Re: -Bladder Problems & TSC

[Guest guest]

Just a Note to say.........Not always. But it is a very common Symptom and

often the one which will show up first, just Not Always.

You would think it either would or would not be Neurogenic. Don't see how

you could have a Non-Neurogenic, Neurogenic Bladder. Because what you

describe sounds like a Neurogenic Bladder.

There are some, including myself, where it wasn't necessary to have the

Urodynamics Study done before Surgery, or even after Surgery. Atleast for

me, there was no reason for me to have one for either of my 2 Detetherings.

That's not saying though that there wouldn't be a reason to have one if I

were to have another Detethering. But I am not saying that everybody doesn't

need one, there are many who do.

Just some Ramblings from Brande.

Me

Nebraska, USA

mymocha@...

Remember there are no Guarentees with this Surgery.

> In addition, before my neurosurgeon would accept my case he had me go

> through urodynamics first to make sure there were in fact bladder

> issues, because this goes hand in hand w/TSC. Yes the diagnosis of

> Non-neurogenic-neurogenic Bladder means when the bladder is full, it

> doesn't send a message to the brain to void.

>

> Dr. told me that the surgery would prevent the bladder from

> getting any worse, but would not likely reverse the problem. The

> urologist said that I may have to use a catheder forever.

>

> Anyone diagnosed w/TSC should have urodynamics done prior to the

> surgery and 6 months after.