasised sites to flourish has been expounded for many years by Dr Judah Folkman, amongst others, and reflects what many nurses have ‘known’ for years. There was something of an uproar when Dr Folkman presented the result so of studies that seemed to support his position and this is still a very contentious area. I am sorry to say that I can’t find any references in my chaotic filing system, but anyone interested should be able to chase down Folkman’s work. All the best Terry Herbert in Melbourne Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June '04: TURP. Mar '06 PSA 17.40 fPSA 23% My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of ewalton1 Sent: 03 June 2006 11:56 PM To: ProstateCancerSupport Subject: Re: PSA 25.7 Gleason 8 To comment on the post below: In my husband's case, at age 50, PSA 35, the urologist recommended surgery, but the second opinion doc (a well-known surgeon in our area said he wished he could do something for Ed, but surgery wouldn't do him any good) and the 3rd opinion doc felt that the first doctor should be sued for malpractice for even suggesting surgery because the primary tumor sends information to prevent the secondary tumors from growing. If you took out the primary tumor in the prostate by either radiation or surgery, then there is nothing to prevent the secondary tumors from growing. The 2nd doc and 3rd doc said that any PSA over 10 is likely to be in a secondary place, even if it does not show up on any scan. Therefore, if the 2nd and 3rd doc is right, which in fact matches with current research that is out now about this..you can find it on the net..(and that's what we chose to do), you should not be getting rid of the primary tumor. As soon as the primary is gone, you'll find the cancer spreading in the bones like wildfire. Ed's PSA has stayed very stable these last 3 years...it's still around 30. Once it dipped to 21, and once it jumped up to the 40's, but overall, it stayed around 30. We are trying many things, trying to see what works, and haven't found the solution yet. Joani Walton Re: PSA 25.7 Gleason 8 - I've only been a member of this group for 7 months but I have learned a lot from reading posts from others. Forgive me if I'm way off base here, because I try hard not to give advice to people in this group because I'm NOT a doctor. However, at age 43 unless your cancer has already spread out of the prostate, most doctors will recommend that you treat your cancer aggressively with either radiation or possibly even prostate removal. I will go out on a limb (hoping to be challenged) by saying that with a PSA of 25.7 and a Gleason 8, you should definitely be going after this cancer with a vengeance. Sorry I didn't answer your question but Im worried about you man or I wouldn't be writing this! Hopefully some others will add their comments. M ick Hicks wrote: hell0 I am 43 25.7 psa and gleason 8. I ahev seen 4 doctors and they all reccomend 2 years hormone and imrt radiation. I have no sypmtoms and i am really not sure what to do for treatment. I have posed this question before and have got many responses (thnaks) I am writing this morning to ask about capsaisin. I do not want to do any of the treament options reccomended so far but i dont want to just do nothing either. I am going out of my hmo network to see doctors (paying out of pocket). I asked the oncologist from ceders if there was some other type treament i could have (less invasive) and he gave me the name of dr. steven tucker. I called him and told him a bit of my stort and how i was reffered. he is a oncolgist but my question to tyhe groupis after seeing 4 doctors that have given me the same diag and treatment reccomendations that i AM NOT IN AGREEANT WITH, WHAT COULD THIS GUY POSSIBLY SHARE WITH ME THAT'S LESS INVASIVE OR AM I WAISTING MY MONEY ? I cant put a price tag on my health but i AM NOT INTO THROWING AWAY MONEY ! FORGIVE THE SPELLING ! God rewards those that keep on keeping on. Stay positive. Think positive. Pray positive. And talk positive. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 Hi - My husband is began his hormone therapy in March 2006 and his IMRT therapy the first of May. He just turned 47. I told him that I'd seen your posts and he said he'd be happy to talk with you - he's not much of a typist. Email me privately if you'd like his number (kate@...). He is in Florida finishing up his IMRT - Tuesday is his last scheduled session and then he'll have brachytherapy in late June. He has had a few of the side effects from the hormone treatments (hot flashes and breast tenderness), but nothing that is too dramatic. He is in good physical shape. It took about a month for the Lupron shot to " take effect " and interrupt out sex life but approximately 4 weeks after that he came home from Florida for the weekend and we were very close to back to normal. He doesn't have to have another shot until July. What I'm trying to tell you is that the symptoms (for him) ebb and flow. We spoke with several patients that had had their treatment at the same place he is and they continue to have full and active physical relationships. We, too, were interested in speaking with someone close to my husband's age. Please feel free to contact me/us. We'd love to help in any way possible. > is anybody close to age 43 ? I would like to hear > your story no matter what type treatment. > > --- Hicks wrote: > > > anyone getting have experience with hormone > > treatment > > followed by imrt therapy (radiation). I am not > > currently being treated because i am very scared of > > side effects. I have read about the side effects but > > would love to hear the experience of someone who is > > actaully haveing this type of treatment. I AM 43 > > WITH > > 25.7 PSA AND GLEASON OF 8. > > Quote Link to comment Share on other sites More sharing options...
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