Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi Barbie, Welcome to the PSC support group. I'm Janet from Ohio, and my husband was diagnosed 8/99 PSC & UC. I've recently joined the group, too and have found comfort, encouragement and education from many members. Glad you joined! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 Tricia, Welcome to the group!!! Your life sounds a lot like mine. I am 31 and will be married for 11 years in August. I am also a mother, I have four boys ranging from 1 year to 10 years. I am also in stage one with PSC. I have been pretty much asymptomattic, mine was found thru routine blood tests this spring. I take 900mg of actigall a day. I know what you mean when it comes to losing weight, I have lost 17lbs since I was put in actigall the beginning of April. At first I was happy cause I still had some baby weight to loose, but now I am beginning to get a little worried. I was wondering why you went off Actigall and if it had anything to do your weight loss. I am sorry to hear about your mother, but am glad to know she is at peace and no longer suffering. How old was she and how long had she had liver problems? I look forward to talking with more in the future!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 , Have you lost weight because of taking the Actigall? Are you having side effects that is causing this? Did you gradually build up to your dose or did you jump right in? My doctor just prescribed this for me at a dosage of 1500 mg/day. I haven't started taking it yet - just want to get some info first. Blessings, Barby married 20 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 Barby, Hi! How are you? I really am not sure the answer to your question. I have only PSC not UC or any other problem. I started taking the Actigall all at once, I did not notice any real problems except for the fact that if I ate something with a lot of fat in it, it would go right thru me. So I stopped eating anything that would bother me (which could be reason for weight lose, less fat in diet). That and I seem to not really have much of an appetite, things seem to taste different. My husband thinks it just stress due to finding out about the PSC and that I will get back to normal once I get over the shock of being diagnosed with this, especially since I have no signs or symptoms of the disease. Sorry I have no real answer for you, but I am going to keep taking the Actigall, I think the benefits out way the side effects, plus I think most people do not have any side effects at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 Tina, I just wanted to say HI!! and it is nice to meet you also. I agree with you, I will continue to take the Actigall, I think the benefits out way the side effects. I thought it was funny, that I too weigh 110lbs. I am 5 foot tall, how about you, not to many people I know weigh that. Well, hope to talk to you soon!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2000 Report Share Posted June 5, 2000 Barby, I have one Just one son he is 9 years old. Thank you for the friendly welcome. I'm glad to actually find some place where people will know exactly what I'm going through. I hope to get to know everybody better!!!! Thank You Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 DAWN, THIS IS JOHN . I AM DOING OK. I AM STILL A LITTLE TIRED BUT THEY TELL ME THAT WILL GO AWAY. GLAD TO HEAR FROM YOU AND KEEP IN TOUCH . JOHN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2010 Report Share Posted April 4, 2010 Blessings to all the parents and children in this group! Happy Easter! Love from Jennie and Dillon!! Quote Link to comment Share on other sites More sharing options...
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