New member intro and seeking thoughts or advice

[Guest guest]

My name is Todd and I've joined the group because my 9 year old son has recently

been diagnosed with lyme. We were very misfortunate that 3.5 years ago he was

diagnosed incorrectly with having JRA instead. So for the past 3.5 years he has

been on prednisone and naproxen. Along the way the rheumatologist tried the 2nd

level drugs methotrexate, arava, and cyclosporin only to have him get the side

effects of each of these medications. We finally pulled away from our

rheumatologist when he wanted us to start giving our son remnicade which has a

side effects we couldn't live with.

We did try a chinese herb doctor for a bit and unfortunately tried an

alternative medicine doctor for about 8 months who charges major $$ and really

only monitored your levels like Mg, thyroid, etc... and tried to give you

" tinctures " to balance your numbers out instead of helping us realize why those

things were out of whack to begin with. He even told us we shouldn't do the

lyme test because it was expensive and that our son didn't have it anyway.

During the time with this doctor we did try HBOT but were doing it for JRA and

not lyme also(not going as deep as lyme patients do).

After leaving this doctor, we found a doctor who tested him for lyme and it came

back positive. We opted to try hyperbarics again this time at the correct

depth. We did meet several lyme patients at the HBOT facility and found out

about rife machines. Later contact with some of the lymies led to realizing the

HBOT hasn't work for any them either. They are now a few months into using

their coil machines and say they are finally seeing the light at the end of the

tunnel meaning they know they are on the right track and that something is

finally working for them.

We are getting ready to start a plan of attack and just wanted some advice as to

how it sounds from people that have already been through this. Our situation is

rather difficult and challenging for many reasons:

1) our son has had this for probably 4-4.5 years

2) misdiagnosed and given prednisone for 3.5 years which is the worst thing

to take if you have lyme so he is in a bad state

3) due to either the lyme or the medications all these years he is allergic

to so many foods which makes meals near impossible

4) he also had sensory integration disorder as a baby and still is mega

sensitive to so many things(doctor said what we feel is a pain of level 1 or 2

he feels as though it is a 9)

5) he is only 9, weight down to 42 lbs(was 39.5 after doctor gave us a

supplement to help him sleep better yet contained an appetite suppressant as a

main ingredient).

6) with him being 9 we just can't attack this like an adult who knows they

need to drink lots of water and other methods to detox.

We did do a 10 second coil machine treatment(freq 432) this past Sunday at a

friends house and either he got another virus somewhere or he is herxing pretty

good(always so hard to tell with him). So after some more reading and such here

is what we were thinking of doing. We were going to try and use the coil

machine in conjunction with the marshall protocol and using benicar. Is there

anyone in the group that has young children with lyme for so long and tried this

before? If so how did it go?

Our son has been bedridden for the past 5 months and we really want to start

heading down a road to recovery. Any thoughts or advice is greatly appreciated.

Thanks so much,

Todd