Re: Seizures/

[Guest guest]

Hi ,

I am new here but have been seeing your frustrating posts about

nobody seeming to know or find out what is the matter.

If I were you I would go see a DO which is a dr of osteopathy. He

might be more willing to schedule you for tests to see what is the

matter.

I regards to your numbness. Yes a stroke can cause those symptoms

but also any kind of injury to your spinal cord or even pressure on

the cord can cause this.

I have a problem mainlt with the C8 through L1 areas of the spine

yet some my numbness and tingleing are in places that don't make

sense to the doctors. I also have had repeated episode of autonomic

dysreflexia which do nor coorelate to my spinal injury levels but

they happen.

The doctors I see have come to resign themselves to the fact that my

symptoms are all spinal related, even the temperature change from my

upper arms to my wrist does not make sense to them even though they

have measured a 2 degree change between my shoulder and my elbow and

then back up again at the wrist it goes back up 2 degrees.

Sometimes we baffle the docs and instead of them telling us they

start to disbelive you and say that these things are not happeneing

to you. STand your ground and demand that they do testing on you to

check out your symptoms more clearly. You can ask for blood work that

is relatively inexpensive which would includ a SED RATE and a C-

REACTIVE PROTEIN test to see if the inflamation in your body is

showing up in your blood work. Then they can go from there.

Your best bet is to change doctors. Unless you can convince yours to

start letting you be involved in your own care.

I always make sure to tell the places where I am going for the tests

to fax them to my fax number, SOme of them believe they are faxing

them to another doctor but most just go ahead and do it after they

have a signed consent. they are your records and your results you

should not have to wait this long to find out what is going on.

Good luck.

Christi