Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 am the care giver for my husband who has IPF.He was diagnosed in Sept. of last 2005. He had a lung biopsy...I have done a lot of research on line but can't seem to find information regarding what to expect during the end stages. His PFT is down to 27 and sats drop to 73-80 just walking a few feet. He is on 4-5 liters of oxygen 24/7, has coughing most of the time (non productive) Quite often he does get hypoxia....Feet hands and around his mouth are white most of the time...There do not seem to be any support groups on the Sarasota , Florida area....do you know where I can talk to people on line or get information as to what to expect over the long haul. Thanks you geri johnson Quote Link to comment Share on other sites More sharing options...
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